We believe that change for people affected by ME won't just happen; it must be made. That's why action and impact are at the heart of everything we do. Whether that's helping people today with support, information, or care. Or working towards securing future change through our research and campaigning work. The intent of everything we do is to pursue positive impact for the lives, rights, and futures of people affected by ME.
As Communications Manager you will play a pivotal role in delivering strategic, impactful communications that advance Action for ME’s work, improve understanding and recognition of ME and support fundraising efforts
The Communications Manager will be responsible for the day-to-day delivery of the communications strategy, leading a team of two other communications staff. You will work closely with colleagues across the fundraising, policy, research and services departments, delivering clear and compelling storytelling, and maximising visibility across media, digital platforms and key stakeholder networks.
Key duties
Leadership and Management
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Work to ensure that people with ME are at the heart of everything we do through meaningful engagement and participation to influence all aspects of communications and marketing.
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Contribute to the development of, and then lead implementation of, the Communications Strategy, ensuring the appropriate involvement of key stakeholders, scoping, evaluating, and improving our practice.
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Maintain a data-insight led approach to the communications work providing regular management information and key performance indicator reports.
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Work as a member of the Extended Leadership Team.
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Line manage Communications Team members, supporting them to set and achieve performance objectives through regular one-to-ones and 12-monthly appraisals.
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Be responsible for Communications budget and the relationship with services providers required for the production of the charity’s digital and printed information and support resources.
Communications and Marketing
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Raise the profile of the impact of ME, and of Action for ME and its work, to enable the organisation to reach more people and better support need, by establishing a regular cadence of appropriate but innovative product across all main social media channels.
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Ensure fundraising is supported by embedding clear calls to action around donations and membership growth as a matter of course.
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Under the direction of the Director of Fundraising, develop all website, press and social media content for charity appeals.
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Market the charity’s Support and Healthcare services, including key digital and printed information and support resources, to the ME community and the professionals working with them, working closely with respective service leads.
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Contribute to income generation by working closely with the Director of Fundraising to develop the communication and marketing materials needed to implement the organisation’s Fundraising Strategy.
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Coordinate the charity’s response to any crisis communications, including developing appropriate crisis management plans and working outside of office hours as required.
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Establish effective systems/processes for gathering, supporting, maintaining, and managing case studies for a range of purposes (including press and media opportunities, public affairs and policy work, and fundraising).
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Draft and issue press releases and media statements and ensure appropriate follow-up by telephoning journalists, contacting picture desks etc. as appropriate.
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Alongside the CEO and any commissioned agency, develop relationships with key press, media and communications stakeholders to enhance the charity’s work.
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Oversee the production of the annual report, on budget, to schedule, taking overall editorial responsibility for content.
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Oversee the ongoing development of our digital engagement including our website and social media and being the point of contact on website issues.
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Fulfil the role of brand gateway keeper, ensuring all digital and printed communications, including information and support resources, adhere to brand guidelines, house style and organisational tone.
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Maintain an up-to-date knowledge and oversight of how ME and related key issues (e.g. Long Covid) are discussed in the media and wider ME community.
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Build networks to enhance the charity’s strategic communications and marketing work.
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Build and maintain an effective social media monitoring regime, ensuring fit for purpose rules of engagement are in place and applied consistently.
Other Key Accountabilities
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Ensure that all relevant service standards are met including compliance with best practice, legal and regulatory frameworks and internal standards.
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Ensure best value in all our work.
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Undertake any other duty within your ability and within reason, as may be required, from time-to-time, at the discretion of your line manager.
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On occasions, provide management support and cover within the organisation, as needed.
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Act as an advocate for the charity and its work.
Person specification
Experience, Knowledge and Understanding
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A minimum of 2 years’ experience working in a communications management role
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Experience of developing integrated, insight and audience-led communications plans including social media
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Experience of website and brand management
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Experience of delivering successful campaigns
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Experience of engaging with press and/or media including writing press releases and media briefings
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Experience of working collaboratively with different teams/departments
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Experience of working in charity communications (desirable)
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An understanding of ME and the impact on people affected by it (desirable)
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Experience of integrating fundraising with communications (desirable)
Skills, Behaviours and Values
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Adaptable and highly organised with an ability to work methodically, managing and prioritising a varied workload, use your own initiative, work independently, and work well in a team.
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Strong MS Office skills including the ability to use Word, Excel, databases and web-related programmes and software.
Registered Charity
21 - 50
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
The client requests no contact from agencies or media sales.
Thank you!
The National Youth Agency is looking for a Programme Governance Lead.
Programme Governance Lead
Contract: Permanent
Hours: Full-time - 37 hours per week
Salary: £55,000 - £65,000 per annum (dependent on experience and qualifications)
Location: Home-based in England with occasional travel for meetings, workshops, and team activities. Head Office is in Leicester.
What we do
As the national body for youth work, the NYA has a dual function. We are the professional statutory and regulatory body (PSRB) responsible for qualifications, quality standards, and safeguarding for youth work and services in England. In line with our charity mission and aims, we also champion youth work through research, advocacy, campaigns, and programmes.
We work in partnership and believe in collaborative leadership, listening to youth workers and the youth work sector so that we can understand their needs and respond to the challenges they face. We are ambitious for youth work and for young people and integrate youth voice and influence across our work
About the Role
We are looking for Programme Governance Lead to manage and oversee the successful delivery of all programmes/projects within the Programmes Directorate by establishing and leading consistent governance and assurance. The postholder will strengthen programme governance, reporting and risk management ensuring programmes are delivered by agreed methodologies and in a consistent manner.
Key Responsibilities
As our Programme Governance Lead, you will:
- Define, implement and maintain an agreed methodology for programme/project lifecycle governance.
- Chair programme/project boards and ensuring decisions, and actions are documented and actioned.
- Identify risks, issues and dependencies which are not captured by Programme Portfolio Leads. Ensure consistent risk management across projects and programmes. Proactively identify cross-programme/project risks and issues (including those not visible to project/programme leads), implement mitigations, and escalate risks/issues to the Director of Programmes and COO as required. Assess programme/project risks against the NYA risk register and update the register accordingly.
- Produce and present monthly programme governance reports at the Directorate Programme Board, providing clear portfolio-level insight (milestones, deliverables, RAG status, KPIs, benefits, and financial/resource assumptions) to enable effective senior decision-making and assurance.
- Design and run governance routines (e.g., project start-up, weekly/monthly reviews, decision logs, change control) and support high-quality papers and actions for directorate governance forums; ensure timely escalation of material risks, issues and decisions to the COO.
- Support teams to evidence compliance with funder/contractual requirements; ensure appropriate documentation, approvals and version control are in place and accessible.
- Implement and maintain a robust lessons-learned process (during and post-delivery) and ensure findings are integrated into future programmes/projects through updated standards, templates, training and assurance checkpoints.
Why Work for NYA?
- NYA operates as a people-focused organisation, prioritising the well-being and needs of its employees.
- NYA offers an exceptional flexible working approach which encourages our team to balance professional responsibilities with their personal life.
- A remote based team, spread across England, fostering inclusivity and diverse talent. Despite geographical distances between team members, NYA maintains a highly motivated and connected team through the optimisation of digital tools.
- NYA is committed to supporting the continual personal and professional development of our team and helping them achieve their ambitions.
- We provide 25 days leave plus 8 days, life assurance scheme, 5% employer pension contribution and a comprehensive Employee Assistance Programme via Spectrum.life with unlimited specialist support available to all NYA employees.
Closing date: 23:59 Friday 3rd July 2026.
N.B. We would encourage you to apply as soon as possible as we may close the vacancy early if we receive a sufficient number of suitable applications.
Interviews: W/C 13th July OR W/C 20th July
Interested?
If you would like to find out more, please click the apply button. You will be directed to our website to complete your application for this position.
The National Youth Agency is an equal opportunities employer.
At NYA our inclusive culture means that we embrace individual differences and understand that we need a diverse team to achieve our organisations mission.
We wish to recruit candidates from all backgrounds to ensure our team reflects the rich diversity of the communities we serve. We encourage applications from anyone regardless of disability, ethnicity, heritage, gender, sexuality, religion, socio-economic background and political beliefs but we particularly welcome applications from global majority candidates and those from other minoritised ethnic groups in the UK as they are currently underrepresented in our team.
Please note: We use AI detector software, so applications or CV’s with high levels of AI generated content may be disregarded. We understand that AI tools can offer support to candidates who have learning differences, which is why we will accept applications with some AI assistance.
No agencies please.
