Advice and advocacy coordinator jobs in Birmingham

Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.

Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!

Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.

You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.

Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.

Who are we?

Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia. 

We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition. 

We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors. 

Members of myaware have full access to a wide range of support services and events including our specialist  welfare rights advisor. 

Myaware supports people with myasthenia and their families.  We campaign for better medical services for people with myasthenia and work to inform medical professionals. 

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK. 

Benefits

• Generous holiday allowance
• Perkbox account (global benefits and rewards platform)
• Group Life Assurance after 6 months of service 
• NEST workplace pension scheme
• Free inhouse staff benefits and welfare advice 
• Investment in your personal and professional development
• Annual salary review

Discretionary £1,000 increase after successful completion of probationary period

Application Instructions

Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026

Initial screening chats will take place on Thursday 14th May 2026

Interviews will be week commencing 25th May 2026

Interviews will be held over Microsoft Teams

Applications submitted without a tailored cover letter will not be considered.

This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.

This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.

Due to educational commitments and a strategic review of our services, our Founding Director is stepping back from leading the organisation. This creates an exciting opportunity for a Managing Director to join a women-led movement shaped by lived experience.

Working closely with the Founder, Board, and team, you will take the lead in implementing our strategy, turning vision into action, and ensuring our work is sustainable, impactful, and ready to grow. You will play a central role in securing financial stability, strengthening income streams, and building a resilient organisation for the future.

We are looking for a proactive and experienced leader who can strengthen systems, processes, and team culture, while supporting and developing a small, dedicated team. This role is not just about leadership, but about working alongside others - someone who is human, approachable, and a genuine team player.

You will value collaboration and co-production and feel comfortable working in a culture rooted in trust, flexibility, and compassion. You will bring the confidence to represent the organisation externally, alongside the humility to listen, learn, and grow with the team.

This UK-based, remote role sits within a small, friendly organisation committed to reflection, learning, and continual improvement. You will help shape how we evolve, ensuring we deliver safe, high-quality, trauma-informed, and gender-sensitive support for women affected by their own or someone else's gambling addiction.

We are seeking someone who aligns with our values, understands the realities women face in a male-dominated space, and can lead with humanity and humility.

The Managing Director will be accountable for:

• Strategic direction
• Financial sustainability
• Safeguarding and risk oversight
• Commissioner relationships
• Organisational culture and values

Key Responsibilities

Strategic Leadership

• Lead development and delivery of the 3-year strategic plan.
• Ensure organisational growth aligns with mission and peer-led ethos.
• Identify opportunities for funding, partnerships and influence.
• Ensure services evolve in line with women’s needs and policy context.

Governance & Risk Oversight

• Maintain oversight of safeguarding and clinical governance.
• Ensure robust risk management and compliance systems are in place.
• Report quarterly to the Board on performance, finance and risk.
• Ensure Delegated Authority Framework is implemented effectively.
• Act as Deputy Designated Safeguarding Lead.

Financial Sustainability

• Accountable for organisational budget and reserves strategy.
• Oversee funding pipeline and income diversification.
• Negotiate and sign contracts within Board-approved limits.
• Ensure staffing model remains financially sustainable.

Leadership & Organisational Culture

• Lead and support staff team.
• Maintain trauma-informed, women-centred organisational culture.
• Ensure appropriate delegation and clear accountability.
• Protect staff wellbeing and prevent executive overload.

External Representation & Influence

• Represent the organisation with commissioners, funders and partners.
• Build relationships with VCSE organisations, OHID, NHSE, ICBs, Local Authorities and sector bodies.
• Position the organisation as a credible specialist provider.
• Support policy and influence activity at strategic level.

Board Relationship

• Work closely with the Chair
• Provide clear and transparent reporting.
• Support Board development and portfolio governance.
• Ensure Board receives timely information on risk and performance.

Person Specification

Essential Experience

• Senior leadership experience within VCSE, health or social care.
• Experience in women-specific services.
• Experience managing budgets and financial sustainability including evidence of successful fundraising and income diversification.
• Experience working with statutory commissioners.
• Experience overseeing safeguarding in complex services.
• Experience leading multi-disciplinary teams.

Desirable Experience

• Experience in addiction, gambling harm or mental health sectors.
• Experience within CIC or charity governance structures.
• Experience influencing policy or commissioning frameworks.
• Understanding and appreciation of lived experience communities and peer support spaces

Essential Skills

• Strategic thinking and planning
• Financial acumen
• Strong governance understanding
• Stakeholder diplomacy
• Ability to delegate effectively
• Crisis management capability
• Clear written and verbal communication

We kindly ask applicants to avoid submitting AI generated responses to encourage a real sense of who you are. 
 

Our operational days are Tuesday, Wednesday, Thursday. We operate flexibly but our regular team meetings are held on a Wednesday and this role is expected to be accessible for our staff within these days. 

An exciting oppourtunity to lead compassionate, community-driven perinatal services that make a real difference to families every day. Shape how frontline support is delivered across our Baby Bank, Community Doula service, infant feeding support, and volunteer programmes in Birmingham. Ensuring safe, trauma-informed care reaches those who need it most.

As Head of Service at Elayos, you’ll turn strategy into meaningful action. You will lead staff and volunteers, strengthen safeguarding practice, embed reflective learning, and champion lived experience at the heart of everything we do. This is a rare opportunity to combine operational leadership with purpose, impact, and values-led service development in a growing organisation supporting mothers and birthing people, who find themselves disadvantaged, during pregnancy, birth and early parenthood.