Purpose of the post
HDR UK are committed to meaningful involvement and engagement where patients and the public are actively involved in shaping our work and decision-making. Reporting to the Senior Public Involvement and Engagement Manager and matrix managed within the Big Data for Complex Disease team, this is a pivotal role that will maintain and build upon an established strategy and programme of activities embedding the patient and public voice at all stages of work with the Driver Programme.
Your work will also support best practice delivered as part of the Public Engagement in Data Research Initiative (PEDRI), a vital UK-wide multi-stakeholder initiative that aims to facilitate a sector wide shift focused on establishing and advancing good practices for public involvement and engagement (PIE) with data-driven research and statistics.
You will work closely with public members, research and NHS communities, internal colleagues, charity partners, and funders to develop and implement plans for patient and public involvement and engagement.
This is an exciting opportunity for someone who has a passion for meaningful involvement and engagement of patients and the public in research, to shape and influence our work on the safe, ethical and scientifically robust use of data for research into the causes, prevention and treatment of disease.
The successful candidate will have a track record in working with individuals, groups and communities and can communicate complex information in clear, engaging ways. The post holder will have excellent influencing and negotiation skills, experience of working on complex projects with multiple partners and be comfortable with working at pace. Patient and public involvement and engagement in data-driven research is a growing field. The successful candidate will show a willingness and experience of developing and delivering innovative approaches to involvement where previously opportunities may not have been obvious.
We are particularly interested in candidates who have experience of working with diverse communities and using trauma-informed practices to engage with those having lived experience of a variety of health conditions.
Main responsibilities
Big Data for Complex Disease PPIE strategy and delivery:
- Lead on the delivery of the PPIE strategy for the Big Data for Complex Disease driver programme, with oversight from the Senior PPIE Manager and Senior Programme Manager.
- Develop and deliver training and support best practice for researchers working with patients and the public on involvement and engagment in health data research.
- Support member development and growth of the network of patients and public contributors involved in the Big Data for Complex Disease driver programme, including by providing training and guidance on data science and its use in the programme.
Embedding PPIE in our work:
- Lead and facilitate meetings with public contributors to integrate meaningful PPIE throughout all aspects of our work.
- Undertake and manage specific involvement and engagement activities, including but not limited to focus groups, engagement events, developing and undertaking surveys, supporting the writing of plain English summaries of projects and their outputs. In collaboration with senior colleagues, support involvement of patients and the public in the governance of our work.
- Review and provide advice on PPIE elements of research projects ensuring adequate PPIE is incorporated and provide advice and support where needed to researchers.
- Develop methods to expand reach and ensure diversity of perspectives and work with the HDR UK Involvement and Engagement team to grow involvement of currently underrepresented and underserved groups in health data science.
- Build and manage relationships with colleagues within the Big Data for Complex Disease driver programme and relevant partners like the British Heart Foundation (BHF) Data Science Centre, working collaboratively to support and manage involvement and engagement across all areas of work.
- Work closely with the internal communications colleagues to create and disseminate engaging content (e.g. news stories on outputs and impact, videos, infographics, case studies) on our work and involvement and engagement activities using a variety of communication tools.
- Horizon scan and liaise with colleagues across HDR UK for opportunities to increase visibility of the institute’s engagement and involvement impact, i.e. through conferences, festivals, journals and other publications.
- Lead on the recruitment of new public contributors as required. Adapt, develop and provide training for public where necessary identifying training requirements as needed.
Developing PPIE best practice and collaborative working:
- Work with the Senior PPIE Programme Delivery Manager and the rest of the PPIE Central team to share best practice and examples of successful PPIE practices that could influence our work, including through the Public Engagement in Data Research Initiative (PEDRI).
- Collaborate with the Senior PPIE Programme Delivery Manager, the PPIE Central team, and the HDR UK’s Institute-Wide PPIE Leads Group to lead public outreach initiatives and other events, ensuring that stakeholders are afforded opportunities to contribute their input and provide feedback. Establish effective working relationships and ‘ways of working’ with strategic partners to maximise opportunities for collaboration in patient and public involvement and engagement.
- Act as an internal and external ambassador for public, patient and practitioner engagement and involvement.
- Monitor and report on performance of PPIE across the Programme, make effective use of digital approaches to maximise the ability to collaborate, communicate and continuously learn.
Knowledge, skills and experience
Experience
- Educated to degree level or equivalent
- Experience of working with patients, carers and members of the public with diverse interests.
- Experience of working with community organisations and diverse voices
- Experience of running patient/public involvement activities
- Experience of developing, implementing and evaluating patient and public engagement and involvement strategies and methodologies, preferably in a research environment
- Experience of promoting the need and value of engagement and involvement to a wide range of stakeholders and acting as an advocate
- Experience of writing / developing content for public and research audiences and delivering presentations
- Experience of demonstrating an understanding of health research and the needs of patients and the public
- Planning and organisational expertise with a proven track record of delivering challenging projects with multiple partners to deadlines
- Experience of organising and facilitating a range of events and meetings including: event preparation, chairing of meetings, delivering presentations, use of tools to gather views and feedback, follow-up communications and evaluation
- An understanding of the public sensitivities of using health data for research
Skills
- Excellent planning and organisational skills, with the ability to manage complex and multiple areas of work with competing priorities in a fast-paced environment.
- Evidence of ability to meet tight and challenging deadlines using a flexible and adaptable approach
- Good influencing and coaching skills.
- Excellent people and interpersonal skills to build collaborative partnerships across diverse groups and the ability to handle sensitive issues positively.
- Excellent written and verbal communication skills with the ability to communicate effectively and confidently with different groups of stakeholders and people at all levels.
- Able to grasp the complexity of work across HDR UK and process complex scientific information to communicate it in a way that is clear, engaging and inspires the public to get involved.
- Strong analytic skills with the ability to frame problems and solutions in a logical manner.
- Ability to work autonomously and make decisions without supervision.
- Ability to work collaboratively and as part of a multi-disciplinary team.
Registered Charity 
51 - 100
The client requests no contact from agencies or media sales.
Thank you!
Reporting to the Digital Manager, you’ll be part of the Digital team, working alongside the Content & PR team and Campaigns & Marketing team.
You will be joining at an exciting time for the organisation. Following the recent merger of St Barnabas House and Chestnut Tree House with Martlets Hospice, and the appointment of a new CEO for the group, you will play a vital role in the Marketing & Communications team, managing a portfolio of websites which are at the heart of everything we do.
You’ll be responsible for managing, developing and implementing a leading online presence for Southern Hospice Group with exceptional website experiences through secure, accessible and brand aligned websites and donation platforms. These will empower audiences and drive increased support for the charity.
Part of the role involves building strong internal relationships with colleagues in the team, as well as various key stakeholders across the organisation to ensure website content is optimised, up to date and aligned with the charity’s communications strategy, digital strategy and business plan. You will also work with external suppliers including website development agencies and platform developers.
As well as managing the websites, you will play a key role in developing and implementing a data driven, audience focused content strategy to enhance the online visibility of the hospice websites. You will manage the project to implement a new website for the organisation within the first few months in the role.
You’ll be able to demonstrate proven experience in website management, ideally at a non-profit, the ability to interpret and monitor data to deliver reports and a keen eye for design with experience in developing content and graphics for web. You’ll also need to be an excellent copywriter and proofreader.
Essential criteria
- Proven experience in website management, ideally in a non-profit environment.
- Editorial experience: adept in writing copy for web, adapting copy to suit the audience and tone required.
- Experience of WordPress, Shopify or other ecommerce platforms desirable.
- Experience of interpreting and monitoring Google Analytics and producing reports.
- Experience of delivering creative, user-led, and accessible web experiences for marketing and fundraising campaigns, in a busy environment.
- Skilled in developing graphics for web – Illustrator/Photoshop/InDesign/Canva.
- Knowledge and experience of implementing best practice, SEO, accessibility, and mobile optimisation.
- Ideally, demonstrable working knowledge of A/B testing methodology.
- Excellent digital project management skills: delivers projects to brief, on time and to budget. Prioritise projects and tasks appropriately.
- Proven ability to think strategically and translate concepts into effective action plans.
- Knowledge of web regulations/standards and their application in a charity context.
About us
Southern Hospice Group is the largest group of hospices in Sussex and one of the largest in the UK. We are committed to providing exceptional and compassionate care to adults, children and their families across Sussex. Bringing our teams and resources together as one organisation means we can focus on new and exciting visions and plans for our people and patients and provide even greater opportunities for our workforce.
St Barnabas House provides specialist palliative care to adults in the Worthing, Adur, Arun and Henfield areas through a range of services, including in-patient care and community living well services.
Chestnut Tree House is the children’s hospice for East and West Sussex and South East Hampshire, providing specialist palliative care for children and young people with life-limiting conditions.
Martlets provides essential care to people affected by terminal illness in Brighton and Hove and surrounding areas. Our expert teams provide the very best care and support, helping patients and their loved ones to live life to the full during the precious time they have together.
We warmly welcome applications from all sections of our community. We also invite applications from suitably experienced people for all industry sectors who can demonstrate the skills, ability and enthusiasm to work with a people-centric organisation like ours.
Benefits
- Company pension scheme or NHS pension scheme for eligible employees
- Up to 35 days’ annual leave inclusive of bank holidays
- On-site education support and study leave opportunities
- Option to access Health Shield and cover your everyday cost of healthcare for less
- Free parking, subsidised meals and various social activities
- Corporate rate gym membership, discounts with local complementary therapies and Blue Light Card
- Employee Assistance Programme
- Death in Service
Please note that we reserve the right to close this vacancy before the published closing date where applicant volume is high.
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for an Enhanced submission for Disclosure to be made to the Disclosure and Barring Service to check for any previous criminal convictions.
The client requests no contact from agencies or media sales.
Thank you!
About Women in Prison
Women in Prison is a national, women-led, feminist organisation. We deliver front line support to women harmed by the criminal justice system, through our work in prisons, in the community and ‘through the prison gate’ as they resettle back into their communities. We also campaign for systems change that addresses the root causes of offending, reduces the harmful impact of prison, and creates workable, community-based alternatives to imprisonment.
Job Description:
Job Purpose:
To lead the operational delivery of Women in Prison’s services across Wandsworth, Sutton and Merton, including the management of the Wandsworth Hub and line management of two Advocates. This role ensures the delivery of high-quality, trauma-informed support for women affected by the criminal justice system and will also support the development and integration of a new South London-based project focused on women who have had children removed or are at risk of child removal.ma
Key Responsibility Area
- Lead operational delivery of the South London Women’s Hubs, ensuring trauma-informed, high-quality support for women affected by the criminal justice system.
- Provide strong leadership to staff teams, fostering a culture of learning, inclusion and accountability
- Ensure quality assurance and compliance through effective systems, data oversight and reporting
- Develop and maintain strong partnerships with key agencies to enhance support pathways and systemic impact
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The client requests no contact from agencies or media sales.