Advocate volunteer roles in epping forest, west sussex

Trustee vacancy: UK Bangladesh Education Trust (UKBET)

Founded in 1993, the UK Bangladesh Education Trust [UKBET], a UK registered charity and international NGO registered in Bangladesh, is looking for one or two new dynamic trustees to join our board, supporting the charity’s mission to help end child labour in Bangladesh.  

Our Doorstep Learning Programme engages and supports child domestic workers (95% girls) and their families. Trained and supported community teachers provide three individual or small group literacy, numeracy and life skills sessions for these working children as well as signposting for their families. A key aim is to support the children’s progression out of child labour to school or, for older children to vocational training. UKBET’s Family Futures microgrants address the root causes of child labour – family poverty.  Parents can use these grants to start or continue small businesses to increase their family income, removing the need to send their children to work and enabling them to join school or, for older working children, vocational training.

Our work is funded through charitable donations, fundraising and grants.

The UK Board of Trustees set the direction for the charity and support the work of the Executive Director and his team who also benefit from an Advisory Group based in Sylhet, Bangladesh.  We meet on line three or four times a year, and as needed, plus try to have an annual in person away day meeting. There are currently four experienced Trustees with a range of expertise across finance, income generation and education. We are seeking one or two new Trustees to join us, ideally leading in one or more of the following areas:

· Organisational efficiency to assume the role of Secretary

· Knowledge and connections to build interest and financial support from Bangladesh and/or the British Bangladeshi community

· Skills and expertise in social media and comms.

For more details on the role, please see the supporting Background information and JD.

To apply, please send your CV with a covering email outlining how you meet the JD criteria and telling us about any special areas of expertise and interest you could bring to the role.

Our trustees play a vital role in making sure that ESS Education and Support Services achieves its core purpose. They oversee the overall management and administration of the charity. They also ensure that ESS Education and Support Services has a clear strategy and that our work and goals are in line with our vision. Just as importantly, they support and challenge the executive team to enable ESS Education and Support Services to grow and thrive, and through this, achieve our mission.

Board members have a collective responsibility. This means that trustees always act as a group and not as individuals.

Duties:

· Support and provide advice on ESS Education and Support Service’s purpose, vision, goals and activities.

· Approve operational strategies and policies, and monitor and evaluate their implementation.

· Oversee ESS Education and Support Service’s financial plans and budgets and monitor and evaluate progress.

· Ensure the effective and efficient administration of the organisation.

· Ensure that key risks are being identified, monitored and controlled effectively.

· Review and approve ESS Education and Support Services’ financial statements.

· Provide support and challenge to ESS Education and Support Services’ CEO in the exercise of their delegated authority and affairs.

· Keep abreast of changes in ESS Education and Support Services’ operating environment.

· Contribute to regular reviews of ESS Education and Support services’ own governance. Attend Board meetings, adequately prepared to contribute to discussions.

· Use independent judgment, acting legally and in good faith to promote and protect ESS Education and Support Service’s interests, to the exclusion of their own personal and/or any third-party interests.

· Contribute to the broader promotion of ESS Education and Support Services objects, aims and reputation by applying your skills, expertise, knowledge, and contacts.

As a small charity, there will be times when the trustees will need to be actively involved beyond Board meetings. This may involve scrutinising board papers, leading discussions, focusing on key issues, providing advice and guidance on new initiatives, presenting externally, or other issues in which the trustee has special expertise.

What we are looking for

We are looking for people willing to bring energy, enthusiasm and commitment to the role, and who will broaden the diversity of thinking on our board.

ESS Education and Support Service are looking for Trustees from the following backgrounds: Legal, Financial.

Personal skills and qualities

· Willingness and ability to understand and accept their responsibilities and liabilities as trustees and to act in the best interests of the organisation.

· Ability to think creatively and strategically, exercise good, independent judgement and work effectively as a board member.

· Effective communication skills and willingness to participate actively in discussion.

· A strong personal commitment to equity, diversity, and inclusion.

· Enthusiasm for our vision and mission.

· Willingness to lead according to our values.

· Commitment to Nolan’s seven principles of public life: selflessness, integrity, objectivity, accountability, openness, honesty and leadership.

Terms of appointment

Terms of office

· Trustees are appointed for a 3 year term of office, renewal for 2 further terms to a maximum of 9 years.

· This is a voluntary position, but reasonable expenses are reimbursed.

Time commitment

· Attending 6 Board meetings annually. Currently meetings are held virtually.

· Attending charity events and other such commitments.

Location: Remote / Hybrid (UK-based)
Type: Freelance / Contract – Flexible hours
Revenue Share: 70% to Solicitor / 30% to Guardian Light Enterprises LTD

About Guardian Light Enterprises LTD

At Guardian Light Enterprises LTD, we are more than a social enterprise — we are a beacon of hope for children, teenagers, and single-parent families facing homelessness, abuse, and hardship.

Our mission is to empower and protect the most vulnerable, giving them the tools, legal support, and guidance they need to build brighter futures. Every session you deliver as a solicitor doesn’t just provide legal advice — it gives someone dignity, hope, and a chance to reclaim their life.

Role Purpose

We are seeking compassionate and dedicated freelance solicitors to provide expert legal guidance to our beneficiaries. This role is flexible, allowing you to use your legal expertise to make a tangible difference in the lives of children, teenagers, and single-parent families who urgently need your support.

You will:

• Offer legal advice on family law, employment rights, housing, or other related areas

• Guide clients through complex legal processes with clarity and empathy

• Provide practical, actionable advice that empowers clients to take control of their lives

• Collaborate with GLF staff and volunteers to ensure clients are supported holistically

Hours & Commitment

• Recommended: 6–12 hours per month at the early stage

• Sessions can be scheduled flexibly to suit your availability and client needs

• Each session revenue split: 70% to you, 30% reinvested into GLF programs

Compensation & Payment

• Paid per session based on agreed client engagement

• Revenue sharing model ensures fair and transparent payment

• Payment schedule: monthly for simplicity, with detailed statements provided

• Additional incentives: high-performing solicitors may be offered Board Member or Advisory Board roles

Skills & Experience

• Qualified solicitor in the UK, practising in relevant areas (family law, housing, employment, or youth-focused law)

• Strong empathy, patience, and communication skills

• Comfortable working remotely and in collaboration with a mission-driven team

• Passion for social justice, children’s rights, and supporting vulnerable communities

Policies & Safeguarding

• DBS check required (Enhanced, £12.50 volunteer rate)

• Commitment to safeguarding children and vulnerable adults

• Adherence to GLF Confidentiality, Data Protection, and Equality policies

Benefits

• Directly impact the lives of vulnerable children, teens, and families

• Flexible working hours to suit your schedule

• Opportunities for professional growth, networking, and community recognition

• Invitation to join our Advisory Board or Board of Directors as the enterprise scales

• Being part of a mission that transforms lives — where every hour you give makes a tangible difference

• Public recognition on GLF communications, website, and reports

Ideal Candidate Profile

You are someone who:

• Believes that legal guidance is a lifeline for those who have nowhere else to turn

• Feels fulfilled by using your expertise to create social impact

• Is proactive, compassionate, and able to work independently

• Wants to be part of a groundbreaking social enterprise at the startup stage

• Values ethical work, transparency, and accountability

We’re looking for Civil Service professionals who want to inspire the next generation and help diversify the future public sector workforce. As a Civil Service Career Ambassador, you’ll deliver two 1-hour online workshops per year to sixth-form students, introducing them to the breadth of careers across government and sharing your personal journey. This is a simple but high-impact way to support social mobility, represent your department, and help young people build confidence in their career choices.

Who We’re Looking For

Civil Service professionals who are:

• Passionate about public service and supporting young people

• Comfortable speaking to small/medium student groups

• Committed to promoting diversity and inclusion

• Interested in helping students explore career pathways

• Able to share authentic experiences and encouragement

Key Responsibilities

• Deliver the Civil Service Careers Presentation
  Use the existing presentation deck (provided) to introduce students to:

  • What the Civil Service does

  • Types of roles and departments

  • Early careers pathways (Fast Stream, apprenticeships, internships, direct entry)

  • Public impact and real examples of work

  • Skills needed for successful applications

• Share Your Personal Career Path
  Provide real-life insight into:

  • Your route into the Civil Service

  • What your day-to-day role includes

  • The culture and values of your team

  • Why public service matters to you

• Participate in a Live Q&A Session
  Answer student questions about:

  • Application tips

  • Working culture

  • Progression opportunities

  • What makes someone a strong fit

  • Diversity, inclusion, and belonging in the Civil Service

• Promote Inclusivity & Representation
  Encourage students from a wide range of backgrounds to consider careers in government, helping to broaden and diversify the future talent pool.

About ArtClusiv
ArtClusiv is a creative social enterprise that exists to amplify and empower BIPOC creatives across all disciplines, including music, visual arts, performance, design, and more. We create spaces where creativity, culture, and community meet. Our work addresses systemic barriers in the mainstream arts world and promotes a more fair, visible, and supportive ecosystem for underrepresented voices.
We do this through skills training, access to opportunities, artist visibility, fair payment advocacy, and a safe, inclusive community that celebrates identity and artistry.

Volunteer Board Member (Director)
ArtClusiv is seeking an experienced and committed board member to help guide our mission and shape our long term impact. This role is ideal for someone with leadership experience in the arts, community development, creative industries, nonprofit governance, or cultural equity work.

Role Overview
As a board member, you will provide strategic oversight and help ensure that ArtClusiv continues to grow in a focused, values driven direction. Your guidance will support our goals of increasing visibility, strengthening partnerships, and securing funding to expand our programmes and opportunities for BIPOC creatives.
You will work closely with the founder and fellow directors to advise on organisational development, sustainability, grant applications, stakeholder engagement, and ethical governance.

Key Responsibilities
• Offer strategic advice to help shape the long term direction of ArtClusiv
• Support funding strategy and help identify grant opportunities and partnership prospects
• Provide oversight on governance, risk management, and community accountability
• Champion the mission and act as an ambassador for ArtClusiv in your networks
• Attend quarterly board meetings and contribute actively to decision making
• Share expertise that strengthens our impact in visibility, outreach, and equity
• Support the founder in navigating nonprofit challenges and building organisational resilience

What We’re Looking For
• Previous experience in a board, director, or governance role (nonprofit or creative sector preferred)
• Knowledge of arts, culture, community development, or social impact
• Strong understanding of BIPOC representation in the arts and the systemic challenges creatives face
• Strategic thinking, leadership ability, and a collaborative approach
• Commitment to anti discrimination, fairness, and inclusive creative spaces

We Strongly Encourage Applications From
• BAME and POC artists or creative professionals
• Individuals with lived experience of underrepresentation in the arts
• People passionate about building equity centred creative ecosystems

What You Gain
• The opportunity to influence and support a growing creative nonprofit
• A meaningful leadership role that uplifts artists and communities
• Experience in CIC governance and strategic development
• A platform to contribute your voice, knowledge, and lived experience

If you want to help shape a more inclusive future for the arts and ensure that diverse creative talent is recognised, supported, and celebrated, we would love to hear from you.

Family Friends carefully recruit, train, and match volunteers with families in Central-West London. Our volunteer befrienders offer practical and emotional support based on each family's unique needs and potential. We offer two volunteer opportunities - Big Buddies and Parent Buddies.

Volunteers will aim to help parents to discover their strengths, build confidence, and resolve difficulties. Volunteers meet with their match weekly for a period of 6 -12 months.

Activities might include:

• Supporting a parent to take their children on days out.
• Helping to strengthen family relationships.
• Providing a listening ear.
• Helping parents to build confidence in themselves.

Essential Criteria:

• You must be able to commit to the Parent Buddy programme for a minimum of 6 months.
• 18+
• Must have lived in the UK for the last 2 years

What we provide in return:

• Full induction training and ongoing training
• DBS check
• Weekly supervision and support
• The chance to learn new skills
• References provided after 6 months' commitment
• Reimbursement of travel and session expenses

We are an equal opportunities charity and value the principles of diversity and inclusion, which is central in providing successful support to our families. We welcome and encourage applications from people with a wide range of backgrounds and experiences, including people from Black, Asian or Minority Ethnic backgrounds, people who identify as LGBTQI+ and individuals from different socio-economic and educational backgrounds.

In the first instance, please register your interest in becoming a volunteer with us - you can do that by contacting us here for an application form.

Once we've reviewed your application, a member of our team will be in touch with next steps.

Can you help with our Collection Tins and Daffodil Boxes?

Distribute and collect our Marie Curie tins or daffodil boxes in your local community - in shops, cafés, pubs, sports and social clubs, pharmacies and other venues.

Availability: 1-2 hours per month required – totally flexible to suit you

Locations: Your hometown and surrounding areas

We welcome applicants aged 18 years or older for this opportunity - if that’s you, we’d love to welcome you to the team! 

What you'll do:

• Distribute and collect collection tins/boxes
• Count and bank donations securely
• Monitor and empty donation boxes regularly
• Identify new venues

Why you'd be a great fit:

• Friendly and bring a positive attitude
• A good organiser
• Comfortable talking to people from all walks of life
• Knowledge of your local area

What you get:

• Essential training delivered
• Ongoing guidance and wellbeing support
• Recognition for your time

Perks:

• Travel and expenses reimbursed
• Access to discounts on shopping, dining, travel and more

Ready to support your local community and make a real difference? 

Family Friends carefully recruits, trains, and matches volunteers with families in Central-West London. Our befriending volunteers offer long-term practical and emotional support based on each family's unique needs and potential. We offer two befriending volunteer opportunities with us-, Big Buddies and Parent Buddies.

Our Big Buddies support young people, aged 10-18, for a few hours each week over a period of 6 -12 months. With encouragement and support, volunteers will aim to help young people to discover their strengths and build confidence.

Support may look like:

• Helping to strengthen family relationships.
• Providing a listening ear 
• Taking young person to the cinema, museums, libraries - broadening their horizons!

Essential Criteria:

• Can commit to the Big Buddies programme for a minimum of 6 months
• 18+
• Must have lived in the UK for the last 2 years

What we provide in return:

• Full induction training and ongoing training
• Full DBS check
• Support and supervision
• The chance to learn new skills
• References provided after 6 months' commitment
• Reimbursement of travel and session expenses

We are an equal opportunities charity and we value the principles of diversity and inclusion, which is central in providing successful support to our families. We welcome and would like to encourage applications from people with a wide range of backgrounds and experiences, including people from Black, Asian or Minority Ethnic backgrounds, people who identify as LGBTQI+ and individuals from different socio-economic and educational backgrounds.

In the first instance, please register your interest in becoming a volunteer with us by contacting us here for an online application form.

Once we've reviewed your application, a member of our team will be in touch with next steps.

Read Easy provides free, confidential, one to-one reading coaching for adults who struggle with reading, through a network of volunteer groups. Read Easy groups are changing the lives of individual adults across the country by providing them with the support they need to learn to read, and in turn opening doors for them to all sorts of new opportunities in life. You can read about the difference Read Easy makes on our website.

As the Team Leader you are responsible for the proper and effective direction of your local group. This role will appeal to someone with enthusiasm and energy who will enjoy managing a team of diverse volunteers. Ideally, the Team Leader will remain in this role for at least two years.

How we will support you

You will be provided with the Management Team Handbook, training/induction, policies, and guidance specifically needed for this role, including access to support from a Read Easy UK Regional Adviser, via your Team Leader. You will also be invited to Read Easy UK’s regional forums and annual conference which gives volunteers an opportunity for networking with those from other groups.

What you will be doing

● Leading the Management Team in setting goals and planning activities so that it functions effectively in delivering reading coaching to as many local people as possible.

● Encouraging and supporting Team members to fulfil and enjoy their roles, and managing succession planning for the group.

● Leading meetings and setting agendas.

● Ensuring that tasks are delegated and effectively completed so that all on the Management Team are able to contribute to the success of Read Easy locally.

● Ensuring that the requirements of your Constitution and Affiliation Agreement are met, and that the guidance in the handbooks provided by Read Easy UK is followed.

● Acting as an ambassador for your Read Easy group and building positive and beneficial relationships with key stakeholders.

● Building strong relationships with your Read Easy UK Regional Adviser.

● Maintaining and promoting the reputation of your group and of Read Easy UK as a whole and ensuring that members of the group uphold Read Easy UK’s values

The skills you need

● Strong leadership and team management skills and experience, with ability to motivate and inspire trust and confidence in others.

● An ability to think and act strategically, set goals, plan work and delegate.

● A willingness and ability to challenge others, deal with underperformance and manage conflict when necessary.

● Reasonable confidence in using IT.

● The ability to use initiative and work independently.

● A willingness to abide by Read Easy policies and procedures.

● An open attitude that encourages two-way communication and willingness to ask for and offer support to the Team.

● A non-judgemental attitude and respect for others, with a commitment to equality and diversity, so that you can make everyone feel valued and included.

● Energy and enthusiasm with an average of four to five hours a week to commit to the role.

What is in it for you?

● Use your knowledge and skills to lead a team to support Reader achievement

● Meet and work collaboratively with new people

● Be active and engaged, adding value to your local community.

Would you like to be involved in the founding of a new charity that supports young people through grief and loss? At Beyond Tomorrow, we support young people through grief and loss with compassion, guidance, and hope. Join us to help shape brighter futures for those finding their way beyond loss.

Volunteer Trustee (Secretary Role)

Location: Kent- however this role can be done virtually.
Time Commitment: Around 3–5 hours per month
Reporting to: The Board of Trustees

About the Role:

We’re a charity supporting young people and families through grief, loss, and emotional wellbeing. As our Secretary, you’ll be the organised heartbeat of the board, keeping everything running smoothly, making sure meetings are well-structured, and helping us stay on top of our legal and admin responsibilities.

You don’t need to have charity admin experience — just good organisational skills, a bit of tech confidence, and a passion for helping young people heal and thrive.

Key Responsibilities:

 Meetings & Records

• Arrange trustee meetings (usually every 1–2 months) and make sure everyone has the agenda and papers in advance.

• Take clear minutes and track action points so nothing slips through the cracks.

• Keep an organised record of all meetings, decisions, and official documents.

Governance & Compliance

• Help ensure the charity meets its legal requirements with the Charity Commission.

• Maintain up-to-date trustee contact details and declarations of interest.

• Support the Chair and Treasurer with key governance documents like policies, annual returns, and reports.

 Communication & Coordination

• Be the main point of contact for trustee communication — keeping everyone in the loop.

• Help coordinate between trustees, volunteers, and partners.

• Make sure important dates, tasks, and documents are shared in good time.

What We’re Looking For:

• Super organised and reliable — someone who loves keeping things in order.

• Good written communication skills and attention to detail.

• Comfortable using email, Google Drive, Word, or similar tools.

• Friendly and collaborative, with a genuine passion for supporting young people and families through loss.

Commitment & Expenses:

• This is a voluntary trustee role. Reasonable out-of-pocket expenses (like travel or supplies) can be reimbursed.

• Trustees usually meet once every 1–2 months, with a few extra hours between meetings for admin or follow-ups.

• You will have the opportunity to be involved with community work, however this is not an expectation.

What You’ll Get Out of It:

• A hands-on role helping a growing charity stay organised and effective.

• Experience in charity governance, leadership, and administration.

• A friendly, purpose-driven team who truly cares about what we do.

• A good opportunity to get hands-on experience in the world of admin.

• The satisfaction of helping young people and families find hope and healing after loss.

We are currently recruiting for the following Trustees:

• Finance Trustee
• Service Delivery Trustee
• Fundraising Trustees

As a Trustee, you will play a key role in shaping the strategic direction of MindTHNR, ensuring strong governance, and supporting our mission to provide inclusive, accessible, and culturally competent mental health services. You will be joining a passionate and committed Board that works closely with our Chief Executive and leadership team to ensure we remain impactful, sustainable, and aligned with our values. To see more about our existing trustees click here.

The responsibilities for all Trustee roles are to:

• Uphold charity law, governing documents, and safeguard the organisation’s assets, reputation, and beneficiaries.
• Actively contribute to setting direction, monitoring performance, and supporting/challenging the Chief Executive and Leadership Team.
• Attend quarterly Board meetings, use your skills to inform decisions, and uphold the charity’s values of inclusion, integrity, and transparency.

See the recruitment pack for full details and information on what we are looking for each individual position.

Role Overview

Organisation: EmbraceAbility

Role Title: Chair of Trustees

Location: Remote with occasional meetings (UK-based preferred)

Hours: Approximately 4–6 hours per month

Expiry Date: 31 March

About EmbraceAbility

EmbraceAbility supports disabled children and their families through inclusive programmes, safeguarding guidance and community-led care. We work to strengthen wellbeing, promote dignity and ensure that every child has access to safe, nurturing and empowering support. Our approach centres the voices of families, builds long-term resilience and encourages inclusive, sustainable change.

We are a disability-led, community-rooted organisation working in Cambodia and Malawi. Our mission is to empower people with disabilities to build a world where they are included, resourced, and recognised with dignity, agency and justice.

Role Purpose

The Chair of Trustees provides leadership and direction to the Board of Trustees, ensuring that the Board fulfils its responsibilities for the governance and strategic oversight of the organisation. The Chair works closely with the Director to support strong decision-making, accountability and long-term sustainability.

Key Responsibilities

• Lead the Board of Trustees to ensure effective governance and alignment with EmbraceAbility's mission.
• Support the Director by providing guidance, oversight and strategic leadership.
• Ensure the Board fulfils its legal, financial and safeguarding responsibilities.
• Facilitate productive Board meetings, including agenda-setting and follow-up actions.
• Champion inclusive, disability-led approaches and ensure lived experience informs governance decisions.
• Represent EmbraceAbility externally where appropriate.

What You Will Help Us Achieve

• Stronger governance structures rooted in justice and inclusion
• Improved strategic decision-making and long-term sustainability.
• Greater visibility and advocacy for disability rights within our programmes.
• Support for our work in Cambodia and Malawi to grow responsibly and ethically.

Benefits to the Volunteer

• Opportunity to drive meaningful, rights-based change in disability inclusion.
• Experience in governance, leadership and international development.
• Working alongside a passionate, disability-led team.
• Flexible, remote role that fits around other commitments.

Support and Training

You will receive support from the Director and the Board, including safeguarding training, organisational induction, and ongoing guidance relevant to governance and disability-inclusive practice.

This role is advertised as part of TPP's Free Giving Back Services. This volunteer advertisement copy has been supplied to TPP and applicants apply direct to the organisation. Please contact the organisation directly if you have any questions about this volunteer role.

About Us

Tell My Truth and Shame the Devil CIC is a grassroots movement committed to confronting and eradicating Child Sexual Abuse (CSA) across the UK.
We give survivors, families, and allies the power to speak out, heal, and educate communities through storytelling, outreach, and collective action.

We work across all communities — Black, white, Asian, Caribbean, African and beyond — ensuring no survivor feels alone or silenced.

Our CIC operates through a community-driven, volunteer-led structure, built by people who believe in truth, justice, and love as law.

The Role – Social Media Director (Team Lead)

Lead the organisation’s social media function to build an online community, drive engagement, connect with diverse audiences, and use social media metrics to strengthen organisational performance and improve efficiency.
 

Main Responsibilities / Key Duties

• Develop and execute social media strategies that communicate the CIC’s message, increase visibility, and ensure consistency across platforms.

• Build and maintain an active online community, ensuring engagement is respectful, relevant, and supportive.

• Lead and support the social media team, providing guidance, motivation, and opportunities for growth.

• Collaborate with other departments to ensure alignment on projects, messaging, timelines, and organisational goals.

• Maintain quality control to ensure all content is accurate, on-brand, and reflective of the CIC’s values.

• Manage content schedules, ensuring timely planning, production, and publishing across platforms with regular team check-ins.

• Engage with audiences online, responding to comments, messages, and conversations in a timely and professional manner.

• Lead the launch of social media campaigns for awareness, advocacy, marketing, and fundraising.

• Track performance of posts, campaigns, and team progress to measure engagement, reach, and achievement of targets.

• Train and support the team, ensuring clarity on goals, timelines, tools, best practices, and evolving platform features.
   

What We’re Looking For

• Minimum 3 years experience in a similar social media leadership role.

• Strong team leadership and management skills.

• Excellent communication, collaboration, and community-building capabilities.

• Extensive knowledge of major social media platforms (YouTube, Instagram, TikTok, Facebook, X/Twitter, etc.).

• Ability to understand and apply social media analytics, metrics, data analysis, and reporting.

• Knowledge of social media best practices, content formats, platform compliance, charity regulations, and GDPR.

• Skills in social media strategy, content planning, branding, and community engagement.

• Ability to mentor, guide, and support a volunteer social media team.

• Creativity, problem-solving skills, and a strong understanding of emerging trends.

​Location

Hybrid role (remote with occasional in-person meetings).

Ideally based in London, or within up to 3 hours travel distance for team activities, meetings and events.

Help safeguard our future: Join BBS UK as our Treasurer

Bardet-Biedl Syndrome UK (BBS UK) is seeking a new Treasurer to join our Board of Trustees and play a key role in ensuring the charity remains financially strong, sustainable, and well governed.

Bardet-Biedl syndrome (BBS) is a rare, complex genetic condition that causes blindness, learning disabilities, obesity, and a range of additional health challenges. BBS UK is the only UK charity dedicated to supporting individuals and families affected by BBS.

We provide advocacy services, NHS clinic support, publications, and community events that help people navigate life with BBS. Each year, we support over 700 individuals, working alongside a small team of dedicated part-time staff and committed volunteers.

It’s an exciting time to join our charity. We are looking to strengthen our governance and build on our financial foundations to support future growth and impact.

The role

As Treasurer, you will oversee the financial governance of BBS UK, working closely with the Board of Trustees, Operations Manager, and external accountant.

This is a strategic oversight role, not a hands-on bookkeeping position. Day-to-day financial administration is carried out by staff; the Treasurer provides assurance, guidance, and clarity to support good decision-making.

Key responsibilities include:

• Maintaining a strategic overview of the charity’s financial health

• Presenting clear summaries of financial information at Board meetings

• Advising Trustees on the financial implications of plans and decisions

• Overseeing the annual budget and supporting longer-term financial planning

• Ensuring appropriate financial controls and procedures are in place

• Supporting the preparation of annual accounts and liaison with the Independent Examiner

• Helping ensure appropriate reserves are maintained in line with policy

The Board of Trustees retains collective responsibility for the charity’s finances.

We’re looking for someone with:

Essential:

• Experience in finance, accounting, bookkeeping, or financial oversight

• Confidence interpreting financial information and explaining it clearly to non-financial colleagues

• Understanding of financial controls and good governance

• Ability to think strategically and identify financial risks

Desirable:

• Experience in a charity or not-for-profit setting

• Understanding of restricted and unrestricted funds

• Experience working with budgets or management accounts

We particularly welcome applications from people with lived experience of BBS or a connection to the BBS community, though this is not essential.

As a BBS UK Trustee, you will have:

• Induction, training, and ongoing support

• Reasonable expenses reimbursed

• Opportunities to develop new skills and contribute at a strategic level

• The chance to make a meaningful difference to a rare disease community

• Opportunities to collaborate with dedicated trustees, staff, and partners

Time commitment

• Attendance at four Board meetings per year (online, approximately 3 hours each)

• Reviewing financial information monthly or quarterly

• Additional input around budget setting and year-end accounts

• Attendance at our annual conference weekend (in person; expenses covered)

If you would like an informal conversation about the role before applying, we would be very happy to arrange a chat with our Chair.

BBS UK is committed to equality, diversity and inclusion, and we welcome applications from people of all backgrounds who share our values and want to support our community.