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Page 4 of 6
Remote
£150.00 per day
Part-time (8 hours per day, 2 days per week)
Contract (9 months - 01 September 2025 to 02 June 2026)
Job description

The CMV Connect Project Coordinator role is designed to enhance the charity's outreach and support initiatives, focusing on building and maintaining relationships with healthcare professionals, families, and the broader community. This position involves coordinating projects that aim to increase awareness, provide resources, and support families affected by cCMV.  This role is a part time role funded by National Lottery Community Fund.  It is a freelance contractor role, as it is a contract for services. 

CMV Action is a UK-based charity dedicated to supporting families affected by congenital cytomegalovirus (cCMV), a leading cause of childhood disabilities such as deafness, developmental delays, and vision impairment. The charity provides information, advocacy, and support to raise awareness and improve outcomes for those impacted by cCMV, both during pregnancy and in babies and children.

Key Responsibilities

  • Project Coordination: Oversee the planning, implementation, and evaluation of CMV Connect initiatives, ensuring they align with the charity's objectives.  Work with other Operation Team members and report to the Board fortnightly.
  • Supporting families: Work with the trustees to follow up on those we support and identify how we can support them in the future. Work with volunteers to organise in-person and online opportunities for families to meet up.
  • Volunteer Coordination: Recruit, train, and support volunteers involved in CMV Connect project.
  • Event Management: Organise and support events and campaigns aimed at raising awareness and funds for CMV Action.
  • Stakeholder Engagement: Develop and maintain relationships with healthcare professionals, community groups, and other families to promote awareness and support for cCMV.  Provide social media content to the Fundraising Officer when each milestone is reached.
  • Resource Development: Assist in creating and distributing educational materials and resources for families and healthcare providers.
  • Data Management: Collect and analyse data to assess the impact of initiatives and inform future strategies.  Financial data collection for the final evaluation report.

 Person Specification

Essential

  • Education: Degree level qualification or equivalent experience in a relevant field.
  • Experience: Proven experience in project coordination, stakeholder engagement, and working within a charitable or healthcare setting. Previous working experience with volunteers within a project would be ideal.
  • Skills: Strong organisational, communication, and interpersonal skills; proficiency in Microsoft Office, including proficiency in Excel.
  • Attributes: Ability to work independently and as part of a team, manage multiple tasks, and maintain confidentiality.

Desirable

  • Qualifications: Project management or volunteer management qualification.
  • Experience: Experience in fundraising, event management, and using CRM systems, experience managing a similar project or offering support to families.
  • Knowledge: Understanding of public health issues, particularly related to congenital infections and how to work in the charity sector.

Working Conditions

  • Location: The role is home-based with occasional travel required for meetings and events.
  • Hours: Part-time position, with flexibility to accommodate the needs of the projects.  Approximately 16 hours per week, equivalent to 2 days per week.
  • Salary: £150 per day, 8 hours a day, approx. 2 days a week, approx. 40 weeks till early June 2026. 

This role offers an opportunity to make a significant impact on the lives of families affected by cCMV, contributing to the charity's mission to raise awareness and provide support.

Application resources
Posted by
CMV Action View profile Organisation type Registered Charity Company size 1 - 5
Posted on: Thursday, 12 June 2025
Closing date: 10 July 2025 at 09:00
Job ref: Project Coordinator of CMV Connect Project
Tags: Administration, Communications, Training / Learning

The client requests no contact from agencies or media sales.