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Development officer volunteer roles in goma, north kivu

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Remote
Unpaid role, expenses paid
Voluntary
Job description

Spinal Muscular Atrophy (SMA) is a rare, genetic neuromuscular condition causing progressive muscle wasting (atrophy) and weakness leading to loss of movement.

Our current chair has been in the position for 6 years and after serving their maximum term, we are seeking a new Chair to lead the charity and help us deliver our four year strategic plan ‘Building a future together’.

The chair provides a pivotal role in ensuring the charity has a well governed organisation, strong staff team and board with clearly defined roles and responsibilities, with one shared goal of working towards the organisational mission underpinned by our values and principles.

The chair will support the CEO and ensure that the board functions as a unit and works closely with the senior leadership team to achieve agreed objectives. From time to time the chair will act as an ambassador and the public face of the charity in partnership with the CEO. An effective chairperson is a key player in ensuring effective governance for the charity. 

Application resources
Posted by
Spinal Muscular Atrophy UK View profile Organisation type Registered Charity Company size 11 - 20
Posted on: Thursday, 12 June 2025
Closing date: 17 July 2025 at 16:19
Tags: Campaigns, Communications, Advocacy, Business Development, Business Intelligence, Public Health, Community Fundraising, Major Donor

The client requests no contact from agencies or media sales.