Events officer jobs

Salary: £33,765 - £37,000 per annum depending on experience.

Hours: Full-time and permanent. 35 hours per week

Place of work: Hybrid with a minimum requirement of 12 in-person days per annum. In addition, there will be a requirement to attend site visits, conferences and events as required.

Join Our Team!

We’re looking for someone to join us on a permanent basis in the New Year to support the delivery of the charity’s research aims in accordance with the research strategy.  This includes our programme of grants, working with networks and partners to drive increased investment in research for people with Crohn’s and Colitis and our work to support increased patient and public involvement in research.

About Us

We're the UK's leading charity for Crohn's Disease and Ulcerative Colitis.  Right now, an estimated 500,000 people in the UK are living with a lifelong disease many people have never heard of and for which there is no known cure. Because of the stigma and misunderstanding surrounding these diseases, thousands of people are suffering in silence. But we’re here to support and champion their cause and our ambitious plans will help to make a real difference.

About You

You’ll have experience of research administration or management at a University, Research Institute or funding organisation and of supporting patient and public involvement in research or as part of quality improvement projects in a UK-wide healthcare context.  You’ll  have proven communication and team-working skills and can evidence your ability to horizon scan and network to keep up to date with research and quality improvement developments. We’re looking for candidates who ideally have experience of working in health/science research environments and a knowledge of project management methodology. A knowledge of the needs of people affected by Crohn’s and Colitis would also be an advantage.

If you like the sound of our role then this could be an opportunity to join a leading charity as we enter the next stage of growth and expansion.

Please see our Recruitment Pack for details of our full Job Description and Person Specification.

Our Location

We are based in Hatfield, Hertfordshire, so we are easily accessible by road and rail. In this role, there is plenty of scope for a hybrid approach working from home,  although there will be times when you will need to be at face-to-face meetings in Hatfield or across the UK. There is a requirement for you to attend a minimum of 12 in person days a year, including two Directorate meetings and the charity’s mandatory ‘All Staff Together’ days which take place four times a year at our offices in Hatfield or a location in London. In addition, there will be a requirement to attend site visits, conferences and events as required.

Benefits

• 25 days’ annual leave plus bank holidays, increasing one day per year up to 30 days
• Salary Sacrifice Pension scheme
• Flexible working options
• Enhanced maternity, adoption and paternity pay
• 24/7 Employee Assistance Programme
• Wellbeing programme
• Interest free loan for season tickets
• Cycle to work scheme
• Free parking and secure bike locks at the Hatfield office
• Training and development financial support and/or study leave
• Performance review and development scheme

We are an inclusive employer and offer equal opportunities to all regardless of an individual’s age, disability, gender identity, marriage or civil partnership status, race, religion or belief, sex and sexual orientation.

We are not a licensed sponsor at this time. Any offer of employment will be made subject to the applicant residing in the UK and a valid right to work in the UK being provided.

We will not be accepting any contact from Recruitment Agencies or Media Sales

Chief Executive Officer

Salary:     c.£75 - 80,000 per annum

Hours:      Full time 35 hours per week

Contract:  Permanent

Location:  The role is, of necessity, office based, although flexibility for home working is expected where appropriate. Evening and weekend work will be required to attend networking and other events.

At Sussex community Foundation we are approaching our 20th anniversary. As we celebrate this milestone, we are looking for an ambitious and dynamic chief executive to lead us into the next 20 years, enabling us to make Sussex a fairer and more equal place.

At Sussex Community Foundation we bring inspirational people together to create the change Sussex needs. In our first 20 years we have built a reputation across the county as an authoritative voice in local philanthropy, attracting and retaining new Fundholders to the Foundation.

As a leading grant maker in the county, our reputation within the voluntary sector is incredibly important to us. We want to ensure that our future Chief Executive builds on these trusted relationships.

We have an experienced and influential Board who will support you in your role, backed up by an enthusiastic and committed team of experts in both fundraising and grant making.

We look forward to receiving your application.

Mark Spofforth OBE FCA - Chair of Trustees

Closing date: Monday 5 January 2026 - noon
We are using the Charity Job anonymous recruitment process - please ensure that you apply through the portal.

For full Persons Specification please refer to the pack below.

**No Agencies please**

#Chief Executive Officer #CEO #Executive #Leadership 

Role Details & Staff Benefits

Salary: £47,383 per annum

Duration: 6-month initial term until 30th June 2026, with possibility of extension

Hours: Full time

Location: Hybrid – NASP have an office space at London's Southbank Centre which can be used by staff at any time. The role will be expected to work up to 2 days per week in the office with the remainder at home, depending on agreed hours. There may also be additional occasional travel required for staff days and other events.

NASP offer a range of core benefits for staff on payroll, including:

• 30 days paid annual leave per annum, plus Bank Holidays
• An additional day of paid leave per year on your birthday 
• Opportunities for Volunteering & CPD days each year 
• Opportunity to request flexible working arrangements, including compressed hours 
• Contribution to annual eye test, eyeglass purchase, and flu vaccination 

Purpose of This Role:

This role sits within NASP’s Communications Team. You will play a key role in developing and delivering NASP’s communications strategy, which aims to: 

1. Spread the word about social prescribing among health and voluntary sector professionals and equip them with the training and resources they need. 
2. Increase public awareness of social prescribing.
3. Support NASP’s wider work through high quality communications.

You will lead on NASP’s digital communications – including by managing the NASP website and social media, and the Music Can website and social media. You will also lead campaigns and events and ensure that the content NASP delivers is high quality.

This role reports to the Director of Communications and manages the Digital Communications Officer and the Communications Lead: Media and Events.

Person Specification:

Experience & Knowledge:

Essential

• Experience of managing websites - including expertise in analytics, user journeys and SEO - and digital communications
• Understanding of brand development and the importance of ensuring brand consistency 
• Experience of using CRMs and data effectively as part of an integrated communications offer 
• Knowledge of the Voluntary Community Faith and Social Enterprise (VCFSE) sector and/or social prescribing
• Desirable
• Excellent knowledge of the health sector and/or social prescribing within NHS primary care
• Understanding of the media landscape and working with the media
• Experience of using Microsoft Dynamics, Umbraco and/or Webflow 

Skills and attributes

Essential

• Ability to plan, coordinate and report on a wide range of communications aimed at different audiences  
• Ability to manage digital campaigns aimed at different audiences, including through the use of paid marketing 
• Ability to write and edit materials for different channels to achieve results (including web copy, e-comms, briefings, marketing materials, letters) 
• Ability to manage staff effectively, supporting their wellbeing and development  
• Ability to support teams and partners on communications strategies and to manage a wide range of relationships
• Ability to manage competing priorities and to proactively identify emerging opportunities
• Ability to understand complex information and find pragmatic solutions to challenges
• Ability to build good relationships and be diplomatic while ensuring projects are delivered to a high standard
• Affinity with NASP’s Values as defined in the NASP Strategic Plan

Responsibilities:

Strategy and brand

• Working with Director of Communications to develop and implement the NASP communications strategy 
• Commissioning and project managing films, graphics and other assets to support NASP strategic priorities and partners 
• Leading on analytics and reporting on KPIs 
• Developing communications resources and marketing packs for internal and external use 
• Ensuring all communications across programme teams are strategic and adhere to the NASP brand 
• Training and advising staff across NASP on communications (including writing for website, branding, marketing) 
• Identifying opportunities to form partnerships with other organisations, and working with partners on joint programmes and campaigns 

 Digital

• Managing and developing the NASP website, social media channels and newsletters, and leading their promotion (including maximising SEO and effective use of Google Ad Words and advertising) 
• Managing the Music Can website and social media channels
• Planning, editing and writing content for multiple channels (including website, newsletters, and resources for programmes and partners) 

Campaigns

• Coordinating Social Prescribing Day 2026, leading NASP’s communications with the aim of inspiring individuals and organisations in the UK and across the world to take part 

Events

• Leading on the promotion and delivery of NASP events, working with the Communications Lead: Media and Events 

Memberships and CRM

• Working with colleagues to develop NASP’s membership offers for health professionals and voluntary sector professionals, including by ensuring integration with the CRM and smooth user journeys
• Working with the Operations Team to develop the CRM and improve integration with the website 

Management

• Line-managing the Digital Communications Officer and Communications Lead: Media and Events 

Reporting To: Communications Director

Are you a good all-rounder in fundraising, including a background in Foundations and Trusts? Can you inspire and motivate donors and fundraisers?

If so, then join an ambitious organisation with a determination to transform the future for the 220,000 people in the UK living with axial spondyloarthritis.  

We are a small team, looking for a second Fundraising Officer to work alongside our existing Fundraising Officer to deliver activity across all our income streams, supported by a Fundraising Board. We’re aiming to grow income from individual giving, Trusts and Foundations, community and individual fundraising, trading and further build our community of legacy pledgers. 2026 is our 50th Anniversary, a wonderful opportunity to celebrate our achievements and grow our income.

Our dedicated team at NASS is passionate about transforming lives for people with axial SpA. We truly value our people, who do meaningful work that directly impacts the lives of people living with axial SpA. You'll be supported to succeed and genuinely appreciated for your contributions. We pride ourselves on our collegiate spirit and willingness to support each other in all aspects of our work.  We operate a hybrid model of working, with some staff working remotely for most of the time, so applicants need to be comfortable with working in this way.

The Benefits

· Salary up to £30,000 - £32,000 p.a.

· Employer pension contribution of 10%

· 25 days annual leave plus 3 days leave between Christmas and New Year, plus Bank Holidays

· Time off in Lieu scheme

· Death in Service benefit to loved ones

If this sounds like you, then please get in touch. We would love to hear from you.

To apply, please submit: 

• Your CV
• A two-page cover letter explaining your interest in the role – the letter must describe how your skills and experience meet the person specification.

Application Deadline: 10 am on 6th January 2026.

Interviews:  15th January at our office in Hammersmith.

For further information, and to submit your application, contact Dale Webb

Commitment to equality, diversity & inclusion: NASS is proud to welcome everyone. We aim for a truly inclusive culture with talented, diverse teams that represent a variety of backgrounds, perspectives, and skills. We celebrate difference and individuality and encourage everyone to join us and be their whole selves always. We particularly encourage applications from individuals with lived experience of axial SpA and from underrepresented groups in the charity sector.

UnLtd is a vibrant, ambitious organisation at the heart of the UK’s social enterprise sector. As a key stakeholder and leading funder and supporter of social entrepreneurs, we continuously learn and adapt to better meet their needs and maximise their impact.

We are seeking a talented Communications Manager to amplify UnLtd’s voice and influence within the sector while shining a spotlight on the incredible work of social entrepreneurs. This role is about balance: telling inspiring stories that bring their journeys to life, while also demonstrating measurable outcomes, addressing challenges, and showcasing how our unique funding and support model drives impact.

As a core member of a small, collaborative team, you will create and deliver high-quality communications across multiple channels. Your work will include managing media relations, overseeing day-to-day digital communications and social media, updating and optimising website content, producing marketing and campaign materials, managing communications projects, and supporting events.

We are looking for someone with experience in a broad communications role, including press office expertise, who thrives in a dynamic environment and brings a proactive, learning mindset. The potential for impact is significant: your work will strengthen UnLtd’s positioning as the UK’s leading organisation backing social entrepreneurs at every stage of their journey, while engaging funders, partners, and communities to build a fairer, brighter future together.

Asylum Justice is the only charity in Wales - and one of very few in the UK - providing free legal advice and representation to people seeking asylum, refugees, and other migrants who are excluded from legal aid. Every day, we help people navigate a hostile system, challenge injustice, and secure safety for themselves and their families.

Demand for our services is higher than ever. In the past year alone, our caseload increased by nearly 50%, and we've taken on more complex, urgent cases - including supporting unaccompanied asylum-seeking children and people at immediate risk of destitution or deportation.

We’re now looking for a Funding Officer to join our small, committed team and help secure the resources we need to sustain and grow our work. This is a chance to make a tangible difference - not just in helping us meet income targets, but in strengthening access to justice for some of the most marginalised people in Wales.

The role is hybrid working (Cardiff office and remote working) but fully remote working may also be considered. We are open to compressed hours or part-time working (minimum 28 hours) for the right candidate. We also welcome applications from people interested in a job share arrangement.

About the role

This is a hands-on, varied role that combines fundraising, relationship management, and impact storytelling. You’ll work closely with our Legal Director and wider team to:

• Research and identify funding opportunities from trusts, foundations, and statutory sources
• Write compelling funding bids and reports that reflect our impact and values
• Maintain excellent relationships with funders and support project coordination with delivery partners
• Coordinate grant reporting and keep accurate records of income, spend, and deadlines
• Support internal monitoring and evaluation to strengthen our evidence base
• Help develop our approach to individual giving, fundraising events, and donor communications

We’re looking for someone who shares our commitment to justice and anti-racism, and who brings strong communication skills, attention to detail, and a collaborative approach.

Who we’re looking for

We don’t expect you to know everything from day one - we’re open to candidates with transferable skills from across the charity, campaigning, or community sectors. You might have experience as a fundraiser, grant writer, project officer, or in a policy/impact role where writing and relationship-building are key.

What matters most is that you're passionate about what we do, committed to equity and inclusion, and eager to learn and contribute.

What we offer

• A supportive, mission-driven team working in solidarity with people seeking asylum
• Flexibility around working days, location, and hours
• An organisational culture that prioritises wellbeing and psychological safety
• The chance to shape an ambitious and growing organisation at a pivotal time

This is an exciting role in a unique organisation.  Our vision is to provide an outstanding experience for all UCL students and to be one of the best students’ unions in the UK and the world.  We aim to build a vibrant and empowered student community with real influence in UCL and beyond, that enables students to enjoy their time at university; pursue their interests and passions; see the world in new ways; and develop the skills and experience to change the world for the better.

We are a registered charity employing over 100 career staff and 300 student staff, delivering a wide range of services and representative functions for UCL students. We have the widest portfolio of services of any student organisation in the country, managing UCL’s extracurricular programmes for sport, music, drama, dance, media, volunteering, academic societies and intercultural engagement; providing a wide range of fantastic social spaces; leading on student democracy and representation across UCL; and offering excellent student support services.

It's an exciting time to join our growing organisation as we lead the delivery of UCL’s groundbreaking new Student Life Strategy. This is enabling us to build more programmes to improve students’ mental and physical wellbeing, promote genuine equity for all, build students’ skills and confidence, develop their international connections and intercultural skills, and make a real contribution to our local community.

We support hybrid working. Excellent benefits including defined benefit pension scheme and generous holiday entitlement. We are proud of high levels of staff engagement and pride ourselves on being a great place to work. We will consider applications to work on a flexible and job share basis wherever possible. This role is based at our Bloomsbury campus with work across various football facilities across London.

The role is a full time and fixed term contract until 31 December 2026. This role is based at our Bloomsbury campus with flexibility to work from home on a 40/60 basis (40% working from the office). The role will involve some evening and weekend work to support event delivery. We will consider applications to work on a part-time, flexible, and job share basis wherever possible.  

We are looking for a UCL200 Events and Programme Coordinator to play an important role in supporting the celebrations of UCL's 200th anniversary through high-quality event delivery, excellent project management and careful relationship building.

Do you have experience delivering large scale events to an exceptional standard? Are you looking for a unique opportunity to flex your skills and create a historic celebration during a milestone year for UCL? If the answer is yes, then we want to hear from you.

Our ideal candidate will have experience supporting complex events or programmes, strong project management skills and will be comfortable managing multiple stakeholders to unite in a shared goal. 

Position: Senior Events Fundraiser (Third Party Events)
Type: Full-time (35 hours a week), permanent
Location: Office-based in London with flexibility to work remotely
Salary: £33,044* per annum plus excellent benefits
Salary Band and Job Family: Band 2, Charity

*you’ll start at our entry point salary of £33,044 per annum, increasing to £35,109 after 6 months service and satisfactory performance and to £37,174 after a further 6 months.

About us

We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.

Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus. 

Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information. 

Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.

About this job

We’re looking for a Senior Events Fundraiser to join our Community, Events, and Retail Fundraising team, leading on the delivery of our third party events activities.

You’ll plan, develop, and promote a well-established portfolio of third party challenge events, working to achieve set income targets, while ensuring an outstanding supporter experience for our event participants.

You’ll also be responsible for developing our third party events portfolio; monitoring and evaluating products, as well as innovating, to create opportunities for future growth.  

Closing date for applications: 9:00 on Monday 15 December 2025

Interested?

PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.

Equal Opportunities 
We particularly welcome applications from people with disabilities and or from ethnic minority backgrounds.

We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application. 

Disability Confident Employer 
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.

You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.

If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.

More about our employee benefits:
We have a wide range of employee benefits including (but not limited to): 

Encouraging work life balance

• 38 days paid annual leave (including bank holidays), pro-rata for part-time
• More annual leave entitlement, based on length of employment
• Smart working options (with the opportunity to work remotely and find a smart working pattern that suits both you and us) 
• Flexible working options 

Caring for you and your family 

• Generous sick pay entitlement
• More sick pay entitlement, based on length of employment 
• Opportunity to buy and sell annual leave in each calendar year 
• Free access to a GP virtually 24 hours a day/7 days a week allowing you unlimited advice, reassurance and where appropriate diagnosis 
• Enhanced leave for new parents 
• Free access to a confidential 24 hours a day/7 days a week helpline service for both you and your family with a specialist range of support and information
• Special leave options (such as up to 5 days paid leave for domestic or personal emergencies a year)
• 10 days paid disability leave a year, pro-rata for part-time 
• 10 days paid carers’ leave a year, pro-rata for part-time 
• Cycle to work scheme 
• Death in service scheme
• New family-friendly benefits, including paid leave:
  • In the event of miscarriage or still birth 
  • To support fertility treatments
  • For antenatal appointments for both parents

Thinking about your finances 

• Enhanced salary sacrifice pension scheme
• Discounted season ticket loan and interest-free emergency loans
• Give as you earn to support other charities of your choice before tax
• New employee portal including lifestyle savings vouchers and personal wellbeing

Enriching your life at work

• Personalised development plans with a wide range of training courses and opportunities to source additional training options with your line manager
• Yearly internal apprenticeship opportunities
• New, modern offices that embrace working together both in-person and remotely 
• Various opportunities to influence how we internally operate (including surveys, and focus and committee groups) 
• Active and supportive internal employee networking groups for collaboration and peer support 
• 2 days paid leave a year for volunteering for MS Society activities during normal working hours (such as fundraising events, or campaigning in the local community) 
• 2 days paid leave a year for volunteering with other charities during normal

Safeguarding 
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.

This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.

We recognise our particular responsibility to make sure vulnerable adults and children are protected.

We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.

Your right to work in the UK 
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.

You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.

No agencies please.

Battersea is entering an exciting phase of innovation and transformation as we embark on the first year of our new five-year strategy. With increased investment in income generation starting in 2025, we are expanding our team to drive the growth necessary to achieve our organisational goals. Our fundraising team bridges the journey of the animals in our care with the wider public, demonstrating how their contributions enable us to support every dog and cat. We now have several new roles within this team to further our mission.

This new role will oversee the development and delivery of engaging supporter journeys across a range of channels for Battersea’s Challenge and Public events, as well as our Supporter-Led Fundraising audiences. It will play a pivotal role in maximising event and supporter-led fundraising income, ensuring every supporter has a positive experience and feels inspired to continue supporting Battersea.

What we can offer you:
In return for your commitment to our cause and to recognise the value of our employees, Battersea offers a range of benefits to support the wellbeing of our employees. These include:

• 28 days of annual leave (plus 8 days paid public holidays) per year.
• Discounted gym memberships and cycle to work schemes.
• Employee Assistance Programme and access to Wellbeing Resources.
• Generous pension contributions - up to 10% employer contribution.
• Free healthcare cash plan, where you can claim for a range of treatment including dental, optical, physiotherapy, chiropody and acupuncture every year.
• Annual interest-free season ticket loans.

We are also committed to providing learning and development to our employees. During your time with us, we provide support for your professional and career development, including access to digital and in-person training programmes, leadership and management training, mentoring and much more.

Our hybrid working model:
We operate a 50% onsite hybrid working model, with our office-based staff splitting their time between site based and home working. This enables our office-based staff to balance the benefits of home working with onsite collaboration and maintaining a connection to our cause.

Diversity and inclusion:
We are committed to providing a welcoming and inclusive experience for all staff, volunteers and trustees and those hoping to join us. We operate an anonymised shortlisting process and actively seek to ensure our process is fair and equitable for all.

We understand the value of diverse voices, perspectives, and experiences to help us deliver even more for our dogs and cats, and we welcome applicants from all sections of the community.

As a Disability Confident Committed Employer we will ask about any adjustments you may need at application and/or interview stage, and if you are offered a role with us, we’ll talk to you about any workplace adjustments you may need to help you perform at your best. 

More about us:
At Battersea, we aim to never turn away a dog or cat in need of help. We give each one lots of love, expert care and get to know their characters and quirks so we can find them a new home that’s just right for them. Join us and help us be here for every dog and cat, wherever they are, for as long as they need us.

Acceptable use of AI:
At Battersea, we value expertise. We recognise each candidate that applies to us will have a range of expertise they can offer us, so we want to hear about this in your own words. We understand the support that generative artificial intelligence (AI) software can offer but it can also lead to numerous applications presenting as generic and impersonal. This makes it difficult to gain understanding of your unique experience.

To best showcase yourself, we encourage you to write your responses without the assistance of AI. If you require the use of AI software to aid in completing your application, we ask you use the generative responses as a prompt for writing your answers and avoid copying and pasting. You must also ensure the information presented in your application accurately reflects your experience.

Closing date: 11th January 2026
All applications must be submitted before the closing date advertised. We reserve the right to close the vacancy early if a high volume of applications is received.

Interview date(s): To be confirmed

For full details on the role, please download the recruitment pack.

Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

Main Purpose of the Role: 

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.   
  
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

Specific Tasks: 

1. Proactive Family Support  

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)  

• Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear   

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care  

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern  

2. Advanced and End-of-Life Care Support 

• Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care. 

• Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

• Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing. 

• Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making. 

• Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations. 

• Offer signposting to bereavement support and follow-up services for families after loss. 

3. Wellbeing Tracking and Outcome Measurement  

• Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)  

• Collaborate with families to co-create action plans and track progress  

• Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.  

4. Community Engagement and Event Delivery  

• Organise and deliver regional meetups (minimum one per quarter)  

• Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)  

• Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)  

• Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne 

5. Stakeholder Collaboration  

• Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities  

• Represent Action Duchenne in across your regions and build relationships with local networks  

6. Administration and Reporting  

• Maintain accurate records of all interactions and support provided  

• Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact  

• Support development of CRM processes and service delivery improvements  

7. Key Performance Indicators (KPIs):  

• New contact acknowledgement email: within 3 working days

• New contact follow-up call: within 7–10 working days 

• Families contacted per week: 12–15 hours of direct contact

• Regional meetups: 1 per quarter

• Support groups delivered: 9–12 per year

• CRM data entry: within the same day of interaction

• Family outcomes tracked: via wellbeing questionnaire and action plan 

• Number of families receiving end-of-life care guidance or resources per quarter. 

• Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request. 

• Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services. 

• Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Please find the job specification, including required skills and qualifications below.

Application deadline: 22nd December at 9am GMT.

1) Governance & Strategic Leadership

· Ensure full compliance with constitutional, regulatory, and legal obligations, upholding the Nolan Principles and Charity Commission guidance.

· Work in partnership with the Board to advise on, draft, and recommend long‑term strategy; provide evidence‑based insights to support regular review of vision, mission, and values.

· Embed co‑design and beneficiary voice at the heart of strategic planning through inclusive and accessible engagement with communities, partners, and staff.

2) Financial Management & Sustainability

· Maintain accountability for budgets, internal controls, and equitable resource allocation, providing timely and accessible management information.

· Ensure compliance with funder requirements (e.g., Sport England) and manage conflicts of interest transparently.

· Lead income generation across a diverse funding portfolio—including private, statutory, local authority, philanthropic and international/European sources—building values‑aligned partnerships.

3) Core Strategy Delivery & Impact

· Lead delivery of the organisation’s 5‑Year Strategy with measurable equity outcomes, reasonable adjustments, and accessible communications.

· Strengthen community engagement and grassroots participation programmes that foster belonging, inclusive access, and (where relevant) targeted diversionary activity.

· Expand leadership pathways through, for example, the LeaderBoard Academy, promoting lived experience, inclusive recruitment, and leadership development.

· Lead, refine and grow Sporting Equals’ Charter offer as a core mechanism for sector support, knowledge transfer and systemic leadership on race equity.

4) External Affairs & Communications

· Build respectful, reciprocal relationships with stakeholders across the UK, amplifying community evidence and beneficiary voice.

· Represent the organisation confidently in the media and at events, modelling inclusive language, behaviours, and values.

5) Risk, Compliance & People

· Actively manage the Risk Register, identifying and mitigating risks including governance failure, discrimination, and safeguarding, with clear escalation routes and accountability mechanisms, including safe recruitment and ongoing staff/volunteer training.

· Lead, support, and develop the Senior Management Team; set fair objectives, conduct appraisals, and champion wellbeing and professional development.

The Vacancy

Islamic Relief UK (IRUK) is actively recruiting for the position of ‘Challenges Lead’ to be based from anywhere in the UK that Islamic Relief has an office. These office locations include; London (Whitechapel/Waterloo), Leicester, Birmingham, Manchester, Bradford and Glasgow.

Islamic Relief Worldwide (IRW) is a faith-based humanitarian relief and development organisation working to save and transform the lives of some of the world’s most vulnerable people.  Established in 1984, with an active presence in over 45 countries, we strive to make the world a better and fairer place for those affected by poverty, conflict and natural disasters. IRUK’s focus is strengthening effective funding, mobilising for change through advocacy and awareness-raising, and strengthening programme development and delivery. IRUK works with various partners and institutions, from governments, non-governmental organisations and local authorities to grassroots communities.

Job Purpose:

• To coordinate the development and delivery of Fundraising Challenges Events, nationally and internationally, with the objective of engaging the community on a grass-roots level in line with the IRUK fundraising strategy
• To work closely with the Community Fundraising team to promote the mass participation of events that will lead to participation and fundraising
• To deliver stewardship journeys for participants and supporters
• To successfully project manage multiple national fundraising initiatives.

The successful candidate must have:

• Proven experience in challenges coordination and/or management
• Significant experience of fundraising through organising and delivering challenges, and/or mass participation activities
• Experience of the development, delivery, monitoring and evaluation of plans and budgets
• Experience of delivering exceptional donor/customer care
• Experience in supporter stewardship
• Experience of using a range of effective communication channels to promote fundraising activities
• Experience in negotiating and managing contracts with vendors and suppliers
• Experience of managing own workload effectively, planning and organising work to meet deadlines
• Experience of working effectively without close supervision dealing with problems as they arise
• Experience and comfortability of working within a fast-paced environment
• Experience working with and supervising volunteers
• A thorough understanding of the different types of fundraising challenges
• Good understanding of charity law, policy and regulatory environment within the charity sector
• Knowledge of the Fundraising Regulators code of practice
• Able to work flexible hours (including unsociable hours and weekends)
• Proficient use of Asana, Trello or other project management tools
• Excellent event/challenge management skills – from conception, promotion to production and delivery
• Excellent attention to detail and ability to produce correspondence to a high standard
• Creative thinking skills
• Able to exercise diplomacy where required
• Excellent communication skills – written, oral and listening with the ability to communicate sensitively and effectively with a diverse range of individuals who may be supporters, participants, donors or volunteers
• Strong project management and team coordination skills, including the ability to use planning tools
• Strong networking skills
• Proven organisational skills with the ability to work on multiple activities at one time
• Excellent administration skills – able to keep thorough, accurate and up to date records
• Competent user of Raisers Edge, Microsoft D365 or other relationship management databases
• Understanding and experience of health and safety regulations and risk assessments in relation to organising events and challenges
• Educated to ‘A’ level or equivalent
• Knowledge of Microsoft Office software in particular, Word, PowerPoint, Excel and Outlook

For more information, please click on the Documents tab above to view the full Job Description.

If you are talented, reliable, service-minded, resilient and a highly motivated professional looking for a meaningful career, with a strong commitment to IRW’s mission and values of sincerity, excellence, compassion, social justice and custodianship, please apply by completing our online application form.

For more information on the excellent company benefits we offer our employees, please visit our website.

PLEASE NOTE: Interviews are expected to take place on an ongoing basis until a suitable appointment is made. We therefore may close the advert sooner than the advertised date.

Pre-employment Checks:

Any employment with Islamic Relief will be subject to the following checks:

• screening clearance
• proof of eligibility to live and work within the UK
• receipt of satisfactory references

Please note, for UK-based roles, we are only able to accept applications from candidates who are eligible to work in the UK. We are unable to progress applications which would require sponsorship.

Our values and commitment to safeguarding

IRW is committed to preventing any type of unwanted behaviour at work including sexual harassment, exploitation and abuse, lack of integrity and financial misconduct; and committed to promoting the welfare of children, young people, adults and beneficiaries with whom IRW engages. IRW expects all staff and volunteers to share this commitment through our code of conduct. We place a high priority on ensuring that only those who share and demonstrate our values are recruited to work for us.

The post holder will undertake the appropriate level of training and is responsible for ensuring that they understand and work within the safeguarding policies of the organisation.

All offers of employment will be subject to satisfactory references and appropriate screening checks, which can include criminal records checks. IRW also participates in the Inter Agency Misconduct Disclosure Scheme.

In line with this Scheme, we will request information from job applicants’ previous employers about any findings of sexual exploitation, sexual abuse and/or sexual harassment during employment, or incidents under investigation when the applicant left employment.

By submitting an application, the job applicant confirms their understanding of these recruitment procedures.

Islamic Relief is an equal opportunities employer

We are seeking an experienced and dynamic Fundraising Officer to join the fundraising team at the Batten Disease Family Association CIO (BDFA).

The BDFA, founded in 1998 is the only patient organisation in the UK for families affected by Batten disease, a rare and terminal neurodegenerative condition that affects children and young adults. The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.

This is an exciting time to join the charity, which has grown to offer additional support services for families affected by Batten disease and to implementing a long-term strategy to develop its advocacy, education and research capabilities. Come and join our supportive team as we continue to build and develop the organisation and strengthen our financial resilience.

We’re looking for an individual who has some experience in fundraising, particularly leading on all aspects of community fundraising, developing and nurturing relationships with volunteer fundraising groups and individual supporters. The successful candidate will work under the guidance of our CEO to develop community fundraising maximising the funds raised by volunteer fundraisers and developing supporter engagement. The successful candidate will also work alongside our Trusts and Foundations Fundraising Officer to support our Trusts and Foundations income generation.

The Ideal Candidate for this role will have:

- Experience in all aspects of community fundraising including events, assisting fundraisers to develop imaginative fundraising ideas and inspiring new supporters to raise funds whilst maintaining relationships with existing supporters

- Experience in building and sustaining long-term relationships with fundraising groups and individual supporters

- Experience in managing effective and creative fundraising communications on social media and the website

- Ability to contribute to the overall Trusts and Foundations income stream, including proactively researching and identifying grant funding opportunities 

- Ability to lead on creative fundraising campaigns around key events such as Batten disease awareness day and Christmas

This job requires a motivated individual who has a passion for all those within our Batten community and a strong desire to support the development and financial growth of the BDFA. The role is full time (35 hours per week) and is home based with occasional travel around the UK to meet donors and support fundraising events.

The BDFA recognises the positive value of diversity and is committed to creating a diverse and inclusive team.  We encourage applications from all suitably qualified or experienced individuals, regardless of their race, gender, biological sex, disability, religion/belief, sexual orientation or age.

Salary £27k - £34k PA dependent on experience

Upload a CV and covering letter to apply

Apply by: Monday 15th December

Interviews for this role will take place on Monday 22nd December

Position: Customer Services and Central Administration Officer
Hours: Full time 35 hours per week
Contract: Permanent
Location: Office-based in London N4 with the flexibility to work remotely 1 day per week.
Salary: Starting from £26,384 per annum, plus excellent benefits
Salary Band and Job Family: Band 1, Charity
*You’ll start at our entry point salary of £26,384 per annum, increasing to £28,033 after 6 months service and satisfactory performance and to £29,682 after a further 6 months.

About us

We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.

Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus.

Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information.

Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.

About this job

The MS Society is a dynamic and customer-focused organization dedicated to delivering an exceptional service to our customers.

We are looking for a motivated and friendly Customer Services and Central Administration Officer to join our team and provide outstanding customer support.

As a Customer Services and Central Administration Officer, you’ll be the first point of contact for our customers, providing them with a professional and efficient service. You’ll handle inquiries, resolve issues, and ensure that every customer has a positive experience with contacting the MS Society. You’ll also be responsible for processing a wide range of different income types and supporting with the reconciliation process.

Closing date for applications: 9:00 on Friday 2nd January 2026

Interested?

PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.

Equal Opportunities 
We particularly welcome applications from people with disabilities and or from ethnic minority backgrounds.

We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application. 

Disability Confident Employer 
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.

You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.

If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.

More about our employee benefits:
We have a wide range of employee benefits including (but not limited to): 

Encouraging work life balance

• 38 days paid annual leave (including bank holidays), pro-rata for part-time
• More annual leave entitlement, based on length of employment
• Smart working options (with the opportunity to work remotely and find a smart working pattern that suits both you and us) 
• Flexible working options 

Caring for you and your family 

• Generous sick pay entitlement
• More sick pay entitlement, based on length of employment 
• Opportunity to buy and sell annual leave in each calendar year 
• Free access to a GP virtually 24 hours a day/7 days a week allowing you unlimited advice, reassurance and where appropriate diagnosis 
• Enhanced leave for new parents 
• Free access to a confidential 24 hours a day/7 days a week helpline service for both you and your family with a specialist range of support and information
• Special leave options (such as up to 5 days paid leave for domestic or personal emergencies a year)
• 10 days paid disability leave a year, pro-rata for part-time 
• 10 days paid carers’ leave a year, pro-rata for part-time 
• Cycle to work scheme 
• Death in service scheme
• New family-friendly benefits, including paid leave:
  • In the event of miscarriage or still birth 
  • To support fertility treatments
  • For antenatal appointments for both parents

Thinking about your finances 

• Enhanced salary sacrifice pension scheme
• Discounted season ticket loan and interest-free emergency loans
• Give as you earn to support other charities of your choice before tax
• New employee portal including lifestyle savings vouchers and personal wellbeing

Enriching your life at work

• Personalised development plans with a wide range of training courses and opportunities to source additional training options with your line manager
• Yearly internal apprenticeship opportunities
• New, modern offices that embrace working together both in-person and remotely 
• Various opportunities to influence how we internally operate (including surveys, and focus and committee groups) 
• Active and supportive internal employee networking groups for collaboration and peer support 
• 2 days paid leave a year for volunteering for MS Society activities during normal working hours (such as fundraising events, or campaigning in the local community) 
• 2 days paid leave a year for volunteering with other charities during normal

Safeguarding 
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.

This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.

We recognise our particular responsibility to make sure vulnerable adults and children are protected.

We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.

Your right to work in the UK 
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.

You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.

No agencies please.