Clinical trustee volunteer volunteer roles in Birmingham
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Volunteer and join our Board of Trustees and help strengthen support, awareness and long-term sustainability for people affected by Chronic Granulomatous Disorder (CGD) and their families. Please note this oppurunity to volunteer as a trustee is open to UK residents only.
A range of backgrounds
It is great if you have skills or experience which you think would beuseful to support our board, but this is by no means a requirement.We’re looking for people who are enthusiastic about us doing good work for the community and committed to helping us see this mission through.
We provide a full induction and training to everyone who joins as a trustee, and we also encourage interested parties to attend a boardmeeting before joining so you can see how we work.
Commitment from you
Being a trustee is an official duty as they have joint legal control of the charity and are ultimately responsibly for making sure it’s doing what it was set up to do. The CGD Society is also a registered company in England & Wales, so our trustees are also directors for the purposes of company law.We expect the following of all of our trustees, committing around one hour of time per week:
1.To attend our board meetings, which occur via video conference every two months. 2.To keep in touch via email, through an official email address that we will provide for you, at a minimum of once per week.
Our board meetings occur 6 times a year, usually on a weekday evening, and we provide an agenda with reading material two weeks in advance. We ask all participants to read this material and come prepared with comments and questions. Every input is welcomed, debates are encouraged, and all views matter.
We try to host one meeting per year - our Annual General Meetingor AGM - in-person at a central location, to provide an opportunity for our team to meet face-to-face. We cover all travel expenses for trustees to attend these in-person if they are able to.
We also encourage our trustees to engage with one of our subcommittees, which are smaller groups overseeing specific areas of our work, such as our nursing service or financial governance.This is optional, as we recognise that not all of our trustees can spare the time to participate.
To express your interest please send an email to hello@cgdsociety with the subject line 'Trustee rescruitment' explaining why you are interested in becoming a trustee for CGD Society. Including a CV is useful but not required.
The client requests no contact from agencies or media sales.
Thank you!
Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis?
This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.
Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.
We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.
The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.
1. Treasurer
We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.
In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board.
2. Young Trustee
- Recent personal experience of the impact of living with endometriosis whilst at school
- Ability to bring insight and perspective about the experiences of a wide range of younger people living with endometriosis, including diagnosis
May 2026 - Willingness to take on an advocacy role and to share your story in the media and in other ways to support Endometriosis UK’s campaigning and communications work
- Please note that legally trustees must be over the age of 18 in England and that we will provide support to young trustees who are new to trusteeship.
3. Endometriosis UK Trustee
- Personal or professional experience of diversity and inclusion issues
- Currently living in England, Northern Ireland, Scotland or Wales
- Charity Trustee experience
- Charity Senior Management experience
- HR expertise
- NED experience
- Experience of grant making / philanthropy
Closing date for applications – 9th June 2026
Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.
The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.
Registered Charity
21 - 50
Our Network is here to offer those affected by endometriosis the support and information they need to understand the condition and take control
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Behçet’s Disease is an auto-immune disorder which is incurable but can be managed by specialist consultants. It is very rare and can affect any part of the body. It often takes years to diagnose and can be debilitating to the patient.
Behçet’s Patients Centres (BPC), a charitable company, was formed in 2011 to provide the specialist, multi disciplinary care for patients.
We are seeking to recruit a Finance Director to our Board in order to both increase our experience and skills base and to facilitate effective succession management. This is a volunteer role that offers rewarding experience and the chance to make a difference in the lives of those who are affected by this rare condition.
This is a highly autonomous role that will make a big difference to the Board of Directors and their purpose to provide a service to one of the rarest patient groups in England. We’re looking for someone who can come in and help us build on our achievements and do things even better. You will be responsible for the financial management of the charitable company to ensure we successfully deliver our contractual commitments and thus influence the future of our funding, (we have a contract which runs until March 2028). You will play an important role as a member of the Board of Directors, ensuring they are guided by your financial expertise. This will involve preparing budgets; paying salaries and finances owing to HMRC and invoicing the NHS. We also work collaboratively with Behçet’s UK, the registered charity for patients with Behçet’s Disease and you’ll be building relationships with that charity.
The time commitment for this role is around 2 to 3 days per month on average, with extra time needed around budgeting and year end accounts.
Experience Required:
- Proven management and leadership skills
- Proven financial skills in budget preparation and management
- Proven communication skills
- Awareness of both Charity and Data Protection Law
- Computer literate in use of Microsoft products
- Experience of contract performance management
- Flexibility of working hours to attend quarterly Director meetings and the Behçet’s UK Annual Conference
Qualifications Required:
- Educated to degree level or equivalent financial experience.
- Preferably a qualification with CIMA, ACA or ACCA (or working towards)
- A UK driving licence and the ability to travel
- A clean Disclosure & Barring Services check will be undertaken
