Advocates volunteer roles in warrington, borough of halton

Irise International is at a pivotal and exciting moment in our journey to achieve menstrual justice.

We are a small but globally respected charity based in Sheffield, working across the UK and East Africa to end menstrual injustice by shifting power to young activists and grassroots leaders. Our work is bold, inclusive, and grounded in lived experience. From launching youth-led policy tools in UK schools to co-hosting pan-African feminist gatherings, we amplify the voices of people who menstruate in spaces they’ve historically been excluded from.

We’ve just launched our 2025–2030 strategy and are entering a crucial phase of development. We’re building new income streams, deepening youth leadership, and evolving into a post-founder organisation under new leadership. We’re also piloting exciting collaborations—with councils, universities, and feminist businesses—while supporting our small team with the structure they need to thrive.

Our current Chair will step down in 2025, and we’re seeking someone to work alongside them and our CEO over the next 6–12 months to support a smooth and values-led transition.

This is a unique opportunity to step into a hands-on, relational governance role where your voice will help shape the next chapter of an ambitious and radically hopeful organisation.

We’re looking for someone who can:

• Lead with empathy, integrity, and a commitment to equity

• Champion inclusive, youth-led governance that centres marginalised voices

• Act as a sounding board and strategic partner to the CEO

• Facilitate a collaborative and engaged board culture

• Support fundraising, advocacy, and strategic partnerships where appropriate

We particularly welcome interest from individuals with lived or professional experience in menstrual health, youth-led activism, gender equity, or anti-oppressive practice. We value non-traditional leadership journeys and want this role to be accessible and sustainable for the right person.

As Chair, your responsibilities will include:

• Supporting the CEO between board meetings and leading their annual appraisal

• Chairing quarterly, inclusive board meetings

• Supporting board recruitment and mentoring

• Supporting strategic reflection on partnerships, funding, and risk

• Upholding Irise’s values and accountability to our menstrual justice framework

This voluntary role requires an average of 3–4 hours per month. We offer flexibility and support with access needs, caring responsibilities, or other adjustments. Travel expenses are reimbursed.

Purpose: 

Charity law requires all charity trustees to prepare accounts for their charity. An independent examination is a form of external scrutiny that provides a limited check on specific matters.
Registered and excepted charities with income less than £25k must have an Independent Examination unless the accounts are audited. 

Requirement:

An independent person whom the trustees reasonably believe to have the requisite ability and practical experience to carry out a competent examination of the accounts.
Must be a member of one of the accountancy bodies listed in the Charities Act

Key tasks:

Well verse with Commission’s Directions and guidance as independent Examiner 
To provide an independent scrutiny of the accounts and, in this way, help maintain public trust and confidence in charities.
Ensure; No evidence was found of a lack of accounting records; Nor of the accounts failing to reflect those records; Nor of the accounts failing to comply with the relevant legislation
Liaising with the trustees to ensure the accounting records are available 
Agreeing responsibilities with the trustees, for example, who will prepare the accounts and file them with the Commission
Agreeing a timetable for the examination with the trustees 
Ensuring the examination takes place at a time when trustees and key staff are available to answer any questions that may arise

Key results/objectives:

At the conclusion of the independent examination the examiner makes a report to the charity trustees. Charity law requires the examiner’s report to comment on three specific things: 
the accounting records kept, whether the accounts agree with those records,  and whether the format of the accounts is correct. 

Reporting to: Joy Mason - CEO

Tafara Wellness Initiative

Tafara Wellness Initiative is a nonprofit dedicated to providing trauma-informed care to women and children in Africa. Our mission is to support healing, resilience, and empowerment in underserved communities. By delivering evidence-based wellness services, we aim to create safe and nurturing environments where individuals and families can thrive. Through research, partnerships, and advocacy, we strive to maximise our impact and bring meaningful change to those who need it most.

Grant Writer

Volunteer Role Description (remote, unpaid)

Role Summary:

We are seeking an experienced volunteer Grant Writer to support our fundraising efforts by researching, writing, and submitting grant applications. Your work will be instrumental in securing funding that allows us to expand our services and support more women and children in need.

Key Responsibilities:

-Identify relevant grant opportunities from foundations, corporations, and government entities.

-Write compelling grant proposals that align with funding priorities and organisational goals.

-Maintain and update a database of grant deadlines and submission requirements.

-Collaborate with the team to gather necessary information and documentation.

-Track and report on submitted proposals and funding outcomes.

and funding sources is a plus.

Weekly Time Commitment

4-6 hours per week

Duration of Volunteer Role (remote)

6+ months

About QuilomboUK

QuilomboUK is a dynamic organisation that fosters diversity, equity, inclusion (D&I), and social justice. We believe in a People First approach, ensuring our strategies and operations align with our mission to create equitable workplaces and communities. Join us during this exciting phase of growth as we amplify our impact through innovative people practices.

Role Overview

As a People Partner, you will play a pivotal role in shaping our organisational culture by driving initiatives in organisational development, change management, employee engagement, and recognition. You’ll act as a strategic partner to all departments, ensuring their goals align with our People First philosophy. This role is ideal for someone passionate about social justice, D&I, and building inclusive environments where every voice matters.

Key Responsibilities Organisational Development & Change Management

• Design and implement OD initiatives to enhance team effectiveness, agility, and alignment with QuilomboUK’s mission.
• Lead change management projects, ensuring smooth transitions during organisational growth or restructuring.
• Develop strategies to foster leadership capabilities and a culture of continuous learning.

Employee Engagement & Recognition

• Create innovative engagement programs (e.g., surveys, focus groups) to elevate employee voice and belonging.
• Design recognition frameworks that celebrate contributions aligned with our values, especially in D&I and social justice.
• Analyse engagement data to identify trends and recommend actionable improvements.

People Partnership & Collaboration

• Partner with department leaders to integrate People First strategies into their operations and objectives.
• Provide coaching to managers on inclusive leadership, conflict resolution, and team dynamics.
• Ensure departmental policies reflect QuilomboUK’s commitment to equity and social justice.

Diversity, Equity, Inclusion & Social Justice

• Embed D&I principles into talent processes, from recruitment to career development.
• Lead initiatives that advance social justice internally (e.g., ERGs, bias training) and externally (community partnerships).
• Track and report on D&I metrics to measure progress and identify gaps.

Compliance & Best Practices

• Stay updated on employment law and HR trends, ensuring compliance while advocating for progressive practices.
• Promote a culture of accountability and inclusivity through equitable policies.

Qualifications

• Experience: 5+ years in HR, organisational development, or as a People Partner, ideally in mission-driven sectors.
• Skills:
• Expertise in change management, engagement strategies, and OD frameworks.
• Strong stakeholder management and communication skills.
• Proficiency in HR analytics and project management.
• Knowledge: Deep understanding of D&I practices, employment law, and social justice principles.
• Alignment: Passionate about QuilomboUK’s mission and values.

Personal Attributes

• A champion for equity and inclusion, with empathy and cultural competence.
• Adaptable and resilient in fast-paced environments.
• Proactive problem-solver with a collaborative spirit.

Why Join QuilomboUK?

• Impact: Drive meaningful change in D&I and social justice through your work.
• Culture: Join a supportive, inclusive team where innovation and authenticity thrive.
• Growth: Opportunities for professional development in a scaling organisation.

The Professional Development Programme with Quilombo UK is a 16-week UNPAID opportunity that requires a minimum commitment of 12 hours per week, Monday to Friday.

QUILOMBO UK is dedicated to fostering an inclusive workplace environment that values diversity and promotes equality for all employees. As part of our commitment to upholding these principles, we adhere to the guidelines outlined in the Equality Act 2010. We firmly believe in creating a workplace where all individuals are respected and treated fairly. Discrimination of any kind will not be tolerated.

Let’s build a more equitable future together. ��✊��#PeopleFirst #SocialJustice #DiversityAndInclusion

Job Summary

This hybrid volunteer role offers the unique opportunity to provide legal and financial guidance to a growing grassroots charity. You will support Trans Celebration in maintaining legal compliance (e.g., contracts, data protection, charity governance) and offer basic accounting oversight (e.g., budgeting, reporting, financial strategy).

This is a fantastic opportunity for a professional passionate about social justice, LGBTQIA+ rights, and nonprofit operations.

Key Responsibilities

Legal Support:

• Advise on compliance with UK charity law, GDPR/data protection, and employment law.

• Draft or review contracts, partnership agreements, and organisational policies.

• Provide legal input on intellectual property, safeguarding, and liability issues.

• Help ensure the organisation operates within regulatory frameworks (e.g., Charity Commission).

Accounting & Finance Support:

• Provide oversight or advice on bookkeeping and financial record-keeping.

• Assist in preparing annual budgets and financial reports.

• Review expenditure and help develop sustainable financial strategies.

• Support grant reporting and financial compliance with funder requirements.

• Help prepare materials for HMRC or Charity Commission submissions as needed.

What We’re Looking For

Essential Skills & Qualifications:

• Qualified solicitor/lawyer (SRA registered or equivalent) and/or certified accountant (ACA, ACCA, CIMA, or equivalent).

• Knowledge of UK charity law, financial reporting standards, and regulatory frameworks.

• Experience advising nonprofits, community groups, or SMEs preferred.

• Strong understanding of GDPR, safeguarding, and employment law best practices.

• Proficiency in accounting tools (e.g., Xero, QuickBooks, Excel) is an advantage.

Personal Attributes:

• Passionate about LGBTQIA+ rights and trans inclusion.

• Professional, dependable, and able to work with discretion.

• Strong communication skills and ability to explain complex topics clearly.

• Flexible, collaborative, and aligned with grassroots values.

• Willingness to commit a few hours per month for ongoing support.

Work Environment

• Flexible, with occasional check-ins.

• Collaborative and respectful team culture.

• Opportunity to shape and strengthen the infrastructure of a fast-growing organisation.

Language Requirements

• Fluency in English (spoken and written) is essential.

How to Apply

To apply, please submit:

• A short cover letter outlining your experience and interest in supporting Trans Celebration.

• A current CV or professional profile.

• Proof of legal or accounting credentials.

The International Council of Museums in the United Kingdom (ICOM UK) is seeking a new trustee with strong financial acumen and a passion for the museums and heritage sector and working internationally to be the Finance Lead on our Board. This is a strategic finance role to support the Strategic Director and advise the Board of Trustees in respect of the conduct of the charity’s financial affairs.  

The role requires experience and skills in financial planning and management, preferably in a charity and/or company, along with the ability to understand and communicate the impact of decisions on the organisation’s finances. 

We welcome applications from professionals with the skills, knowledge and lived experience that will strengthen and diversify our Board. 

 For further details on the roles and ICOM UK, you can view our Finance Lead Trustee Recruitment  Pack. 

Usanii Village Africa

Through the boundless power of creativity, we inspire young minds to dream, innovate, and become changemakers in their communities. By using art as a platform for awareness and advocacy, we tackle critical issues like environmental sustainability, gender equality and reproductive health.

Limited Access to Art-Based Education & Economic Opportunities – Many young people, especially out-of-school youth and teenage mothers, lack access to creative and vocational training programmes that can equip them with skills for self-reliance and economic independence.

High Rates of Teenage Pregnancies & School Dropouts – Limited knowledge and resources on sexual and reproductive health contribute to early marriages, teenage pregnancies, and high dropout rates among girls and young women, restricting their future opportunities.

Lack of Environmental Awareness & Sustainable Practices – Communities often lack the knowledge and integration of environmental stewardship in education and daily life, leading to unsustainable practices, environmental degradation, and missed opportunities for eco-friendly innovations.

Usanii Village Africa provides creative and vocational training in fields such as Eco-Artistry, carpentry, fashion, and design. By integrating art with practical skills, young people—especially out-of-school youth and teenage mothers—gain the tools needed for self-reliance and economic empowerment.

To combat early marriages, teenage pregnancies, and school dropouts, Usanii Village Africa equips young people, particularly girls and young women, with essential knowledge and resources on menstrual health, reproductive rights, and gender equality. This ensures they make informed choices about their futures.

By embedding environmental conservation in education and community initiatives, Usanii Village Africa fosters a culture of sustainability. Through Eco-Artistry, waste repurposing, and climate action advocacy, the organization promotes eco-friendly practices and raises awareness about the importance of protecting natural resources.

Monitoring & Evaluation (M&E) Assistant

Volunteer Role Description (remote, unpaid)

The M&E Volunteer will primarily support data collection and management, helping to design tools, gather information from beneficiaries, and ensure data quality. They'll also assist in basic data analysis, contributing to the interpretation of findings. A key part of the role involves supporting the drafting of impact reports, transforming raw data into clear narratives and visuals that showcase Usanii Village's achievements. Throughout these tasks, the volunteer will receive direct support and guidance from the local Usanii Village team. Finally, the volunteer will contribute to learning and documentation, helping to capture insights and maintain organized M&E records.

Weekly Time Commitment

7-9 hours per week

Duration of Volunteer Role (remote)

3-5 months

Join Our Board: Shape the Future of the Climate Movement

Are you passionate about addressing the climate crisis through evidence, advocacy, and global collaboration? We are The Climate Crisis Advisory Group (“CCAG”) - a mission-driven, science-based climate change organization seeking new Board members to strengthen our impact. CCAG is the operating name of Climate Response Limited (“CRL”) a UK company registered with the Charities Commission. You would be a Board member for CRL as the company under which the CCAG brand operates.

CCAG is at the forefront of the climate conversation, guiding public, governmental, and institutional understanding of the crisis. CCAG’s global experts distil complex science into actionable insights, fostering informed decisions that help educate and influence audiences around the world.

CCAG’s strategies come to life through a broad spectrum of activities. For example, CCAG advisors unravel climate complexities through public online discussions, free publicly available in-depth reports, strategic campaigns, and in-person briefings on request.

See our work here: Climate Crisis Advisory Group

What we’re looking for

Our current Board brings deep expertise in leadership, finance, and strategic direction. Now, we’re looking to complement this with specific skills and lived experience—particularly from those who can help amplify our voice, reach new audiences, and deepen our global relevance.

This is a great opportunity for first-time Board members.

We’re especially interested in candidates with experience or skills in:

• Global advocacy in climate or social justice

• Strategic communications or public affairs 

• Fundraising for NGOs, especially from philanthropic donors

• Digital communications, media, and content creation

• Campaigning and public influencing

• Marketing, branding, and public relations

• Experience of working within the Global South or working across cultures and disciplines.

You don’t need prior Board experience—just a commitment to science-based climate action and a willingness to contribute your time, skills, and perspective to help us tackle one of the greatest challenges of our time. 

This is an unremunerated voluntary Trustee role and, like all UK charity trustees, you’ll take on some important responsibilities for overseeing the charity’s work. But you won’t be doing it alone—you’ll be joining a supportive Board with experienced members who will guide you as you learn. 

What’s in it for You?

• The opportunity to be a driving force in the fight against climate change and leave a lasting legacy for future generations.

• Learn leadership and governance skills while contributing to a cause with global significance.

• Connect with other professionals in the environmental and climate sectors.

Your Commitment:

We work remotely and Board meetings are held 3 times a year online. Board members are expected to commit approximately 1 day per month.

How to Apply:

If you are ready to make a meaningful impact on the climate crisis, please send your CV and a brief cover letter outlining why you’re interested in joining the Board of Climate Response Limited by 22nd August 2025. We are also available to answer any questions you might have.

We look forward to hearing from you!

Summary: Driving medical communication and patient-led research agenda for a complex medical condition 

Description: You could make a real difference to the lives of patients and doctors struggling with a rare disease. That's what we do at Mast Cell Action - a charity dedicated to supporting the Mast Cell Activation Syndrome (MCAS) patient community and improving the evidence base for the disease.

We work hand-in-hand with doctors and patients to develop materials that truly make a difference. And with the help of our medical advisory panel, we're constantly improving our activities to better serve our community.

But we're not done yet. We're looking for someone with a genuine interest in this area, with medical, health, NHS, and research experience to join our team. You'll be responsible for developing and executing our strategy to engage with the medical community, research organisations, NHS policymakers, and our community as a whole.

You'll lead multiple projects, collaborating with doctors to better understand and define our community, as well as initiating and executing new projects. And with your expertise, you'll ensure that all our communications are evidence-based and informative.

So, if you're passionate about making a real difference, come and join us at Mast Cell Action. Together, we can create a brighter future for patients and doctors alike.

You will lead a team of passionate volunteers and interns, working closely with our Operations Director to drive our mission forward. One of your key responsibilities will be to nurture and grow our Medical Advisory Panel, working hand-in-hand with supportive doctors and medical institutions. You'll be the face of the charity, representing us in all our interactions with these key stakeholders.

You’ll report directly to our trustee board, ensuring that all of our activities are aligned with our overall strategy and goals.

We're looking for a dynamic individual who can inspire and motivate their team to achieve great things. If you're passionate about healthcare and have experience working with medical institutions, this is the perfect opportunity for you. So why not join us at Mast Cell Action and help us make a real difference in the lives of patients and doctors?

What impact will they have?

At Mast Cell Action, we know that communicating, engaging, and educating the medical community and policy makers is crucial if we want to improve support for MCAS patients. And that's where you come in.

As our communications expert, you'll play a pivotal role in advancing patient care over time. You'll work closely with doctors, medical institutions, and policy makers to raise awareness of MCAS and advocate for better support for patients.

By effectively communicating the importance of MCAS and engaging with key stakeholders, you'll help improve patient outcomes and quality of life in the long run.

If you're passionate about making a real difference and have experience in healthcare communications, this is the perfect opportunity for you. 

About the volunteer 

What skills should they have

We are looking for a volunteer who has experience in the NHS and medical/research environment. If you're someone who can assess a situation and develop a clear strategy to achieve the desired outcome, we want to hear from you.

As our ideal candidate, you're an effective communicator who can engage with doctors and produce written and visual materials that really make an impact. You're also a team player who can work effectively as part of a multidisciplinary team.

Managing projects and team members is second nature to you, and you're able to keep everyone on track and motivated. And with your awareness of the political and economic landscape in the area of complex diseases, you can navigate through any obstacles that come your way.

If you're passionate about making a real difference in the lives of patients with complex diseases and have the experience we're looking for, we want you on our team at Mast Cell Action.

Skills

Medical related background 

Medical writing skills

Project management 

Team management 

Analytical and conversant with research methodologies

Where and when

Work remotely, flexible hours 

Meetings in London 

Trips to medical conferences around uk

Reasonable Expenses covered.

Could you spare four hours a week to support young cancer patients and their families?

When a child is diagnosed with cancer it threatens everything, for them and their family. At a time when they should be busy being children, enjoying their rollercoaster teenage years or finding their feet at university, life becomes full of fear. Fear of treatment, but also of families being torn apart, of overwhelming money worries, mental health stretched to breaking point, of having nowhere to turn, no one to talk to.

At Young Lives vs Cancer, we get that. We are the charity that helps children and young people (0-25) and their families find the strength to face whatever cancer throws at them.

There are many small organisations that help families with a child that has a life threatening illness, by providing grants, holidays or wishes. We want our families to take advantage of this but applying for this extra support can often be overwhelming or another thing on the to do list at a stressful time in their lives. That’s where you come in. Could you give 4 hours a week to support our families to apply for grants, holidays and wishes?

What you’ll be doing

You’ll be working directly with our families who are known to the Young Lives vs Cancer Service at Birmingham Children’s Hospital and Queen Elizabeth Hospital Birmingham to help them apply to organisations which can offer grants, treats, wishes or holidays to make the cancer journey more manageable. Your role will be both researching and identifying organisations offering additional practical support (such as additional grants) and practical opportunities for joy (wish granting and special offers), and then supporting families to apply to these organisations.

There is scope and opportunity in this role for development into liaising with other charities.

About you

• You’ll need to be super organised in managing information and communicating with different audiences
• You’ll need to be confident in approaching conversations with new people, that includes speaking directly with children and families about their needs, and approaching potential sources of support on their behalf
• You’ll have strong relationship management skills, the ability to make people you are talking to feel at ease and supported

Experience working with families with a child with a life threatening or limiting illness, or working with a family support organisation is desirable but not essential.

You’ll receive a full induction to the Young Lives vs Cancer BCH and QEHB social work team, learn about the service we provide and the impact of cancer on the children, young people and families we support.

4 hours a week during office hours (9am to 5pm, Tuesday to Thursday)

From your own home but you do need to be based in the Birmingham area to attend occasional team meetings and supervision.

How to apply

Complete the application form on our website

The role of Volunteer Clerk

The Clerk attends board meetings, provides effective administrative support to the Council, ensures the Council is properly constituted, and manages information and document control effectively in accordance with legal requirements. This is a flexible role which for the most part can fit around the existing commitments of a volunteer.

About Queer Beyond Belief

Queer Beyond Belief exists to imagine and build a world that welcomes and celebrates us all — no ifs, no buts. We are a values-driven, community-rooted organisation committed to integrity, collective liberation, anti-oppression, and queer joy.

Our Board holds us accountable to our mission, stewards our resources, and ensures we stay true to what we stand for.

Purpose of the Role

As a Non-Executive Director, you’ll bring your skills, insights, and lived experience to help shape our strategic direction and keep us accountable. You won’t be involved in day-to-day operations — instead, you’ll act as a critical friend: offering challenge, support, and specialist advice when needed.

Non-Executive Directors ensure that our governance is robust, ethical, and in service of the communities we exist for.

Key Responsibilities

• Provide Strategic Oversight:
  Contribute to setting and reviewing our vision, mission, and long-term plans. Offer constructive challenge and help the Board make informed, brave decisions.
   

• Champion Accountability:
  Hold the Executive Directors and wider team to account for delivery of agreed plans, compliance, and ethical practice.
   

• Safeguard our Values:
  Uphold our principles of integrity, anti-oppression, collective liberation, and queer joy in every decision and discussion.
   

• Bring Specialist Insight:
  Offer your unique expertise, perspective, or lived experience to strengthen our understanding of the issues facing our communities.
   

• Ensure Good Governance:
  Attend meetings, read papers in advance, declare any conflicts of interest, and participate actively in discussions and decisions.
   

• Act as an Ambassador:
  Represent Queer Beyond Belief positively and help build trusted relationships with our communities and allies.
   

What we’re looking for

We welcome people from all walks of life — you don’t need Board experience to apply. We’re especially keen to hear from people with skills, perspectives, or lived experience that are underrepresented in leadership.

You should:

• Share our commitment to collective liberation, anti-oppression, and queer joy.
   

• Be willing to speak up and ask questions that help us do better.
   

• Be ready to work collaboratively and collectively — no solo heroes here.
   

• Be able to commit time for meetings, preparation, and occasional ad hoc support.
   

Eligibility

• You must be legally eligible to serve as a company director in the UK.
   

• You must declare any actual or potential conflicts of interest.
   

Support

We know governance roles can feel daunting. We’re committed to making leadership accessible — we’ll provide an induction, reasonable adjustments, and opportunities to build your governance skills.

This is an unpaid voluntary role. Reasonable expenses for Board work will be reimbursed when pre-agreed.

Who are we?

We are Buttons & Bubbles CIC. We work to increase inclusion and representation across society for disabled families.We have several different services including inclusive characters, sensory workshops, resources, events, advocacy and more.

What are we looking for?

Are you looking for a volunteering opportunity that you can do in your own time and without having to leave the comfort of the sofa? Do you have a good imagination? Are you interested in graphic design? Or have an artistic flair?

We’ve created ‘Bubble World’ which is home to our characters. We have had some graphics made for ‘Bubble World’ but we would love more! We can then use them and others such as little Santa Hats, Pumpkins and Easter Eggs to keep creating our resources and activity packs.

What do we expect?

• Be willing to undertake our training programme which will be done virtually and at a time to suit you.

• Have an Enhanced DBS check (preferably be on the update system)

• Sign our volunteer contract. (If you disagree with anything in it please do discuss it with us and we will be happy to have a conversation and make small changes if appropriate).

• A positive attitude to disability and illness. We are happy to answer questions on this.

What can you expect?

• A community group that does not currently operate a rota system of any kind. Youdon’t have to regularly commit your time.

• A kind, caring, nurturing company who cares about people, staff and volunteers. Our aim is to keep your wellbeing at the centre of our work.

• A very positive and proactive approach to disability and illness. Any and all accommodations will be made that you require. If there is anything you wish to discuss in private please email us and we will arrange a confidential chat.

Benefits to Volunteering with Buttons & Bubbles CIC

• Gaining valuable experience and improving your confidence

• Allows you to explore potentially different areas of interest.

• Make a difference to community

• Develop your current skill set and gain new skills.

• Displays your level of commitment to future employers.

• Displays your ability to balance and schedule your time effectively when seeking future employment.

For further information or to apply email us and we will be more than happy to have a chat. 

PNH Support is celebrating its 10 year anniversary this year! Much has changed for patients living with the ultra-rare blood condition paroxysmal nocturnal haemoglobinuria (PNH) during this time including the development of a number of new treatments which have transformed many lives. Despite this, patients still face other continuing challenges, for example, dealing with fatigue and the psychological impact of living with a chronic disease. Importantly, patients also need their voices to be represented independent of healthcare professionals. As PNH Support can only continue to support the PNH community with the help of Trustees and volunteers, we are seeking new Trustees to become actively involved in our management and governance including the implementation of our recently developed 5 year strategy. Whether you are an experienced Trustee, or are considering your first appointment, wewould love to hear from you!

Our vision is “No PNH patient in England, Wales and Northern Ireland is alone. All are represented and enabled to live to their full potential with PNH.”

Our mission is to provide support through peer-to-peer contact, educational resources and advocacy.

The Board has recently undertaken a stakeholder engagement exercise to develop our new 5 year strategy to 2030 and new Trustees joining our Board will assist with executing and implementing this plan. Our Board will play a vital role in shaping the future of PNH Support, guiding our strategic direction, setting the budget, and making key decisions on significant initiatives. This is an exciting time to be joining PNH Support as our Board is expanding to drive the new 5 year strategic vision forward!

Becoming a Trustee at PNH Support is both a privilege and a responsibility. This role provides a unique opportunity to make a meaningful impact to the lives of people affected by PNH as well as for their families. As a Trustee, you will help guide the charity, ensuring we stay true to our mission and achieve significant results. Your leadership and insights will be vital to the charity’s success.

The Trustee Board is a diverse and committed team that provides governance and oversight. They ensure that the charity operates ethically, efficiently, and in line with its strategy.

This is an exciting time to be joining PNH Support as our Board is expanding to drive the new 5 year strategic vision forward! Becoming a Trustee at PNH Support is both a privilege and a responsibility. This role provides a unique opportunity to make a meaningful impact to the lives of people affected by PNH as well as for their families. As a Trustee, you will help guide the charity, ensuring we stay true to our mission and achieve significant results. Your leadership and insights will be vital to the charity’s success.

The Trustee Board is a diverse and committed team that provides governance and oversight. They ensure that the charity operates ethically, efficiently, and in line with its strategy. You are not expected to have in-depth knowledge of the legislation governing our work, as we will provide the necessary support and training as required. However, it’s important to be aware
that such legislation exists, and to ensure that PNH Support has the appropriate policies, procedures, and reporting mechanisms in place to maintain compliance where required.

Key responsibilities include:

• Strategic Leadership: Shaping and guiding PNH Support’s vision and future direction in line with the new 5 year strategy.
• Legal and Regulatory Compliance: Ensuring adherence to UK charity laws and fulfilling all reporting obligations.
• Financial Oversight: Monitoring the charity’s finances, safeguarding its assets, and managing risks effectively.
• Governance and Accountability: Promoting transparency, participating in decisionmaking, and overseeing management practices.
• Advocacy and Representation: Acting as an ambassador for the charity, promotingits mission and values to the wider community.