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Page 9 of 15
Sheffield City Centre, South Yorkshire (On-site)
Unpaid role, expenses paid
Voluntary
Job description

We're looking for Trustees with a range of skills (HR, fundraising and bid writing, governance, strategic planning, impact and evaluation reporting and more) to support the Sheffield ME and Fibromyalgia Group to move forwards and positively impact the lives of our members.

What will you be doing?

We're looking for up to 10 Trustees, including a Chair, to continue the amazing work already achieved. 

As a Trustee you’ll have an essential role in contributing towards our journey of change and continuous improvement. We are looking for individuals with an open mind, a willingness to challenge each other and the Manager constructively, a willingness to understand the needs of our members and a desire to positively impact their lives. 

In an attempt to increase the diversity of both the Board and the membership, we particularly welcome applications from those aged 30 or under and people of colour; the perspectives of individuals with lived experiences of chronic illnesses is important to us too. 

The charity is currently unincorporated but this is a decision that the new Board will consider.

One of the challenges is that the Board and staff team are small, with several Trustees either having chronic illnesses themselves or caring for those that do. With the loss of our last manager, the Trustees have become fairly operational; this new chapter of our journey will re-establish these boundaries, enabling Trustees to be strategic and empowering staff to be operational. 

We are also looking for a permanent Manager and will shortly be recruiting an Benefits Adviser, a fantastic service that has a real impact on the lives of our members. 

Additional challenges are that we rely on external funding to ensure that we continue to deliver high quality services for our growing membership.

In the coming years we aim to work more closely with local communities and medical practitioners to raise awareness of these conditions, that are often dismissed, reaching many that might not see themselves as having a chronic illness in the first instance.  We will also develop our relationship with our members to ensure that the services we provide continue to meet their needs.

Following Covid and the introduction of long Covid as a chronic illness, societal perceptions are changing and more research is being undertaken in this area.  

We hope to have convinced you that it is an exciting time to be part of the Sheffield ME and Fibromyalgia Group!

What are we looking for?

Any skills and experiences you can provide will be hugely beneficial...

Our Board is currently small and as such we are looking for up to 10 Trustees with skills in a range of areas:

HR and governance: we are currently incorporated but this is a decision we hope the Board will consider. Expertise in these areas will ensure we remain legally compliant

Strategic planning: in addition to having an understanding of our current intentions, the ability to scan the horizon and identify new possibilities will continue to ensure the charity grows

Coupled with individuals with fundraising / bid writing experience, we can continue to deliver our current programme but identify gaps within our provision that benefit our members whilst matching these with potential funders.

Impact and evaluation reporting: as a charity we are brilliant at what we do however we are not so effective at communicating this. Assistance in this area will enshrine our work locally and nationally.

We need to represent our members effectively, undertaking research with our members will ensure that we continue to meet their needs with current and new opportunities. It is important to hear the voices of those un(der)represented. A focus on equity, diversity and inclusion can help us increase our diversity, both as a Board and our membership, ensuring that our support reaches those individuals that require it and that we identify ways of engaging them that are meaningful to those communities.

It is equally important to ensure that the views of those with lived experiences continue to shape the actions of the organisation, be that through ring-fence roles on the Board or a sub-committee that reports directly to it.

Please get in touch if your skills aren't listed but you are committed to making a difference, we'd love to hear from you!

What difference will you make?

Why become a Trustee at the Sheffield ME and Fibromyalgia Group?

Becoming a Trustee of the Sheffield ME and Fibromyalgia Group is more than a governance role — it’s an opportunity to make a lasting difference in the lives of people living with chronic, often misunderstood conditions.

The impact you’ll nave

  • Championing voices: Trustees ensure that the needs and experiences of people with ME and Fibromyalgia are heard, respected and represented in local health and community discussions.
  • Strengthening support: By guiding the charity’s strategy, you help sustain vital services — peer support, advocacy and wellbeing activities — that reduce isolation and improve quality of life.
  • Driving change: Trustees influence how the organisation grows, ensuring it remains resilient, inclusive and responsive to the evolving needs of its members.

Why it matters

  • Chronic illnesses affect thousands of people across South Yorkshire and North Derbyshire, and beyond, often leaving individuals feeling invisible or unsupported.
  • The Group provides a lifeline — connection, understanding, and practical help— that empowers people to live fuller lives despite their conditions.
  • Trustees safeguard this mission, ensuring the charity continues to thrive and expand its reach.

What you’ll gain

  • Personal fulfilment: Knowing your skills and decisions directly improve lives in your community.
  • Professional growth: Experience in charity governance, leadership, and strategic planning.
  • Community connection: Join a passionate team committed to compassion, advocacy and positive change.

By becoming a Trustee, you’re not just joining a board — you’re joining a movement to bring hope, dignity, and support to people living with ME and Fibromyalgia, CFS and long Covid.

Before you apply

Please don't hold back because of imposter syndrome — that voice that says “I’m not good enough” or “others are more qualified.”

  • Imposter syndrome is common
  • Your lived experience, skills and perspective are valuable. Roles like this aren’t about being perfect — they’re about bringing diversity of thought, passion and commitment.
  • Growth comes from stepping forward. You don’t need to have all the answers; you just need the willingness to learn and contribute.

If you’re hesitating remember the very fact that you care enough to doubt yourself shows humility and integrity — qualities that make you exactly the kind of person organisations need.

Don’t let self-doubt silence your potential. Apply anyway. You may be surprised at how much you have to offer and how much impact you can make.

This is an open application; there are no scheduled interview dates. We will contact applicants and arrange a suitable time to meet. 

We reserve the right to remove this post once suitable candidates have been found. 

Start date: as soon as possible, training will be provided.

Posted by
Sheffield ME and Fibromyalgia Group View profile Organisation type Registered Charity Company size 6 - 10
Posted on: 03 December 2025
Closing date: 03 March 2026 at 16:38
Job ref: 1273973
Tags: Finance, Human Resources, Marketing, Database Management, Strategy, Governance / Management