Carer support manager jobs in castelnau, greater london

About the role

We are excited to recruit a Community Organiser for our East Oxford Parent Power project. This role offers a meaningful, paid professional development opportunity. The Brilliant Club work in partnership with Oxford Brookes University to engage with parents in East Oxford.

Parent Power supports parents/carers to develop skills in community organising and expertise in supporting their child to access higher education. The project empowers parents/carers to make change in their children’s future and ensure that they have a fair chance in education and their future careers.

The Community Organiser will:

• Support local pupils from underrepresented backgrounds by empowering their parent/carers to become higher education experts.
• Receive community organising training from Citizens UK and develop transferable skills.
• Join a nationwide community of community organisers making a significant impact on university access.

Position: Corporate Partnerships Senior Executive
Hours: Full-time, 35 hours a week
Contract: Permanent
Location: Office-based from any of our Four UK National Offices, with flexibility to work remotely
Salary: Starting from £33,044 per annum plus excellent benefits
Salary Band and Job Family: Band 2*, Charity
*you’ll start at our entry point salary of £33,044 per annum, increasing to £35,109 after 6 months service and satisfactory performance and to £37,174 after a further 6 months.

About us

We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.

Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus.

Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information.

Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.

About this job

This is an exciting opportunity to join our Corporate Partnerships team, based in London, with flexibility to work from home. You’ll be part of a growing, supportive and ambitious team, raising significant income to support people living with and affected by MS.

You’ll work collaboratively with the Corporate Partnerships team, internal and external stakeholders, to identify mutually beneficial new business opportunities building a healthy and robust prospect pipeline.

You will be leading on the successful delivery of these partnerships to maximise their life-time potential and ensure they are delivering against financial and non-financial objectives. These partnerships will generate income for our Services and Support projects as well as our exciting Stop MS Appeal; the MS Society’s ten year research-focused national appeal.

You’ll have an affinity for building strong relationships and successful partnerships, great attention to detail and strong interpersonal skills. With a creative, logical and enthusiastic approach, you’ll have the opportunity to work on exciting events, develop compelling proposals and innovative fundraising initiatives.

This is a great opportunity to build on your existing experience within corporate fundraising.

Your key responsibilities include (but are not limited to):

• Delivering income at or above the agreed budget level from corporate relationships and activities as agreed within the annual budget and business plan
• To lead on identifying and securing new business and establish a strong pipeline of prospective corporate partners, that will deliver six figure income targets year on year
• Maximise the fundraising potential of high value existing partnerships through taking responsibility for specific projects.
• Relationship management and pipeline development of corporate partners, delivering agreed objectives and expectations
• To contribute to the overall income generation and implementation of the Corporate Partnership team’s objectives
• To contribute to a positive working environment in which equality and diversity are valued and staff are enabled to do their best
• Accurate and timely reporting on key activities, income and expenditure

Closing date for applications: 9:00 on Thursday 29th May 2025

Interested?

PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.

Equal Opportunities 
We particularly welcome applications from people with disabilities and or from ethnic minority backgrounds.

We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application. 

Disability Confident Employer 
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.

You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.

If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.

More about our employee benefits:
We have a wide range of employee benefits including (but not limited to): 

Encouraging work life balance

• 38 days paid annual leave (including bank holidays), pro-rata for part-time
• More annual leave entitlement, based on length of employment
• Smart working options (with the opportunity to work remotely and find a smart working pattern that suits both you and us) 
• Flexible working options 

Caring for you and your family 

• Generous sick pay entitlement
• More sick pay entitlement, based on length of employment 
• Opportunity to buy and sell annual leave in each calendar year 
• Free access to a GP virtually 24 hours a day/7 days a week allowing you unlimited advice, reassurance and where appropriate diagnosis 
• Enhanced leave for new parents 
• Free access to a confidential 24 hours a day/7 days a week helpline service for both you and your family with a specialist range of support and information
• Special leave options (such as up to 5 days paid leave for domestic or personal emergencies a year)
• 10 days paid disability leave a year, pro-rata for part-time 
• 10 days paid carers’ leave a year, pro-rata for part-time 
• Cycle to work scheme 
• Death in service scheme
• New family-friendly benefits, including paid leave:
  • In the event of miscarriage or still birth 
  • To support fertility treatments
  • For antenatal appointments for both parents

Thinking about your finances 

• Enhanced salary sacrifice pension scheme
• Discounted season ticket loan and interest-free emergency loans
• Give as you earn to support other charities of your choice before tax
• New employee portal including lifestyle savings vouchers and personal wellbeing

Enriching your life at work

• Personalised development plans with a wide range of training courses and opportunities to source additional training options with your line manager
• Yearly internal apprenticeship opportunities
• New, modern offices that embrace working together both in-person and remotely 
• Various opportunities to influence how we internally operate (including surveys, and focus and committee groups) 
• Active and supportive internal employee networking groups for collaboration and peer support 
• 2 days paid leave a year for volunteering for MS Society activities during normal working hours (such as fundraising events, or campaigning in the local community) 
• 2 days paid leave a year for volunteering with other charities during normal

Safeguarding 
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.

This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.

We recognise our particular responsibility to make sure vulnerable adults and children are protected.

We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.

Your right to work in the UK 
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.

You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.

No agencies please.

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases. 

Do you want to work for a caring organisation that believes in people?

Do you want to make a difference?

At Change Grow Live, our commitment to making a difference in the lives of those who use our services is unwavering. We provide support, respect, and a safe environment, where we tailor our approach to each individual's needs to find the best treatment and support options.

Guided by our core values of being open, compassionate and bold, our team embodies these principles daily, striving to empower individuals to reshape their lives, foster personal growth, and embrace life to its fullest.

We’re excited to offer an opportunity for a Young Person Targeted Intervention Worker in our Lambeth service with the passion, skills, and experience to support young people facing challenges around substance use and related needs. This role is key in ensuring timely, tailored interventions that make a real difference.

Under the direction of the Service Management Team, you will lead the coordination of targeted interventions, including brief interventions, group work, and assertive outreach, aimed at individuals and groups at risk of harm from substance misuse. A key part of the role involves developing pathways with partner organisations to support early identification and intervention, particularly for young people.

Full Time Hours: 37.5 per week

Full Time Salary: £27,861.26 - £32,002.35 dependant on experience (based on full time hours, pro rata for part time hours)

Allowance: £4,133.14 Inner London Weighting (pro rata for part time roles)

Contract: 1fixed term contract until 31st of March 2026

Full-time hours at Change Grow Live are 37.5 hours per week. For part-time roles, the salary and payments will be pro rata based on contracted hours.

Please note - Interviews will be taking place on the 30th of May 2025

Responsibilities

About the role: 

• Lead on the coordination and delivery of the service’s prevention, early intervention, targeted education offers, and youth settings.
• To increase visibility and accessibility of the service amongst children, young people, families, and partners with the aim of increasing referrals into service for specialist support.
• Identifying and responding effectively to potential safeguarding issues.
• Reducing drug and alcohol related harm to service users and the wider community.
• Promoting carer, service user and community involvement.
• To be responsible for proactively generating and increasing referrals from relevant partners including utilising data to target specific services/provisions.
• To develop and deliver training programmes aimed at creating awareness of the service alongside delivering early intervention key messages to professionals.
• To analyse and scrutinise data to identify gaps in areas where the service can take a proactive approach to engagement.
• To create presentations that will engage young people, using harm reduction and psychoeducation.

About you: 

• You have experience working with young people, with knowledge of the issues they face.
• Knowledge of safeguarding concerns and guidelines in relation to children and young people and the Fraser Competence framework.
• You have a good understanding of drug and alcohol issues and be able to speak about this publicly. 
• Knowledge of working with evidence-based practice around young people’s substance misuse treatment services and methods.
• Confident and strong communication skills; verbal and written.
• You can accurately plan workshops and come up with new presenting ideas
• Ability to work towards and meet deadlines. 
• You are passionate about what you do, hardworking, and ambitious to help young people build their resilience.
• A commitment to equality, diversity, and safeguarding young people.
• Build, engage, work effectively and collaboratively with multiagency to be able to gain buy in of the service that CGL offer within Lambeth.

 What we will give to you: 

• 25 days holiday (+ bank holidays) rising by 1 day for each years’ service “Capped at 30 days”
• Paid ‘Wellness’ hour each week along with a ‘Wellness’ hub and Employee Assist Programme
• Contributory pension scheme
• A great selection of benefits incl. discounts for shopping, cinema, holidays, etc.
• A friendly and supportive team
• Training, career development & progression opportunities
• Refer a friend scheme.

Please ensure you fully complete the personal statement in the screening questions, outlining how you meet the person specification and job criteria.   

If you require sponsorship, please note that this role is not eligible for a Health and Care Worker visa. You may be eligible for sponsorship under the Skilled Worker route but must meet the minimum salary requirements for the role. 

If you are passionate, eager to learn and develop your skills in working with young people who need support in relation to their drug and alcohol use – then this might be a perfect opportunity for you.

Salary Range (pro rata if part time)

CGL points 23 to 28 (£27,861.26 - £32,002.35)

ILW / OLW /Fringe

Inner London Weighting (£4,133.14)

Interview Date

30/5/2025

Closing Date

26/5/2025

This post is subject to a Disclosure and Barring Service (DBS) check at an enhanced level.

Shine is recruiting a Shine Nurse Specialist

Full Time

Permanent

Shine Nurse Specialist (Adult Nursing/ Registered General Nurse)

Location: Home based - within a commutable distance of London as there will be a requirement for fortnightly travel to the Chelsea & Westminster Clinic and with additional occasional travel across England, Wales and Northern Ireland. 

Shine’s Health Team 

Shine’s Health Team provides condition-specific health advice and support to people of all ages with spina bifida, hydrocephalus, NPH or IIH, promoting good self-management and enabling our members to live in optimum health.  The Team also aims to reduce the numbers of pregnancies affected by spina bifida and anencephaly through education around supplementation and fortification with folic acid, and other measures. 

Purpose of Job 

The Shine Nurse Specialist will deliver services and create resources to improve the health of Shine’s members, by informing members, their carers and professionals 

Principal Duties 

• To provide ad hoc advice to Shine’s members, their carers  and professionals on complex health issues, and signpost to NHS services 

• To attend and represent Shine at the Chelsea & Westminster Spina Bifida Clinic

• To collect information, statistics and research from a variety of sources to inform Shine’s health projects 

• To create resources to inform and support members’ health 

• To develop training/information resources for professionals 

• To plan and deliver projects, events, presentations and information sessions for members and professionals 

• To provide an information resource for Shine staff 

• To form and engage with networks of health professionals 

• To represent Shine at events and meetings 

• To work closely with the Health Research & Information Coordinator to produce and disseminate health information to Shine members and the general public 

Skills and Experience 

Essential 

• Professional/Registered Health Qualification, for example:

  • Adult Nursing 

  • Registered General Nurse 

• Experience of searching scientific and medical literature, collating information and writing reports 

• Excellent communication skills, written and verbal 

• Ability to work effectively alone and as part of a team 

• Ability to plan and deliver projects 

• Good presentation skills 

Desirable 

• Knowledge of the physical aspects of spina bifida and hydrocephalus 

In return, Shine will offer you: 

• A competitive salary

• 3% pension contribution 

• Life Assurance cover from 12 months service 

• 25 days holiday plus bank holidays + additional discretionary leave between Christmas and New Year (pro-rata for part-time hours) 

• Opportunity to purchase additional annual leave 

• Additional annual leave due to length of service  

• Broadband allowance 

• Support to learn and develop 

If you would like to have a chat about the role in more detail or have any questions, please contact Gill Yaz, Head of Health.

Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job. 

To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria. 

*Please note applications without a supporting statement will not be accepted* 

Closing date: Saturday 7th June 2025 at 11pm

Interview (virtual): Tuesday 17th June 2025

Early application is encouraged as we will review applications throughout the advertising period and reserve the right to close the advert early. 

We are seeking a skilled and experienced Children's Services Co-ordinator to lead on the delivery of our services for children and young people with additional needs (SEND). This includes an Afterschool Club, Weekend and School Holiday Playschemes/Teens sessions and evening youth groups.

​The role involves planning and delivering inclusive, engaging, and structured group sessions within a fun, safe, and supportive environment. You’ll be key in mentoring staff, ensuring quality service delivery and getting to know the children, young people and families we support.

Key Responsibilities

Planning & Organisation

· Collaborate with the Team Leader to manage bookings and allocate places across sessions.

· Support with recruitment and line management of Group Leaders, Deputy Group Leaders, and sessional staff, working with the Head of Services and Talent Acquisition Manager.

· Develop creative, inclusive session plans in partnership with Group Leaders, ensuring activities meet the needs and interests of participants.

· Procure resources for sessions including sensory toys, arts and crafts materials, baking supplies, etc.

· Ensure session documentation and CRM records are accurately maintained.

· Maintain excellent communication with parents, carers, social workers, schools, and internal teams.

· Identify and coordinate training needs within the team, taking part in relevant professional development.

· Liaise with the Office Manager to ensure all spaces used are clean, safe, and hygienic.

· Work with the Marketing Manager to share impact stories, quotes, and photos (with appropriate consents).

Session Delivery & Quality

· Oversee the delivery of all sessions, ensuring they are age-appropriate, engaging, and meet the needs of young people with SEND.

· Supervise and coach staff during sessions, providing guidance on behaviour management and inclusion strategies.

· Ensure every session promotes fun, safety, and a sense of belonging.

· Support staff in session planning and resource management, ensuring spaces are left tidy and ready for the next use.

· Plan and coordinate meals/snacks for afterschool sessions, ensuring adherence to food hygiene standards.

· Foster independence in young people, supporting them to develop social, communication, and life skills.

· Provide hands-on support where needed, including personal care, eating and drinking, mobility, or emotional regulation.

· Implement a simple outcomes framework to measure impact and track progress.

Safeguarding, Incidents & Compliance

· Ensure all safeguarding policies and procedures are followed, maintaining a vigilant and proactive approach to child safety.

· Record all incidents and accidents using CPOMS and escalate urgent concerns appropriately to the Head of Services and Quality and/or CEO (Designated Safeguarding Lead).

· Model professional curiosity and promote a culture of safeguarding awareness ("It could happen here" mindset).

General Responsibilities

· Comply with all LinkAble policies and procedures, with a focus on safeguarding, equality and diversity, and health and safety.

· Attend relevant training and contribute to a continuous learning culture.

· Support team collaboration by assisting colleagues during peak times or staff absence.

· Represent LinkAble’s values in all interactions with staff, families, professionals, and the wider community.

· Undertake additional duties as reasonably required to support the evolving needs of the service.

·

Equal Opportunities Statement:
LinkAble is committed to equality, diversity, and inclusion and welcomes applications from people of all backgrounds. We are especially keen to hear from individuals with lived experience of disability or neurodiversity.

About us:
Princess Alice Hospice is one of the top ten adult hospices in the UK, providing specialist palliative care and support to a community of more than a million people living in Surrey, south west London and Middlesex. : 
 

About the Hospice at Home team: 
Our Hospice at Home service brings the skills and expertise of our highly trained and dedicated specialist team directly into our patient’s homes. This allows patients, their families, and carers access to the vital support they need at home, when time matters most.

About the role:

We are looking for an experienced Nurse Specialist to take on the important role of locality team leader in one of our localities.  This will involve both clinical and leadership skills.  There is a potential for this to be a development role for an experienced Specialist Nurse wishing to move in to leadership.

Working under the clinical leadership of the Associate Director of Patient Care and Communities, you will adopt a person-centered, coaching approach to the leadership of a locality team, fostering self-coaching, team working, self-awareness, personal growth and professional competence and development. The role has responsibilities for line management of the multi professional locality team and also deputises when needed.

The role compliments an additional 2 locality leads who work closely together as a peer group across the whole service. This is an exciting role for someone who wants to blend their clinical care, skills and knowledge with clinical and professional leadership.  A minimum of 60% of time will be spent in direct clinical care.

You will ensure clinical practice is reflective of current developments in Specialist Palliative Care and End of Life Care. You will also promote a learning and continuous improvement environment and participate in the development and delivery of educational programs, research and audit

About you:  
You will be motivated, have excellent communication skills and clear leadership capabilities.

You should have a relevant degree or diploma and it’s essential that you have Palliative care or oncology and community experience.  

If you are enthusiastic, passionate. personable and share our values and care about making a difference in the last years of someone’s life, we would love to hear from you! 

As well as joining a caring organisation where you will be able to make a difference for our patients and their families, some of our employee benefits include: 

• 27 days’ annual leave plus recognised public holidays - rising to 29 days after 5 years’ service and 33 days after 10 years’ service (pro rata for part time) 

• educational and professional development opportunities (we have an on-site Education Team) 

• monthly group reflections via Schwartz Rounds sessions 

• free on-site parking 

• tranquil Hospice grounds 

• clinical supervision (regular and we ensure its protected time) 

• an annual development day - protected time for you and your learning 

• subsidised meals at our on-site restaurant

• Employee Assistance Programme 

• access to the Blue Light Card discount scheme 

• access to our Group Pension Scheme 

• Excellent changing facilities (with showers, fresh towels, and hairdryers)

• wellbeing care - we provide a programme of activities, opportunities, and guidance to inspire and support our employees to live a healthy life, at home and at work. 

For an informal discussion about the role please contact Ann Smith, Associate Director of Patient Care and Communities.

How to apply: 

At Princess Alice Hospice we are passionate about creating an inclusive workplace that values diversity. We are fully committed to equality of opportunities, and we warmly welcome applications from all backgrounds and cultures.

We are signed up to the Disability Confident scheme and we guarantee to interview all disabled applicants who meet the minimum criteria for the vacancy. We are a place where you can be you.

Please visit our Privacy Notices section to understand and be aware of how we use the data you provide to us.

All of our vacancies except from retail are subject to a relevant DBS check

Job Title: Policy & Research Officer
Location: Remote (with UK and international travel, candidate must be UK-based)
Hours: Full-time  
Salary: £30,000 - £33,000 
Reports to: Head of Insight & Advocacy 

About Us 

Metabolic Support UK is the leading organisation for people living with inherited metabolic disorders (IMDs) and their families. We provide expert support and advocacy, champion research, and work with health services and policy-makers to ensure people with IMDs and their families get the care they need and deserve. 

The Role 

We are looking for a curious and committed Research & Policy Officer to help us build the evidence base to improve the lives of people affected by IMDs. Reporting to the Head of Insight & Advocacy, you will play a key role in delivering our research projects, keeping tabs on relevant policy developments, and helping shape our responses to consultations. 

Key Responsibilities 

Research (under supervision of the Head of Insight & Advocacy): 

• Support the design, planning, and delivery of qualitative and quantitative research projects 

• Conduct literature reviews, stakeholder mapping, and data analysis 

• Contribute to survey development, focus groups, and interviews with people living with IMDs, families, clinicians and other stakeholders 

• Assist with analyses and write up findings in accessible and engaging ways for different audiences 

• Ensure all research is ethical, inclusive, and relevant to the needs of the IMD community 

Policy Monitoring and Response: 

• Track developments in policy relevant to rare diseases and inherited metabolic conditions 

• Summarise key policy updates for internal and external audiences 

• Support the drafting of consultation responses, position statements, and policy briefings 

• Contribute to campaigns, stakeholder engagement, and policy influencing activities 

• Help ensure the voice of the IMD community is reflected in national and local policy discussions 

About You 

We are looking for someone who is: 

• Organised, analytical, and enthusiastic about improving lives through research and policy 

• A strong communicator – able to write clearly and concisely for different audiences 

• Comfortable working with data, both qualitative and quantitative 

• Keen to learn, with some experience in research or policy (academic, charity, health, or public sector settings) 

• A team player who enjoys collaborating and supporting others 

Desirable experience: 

• Background in public health, health policy, social research, or similar 

• Experience working with or for people living with a disorder, carers, or people with rare or long-term conditions 

• Familiarity with the NHS, health inequalities, or rare disease policy 

What We Offer 

• A chance to make a meaningful difference in a growing, agile charity 

• A friendly and supportive team culture 

• Flexible working arrangements 

• Opportunities for learning and professional development 

PRIMARY OUTPUTS

To contribute to raising funds through high-quality bid and application processes which includes supporting the development of funding applications, stakeholder engagement. Evaluation reports and research underpinned by excellent communication skills. 

To raise awareness of DMWS services through print, web and social media activity.

All the work must ensure that DMWS’ mission, values and aims are clearly articulated in a professional manner and that our vision for sustainability and growth to support our beneficiaries is successful.

To apply please submit a CV and covering letter explaining why you would be a good fit for the role. Please remember to click on ‘upload’ otherwise we may not receive your attachments.Applicants must hold a full UK Driving Licence and have access to a vehicle which may occasionally be required for this role.  Applications will be considered as they are submitted. DMWS reserve the right to close the application process early and feedback will only be provided to candidates who attend interviews.

Key Responsibilities 

• Contribute to the writing of consistently high-quality funding applications and bid documents which are accurate, substantiated, and contain compelling content.  Ensure these are submitted to deadline and in line with the funders criteria as well as DMWS aims. 

• Write, edit and submit evaluation reports as required by the funder – working with the Grant Manager and operational colleagues for support. 

• Develop, update, and maintain an electronic project bid library resource, including written templates and application responses. 

• Maintain an up to date register of all grant and trust fund providers applied to for projects, submission deadlines, and other relevant information, including timeframes for re-applying. 

• Research and assess potential opportunities to obtain funding from grant making trusts and foundations, organisations, in order to sustain and develop DMWS services against strategic aims. 

• Contribute to the development and updating of DMWS Website 

• Develop and promote content for DMWS Social Media channels and other communication mechanism including print and online. 

• Identify and build strong internal and external relationships. 
   

As and when required, attend at various meetings and events at headquarters or other locations. 

Work with other head office and operational colleagues to share intelligence and contribute to the delivery of DMWS Strategy and organisational sustainability. 

General Support Tasks 

• Promote the vision, mission and values of DMWS 

• Contribute creative thinking, ideas and support to colleagues to help facilitate the promotion of a positive organisational environment.

• Represent and promote DMWS and its services, working with and supporting other staff, maintaining a positive and professional approach with all contacts both internal and external. 

• Engage in, and undertake with enthusiasm, all opportunities for training and professional development in order to achieve additional skills as the role and organisation develops. 

• Adhere to the terms and conditions of employment working within the policies and procedures of DMWS. 

• Be responsible for own safety and others affected by your activities and to ensure adherence to DMWS’ policies and procedures regarding Health & Safety, GDPR, Data Protection, and confidentiality. 

• Develop and maintain effective communications within DMWS to optimise outcomes. 

• To establish and maintain links to other organisations relevant to the post, and to ensure that those links are shared as appropriate. 

• To be aware of, and work to, safeguarding principles, practice and procedures. 

The list of duties in the job description should not be regarded as exclusive or exhaustive. There will be other duties and requirements associated with the role and, in addition, as a term of employment you may be required to undertake various other duties as may reasonably be required 

Person Specification 

• Demonstrable experience of securing or involvement in funding through bid writing and funding applications. 

• Demonstrable ability to communicate compelling messages in written form. 

• Experience of coordinating and updating a knowledgebase system. 

• Experience in organising, prioritising, and managing your time effectively. 

• Creative instinct and ability to think laterally about new business opportunities. 

• Collaborative and adaptive working. 

• Experience of raising funds within the third sector. 

• Experience of research and data analysis. 

• Experience of working within the health, social care, wellbeing, or military third sector is desirable but not essential. 

• Experience of working within project delivery or project development is desirable but not essential. 

Skills 

• Strong interpersonal skills that enable you to communicate internally and externally, and the ability to engage clearly with people at all levels. 

• Excellent written and verbal communication skills. 

• Accuracy and management of deadlines. 

• Team working skills and the ability to work independently with little direction to prioritise work areas. 

• Excellent IT skills including use of Word, Excel and PowerPoint Packages. 

• Confident, self- motivated, target driven, strong team player. 

• Ability to work under pressure and to demanding deadlines, delivering objectives to agreed timescales. 

Personal Qualities 

• The ability to deal positively within deadlines and presenting information with accuracy 

• A flexible approach to work. 

• Willingness to travel to DMWS HQ and other locations as required, with some overnight stays, and occasional weekend work. 

• Proactive, committed, and forward thinking. 

• Engaging manner and personality with the ability to forge effective working relationships with a range of staff and other stakeholders. 

• Personal sensitivity, empathy, and flexibility to operate within the distinctive ethos and structure of DMWS. 

• Strong commitment to DMWS’ aims of providing medical welfare services to those in need.

BENEFITS

We offer employees the following benefits: -
• Annual Leave: We give employees 30 days a year annual leave plus Public Holidays (pro-rata'd for part-time employees).
• Pension: Auto enrolment onto DMWS workplace pension scheme – subject to eligibility. You will make a minimum contribution of 5% which DMWS will match. Contributions will be matched up to 6% by DMWS.
• Death in Service Scheme: Three times your annual salary to nominated beneficiaries - subject to eligibility.
• Flexible Working: All flexible working requests are considered - many of our staff work flexible hours and work wholly, or partly from home.
• Smart Health: Access to a 24/7 virtual GP service, with a counselling service and on-line help and support around health and well-being matters.
• Work-based Parking/Mileage: For those who pay to park at their work-base, fees are repaid through expenses. Mileage claims are reimbursed in line with HMRC guidelines.
• Enhanced Sick Pay: Enhanced sick pay scheme for all employees upon completion of their probationary period.
• Staff Recognition: Staff are regularly recognised for their work by the leadership team and their peers, via internal events, social media, and industry awards.
• Personal Development Programme: DMWS supports employee continuing professional development and training.
• Above all, being part of the DMWS team means that you are making a difference to the lives of those working on the frontline.
• Great training opportunities
• £25 contribution towards eye tests and a contribution of £50 towards glasses. (As long as they are only needed for DSE use and not otherwise needed on a standard prescription).
• Enhanced maternity / paternity / adoption family friendly benefits

Age International is recruiting for a Senior Policy Adviser with a proven background in achieving impact, for a 12-month maternity cover contract, working 28 hours per week. Salary advertised is FTE - 35 hours.

This is a superb opportunity to join a small but mighty organisation, with a strong mission to champion older people's rights internationally. Leading our external-facing policy and influencing in the areas of Gender and Climate, you will ensure the experiences and contributions of older people are central to these policy spaces.

We have made significant progress in recent years, and your evident track record will help take our work into its next stage. This is an ambitious brief, so your strategic thinking and ability to prioritise will be key.

Key purpose of the role
1. To lead the areas of Gender and Climate for Age International's policy and influencing work, in support of the organisation's strategic influencing objectives - including influencing relevant external stakeholders.
2. To line manage the Policy Adviser (Health and Humanitarian) and support other Influencing colleagues.
3. To facilitate collaborative working relationships for increased impact.
4. To ensure high quality policy analysis and communications.

Please note that due to the Hybrid nature of this role, the successful applicant will be required to commute to the central London co-working hub on a regular basis. We anticipate this being twice a week. Your travel costs to the London office are not covered by the charity.

Must haves:

The below competencies will be assessed at the indicated stage of the recruitment process: Application = A, Interview = I, Test and/or Presentation = TP

Experience
* Experience of effective communications with diverse UK and international policy stakeholders across barriers of language, culture and power dynamics. (A I)
* Experience of research and policy analysis and translating complex data and evidence into engaging written content for a variety of audiences. (A I)
* Experience of influencing stakeholders at different levels within UK political / policy and international institutions to achieve policy change. (A I)
* Experience of participating actively in and/ or coordinating civil society networks and working groups to influence decision-makers collaboratively. (A I)
* Line management experience, including enabling clear objective setting and supporting professional development. (A I)

Skills and Knowledge
* Ability to take a strategic approach to stakeholder influencing and to align policy work with influencing goals. (A I TP)
* Ability to build effective working relationships internally and externally, to consult, negotiate and build support for initiatives across teams and with partner organisations, balancing collaborative working and listening skills with the ability to promote Age International's agenda. (A I)
* Ability to represent Age International with senior-level external contacts. (I)
* Ability to deal with situations that require a high level of tact and diplomacy. (I)
* Excellent written and oral communications, matching tone and style to different audiences and occasions. (A I TP)
* Ability to attend events related to areas of focus, in the UK and very occasionally to travel internationally. (I)

Personal attributes
* Fully supportive of Diversity, Equity and Inclusion. (I)

Great to haves:

Experience, Skills and Knowledge
* Knowledge of international development, including an understanding of UK, European and global institutions and their policy processes. (A I)
* Knowledge of global population ageing and the views, needs and aspirations of older people in lower and middle-income countries. (A I)
* Experience of leading projects, including managing budgets, collaborating with multiple partners and commissioning consultants. (A I)
* Experience and knowledge of the history of gender and development, and the structural issues that necessitate a feminist, decolonial approach to policy analysis. (A I)
* Ability to apply gender analysis, tools, concepts and approaches to a broad range of organisational contexts. (A)
* Understanding of climate change as it relates to older people and the globally ageing population, humanitarian contexts, as well as key concepts such as adaptation, mitigation, loss and damage and an appreciation of the key NGO calls for change. (A I)

What we offer in return

• Competitive salary, 26 days annual leave (pro-rata) + bank holidays + annual leave purchase scheme
• Excellent pension scheme, life assurance, health cashback plan and EAP
• Car Benefit Scheme, Cycle to Work Scheme and Season Ticket Loan
• Techscheme - buy any tech from Apple or Currys, up to £1000, and spread the cost over 12 months, interest free
• Blue Light Card Scheme
• You Did It Awards - recognition awards from £100-250.

Additional Information

Supporting statements and anonymisation
Candidates are expected to provide a supporting statement that explains how they meet the competencies annotated with an ‘A’ in the job description, to assess suitability for the position. Age UK acknowledges and accepts that AI may be used to support the application; we do expect candidates to personalise experience, knowledge and skills and failure to do so, may result in your application being rejected.

CVs will be anonymised by our recruitment system when you apply for a role. Our system is unable to anonymise supporting statements. Please could you remove any personal information including your name before you upload to support our inclusive recruitment process. All equalities monitoring information is also anonymised and not shared with the hiring panel. Your name and address will only be known to us if invited for interview.

Equal opportunities & Disability Confident Scheme
Age UK is an Equal Opportunities employer and positively encourages applications from suitably qualified and eligible candidates, regardless of age, sex, race, disability, sexual orientation, gender reassignment, religion or belief, marital/civil partnership status, or pregnancy and maternity. Age UK is a Disability Confident Scheme employer. Due to high numbers of applications received, Age UK reserves the right to limit the overall number of interviews offered, and therefore, it may not always be practicable or appropriate to interview all disabled people that meet the minimum criteria for the job.

Reasonable adjustments
Disabled job seekers can access reasonable adjustments at any stage of the recruitment process. All requests for reasonable adjustments are considered on a case-by-case basis, in collaboration with the disabled job seeker to best meet their needs, by contacting the recruitment team. Disability disclosures will be kept confidential and only shared on a need-to-know basis to support the implementation of adjustments. Disclosures will not be used to inform hiring decisions.

Age UK is committed to safeguarding adults at risk, and children, from abuse and neglect. We expect everyone who works with us to share this commitment.

Early application is encouraged as we will review applications throughout the advertising period and reserve the right to close the advert at any time.

Age UK politely requests no contact from recruitment agencies or media sales. We do not accept speculative CVs from recruitment agencies nor accept the fees associated with them.

For a full list of benefits please see our website.

About us:

Princess Alice Hospice is one of the top ten adult hospices in the UK, providing palliative care and support to a community of more than a million people living in Surrey, south west London and Middlesex.

About the In Patient Unit team:

Is care at your core? It is at ours. Here at Princess Alice Hospice, you’ll have the opportunity to make a satisfying, rewarding difference to the lives of our patients, their families and friends, and be supported every step of the way. We support our clinical staff to be the difference in these precious days. With outstanding patient to carer ratios. With time to build valued relationships with your patients, their families, and friends.

The secret to our CQC ‘outstanding’ rating is humble. We care for our carers. We’re ambitious - blazing new trails in end of life care - and supporting the ambitions of our nurses with on-site training and qualifications. We’re small enough to value each individual and big enough to help nurture your career goals. You’ll be part of a great team of experienced professionals to learn from and learn with, delivering care you can take pride in.

About the role:

We are looking for nurses with exceptional communication and interpersonal skills to join our team. You will work closely with the Clinical Leads to ensure more people achieve a peaceful and comfortable death in their preferred place of care.

We offer a flexible approach to rostering and we will consider part-time applications; early, late, twilight shifts are available, however please note that night shifts are currently a mandatory requirement of the position (usually 2-3 per month pro rata).  This role will cover Monday - Sunday working.

About You:

You’re a true team player, with excellent communication skills and a compassionate approach to care. You’ll be motivated to provide outstanding patient care using your holistic assessment skills, whilst liaising closely with other members of the multidisciplinary team.

Perhaps you have similar experience in palliative or end of life care, or you have transferrable skills gained in intensive or elderly care and you’re looking to join a caring organisation which will fully support you as a person and professional to grow and progress in your career.  

If you are enthusiastic, flexible and share our values and care about making a difference in the last years of someone’s life, we would love to hear from you!

As well as our competitive salary package and the opportunity of joining an organisation where you will be able to make a difference to our patients and their families, we offer a range of great benefits, which include:

• 27 days’ annual leave, plus recognised public holidays - rising to 29 days after 5 years’ service and 33 days after 10 years’ service (pro rata for part time)
• educational and professional development opportunities (we have an on-site Education Team)
• clinical supervision (regular and we ensure its protected time)
• monthly group reflections via Schwartz Rounds sessions
• free on-site parking
• tranquil Hospice grounds
• subsidised meals at our on-site restaurant
• Employee Assistance Programme
• access to Blue Light Card discount card
• access to our Group Pension Scheme (with the option to continue your NHS Pension Scheme)
• in-house laundry of uniforms, plus excellent changing facilities (with showers, fresh towels, and hairdryers)
• wellbeing - we provide a programme of activities, opportunities, and guidance to inspire and support our employees to live a healthy life, at home and at work.

If you want to be part of our outstanding multi professional team then please do not hesitate to contact us! 

Please note applications will be reviewed upon submission, and candidates may be contacted about interviews in advance of the specified dates.

At Princess Alice Hospice we are passionate about creating an inclusive workplace that values diversity. We are fully committed to equality of opportunities, and we warmly welcome applications from all backgrounds and cultures.

We are signed up to the Disability Confident scheme and we guarantee to interview all disabled applicants who meet the minimum criteria for the vacancy. We are a place where you can be you.

Please visit our Privacy Notices section to understand and be aware of how we use the data you provide to us.

All of our vacancies except from retail are subject to a relevant DBS check.

Princess Alice Hospice is one of the top ten adult hospices in the UK, providing specialist palliative care and support to a community of more than a million people living in Surrey, South West London and Middlesex. 

The Night Response Team (NR) provides specialist on call palliative nursing care between the hours of 22.00 and 08.00, 7 days a week for palliative care patients known to Princess Alice Hospice.

The Team also provides nursing care and assistance to palliative and general patients who are referred from the district nursing service, the OOH’s service (111), local ambulance services SECAMB and LAS, Mole Valley Telecare and Tunstall Community Alarm services. This includes palliative patients who are not known to PAH. Night Response visit patients in their own homes as well as in care and residential homes.

A Night Response shift will be covered by two members of staff per night, usually one RN and an SHCA, occasionally two RN’s.

We are based in an office on the in-patient unit at the Hospice. We receive calls, provide information, support and advice to patients, families, and other health care professionals, whilst visiting patients as required throughout the night.

The Night Response Service brings the skills and expertise of our highly trained and dedicated specialist team directly into the patients homes. This allows patients, their families and carers access to the vital support they need at home, when time matters most, providing the opportunity for patients to remain at home and reducing the need for hospital admissions.  

 About the role: 

We are looking for an experienced, proactive, dynamic and versatile Staff Nurse with excellent interpersonal, communication and telephone triage skills, to join our Night Response Team.

Experience in caring for patients who are terminally ill is essential. You will need to be able to work autonomously and have an excellent understanding of care provision in the community and be involved in auditing the service provided. 

You will need a full driving license with a maximum of 6 points for use of the hospice vehicle (automatic)

About you:  

You will be motivated, a flexible thinker, and able to adapt to new ways of providing care to reach more patients within the community. You will have excellent communication skills and enjoy assessing the needs of patients, families, and carers. 

If you are enthusiastic, personable and share our values and care about making a difference in the last years of someone’s life, we look forward to hearing from you! 

As well as joining a caring organisation where you will be able to make a difference for our patients and their families, some of our employee benefits include: 

• 27 days’ annual leave plus recognised public holidays - rising to 29 days after 5 years’ service and 33 days after 10 years’ service (pro rata for part time)
• educational and professional development opportunities (we have an on-site Education Team)
• monthly group reflections via Schwartz Rounds sessions
• free on-site parking
• tranquil Hospice grounds
• clinical supervision (regular and we ensure its protected time)
• subsidised meals at our on-site restaurant
• Employee Assistance Programme
• access to the Blue Light Card discount scheme
• access to our Group Pension Scheme
• in-house laundry of uniforms, plus excellent changing facilities (with showers, fresh towels, and hairdryers)
• wellbeing care - we provide a programme of activities, opportunities, and guidance to inspire and support our employees to live a healthy life, at home and at work.

For an informal discussion about the role please contact Sallyann White, Night Response Team Lead or People Services.

Please note: Our vacancies are subject to eligibility to work in the UK. We are a small organisation with limited funds and therefore, we are not able to employ you if you are outside the UK as we are not able to obtain a work permit or visa sponsorship on your behalf.

At Princess Alice Hospice we are passionate about creating an inclusive workplace that values diversity. We are fully committed to equality of opportunities, and we warmly welcome applications from all backgrounds and cultures.

We are signed up to the Disability Confident scheme and we guarantee to interview all disabled applicants who meet the minimum criteria for the vacancy. We are a place where you can be you.

Please visit our Privacy Notices section to understand and be aware of how we use the data you provide to us.

All of our vacancies except from retail are subject to a relevant DBS check.

Head of High Value Relationships

MediCinema

Location: London, in office 3 days per week with occasional travel nationally

Salary range of £48,676 - £52,153 pa plus benefits

We bring the magic of cinema into NHS hospitals

MediCinema is a leading and growing UK charity with a mission to improve the wellbeing of patients, their families and carers through the magic of the shared cinema experience. We do this by building and running fully installed, high specification cinemas in hospitals, bringing the magic of the silver screen to patients young and old, for free.

With seven hospitals so far and another two coming on board in the coming years, we are on our way to achieving our ambitious goal to establish a MediCinema in every NHS region across the UK.   

Our work makes a direct and meaningful impact on the lives of people experiencing some of their most challenging times.  We are now looking for a passionate and driven individual to join us as the Head of High Value and play a key role in the continued success of our mission and delivery of our aspirational growth plans.

As the Head of High Value Relationships, you will lead and oversee the strategic development and growth of our high-value fundraising programme. You will be responsible for cultivating and securing philanthropic support from individuals, foundations, and businesses, helping to ensure that MediCinema can continue to provide its vital services and reach many more hospital partners across the UK.  You will work closely with the Director of Development and colleagues across MediCinema, as well as with key stakeholders such as our Trustees, to create tailored fundraising strategies, and build and sustain long-term relationships with high-net-worth donors and partners.  Through the creation of a Fundraising board, a Donor Circle and development of a structured giving programme, you will help us to attract and engage donors in our long-term vision. 

You will bring a demonstrable track record in major gifts fundraising, ideally at the 5 and 6-figure level, and delivering successful income generating activities. To succeed in this role, you will be resourceful, self-motivated and collaborative, and be excited about an opportunity to work within a small and growing team.  You will work in lockstep with the Director of Development, and have the opportunity to bring your creativity and entrepreneurial flair to a purpose-led organisation that is on a path of success.  In return, you will have the support of a committed Director and team, a highly engaged CEO and Trustees, and have an opportunity to make a real impact on the lives of thousands of people.

If this sounds like the career challenge you’re looking for next, we’d love to hear from you.  For more information on the role and how to apply, please contact our recruitment partners at Richmond Associates through their website (click the apply button here) to get a copy of an Information for Candidates pack.

 Closing date for applications is 9am Wednesday, 21 May 2025.

Want to play your part in transforming society?

You're in the right place.

In partnership with St Peter's Church Bethnal Green, you will manage the delivery of Resurgo's award-winning Spear Programme. Over the last 20 years, Spear has supported more than 10,500 young people across the UK with the work-ready skills and mindset they need to succeed in employment, no matter the challenges they face. But we don’t want to stop there.

We believe each young person has huge potential. If you do too, and you have the skills and heart to see their lives transformed – join us.

The important stuff 

Location: Bethnal Green, office-based

Salary: from £28,000

Contract: Full-Time, Permanent

Assessment Day: Thursday 8th May

Application pack: Have a look at our Lead Coach Application pack for more information about the role and Resurgo.

What you'll gain:

• 28 days annual leave (including Christmas gift days) plus bank holidays
• Two-night Christmas staff retreat
• Excellent staff development and training opportunities by Professional Certified Coaches accredited by the ICF including our 5-day Coaching Academy (valued at £3,000) 
• Progression opportunities
• A worshipping community where you can pray and worship with your colleagues
• Excellent Health Insurance plan, including gym discounts and other perks
• Opportunity to join our employee-led networks including, Parents and Carers, All-In (Global Majority Heritage), and Accessibility Network

Please feel free to let us know if you may require any reasonable adjustments to participate fully in our recruitment process. 

In this role, you’ll be responsible for:

The Lead Coach is primarily responsible for overseeing the training room and group sessions with young people. You will help shape the training environment and will confidently adapt and deliver materials and sessions to work within the group’s development towards work readiness.

Delivery of Spear Programme - Group and 1:1 coaching [60%]

• Preparing and coaching Spear Foundation sessions and 1-1s, ensuring that young people are engaged, retained and work-ready by the end of this initial phase of the programme
• Building relationships with young people on the programme and managing culture, and attitudes in the training room
• Adapting the Spear coaching material according to the needs of the Trainees and managing behaviour effectively; handling safeguarding
• Taking a lead on rating the work readiness of the trainees and making sure data is inputted and used correctly on salesforce
• Liaising with volunteers for key programme engagement events such as mock interviews and external panels. Leading on briefings and communications with these volunteers

Delivery of Spear Career [20%]

• Delivering weekly Spear Career sessions (including running workshops with past Trainees), maintaining records and reporting on statistics, and creatively developing ongoing relationships with Spear Trainees

Training the Graduate Coach [10%]

• Contributing towards the training and developing of the Graduate Coach by modelling excellent coaching and giving regular feedback

Trainee recruitment [10%]

• Developing relationships with Job Centres and local referral agencies to ensure that the maximum number of Spear Trainees are enrolled on each programme. This involves liaising with referral agencies, active face-to-face recruitment and monitoring recruitment statistics

Continuous professional development

• Continually engaging in professional development, including being part of Resurgo’s wider coaching programmes and possibly supporting on leading internal training such as Grad Coach Training

Active participation in and support for church team and mission

• As the Spear programme is run in partnership with a local church partner, you will establish a strong personal connection with the church to develop the engagement and backing of church members and help build a strong network of supporters for the Spear programme. As part of this you may be asked to speak at church/events and contribute to prayer meetings as per Resurgo’s Christian ethos and the mission of the church

This role will suit you if:

• You are an active Christian, passionate about your work being a lived expression of your faith
• You have a heart for young people and releasing their potential, no matter what challenging circumstances they are facing
• You have demonstrable experience as a coach, or a background in youth work or teaching, and are keen to develop these skills further
• You are confident in leading others effectively, giving feedback and having crucial conversations
• You are steady under pressure, and able to juggle competing priorities
• Emotional resilience and good self-leadership in this area. You have a sense of humour and want to have fun at work

A couple of things to note:

• This role requires occasional evening work, for our termly Spear Celebrations (where we celebrate our trainees as they complete the initial six weeks of the programme)
• In the event of a job offer, a DBS check will be requested