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This is an exciting time in our growth as we look to grow our governance systems, build on our successes and ensure we are a radical, dynamic organisation rooted in our anti-racist and anti-oppressive values.  We are looking for a new Treasurer for our Trustee board, to join us and help lead and shape the future of the organisation.

This is an exciting time in our growth as we look to grow our governance systems, build on our successes and ensure we are a radical, dynamic organisation rooted in our anti-racist and anti-oppressive values.  We are looking for a new Chair for our Trustee board, to join us and help lead and shape the future of the organisation. 

Trustee

Trustee Recruitment - Lead with Purpose: Become a Trustee and Help Achieve a Life Unlimited. 

Your experience. Your voice. Your impact.

At Cystic Fibrosis Trust, we believe in a world where everyone with cystic fibrosis (CF), can live a life unlimited — and we’re inviting passionate individuals to join us on this powerful journey.

This is more than a governance role — it’s an opportunity to help guide strategic decisions that impact lives, influence national initiatives, and accelerate progress for a community that deserves nothing less than a brighter future.

Location: Remote / hybrid
Commitment: Flexible, approx. one day per month
Positions available: Multiple
Remuneration: Voluntary (reasonable expenses reimbursed)

About us

Cystic Fibrosis Trust is the UK’s leading charity dedicated to uniting for a life unlimited for everyone with CF – one of the most common life-limiting genetic conditions.

Our team of dedicated staff, volunteers, and Trustees works alongside people affected by CF to fund life-changing research, promote world-class clinical care, and provide essential advice and support.  We champion a community that is united by strength, compassion, and hope.

Our work relies on the generous donations of our supporters.

About the role

As a Trustee, you’ll play a pivotal role in shaping our vision, values, and strategic direction, developing our aims, objectives, and goals. Your leadership will help us make decisions that matter, and your voice will help steer us toward a stronger, inclusive future.  Trustees typically serve a three-year term, with the option to continue for a second.

This is a voluntary role (unpaid), but reasonable expenses can be claimed for travel to attend meetings in person.

Time Commitment: up to one day a month on average, comprised of preparation for and attending meetings, away days and Trust related activities

Who are we looking for?

We welcome applications from individuals of all backgrounds and experiences.

Due to our normal rotational retirements and trustee terms of office we have several vacancies.  We are keen to increase the representation of people with lived experience of CF and are particularly interested in applications from all people who can offer professional skills and experience in:

• finance and accountancy
• legal practice/law
• fundraising and income generation
• marketing and communications
• data and digital strategies
• basic science research
• non-clinical CF professions (e.g. psychology or social worker)

As part of our long-term succession planning, we would also welcome interest from candidates who may be open to taking on additional Board leadership responsibilities in the future, e.g. Chair, treasurer, or committee roles.

The cystic fibrosis community is diverse, encompassing people of all ages and backgrounds. We are committed to ensuring that this diversity is reflected on our Board. We are especially interested in hearing from those with lived experience of CF, disabled individuals, and candidates from Black, Asian, and minority ethnic communities, as well as LGBTQI individuals. We value fresh perspectives and encourage applications from first-time trustees.

Why Join Us?

• Make a meaningful impact on the lives of people affected by cystic fibrosis.
• Engage with dynamic peers who are driven, forward-thinking, passionate and purpose-led.
• Help drive an inspirational mission that blends science, support, and community.
• Play a critical role in shaping our strategic direction, ensuring robust governance, and championing equity, diversity and inclusion.
• Gain valuable experience in governance and strategic planning.
• Use your expertise to fuel lasting change.

 
If you are passionate about making a difference for people with cystic fibrosis, this is your moment.  Please get in touch.

Ready to Make a Difference?

Please download the Trustee Recruitment Pack for more information about the role and how to apply or click the button above “Redirect to the recruiter”

Important Dates

Closing date for applications: Wednesday 20 August 2025 
First interview: Week commencing 8 September 2025
Second interview: Week commencing 15 September 2025

REF-222468

The Finance Trustee will engage in all aspects of our governance, with a particular focus on financial strategy and governance.They will use their sound financial skills & experience to support the Board’s understanding & interpretation & to ensure legislative compliance.  

• To support the Board to oversee & to ensure appropriate presentation of budgets, accounts, management accounts and financial statements.
• To ensure appropriate presentation of accounts and records, ensuring that financial resources are spent in accordance with the charity’s policies, good governance, legal & regulatory requirements.
• Liaising, where applicable, with the Chair/ other appropriate members of staff and supporting on financial matters
• Supporting the Board to monitor the financial viability of the charity.
• Creating, in conjunction with relevant trustees and staff, sound financial processes and procedures for the control of the charity’s assets.
• Advising on the financial implications of the charity’s strategic plan.
• Reviewing the annual accounts and, where applicable, liaising with the charity’s external auditor to ensure the accounts are compliant with the current charities’ SORP.
• Ensuring that sound financial management is maintained and ensuring expenditure is in line with the charity’s objects.

Endometriosis UK is the largest UK charity for those with endometriosis. Endometriosis UK works to:

• Provide support to those with endometriosis and their families and friends
• Provide clear, objective information about the condition and its treatments
• Raise awareness amongst health professionals and the general public about the condition
• Support research into endometriosis.

This is an unpaid role. Reasonable pre-agreed travel expenses will be paid.

Time commitment:

• five Trustee Board meetings a year, including preparation for meetings, reading papers etc; and attendance at an annual strategy day and AGM (held on the same days as Board meetings). Three meetings are held in person on London on a Saturday, with two meetings being virtual evening meetings.
• Trustees have the opportunity to take part in Board sub-groups and project groups to develop aspects of the organisations’ work. Current sub-groups include the Finance Committee and Diversity & Inclusion Sub-Group.

Trustees are also invited to attend Endometriosis UK events.

We are currently recruiting for ONE NEW TRUSTEE to join the board. We are particularly looking for significant experience of charity governance, management and best practice. Examples of how this might have been gained include having worked at a senior level in a charity, or previous trustee experience.

If you are keen to join the Endometriosis UK Board and don’t have this experience, there will be further opportunities over the next year as we will be recruiting for more trustees as Board members reach their maximum length of service. Keep an eye on our social media for more information.

Personal experience of living with, or having a close family member with, endometriosis, is vital on our Board. Whilst we look favourably on applications from those in the endometriosis community, we already have Trustees with first hand lived experience and new trustees do not need to have endometriosis.

We also particularly welcome applications from trustees from a range of backgrounds and experiences as part of our commitment to diversity.