Area events manager jobs

Operations Coordinator 

Location: Hybrid (London office and home) 

Contract: Permanent

Working pattern: Four–day working week (32hours)

Reporting to: Head of Operations & Strategy

Salary: £30,000

About Spinal Research 

Every two hours, someone in the UK becomes paralysed. Globally, more than 15 million people live with paralysis. At Spinal Research, our vision is a world where paralysis can be cured. We fund groundbreaking research to deliver life-changing treatments for people with spinal cord injuries. By backing the brightest minds and fostering innovation, we are driving progress towards what could be the medical breakthrough of the 21st century: curing paralysis. We will not stop until that future is achieved.

The Role 

We’re looking for a proactive and highly organised Operations Coordinator to support the smooth running of the organisation. 

This is a varied role at the heart of a small charity, spanning governance, HR, finance and operations. You’ll work closely with the Head of Operations & Strategy and support colleagues across the organisation to ensure systems, processes and compliance run effectively. 

Key Responsibilities 

• Support board and governance processes, including meetings and record-keeping 

• Provide HR and finance administration, including recruitment coordination and invoice/expense processing 

• Help manage day-to-day operations, including office coordination, IT and suppliers 

• Act as Health & Safety Coordinator 

• Support data processes alongside the Data Manager 

• Contribute to cross-team projects and general organisational support 

About You 

• Experience in an administrative or operations role (charity or small organisation desirable) 

• Highly organised, detail-oriented and able to manage multiple priorities 

• Proactive, reliable and collaborative 

• Strong communication skills and discretion with confidential information 

• Comfortable working across a broad and varied remit 

Experience in HR, finance, governance or CRM systems is helpful but not essential. 

Working for Spinal Research 

We are a collaborative, mission-driven team committed to advancing research and improving outcomes for people living with spinal cord injury. We offer a supportive and inclusive culture, opportunities for connection and development, and a four-day working week to support wellbeing and flexibility. 

Ready to help us deliver life-changing impact?
Apply now to join Spinal Research and play a key role in our mission to cure paralysis.

Please send your CV and a cover letter outlining why you would like to work for Spinal Research, and why you would be a good fit for the role.

At Community Integrated Care, we believe everyone deserves the opportunity to live the best life possible. Our Partnerships & Communities team delivers ambitious, multi‑partner programmes that tackle inequality, open doors, and create lasting change for disabled people and the communities we serve.

​We’re now looking for an experienced Project Manager (Partnerships & Communities) to lead the delivery of complex, high‑impact programmes across England and Scotland – working with partners, funders, colleagues and people with lived experience to turn strategy into action.

​If you thrive in complexity, care deeply about social impact, and love bringing people together to deliver meaningful outcomes, this could be the role for you.

​This is a full time permanent role with travel to our head office in Widnes at least once a week with regional and national travel as and when required so our ideal candidate will be based within an hours commute of Widnes.

​What is "The Deal" for you?

• Flexibility: You can work your 37.5 hours over 4 days and enjoy a long weekend, or split the hours over 5 days to accommodate your other commitments.
• Pension: contributory pension scheme
• Benefits: retail discounts, holiday discounts, cycle to work scheme and travel discounts through our benefits app
• Best Lives Possible: You'll be working for an award winning charity who is passionate about ensuring our colleagues and the people we support lead the best lives bolder 
• Development: We'll work with you to develop your career or to learn and experience new things. We're passionate about developing our people! 
• Support: From our Employee Assistance Programme (available 24/7), financial support options, and wellbeing fund you'll have the support available to lead an easier (financial) life

You’ll lead projects end‑to‑end – from early concept and funding through to mobilisation, delivery, evaluation and legacy – ensuring programmes are well governed, well delivered and genuinely impactful.

​In this varied and high-profile role, you will be:

• ​Managing a diverse portfolio of projects, campaigns and partnerships, delivered to agreed scope, budget, timelines and quality
• ​Working closely with external partners, funders and suppliers to coordinate delivery and maximise impact
• ​Applying consistent, high‑quality project management standards, documentation and governance throughout the project lifecycle
• ​Leading risk, safeguarding, health & safety and compliance management across community‑focused programmes
• ​Producing board, partner and audit‑ready reporting, giving clear visibility of progress, risks, outcomes and learning
• ​Leading impact reporting and evaluation – turning data and insight into evidence, learning and future opportunity
• ​Managing project budgets, resources and supplier relationships to ensure value for money and compliance
• ​Supporting and developing colleagues, building strong project discipline, capability and collaboration across the team
• ​Representing our work confidently in presentations, reviews, events and partner forums

This is a highly collaborative role, working closely with colleagues across Partnerships & Communities, Group Projects, Operations, Support Services and external organisations.

Our ideal candidate:

​You’ll be a confident and values‑driven project professional who combines strong delivery discipline with empathy, creativity and influence.

• ​Proven experience leading complex projects end‑to‑end in multi‑stakeholder environments
• ​A strong understanding of project governance, assurance, risk management and portfolio delivery
• ​Experience working with partners, community organisations or suppliers, building trusted, productive relationships
• ​Confidence managing budgets, financial planning and value‑for‑money decisions within projects
• ​Excellent communication skills – able to translate complex information into clear, engaging messages for varied audiences
• ​Experience using project management tools and digital reporting platforms (e.g. MS Project, Smartsheet, Jira, Visio or similar)
• ​A recognised project management qualification (PRINCE2 Practitioner or equivalent) or equivalent experience
• ​A genuine commitment to inclusion, co‑production and social impact, with an understanding of safeguarding and ethical delivery
• Above all, you’ll be motivated by purpose, comfortable with ambiguity, and excited by the opportunity to turn ideas into mobilised, high‑impact programmes.

​Why join Community Integrated Care?

• Be part of one of the UK’s leading social care charities, delivering nationally recognised, high‑profile programmes
• Work on ambitious partnerships and campaigns that genuinely change lives
• Enjoy flexible and hybrid working arrangements
• Access learning, development and progression opportunities in a supportive, values‑led culture
• Be trusted to lead, influence and shape work that has a lasting legacy 

Ready to make a difference?

​If you’re an experienced Project Manager who wants your work to mean something, we’d love to hear from you.

​Apply now and help us turn partnerships into progress, and ambition into impact.

​Please note, if you are interested in this role, we welcome your application as soon as possible! Depending on the volume of applications received, the vacancy may be closed before the expected advertising end date.

We’re really proud to be a Hive HR Employee Voice Certified organisation, a recognition that confirms our commitment to creating a culture where our colleagues are not only encouraged to share their thoughts, but where this feedback is actively sought and acted upon to drive positive change at every level.

In our 2025 Colleague Engagement Survey, 59% (nearly 3,800) of our people shared their feedback and insights, giving us an incredible Employee Net Promoter Score of +34.

The Employee Net Promoter Score is a measure of how willing our colleagues are to recommend us as a good place to work to their loved ones – and a score of +34 is considered a Very Good score when compared to global benchmarks set by hundreds of other organisations. 

We are seeking a dynamic and strategic Fundraising Development Manager to join the Bright Shadow team at a pivotal moment for our charity.

Responsible for developing and delivering Bright Shadow’s long-term income strategy, you will play an important role at the heart of our organisation. As well as managing our funding pipeline and relationships with funders and donors, you will build a diverse and sustainable funding portfolio to support our ambitious creative programme for people living with and affected by dementia.

Why this role?

Bright Shadow has secured funding for this new position for the next three years, and we’re looking for someone to join our team at a pivotal moment. Our award-winning Zest programme is expanding in autumn 2026, we’re building our Dementia Arts Quality Framework, and we’re continuing to expand our capacity to co-create projects thanks to our Campfire Conversations and Open Forums.

Our team is small but mighty, including our fantastic inclusive board of trustees, two of whom live with dementia. We know we need to add an experienced fundraising manager to our team to help us build our community of support. Could that be you?

About the role

Working closely with the Chief Executive and Board of Trustees, you will:

• Develop and implement a long-term fundraising strategy
• Build and manage a strong funding pipeline across trusts and foundations, individuals, corporates, commissioning and earned income
• Write compelling funding applications and reports
• Develop new income streams and partnerships
• Steward relationships with funders, donors and key stakeholders
• Ensure robust systems for tracking income, reporting and compliance

This role combines strategy, relationship-building and hands-on delivery, and will play a central role in shaping Bright Shadow’s future.

About us

Founded in 2009, at Bright Shadow we do dementia differently. Serving Kent and Medway, we make ambitious, enriching, joyful experiences that use the power of the arts and creativity to enable people living with dementia – and those who give care – to live happy, healthy lives.

We understand the impact of a diagnosis, yet our work fosters positivity: focusing on what we can do, not what we can’t. People with dementia, family members, expert artists and other professionals are all part of co-creating our high quality artistic work.

Our trademark Zest groups, wider creative programme, and our training and resources for organisations seeking to be dementia inclusive, are all rooted in our passionate belief in authentic relationship-centred care.

About you

We’re looking for someone who:

• Has a strong track record of securing income from multiple sources
• Is an excellent writer and communicator
• Can think strategically while delivering day-to-day fundraising activity
• Is highly organised, proactive and able to manage competing priorities
• Builds strong relationships and works collaboratively
• Is passionate about creativity, community and living well with dementia

Experience in digital fundraising, commissioning or the arts/health sector would be an advantage.

Role details

Post reports to: Chief Executive

Post works alongside: Chief Executive, Director of Creative Research

Hours: 0.6 FTE – 3 days (21 hours) per week. Working pattern negotiable. Occasionally, flexibility may be required to ensure duties are delivered to a high standard and within deadlines (3 days per week)

Location: Remote, with some travel for meetings required.

Salary: £38,000 FTE (£22,800 pro rata)

***

How to apply - please follow the link below to our website for details of how to apply.

If you’re passionate about safer communities and want a role where your work has a direct and lasting impact, this could be the perfect opportunity. As Crimestoppers’ Regional Manager for the South of England (Devon & Cornwall, Avon & Somerset), you’ll play a pivotal part in helping protect the public, empowering local people, and supporting the agencies working to prevent and solve crime.

We’re looking for an enthusiastic and motivated Regional Manager to represent Crimestoppers across the area. You’ll work closely with law enforcement and community partners to design and deliver meaningful crime‑prevention campaigns, while also coordinating cross‑border and national initiatives with organisations such as ROCUs and the NCA. You’ll empower local volunteer committees to thrive, act as a spokespeople for Crimestoppers in local and regional media, and drive funding opportunities that help expand our impact.

This role variety, and the chance to genuinely make a difference. We’re seeking someone with strong project and budget management skills, confidence under pressure, and the ability to build strategic relationships. Experience in or significant knowledge of the voluntary sector, media campaigning, or policing practice would be an advantage. If you’re committed to community safety and excited by the challenge of influencing real change, we’d love to hear from you.

Community Fundraiser (Covering North Liverpool, Southport, Knowsley & St Helens)

As part of our community team, you will place our supporters at the heart of everything you do by cultivating and stewarding relationships to provide a first-class experience. You are outgoing, independent, able to work instinctively, and confident in making approaches to garner new support.  You will have the ability to translate our story to develop and inspire our volunteers and engage with a wide range of community contacts and high street corporates. You'll be joining the charity during an exciting period of growth, as we develop our community volunteer led income with the aim of increasing charity reach and recognition in pursuit of our team targets and goals.

Ideally you will have experience of working in a fundraising environment (paid or voluntary), or be able to demonstrate transferable skills within a customer-facing role, and the ability to manage relationships with a diverse range of people.

The role will be based at our Liverpool fundraising office. The option of hybrid/flexible working where appropriate can be considered.

A good knowledge of the area this role covers and a full driving licence and use of a car in order to travel between Clatterbridge sites and across the wider area is essential.

Preference would also be for the candidate to live within or close to the area the role covers.

Ascension is a truly special place to be. We are a thriving Anglican church community in South West London. Our mission is to share the love of God in everything we do - from our vibrant Sunday mornings including Bubble Church - a service for young families that started at Ascension and is being rolled out nationally across the Church of England, to our café Parish Coffee which is open during the week and hosts a refugee drop-in, debt advice service and various community groups.

As our Operations Manager, you will be the operational backbone of the church. While our clergy and ministry leaders focus on the frontline, you will be the one ensuring the infrastructure is robust enough to support our mission. 

This is a senior leadership position within our staff team. You won’t just be managing tasks; you will be a key partner to me and the wider team, helping us refine our processes and manage our resources, to ensure we continue to thrive.

Whether managing finances, overseeing building projects, or navigating complex negotiations, every task you undertake serves our mission to share God’s love.

We are looking for a self-starter, and a passionate disciple of Jesus who is ready to use their professional gifts for the kingdom. We hope this pack gives you a sense of the exciting journey we are on and look forward to hearing from you

We are seeking a proactive, organised and relationship-focused Community & Volunteer Events Coordinator to lead the coordination and delivery of community projects, family activities and volunteer engagement opportunities across Camden and Islington.

This is a hands-on operational role focused on strengthening community connections, increasing family engagement and supporting inclusive, welcoming activities for families accessing our services.

The postholder will coordinate a varied programme of projects, groups and events while building positive relationships with community partners, venues and local stakeholders. They will play an important role in identifying opportunities for collaboration, reducing barriers to participation and supporting innovative approaches to community engagement.

Relationship Manager (North and Scotland)

Full-time (37 hours) | permanent

c£36,000 depending on experience | Home-based | Hybrid

At the Bone Cancer Research Trust, we exist because families refused to accept a world where primary bone cancer had no hope, no answers and almost no research. Today, we’re the UK’s leading bone cancer charity and every supporter you engage helps push vital research forward and provides comfort to families who need us.

About the role

As Relationship Manager, you’ll build genuine, lasting connections with our Special Funds - our named funds created in honour or memory of someone affected by primary bone cancer, community supporters and local businesses. Your relationship-led approach will help create the family feel connections we’re known for, inspiring long-term support and raising vital income for people affected by primary bone cancer

You will:

• Grow and manage Special Funds, our named funds created in honour or memory of someone affected by primary bone cancer.
• Build strong, meaningful relationships with all our supporters, ensuring every person feels valued and connected.
• Secure and steward regional corporate partnerships
• Meet a regional income target of approx. £300,000
• Represent BCRT in your region, strengthening awareness and community connections at meetings and events.

About you:

• A natural relationship builder with 3+ years’ fundraising experience and a genuine passion for supporter care.
• Compassionate and professional, especially when working with families personally affected by primary bone cancer.
• Organised, proactive and confident working independently, able to balance a varied workload.
• A clear and engaging communicator, bringing warmth and positivity to every interaction.
• Able to travel across the region (car required).

Why you’ll love working with us

You’ll join a small team that works collaboratively and keeps our community at the centre of everything we do. We’re supportive, friendly and you’ll have the flexibility to manage your work while seeing the direct impact of the relationships you build.

What we offer

· Flexible approach to working hours

· 30 days annual leave per year plus bank holidays

· Private Health Insurance (following successful probation)

· 6% employer pension contributions

· Life Assurance of 4x annual salary

Mass Participation and Events Fundraising Lead

We are seeking an experienced leader to drive forward the development and implementation of the events and mass participation fundraising strategy.

Position: CE405 Mass Participation Lead

Location: Home-based, UK Nationwide. However, frequent travel will be required as part of this role (may include team meetings or other work-related meetings)

Hours: Full-time, 35 hours per week

Salary: Circa £49,000 per annum (inner London weighting £3,950 per annum/pro rata or outer London weighting £2,457 per annum/pro rata may be applied in accordance with where you live)

Contract: Permanent

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 5 June 2026 Midnight

Interview Date: 16 and 17 June 2026. Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

Reporting to the Head of Regional Fundraising this is an exciting role leading our ambitious vision for this area of our team. Worth currently over £2m annually we are looking to grow our income from third party and owned products and events.

You will provide strategic leadership to the Mass Participation team (2 direct reports and accountability for a further 6) as well as playing an active leadership role across the Regional Fundraising Team and Mass Engagement department, contributing to the wider directorate goals and objectives.

You will be an innovative thinker with the ability to review our existing programme, the wider market environment and identify opportunities for supporter acquisition, engagement, and retention. You will oversee a customer-centric approach where supporters receive an outstanding experience and feel proud of their continued contribution.

Key responsibilities will include:

· Developing strategy for events and mass participation products

· New fundraising product development

· Strategic leadership of a geographically dispersed team, embedding a culture of high performance

· Setting meaningful income and expenditure budgets and being able to accurately re-forecast putting action plans in place to mitigate shortfalls.

About You

We are looking for someone with experience of:

· Delivering targets with successful outcomes.

· Developing strategy for events and mass participation products

· Project planning and problem solving.

· Delivering formal presentations and public speaking.

· Budget development, planning and forecasting and an understanding of risk, mitigation and contingency planning.

· Achieving annual income and expenditure targets.

· Recruiting, managing, motivating, developing and training staff and/or volunteers.

· Analysing and interpreting data.

You will need a full driving licence and own vehicle (or can demonstrate that you meet the travel requirements of the role which include travelling extensively across the region/country).

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

Applications

Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.

You will be able to view the role profile when you apply.

Stroke Association

Finding strength through support

The Stroke Association is the only charity in the UK providing lifelong support for all stroke survivors and their families. We provide tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

We’re here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of our supporters and donors that we can provide vital support. 

Stroke Association is driven by our ambition to improve the lives of everyone affected by stroke. This means we’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by Our approach to solving inequity in stroke, we are prioritising listening to, and learning from, lived experience across our charity.

We are working to improve the representation of this lived experience at all levels within the Stroke Association and we are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how we work.

We are a Disability Confident employer, and we are making great progress focusing on flexible working, reasonable adjustments and access to work. Our charity has a variety of staff network groups and we're committed to continuously improving our diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Mass Participation, Mass Participation Manager, Mass Participation Officer, Challenge Events, Events Lead, Fundraising Events Lead, Events Fundraiser, Events Fundraising, Regional Fundraiser, Supporter Engagement, Community Fundraiser, Participation, Individual Giving.

Please note this role is advertised by the recruitment agency acting for the client – Not For Profit People

Contract Type: Fixed Term 6 months

Interviews: 8th of June 2026 in-person at our Dorfman centre.

Employer: King's Trust International (not The King's Trust)

Help shape the global conversation on youth opportunity

King’s Trust International, founded in 2015 by His Majesty King Charles III, is a global force for youth opportunity, building on five decades of proven impact through The King’s Trust in the UK.  Established to confront the global crisis of youth unemployment, the organisation delivers programmes through implementation partners across the Commonwealth and beyond. To date, more than 120,000 young people outside the UK have moved into meaningful work; with 90% reporting stronger core skills and three quarters of participants in its employability and enterprise programmes moving into the labour market within six months.  Our 2026–35 strategy sets an ambitious goal to empower one million more young people worldwide, scaling impact and strengthening partnerships to equip the next generation with the skills, confidence and opportunities to shape a brighter future.

We are now looking for an experienced Communications Manager to join our team on a six-month fixed-term contract.

The role

We are seeking an experienced and driven Communications Manager to join our team on a six-month fixed-term contract.

Working closely with the Head of Communications, you will play a key role in delivering high-impact communications across international campaigns, strategic partnerships and flagship events. You’ll help shape and amplify our global narrative — ensuring our work, and the young people we support, are seen, heard and understood.

This is a fast-paced, outward-facing role, working with media, delivery partners, embassies, funders and internal teams across multiple markets.

Key responsibilities

• Deliver proactive global and regional media campaigns
• Identify and secure impactful earned media opportunities
• Develop compelling narratives and high-quality written content, including press releases, opinion pieces, speeches and briefings
• Support communications for major international events and initiatives
• Monitor the news agenda and respond to reactive media opportunities
• Contribute to crisis communications and reputational management
• Source and develop powerful youth and partner stories for campaigns and media
• Support and prepare senior stakeholders and spokespeople for external engagement
• Track and evaluate campaign performance and media impact

What we’re looking for

You’ll be a confident and proactive communications professional with strong media instincts, excellent writing skills and the ability to deliver at pace.

You will likely bring:

• Experience in communications, PR or media relations
• A proven track record of delivering successful media coverage or campaigns
• Strong stakeholder management and influencing skills
• Exceptional written and verbal communication skills
• Sound judgement and a keen eye for detail
• A collaborative approach, with the ability to manage multiple priorities

Experience in the charity, international development or youth sectors would be an advantage, but is not essential.

Why join us?

This is an opportunity to join a globally ambitious organisation at a pivotal moment of growth. You’ll play a central role in shaping stories that resonate internationally and help unlock life-changing opportunities for young people around the world.

Perks for working at The King’s Trust International:

• Great holiday package. 30 days annual leave entitlement, plus public holidays. Office closure the days between Christmas and New Year
• Fantastic Family leave. Receive 13 weeks full pay and 13 weeks half pay for maternity and adoption leave, and pro rata entitlement for shared parental leave. Receive 8 weeks' full pay for paternity leave.
• Flexible and agile working. Where operationally possible, you can work your hours that support a work-life balance, including compressed hours and hybrid-working (part office - part home-based) or working from home options.
• Benefits platform. Everything from health and financial wellbeing support to discounts on your favourite restaurants, shops and cinemas
• A free employee assistance programme (EAP) to support your mental wellbeing.
• KTI will contribute 5% of your salary to the workplace Pension Scheme
• Generous life assurance cover (4 x annual salary)
• In-house and external training opportunities are available throughout the year

A fantastic opportunity has arisen within our award-winning fundraising team, to join us in an exciting new role of Legacy and In Memory Manager (Lead).

At Birmingham Women’s and Children’s Hospital Charity, we believe there’s always more we can do for our sick kids and women, and that’s why we will always strive to do more for our patients and families. It’s our mission to raise the vital funds needed to make a real difference to all who use our hospitals, and to make our hospital feel just like home. 

This role requires someone with experience in legacy administration and promotion and/or in memory fundraising, as well as excellent communication skills and a strategic mindset. We need someone with previous experience in relationship management and income generation - ideally within a legacy and/or in memory setting - who is able to lead and inspire our supporters and staff in order to generate long term income and awareness for the charity.

To be successful in this role you will: 

• Lead the development and delivery of legacy marketing and in-memory fundraising strategies to drive sustained income growth and supporter retention
• Be self-motivated, independent and target-driven
• Act as the subject matter expert on legacy administration and in-memory giving, providing guidance, training, and mentoring while promoting a strong culture of philanthropy
• Manage all aspects of legacy casework, including complex and contentious cases, ensuring effective stakeholder relationships and full compliance with legal, regulatory, and best practice standards
• Oversee data management, reporting, and analysis to generate insights, improve processes, and support accurate forecasting and long-term financial planning
• Collaborate across teams to maximise fundraising opportunities, enhance donor engagement across channels, and deliver impactful events and integrated giving initiatives
• Posses a natural confidence in talking to people with high emotional intelligence and resilience due to the sensitive nature of the role, with excellent communication and relationship building skills.

What we offer: 

• Flexible and hybrid working to support work-life balance 

• Generous annual leave entitlement with additional leave for long service  

• Enhanced sick pay 

• Enhanced Maternity Pay 
• Employee Assistance Program and Lifestyle Savings

• Free flu jabs 

• Cycle to work scheme 

• Charity events throughout the year 

• Employer enhanced auto-enrolment pension scheme with 8% employer contribution 

• Ongoing commitment to education and professional development 

The Charity is committed to equal opportunities and welcomes applications from all suitably qualified persons regardless of their race, sex, disability, religion/belief, sexual orientation or age.  

Successful candidates will have access to vulnerable beneficiaries therefore the role is subject to Disclosure and Barring Service (DBS) clearance.  

If you think you have the qualities we are looking for and the desire to contribute, please download the Job Vacancy Pack and then send us a CV and covering letter explaining how you meet the criteria for the role and making clear why you would like to be considered for it. 

PLEASE NOTE: Within our organisation, this role is titled Legacy and In Memory Lead. This reflects our internal structure and does not change the scope or responsibilities described in this advert.

We will conduct interviews as suitable candidates apply and we're ready to hire if we find the right person before the job ad closes.

Help Change the Future of Polycystic Kidney Disease Research

Patient & Public Involvement and Engagement (PPIE) Manager

PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)

The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.

This is not a standard engagement role.

You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.

PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.

We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.

That’s where you come in.

The Opportunity

As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.

You’ll:

• Lead and support our Patient Involvement Panel
• Facilitate high-quality patient engagement and focus groups
• Work directly with researchers and industry partners
• Champion authentic lived experience in research decision-making
• Support awareness of clinical studies and research opportunities
• Create compelling patient stories and engagement content
• Help influence the future direction of PKD research in the UK

We’re Looking For Someone Who:

• Understands the power of meaningful patient involvement
• Can confidently manage relationships with patients, researchers and stakeholders
• Has experience in PPIE, health research, healthcare or the charity sector
• Is an excellent facilitator and communicator
• Brings empathy, professionalism and initiative
• Wants to make a tangible difference every single day

Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.

Why Join Us?

At the PKD Charity, you’ll join a passionate national charity working to improve lives through:

• Research
• Advocacy
• Support
• Education
• Patient voice

This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.

What We Offer

✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity

Apply Now

For details on how to apply, please see the application pack.

Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.

Join Disability Law Service and help empower Deaf and Disabled people to access justice. Support our vital work by playing a key role in strengthening our partnerships, training programme and systems change work. 

About Disability Law Service 

Disability Law Service (DLS) is a Deaf and Disabled Peoples Organisation providing free legal advice and representation to Deaf and Disabled people across England and Wales. We work to promote equality, inclusion, and access to justice through high-quality legal advice, welfare benefits support, and systems change work. Our work is grounded in the social model of disability and is focused on tackling discrimination and structural barriers faced by Deaf and Disabled people. 

Purpose of the role 

To develop and deliver partnerships, policy advocacy, and systems change activity that improves access to justice and outcomes for Deaf and Disabled people. 

Overview 

You will lead on partnerships, policy influence, and systems change work, working across a range of stakeholders to strengthen networks, influence policy, and deliver strategic change. 

Key responsibilities 

• Build and maintain strategic partnerships across sectors 

• Lead on systems change and policy advocacy work 

• Manage programmes focused on training and capacity building 

• Use data and evidence to inform systems change activity 

• Manage staff and volunteers and support team development 

• Develop stakeholder networks and collaborations 

• Contribute to policy campaigns and strategic initiatives 

• Support monitoring, evaluation, and impact reporting 

What we offer 

• Opportunities to develop experience in policy, advocacy and systems change while working across a varied and dynamic workload with diverse stakeholders

• A supportive and inclusive working environment within a committed and experienced team

• A varied role where your work directly supports access to justice for Deaf and Disabled people.

Equality, diversity and inclusion 

We welcome applications from everyone and are particularly keen to support Deaf and Disabled people to join and develop within our organisation. We are a flexible employer committed to creating an inclusive environment in which everyone can thrive. 

To apply

To apply, please upload your CV and a supporting cover letter (up to 2 pages) outlining your suitability for the role via CharityJob. Please make sure you have read the job description and person specification fully before applying for the role. 

We are looking for an experienced and compassionate Support Services Manager to lead BBS UK’s support services for children, adults and families living with Bardet-Biedl syndrome (BBS). 

BBS UK is a national charity supporting people affected by this rare genetic condition. We work closely with NHS specialist clinics and other services to help individuals and families access the support they need and navigate health, education, social care and welfare systems. 

This is an exciting opportunity to lead a small, dedicated team providing practical support, advocacy and guidance to people living with BBS and their families. 

The role includes team leadership, safeguarding responsibility and service development. You will help ensure people receive safe, responsive and person-centred support while continuing to improve and strengthen our services. 

About the Role 

As Support Services Manager, you will oversee BBS UK’s clinics support and advice services. Working closely with the CEO, NHS clinics and partner organisations, you will: 

• Lead and support a small remote-working team

• Provide supervision and safeguarding leadership to Patient Liaison Officers and Advice Workers

• Act as Designated Safeguarding Lead (DSL) for the organisation

• Oversee caseloads, service quality and risk management

• Support staff wellbeing, learning and development

• Build positive relationships with NHS and external partners

• Help develop and improve BBS UK’s support services

This is a home-based role with travel to specialist clinics in London and Birmingham, plus occasional meetings and events. Travel expenses will be reimbursed in line with BBS UK policies. 

About You 

We are looking for someone who: 

• Has experience managing a team within health, social care, welfare or voluntary sector services 

• Has experience providing leadership, supervision or safeguarding oversight within a support service setting 

• Has strong safeguarding knowledge and can make sound decisions in complex situations

• Communicates well and builds positive working relationships

• Can manage competing priorities and support a busy team

• Is organised, practical and calm under pressure

• Is reflective, approachable and supportive

• Shares our commitment to inclusive, person-centred support

• Wants to make a meaningful difference to people living with BBS

Why Join BBS UK? 

BBS UK is a small, supportive charity making a real difference to the lives of people affected by Bardet-Biedl Syndrome. By joining us, you will: 

• Make a direct and meaningful difference to children, adults and families living with BBS

• Be part of a supportive and values-driven team

• Work flexibly from home while contributing to a nationally recognised rare disease support service

• Receive ongoing training, supervision and professional development

• Help shape the future of support services for people living with BBS 

Additional Information 

• An enhanced DBS check is required for this role

• Some evening or weekend work may occasionally be required, with time off in lieu provided

If you’re ready to use your skills and experience to make a meaningful impact, we’d love to hear from you. If you would like to discuss the role before applying, details can be found in the application pack. 

Application Deadline: Sunday 7th June 2026 (midnight) 

Interviews: Expected to take place in London on 16th and 18th June 2026