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Page 4 of 12
Remote
£29,705 (pro rata £23,764 for 0.8 FTE)
Part-time (28 hours per week )
Permanent
Job description

About us

Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, uniting patient voices to campaign for timely diagnosis, better care, and improved access to treatments.

We host Rare Disease UK (the national campaign for implementation of the UK Rare Diseases Framework) and SWAN UK (the only dedicated support network for families of children with undiagnosed genetic conditions) and we run the annual Rare Disease Day campaign

About the role

This is a creative and purpose-driven role at the heart of our charity’s communications. As Senior Communications Officer, you’ll help us tell powerful stories, share our impact, and build connections with our members, supporters and partners.

You’ll lead on producing engaging digital content, managing our social media and newsletters, and keeping our website fresh and accessible. You’ll also support light-touch fundraising campaigns, helping us grow our income and supporter base.

This is an ideal role for someone who enjoys combining creativity with strategy, you’ll use your writing, design and digital skills to make our work visible and compelling, while ensuring the voices of those living with rare conditions remain at the centre of everything we do.

You’ll work closely with the Head of Membership and Communications and our new Director of Engagement and Impact, contributing ideas that strengthen how we engage all our audiences.

About you

We’re looking for someone who is:

  • A strong communicator with at least two years’ experience in a communications role.

  • Skilled in producing visual and written content for websites, social media and newsletters.

  • Confident using digital tools (e.g. Canva, Adobe suite, Wordpress/Drupal).

  • Organised, creative, and comfortable working both independently and collaboratively.

  • Motivated by making a difference for people affected by genetic, rare and undiagnosed conditions.

Experience in the health, social care or charity sector would be an advantage, but curiosity and empathy matter just as much as direct experience.

What we offer

  • Generous pension (5% employer, 3% employee)

  • 25 days annual leave (pro rata) plus bank holidays

  • Full office closure over Christmas and New Year

  • Flexible, home-based working with supportive team culture

Location: Home-based (UK) – occasional travel required

Salary: £29,705 (pro rata £23,764 for 0.8 FTE)
Contract: Permanent, 28 hours per week (0.8 FTE)
Closing date: 27 November 2025

 

Application resources
Posted by
Genetic Alliance UK View profile Organisation type Registered Charity Company size 11 - 20
Posted on: 31 October 2025
Closing date: 27 November 2025 at 17:00
Tags: Communications, Content Writing / Copywriting, Health / Medical, Social Media, Web

The client requests no contact from agencies or media sales.