Head of communications and events jobs in telford, telford and wrekin

Are you an experienced fundraiser who thrives in a fast-paced, mission-driven environment? Do you want to play a pivotal role in an exciting charity that is making a tangible difference in people’s lives? Wheels for All is seeking a passionate and experienced Head of Fundraising to lead our fundraising efforts and help us reach even more people with our inclusive cycling opportunities.

Wheels for All is on an exciting journey of growth, expanding our reach and impact across the UK. With over 30 years of success, we’re now scaling up our work to ensure more people, regardless of their ability, can enjoy the life-changing benefits of cycling. As we continue to grow, we need a strategic and innovative fundraiser to help fuel this expansion.

In this role, you will have the opportunity to bring your skills, knowledge, and experience to the table. We are looking for someone who can bring fresh, innovative approaches to fundraising, tapping into new opportunities, and securing the funding necessary to take our mission to the next level.

This is a remote role, offering you flexibility to work from home while having the ability to operate on a national scale, with some occasional travel required   . You will work closely with our passionate team, trustees, and external partners, helping shape the future of the charity and expand our reach far and wide. 

In this role, you will:

• Lead the fundraising strategy, securing major grants, corporate partnerships, and individual donations to support our national expansion.
•  Oversee marketing and communications to ensure consistent and engaging messaging that resonates with a wide audience.
• Work alongside the CEO and trustees to identify new opportunities and drive growth, capitalising on our position as a national leader in inclusive cycling.
• Develop and deliver innovative fundraising initiatives that align with our growing ambitions.

We offer a salary in line with market rates for the role, negotiable depending on experience, and remote working options to ensure you thrive in a flexible work environment. With staff benefits including generous leave, Cycle to Work schemes, and access to health and wellbeing support, this is a chance to be part of something truly special. 

Come with us and make a real difference. Join Wheels for All as our Head of Fundraising and help us create a brighter, more inclusive future for all.

Khulisa, meaning 'nurture' in the Zulu language of South Africa, is an award-winning charity dedicated to providing therapeutic support to young people. We focus on reaching those who are most at risk – young people from deprived communities who are often marginalized, vulnerable to exclusion, and at heightened risk of becoming involved in crime.

Our approach centres on safe, exploratory methods that aim to understand behaviour and experiences often rooted in trauma, abuse, and neglect. We deliver intensive therapeutic programs within educational and community settings, empowering young people to confront the underlying causes of their emotional distress and work toward healing.

To create lasting, sustainable change, we work to establish trauma-informed environments around young people by equipping parents, caregivers, educators, and other professionals with the tools they need to offer effective, supportive care. Currently, our services are active in London and Manchester. 

Why now? After nearly five years in the role, our Head of Fundraising is moving on. Over the past two consecutive financial years, we have raised approximately £1 million – primarily through trusts and foundations, corporate donors, and individual supporters. As the successful candidate, you and the team you lead will play a pivotal role in maintaining this level of fundraising success, ensuring our vital work with young people continues to flourish.

The Role: We are looking for someone with a strong track record in fundraising and grant management, who is particularly motivated to join Khulisa because of a deep commitment to our mission – supporting the wellbeing and mental health of young people.

The post holder will be required to work from home permanently but be willing and able to easily travel to various locations as necessary to fulfill the requirements of the role and to engage with stakeholders and colleagues.

To apply: Application is through Charity Jobs. To apply, please submit a CV and a Cover Letter (no more than two sides of A4), clearly demonstrating how your skills, experience and potential meet each of the criteria listed under ‘Abilities/Experience’ and ‘Knowledge/Skills’ in the person specification. Shortlisting will be based on how well you meet these criteria, so please provide specific examples wherever possible.

Please download the attached job pack to read more. We look forward to recieving your application!

Diversity, Equity and Inclusion We are actively looking to recruit a diversity of talent. We embrace, respect and value the difference in our employees and believe that we and our work is better for it. We are committed to creating and maintaining an inclusive environment that consists of fairness, dignity, and caring for everyone, and one that enables every employee to flourish and realise their potential

About Kinship

We are Kinship. The leading kinship care charity in England and Wales. We’re here for kinship carers – friends or family who step up to raise a child when their parents aren’t able to. 

Together, let’s commit to change for kinship families.

About the role

This role will support Kinship to operate as an effective charity by ensuring effective day-to-day operations and seamless delivery of the People function at the charity.

You will bring your People leadership experience, attention to detail and excellent communication skills to the role. You will be structured in your approach to ensure that day-to-day issues are handled while also working to improve processes and systems. You will be credible with senior management and able to articulate and balance the trade-offs of a People leadership role.

You will be able to balance multiple competing priorities and prioritise effectively, A positive mindset is key to being part of the team, as is thinking creatively to problem solve and being empathetic to colleagues. You will be highly motivated by our mission, recognising that excellent internal People processes are essential to allowing others to effectively complete their roles and achieve our mission.

You will be a powerful ambassador for our mission, credible with other HR and CSR professionals working to implement kinship friendly employer policies and processes.

Key Responsibilities include:

• Work with the Chief Operating Officer (COO) and the Executive management team to design, develop and embed a high-quality HR function to support the employee life cycle.

• Responsible for ensuring all policies, procedures, and processes relating to people and culture, work effectively, efficiently and in line with legal requirements.

• Responsible for all People matters, ensuring they are handled fairly and consistently in line with policies and procedures.

• Support and advise line managers on People, EDI and change management activities, including promotions, disciplinary, capability and grievance procedures.

• Organise line manager training to ensure line managers understand their responsibilities and apply policies consistently.

• Responsible for the candidates’ recruitment experience. Ensure candidates receive a consistent and professional recruitment experience.

• Responsible for job descriptions, person specifications, recruitment packs and job adverts.

• Ensure offboarding processes are robust and implemented consistently to safeguard the charity’s assets and to comply with Data Protection rules.

• Lead on the delivery and growth of the ‘Kinship Friendly Employers’ scheme, driving growth in the scheme and the number of bronze, silver and gold partners

• Ensure Kinship role models ‘Kinship Friendly’ employment practices and seek opportunities to share these as examples with other HR professionals.

• Support fundraising efforts with corporate supporters who are ‘Kinship Friendly Employers’

Essential criteria includes:

• HR qualification or significant demonstrable experience.

• Coaching qualification or significant demonstrable experience.

• Demonstrable experience of supporting the development of a high-quality People function within a growing organisation.

• Demonstrable experience working in a changing and flexible organisation.

• Demonstrable problem-solving and conflict resolution abilities.

• Demonstrable knowledge of best practices, employment laws, and regulations.

• Effective communication skills.

• Strong interpersonal skills – a genuine team player able to relate to a wide range of people.

• Ability to work on own initiative and manage own workload.

• Demonstrable experience of EDI principles.

Desirable experience includes:

• Personal experience of kinship care.

• Experience of working in a dynamic and fast-changing workplace.

• Exceptional business-partnering skills

What we’ll offer you 

Kinship offers 30 days’ annual leave plus bank holidays (pro-rata for part-time) as well as a generous pension scheme. We have an excellent wellbeing offer including the Employee Assistance Programme and clinical supervision. We will invest in your professional development with training and career development opportunities.

Kinship is committed to championing equality, diversity and inclusion.  We believe our work is greatly enhanced by the varied backgrounds, experiences and views represented within our teams.  We aim to create inclusive teams, celebrate differences and encourage everyone to join us and be their true self at work. We therefore encourage applications from anyone who fits our values, whatever their religion or belief, sex, gender identity, race, age, sexuality or disability and are actively seeking candidates that can bring real innovation and commitment to us. 

This is a fantastic time to join a supportive and well-established team within an organisation with rapid growth ambitions. This role will be what you make it and we’re looking for someone to seize this opportunity!

How to apply

Please apply via Charity Job with your CV and a cover letter of no more than 2 pages. Please include your notice period and earliest availability to start in your cover letter.     

• Application deadline:  Thursday 22 May, 9am
• First interview:                 29 May - 2 June
• Second interview:            TBC

Kinship reserves the right to close applications early on receipt of sufficient applications. Apply early!

About Twins Trust

Twins Trust is at the heart of the multiples’ community, supporting families with twins or triplets, influencing the healthcare system and campaigning on behalf of our community.

Multiple birth families face unique challenges and we’re there for them, every step of the way. With over 40 years’ experience, we tailor our services to our families’ needs. 

Twins Trust has over 15,000 members who access our amazing community, information and courses and exclusive discounts.

Community Fundraising Manager

This is an exciting opportunity to join an ambitious and talented fundraising team

We are looking for an experienced Community Fundraising Manager to join our small and friendly fundraising team. You will be responsible for driving our strategy for Community Fundraising, Individual/Regular Giving and Events. With a database of around 100,000 registrants and 15,000 members, these existing income streams have lots of great potential. We have amazing fundraisers in our community who take on challenges like the London Marathon, London to Brighton bike ride, or their own swimming challenge and there’s lots of great potential amongst our supporters, including our committed members and regular givers.

Contract:  Permanent
Hours:  30 hours per week (negotiable for the right candidate)
Flexibility: We are a flexible employer and most of our staff are juggling things (including caring for multiples!) We are great at making jobs work around life.
Salary: £31,000 - £33,000 (pro rata)
Reports to: Head of Development 
Work location: Hybrid/remote. Office space in London Bridge, although entirely remote option is fine. Travel to events will also be required.
Closing date: midnight on Sunday 1st June
Interview dates: First-round interviews will be virtual and take place in early June

Purpose of the role

• Grow a successful existing income stream (Fundraising Events and Regular Giving) and develop and grow a comparatively new income stream (Community Fundraising and Individual Giving) for Twins Trust. You will do this alongside other fundraisers in the team and with support from a Fundraising Officer.
• Lead and develop a multi-year strategy for growing our Community and Events programmes, with a well-planned calendar of events throughout the year covering different themes and geographies.
• Lead the strategy for our Individual/Regular Giving programme
• Lead on the creation, planning and delivery of a new Twins Trust owned mass participation fundraising event
• Provide strategic support and guidance to our Fundraising Officer to implement the annual raffle, ongoing Lottery programme and Individual Giving programme.
• Work closely with other teams across Fundraising, Membership and Communications to spot opportunities to maximise income and drive new projects forward
• Provide exceptional relationship management and stewardship to fundraisers in our community to make them feel appreciated, maximise income raised and encourage repeat fundraising

Ideal candidate

The ideal candidate will have demonstrable experience of developing and implementing a strategy for Community They will be able to demonstrate how they have delivered one or more of these income streams and grown these programmes significantly, providing excellent stewardship to fundraisers.

Person specification

Essential

• Significant experience of leading a 6 figure multi-year community fundraising strategy including forecasting and monitoring income and expenditure
• Experience of leading community, events, or Individual/Regular Giving fundraising - taking ownership and achieving growth in scale and income
• Experience of creating and delivering a new medium to large scale (£25k plus) fundraising event, maximising all commercial opportunities within it
• Excellent relationship building skills
• Ability to manage several projects at the same time
• Experience working in a CRM and analysing data to inform decision-making (Microsoft Dynamics experience a plus)
• Excellent communication skills and attention to detail
• Able to collaborate with a team of various disciplines or work independently as required
• Strong IT skills, including SharePoint and advanced Excel
• Enthusiasm for the issues we work on

Desirable

• Working understanding of admin processes relating to fundraising
• Understanding of digital marketing
• An understanding of GDPR in relation to fundraising

The Head of Operations and Projects will oversee the infrastructure of our charity. This position will involve fostering a motivated and engaged volunteer base, strategic oversight of our BUBR Africa initiative and conducting impact analysis of our activations. The ideal candidate will be passionate about community engagement, skilled in project management and possess a strong analytical mindset.

PINF is the first charity in the UK that exists to support high-quality journalism. We exist at the cutting edge of charity law and need an experienced charity professional to make sure we do things properly. 

As Head of Operations & Governance, you will be responsible for overseeing the back-office operations of the charity. You will be a key point of contact for the team and support the Executive Director to ensure smooth, efficient and compliant operations.

You will be a senior member of the team, responsible for ensuring that PINF operates within its legal and regulatory framework, including in relation to charity, corporate, tax, employment and data protection regulations. The role involves liaising with the Chair, Board of Trustees, Executive Director, legal advisors and regulators to support best practice in financial management, governance, risk management and compliance.  

Duties and responsibilities 

• Financial Management 

• Ensure consistent delivery and quality of finance operations, including transactions processing, which will involve managing a bookkeeping service.

• Prepare and monitor annual budgets, management accounts and project budgets.

• Lead on the financial aspects of fundraising, contract management, and funder reporting. Including managing restricted and unrestricted funding. 

• Oversee the process of preparing statutory accounts, including liaising with accountants and auditors.

• Maintain internal controls and policies to protect assets, prevent fraud, and ensure business continuity. 

• Participate in the Finance & Fundraising Committee and support the Treasurer to plan and deliver meetings. 

• Prepare financial reports for board meetings and engage in board discussions.

• Governance 

• Manage our annual governance cycle, working closely with the Chair, Treasurer and Executive Director to ensure legal compliance and to plan and prepare for Board meetings including taking appropriate minutes.

• Manage the organisational risk framework including identifying emerging risks and working with the Executive Director to mitigate them.

• Companies House and Charity Commission filings.

• Develop and maintain a suite of policy to ensure PINF meets its obligations as a charity and an employer.

• Play an active part in board discussion to support good decision making.

• HR 

• Manage HR across the organisation; ensuring all HR processes and policies are fit for purpose, up to date and adhere to law, and are understood and implemented across the organisation.

• Manage recruitment processes for all staff.

• Manage the annual leave tracker. 

• Operations and administration 

• Ensure the smooth running of the organisation by leading operational planning and monitoring progress.

• Lead on relationships and contracts with external suppliers and contractors.

• Ensure PINF has appropriate insurance cover. 

• Occasional support with charitable activities (meetings, events, publications, etc.) 

Requirements  

• A professional qualification in finance, management, law, or a related field and at least five years’ experience relevant to this role.

• Deep understanding of good governance and best practice in the charity sector.

• Understanding of relevant laws relating to employment, data protection and running a charity. 

• Sympathy to the aims and objectives of PINF. 

• Full professional proficiency in English. 

• Right to work in the UK. 

Skills and attributes 

• Experience of managing charity finances and budgets (Essential). A related finance or accountancy qualification would be desirable. 

• Experience of managing operations in a comparable charity or business, with both strategic and day-to-day operational responsibilities. 

• Developing HR processes and policies and taking the lead in implementing these across an organisation. 

• Developing processes and procedures and making improvements for efficiency and impact. 

• Experience of working closely with trustees, non-executives or senior leadership teams.

• Strong oral and written communications skills, including having the confidence to use your expertise to provide feedback and constructive challenge to senior leaders.

• Excellent problem-solving and interpersonal skills. 

• Ability to work remotely and independently and to collaborate with others. 

• Enjoy being the key point of contact and support in a small, remote team. 

• Ability to stay on top of your workload by using relevant software (including Microsoft Office and finance software such as Xero), keeping accurate and up-to-date records, and prioritising between competing tasks. 

Please apply using Charity Job. Once you click apply you will be prompted to upload your CV and answer an application question in up to 5000 characters: What do you see as the main challenges facing PINF as a small but ambitious charity, and how will you use your experience to address them as Head of Operations & Governance? 

Head of Grants 

Are you a visionary leader who can turn ideas into reality? Do you have the drive to manage complex projects, inspire teams and create lasting impact on a national scale? Do you love giving charities money? If so, we want to hear from you!

This is a remote working role offering part-time hours, on a permanent basis. 

Position: Head of Grants 

Location: Remote/London

Hours: Part-time (4 days per week)

Salary: £50,000 - £55,000 pro rata

Contract: Permanent

Benefits Include: 25 days per year (pro rata – excluding bank holidays), employer pension contribution of 5% into a personal pension (which does not have to be matched by the employee)

Closing Date: 5pm 16th May 2025

About the Role

This role is key to shaping how the organisation maximises impact over the next 5 years, delivering on ambitions for the 2024-2029 Strategy. The aspiration is to help 10,000 young people at risk or experiencing homelessness, to reach their full potential.

By working with key players in the youth homelessness landscape, like-minded organisations, and embedding the voices and experiences of young people in this work, you will help maximise social impact and deliver £150m in social value by March 2029. 

You will ensure the charity is the best possible grant funder in the field, thoughtful, diligent, transparent and efficient, as it works with the very best charities across the country deliver vital support to young people facing homelessness.

You will be in charge of grant programme design, development, and delivery in line with the new strategy.  You will have the opportunity to work on new programmes and ideas, and to gather data and insight from this vital work (and other sources) that will help both future grant-making and our influencing work nationally.

About You

Whilst grant-making experience would be helpful, what truly matters is your ability to strategically lead and drive projects that deliver impact. You’ll be at the forefront of developing and delivering new programmes, ensuring they align with key targets while bringing innovative ideas to life.

This role is not just about achieving KPIs, it’s about leading teams to achieve results. You will have experience of delivering presentations, developing ideas and projects collaboratively, and using data-driven insights to shape future projects and influence decision-making at a regional or national level. Strong project management, monitoring, and evaluation skills are key in this role, as are those of team- and partnership- working.

If you are a senior leader looking for your next role, then we would love to hear from you. 

About the Organisation

The charity has been around since 1986, created by and working with the UK property industry to try and harness a collective desire to do good. Since 2016, the focus has been exclusively on creating a corporate movement within and across the industry to tackle and end youth homelessness. 

Additional Benefits

• Opportunities for flexible working 

• Free annual Flu’ jabs and annual sight tests

• Cycle to Work Scheme (salary sacrifice)

• ½ day a month entitlement to volunteer for a charity of your choice, in work time

• Interest-free Annual Travel Card Loans

• A Professional Development Fund 

• Commitment to wellbeing (we’re signatories of Mind’s Time to Change Pledge)

• An Employee Assistance Programme 

• Private Health Insurance with Vitality (small employee contribution required).

You may have experience in other roles such as Grants, Impact, Grants and Impact, Head of Grants, Head of Impact, Head of Grants and Impact, Impact and Innovation, Director of Grants, Director of Impact, Director of Grants and Impact.

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation

Location: Home-based in the UK, with regular national and international travel

Contract: 2 years with the possibility of extension dependent on funding.

Reporting to: Chief Operating Officer

Salary: £65,000 to £70,000.

Additional benefits: 25 days annual leave plus public holidays (annual leave increasing by 1 extra day for every years’ service up to 30 days total), life assurance and access to an employee assistance programme.

WeProtect Global Alliance will not be responding to expressions of interest or applications sent by third parties (agencies, brokers or recruitment specialists).

We require a highly skilled and motivated individual who has strong ethical standards and demonstrable commitment to our values to help grow, oversee, retain and actively engage the WeProtect Global Alliance to collaborate, advocate and  members and collectively work together to deliver our vision of a world where children and young people can access and participate in the digital world free from harm, sexual abuse and sexual exploitation.

The successful candidate will demonstrate considerable professional experience in a comparable role and a genuine passion for child protection. They will have a strong track record in developing, harnessing and deploying a diverse community of practice to develop real world solutions to make the digital world safer for children and young people across the globe.

Politically, commercially and financially astute, you will have a broad range of skills. You will be able to grow, activate and develop deep connections to nurture, harness and activate our alliance members to deliver our global mission and strategic objectives in a period where we are developing our new Strategy.

You will relish the opportunity to lead and support our member alliance, which currently comprises a broad range of high profile and influential representatives drawn from government, multi and bilateral agencies, global tech communities, NGO and advocacy groups, to focus on delivering real world solutions to often sensitive issues where competing views, political opinions and priorities can make seeking a resolution a challenge.

You will be comfortable supporting our Members Team and Alliance member community to ensure we remain relevant, responsive and impactful in an increasingly polarised political landscape as we enter the fourth industrial revolution. 

You will be able to focus on both the detail and the bigger picture in a complex landscape and be an inspirational and supportive team player who will live our values, shine confidently as a key member of the senior management team, be a role model to our brilliant secretariat workforce and an ambassador when engaging with members and external partners.

If leading, growing and getting the best out of a global community, combined with our mission of making the digital world free of harm for children and young people, motivate you to come to work and give your best every day, then this is the place for you and we cannot wait to welcome you!

About WeProtect Global Alliance 

The online world was not created with children in mind and can be unsafe for children and young people to explore. Every phone and computer is a potential gateway for offenders seeking to sexually exploit children. Our Alliance generates political commitment and practical approaches to make the digital world safe and positive for children, preventing sexual abuse and long-term harm.

Our Alliance’s geographical reach is unprecedented: 103 governments are members along with 82 private sector companies, 126 civil society organisations and 10 intergovernmental organisations. This diverse membership is key to our ability to deliver real change. Together, we break down complex problems and develop policies and solutions to protect children from sexual abuse online. More information on who we are and what we do can be found on the WeProtect Global Alliance website.

WeProtect Global Alliance is supported by a high-performing secretariat of eleven staff based in the UK and Belgium and is overseen by an influential Global Policy Board that the Head of Strategy will work collaboratively with to ensure the Alliance members remain impact and child centred.

Job description

Overall purpose of role

As the WeProtect Global Alliance Head of Members, you will grow and lead our capability and capacity to harness and grow our global alliance network to guide and drive the implementation of our Strategy and mission targets. This role requires an organised, driven, and people-oriented leader with deep and global connections in the child protection field. 

Your team will develop and deliver an elevated approach to managing a diverse community of members, supporting the Alliance maximise our impact on the global stage, support and advise the Management Board, Executive Team, Head of Strategy and Head of Development on the best ways to harness our Alliance community to respond to a rapidly evolving operational landscape and navigate key strategic decisions.

You will also work closely with the Head of Strategy and Head of Development to support the development of new ways of working to understand our collective impact and ensure our secretariat, members and broader organization actively remain relevant and focused on delivering our mission and strategic objectives. 

You will grow the capabilities and lead the WeProtect Global Alliance members work, with key accountability for the following outcomes:

· Work with the Executive Team, Management Board and Policy Board to develop, secure buy-in and implement a members strategy, operational and action plans to harness our diverse community to deliver the existing and forthcoming WeProtect Global Alliance Strategy and delivery targets.

· Collaborate with the Head of Strategy, the Head of Development and MEL lead to collectively build, maintain and oversee our theory of change and broader operational model to ensure we effectively harness and activate our member community to have real world impact on the lives of children and young people.

· Build the capability and capacity of the organisation to remain truly member led, build and manage the Members Team to pro-actively deliver a portfolio of work that will raise the profile of our mission and shift the needle on governmental, public and private sector agencies approaches to child protection and safety in the digital world. This includes overseeing and leading the Alliance’s Reference Groups and working collaboratively with the Executive Team and Head of Strategy to co-lead our work in international fora (most notably the WeProtect Global Summit).

· Build and maintain meaningful engagement with a broad range of members from across the public, private and third sector (including government agencies, advocacy communities, specialist tech and civil society organisations) across the globe to deliver the WeProtect Global Alliance strategic mission.

· Play an active role in building the operational resilience, financial sustainability and compliance capability and capacity of the Secretariat to provide a world class service to our members and Board to ensure WeProtect Global Alliance remains focused on creating a world where children and young people can access and participate in the digital world free from harm, sexual abuse and sexual exploitation.

Key Responsibilities

1. To lead the Members team to strengthen the WeProtect Global Alliance member’s portfolios by developing, securing buy-in and implementing the organisations member strategy, operating, governance model, plans, success indicators and internal capabilities to harness the power of our members to achieve our mission and vision in line with our core values.

2. To be a thought leader, keep abreast of external trends and developments and changing circumstances to ensure the WeProtect Global Alliance Member Strategy remains relevant, targeted and focused on improving outcomes for children and young people in a rapidly changing legislative, operational and technology landscape.

3. To be accountable for member services, outreach, growth, governance and cross organisational projects and work streams.  This includes planning and organising relevant performance and delivery areas, being mindful of cross-cutting impacts and priorities.

4. To ensure the continuous development and effective delivery of the WeProtect Global Alliance Member’s Strategy in a fast paced, politically sensitive and rapidly changing external environment, including participating in and leading (where relevant) annual business planning, forecasting, setting, monitoring, reviewing and reporting on budgets and relevant donor requirements to support effective decision making throughout the year.

5. To provide exemplary leadership and line management to staff, including appraisals, supervision, team meetings, delegating, managing, engaging, developing and supporting staff to be the best they can be and achieve our strategic objectives in accordance with our vision and values.

6. Lead and develop effective working relationships with external partners, stakeholders, members and staff to maximise the collective impact of WeProtect Global Alliance (governmental, public, private, civil society and advocacy communities).

7. To take accountability for preparing papers, reports and presentations for internal and external meetings including senior management meetings, executive team, trustee, board and reference groups meetings. To attend, chair, and contribute to meetings, briefings, reviews, due diligence and auditing and compliance activities.

8. Represent the Executive Director and the Chief Operating Officer at internal and external events, share peer responsibility for problem solving challenges, creating a ‘one team’ approach to delivery and deputising were appropriate.

9. To be an ambassador, spokesperson and representative of WeProtect Global Alliance Secretariat at external events.

Expectations

As a member of the Senior Management Team (SMT) you will also have a pivotal role to play in supporting and improving the organisation’s effectiveness as we develop the WeProtect Global Alliance’s new strategy, operating model and ways of working to ensure we remain effective, responsive and relevant in an increasingly complex and fast-moving technological landscape.

As a global, multi-sector alliance, ensuring equity, diversity and inclusion (EDI) is embedded in everything we do is a critical priority. We embrace diversity and understand that being an inclusive organisation, recognising different perspectives, will enable us to be impactful and effective.  We are committed to ensuring all our employees are treated fairly and equitably at work and promoting equality in physical and mental health for all.

1. To attend and contribute to meetings, training and other events as required.

2. To actively participate in our supervision and appraisal process.

3. To ensure that all responsibilities and activities within this post are delivered in accordance with WeProtect Global Alliance core values and relevant corporate, organisational, financial and compliance policies.

4. To travel to meetings and fora which may require the need to work unsociable hours e.g. attending evening or weekend meetings.

5. To adhere to relevant legal and statutory requirements including Data Protection Act and the Health and Safety at Work Act.

To use WeProtect Global Alliance resources responsibly.

Person Specification

Essential criteria

Experience

1. Significant senior experience and demonstrable record leading and growing a diverse global membership and/or partnership alliance function and/or service to deliver an ambitious child centred mission on the global stage.

2. Outstanding leadership and team management experience, including experience coaching and line managing direct reports.

3. Demonstrable effective influencing and negotiation skills and political judgment with a proven track record building productive and impactful professional relationship and partnerships with a wide range of individuals and organisations.

4. Demonstrable experience leading change and transformation with demonstrable qualities as a change agent. 

5. Demonstrable senior management level experience in project management, financial, donor and budget management, monitoring, evaluation and lesson learning across the fields of strategy, research and policy.

6. Significant experience commissioning high quality, high value research and policy projects and able to demonstrate the use of insights in long term planning and impact frameworks.

Skills

1. Outstanding communication skills and ability to effectively engage and build meaningful relationships with internal and external staff and stakeholders at all levels.

2. Outstanding self-management skills to work independently, autonomously and as part of a team, using own initiative and being flexible and adaptable to deliver as ‘one team’.

3. Excellent IT, project management, financial management and donor engagement skills.

4. Demonstrable excellent planning and organisation skills to deliver work to agreed timescales and standards.

Knowledge

1. Knowledge and understanding of WeProtect Global Alliance mission, vision, values and ambition and how it applies to this post.

2. Knowledge and understanding of a child centred approach to participation, advocacy and EDI and how it applies to this post, with a focus on embedding effective policies and processes.

3. Awareness of global child protection policies and procedures within the digital arena and a genuine passion for child protection.

Other

1. A willingness to travel and work unsocial hours (time in lieu can be claimed)

2. Commitment to your own continuing professional and personal development

3. To uphold high standards of work, standards and conduct in line with WeProtect Global Alliance values.

Diversity, inclusion and equity

We welcome applicants from all sections of the community, regardless of age, sex, gender (or gender identity), ethnicity, disability or sexual orientation. We particularly welcome applicants from ethnic minorities and other under-represented groups. 

Safeguarding and values

As a child-focused organisation, we have a strong commitment to child safeguarding and rigorous procedures. The successful candidate will be required to provide two referees and to undergo a criminal record check. 

All staff are expected to act at all times in a manner consistent with our values and in compliance with our policies and procedures, including our Safeguarding Policy and Code of Conduct.

Our values are: 

· Empowerment – collaboration, innovation, challenge

· Accountability – responsibility, delivery, safeguarding

· Respect – honesty, feedback, inclusion

ARMA (UK) is the professional association for research management in the UK. We represent research leaders, managers and administrators, offering professional development and opportunities to build networks, knowledge and skills.

We are looking for a Conference and Major Events Manager to lead on the delivery of our successful annual conference and other major events.

The role includes, but is not limited to, project management, budgeting and financial management, marketing and promotion, sponsorship and exhibition sales/ coordination, venue selection and contracting, supplier management, speaker liaison, abstract management and delegate administration.

This role will work closely with our Head of Membership Engagement, the chair of Conference and Conference Working Group to deliver an excellent programme and outstanding delegate experience. The role holder is also responsible for managing the relationship with our appointed Professional Conference Organiser (PCO).

For full details about this role, our work and the skills required please refer to our role profile.

Location: Home-based in the UK, with regular national and international travel

Contract: 2 years with the possibility of extension dependent on continuation of funding.

Reporting to: Chief Operating Officer

Salary: £65,000 to £70,000.

Additional benefits: 25 days annual leave plus public holidays (annual leave increasing by 1 extra day for every year’s service up to 30 days total), life assurance and access to an employee assistance programme.

WeProtect Global Alliance will not be responding to expressions of interest or applications sent by third parties (agencies, brokers or recruitment specialists).

We require a highly skilled and motivated individual who has strong ethical standards and demonstrable commitment to the values of WeProtect Global Alliance to help plan, coordinate, implement and track our existing and new global strategy to ensure that our members collectively work together to create a world where children and young people can access and participate in the digital world free from harm, sexual abuse and sexual exploitation.

The successful candidate will demonstrate considerable professional experience in a comparable role and a genuine passion for child protection. They will have a strong track record in developing, harnessing and deploying policy and research outputs to support and collaborate with the WeProtect Global Alliance community to develop real world solutions to make the digital world safer for children and young people across the globe.

Politically, commercially and financially astute, you will have a broad range of skills. You will be able to build relationships and work effectively with a broad range of global partners (who often hold competing views and opinions). You will confidently and comfortably support often ambiguous and sensitive negotiations with diverse stakeholders as we develop and implement the organisation’s new global strategy.

You will be able to focus on both the detail and the bigger picture in a complex policy and legislative landscape and be an inspirational and supportive team player who will live our values, shine confidently as a key member of the senior management team, be a role model to our brilliant research manager and policy manager and ambassador when engaging with members and external partners.

If working on strategy, research and policy, combined with our mission of making the digital world free of harm for children and young people, motivate you to come to work and give your best every day, then this is the place for you and we cannot wait to welcome you!

About WeProtect Global Alliance 

The online world was not created with children in mind and can be unsafe for children and young people to explore. Every phone and computer is a potential gateway for offenders seeking to sexually exploit children. Our Alliance generates political commitment and practical approaches to make the digital world safe and positive for children, preventing sexual abuse and long-term harm.

Our Alliance’s geographical reach is unprecedented: 103 governments are members along with 82 private sector companies, 126 civil society organisations and 10 intergovernmental organisations. This diverse membership is key to our ability to deliver real change. Together, we break down complex problems and develop policies and solutions to protect children from sexual abuse online. More information on who we are and what we do can be found on the WeProtect Global Alliance website.

WeProtect Global Alliance is supported by a high-performing secretariat of eleven staff based in the UK and Belgium and is overseen by an influential Global Policy Board that the Head of Strategy will work collaboratively with to ensure the Alliance members remain impact and child centred.

Job description

Overall purpose of role

As the WeProtect Global Alliance Head of Strategy, you will lead a small team to build a global network, evidence base and policy portfolio to guide and drive the implementation of our Strategy and mission targets. Your team will provide high level analysis and ask critical questions, supporting the Alliance to identify immediate and emerging issues which may require investigation or exploration, support the Policy Board, Executive Team, Head of Members and Head of Development to navigate key strategic decisions.

You will also work closely with the Head of Members and Head of Development to support the development of new ways of working to harness Alliance members and broader community of practice to understand our collective impact and ensure our secretariat, members and broader organization actively remain relevant and focused on delivering our mission and strategic objectives. 

You will lead the WeProtect Global Alliance Research and Policy work, with key accountability for the following outcomes:

· Work with the Executive Team and Policy Board to implement the existing WeProtect Global Alliance strategy and ensure the forthcoming strategy remains targeted and focused on achieving the Alliance’s global ambition.

· Work with the Executive Team and Policy Board to develop and implement the WeProtect Global Alliance approach, strategy and operational targets on participation and engagement.

· Collaborate with the Head of Members, the Head of Development and MEL lead to collectively build, maintain and oversee our theory of change and operational model to ensure our Strategy remains impactful and has real world impact on the lives of children and young people.

· Provide inspirational leadership and empower our Policy Manager and Research Manager to pro-actively deliver a portfolio of work that will raise the profile of our mission and shift the needle on governmental, public and private sector agencies approaches to child protection and safety in the digital world. This includes overseeing the production of the WeProtect Global Alliance biennial Global Threat Assessment, Model National Response and Global Strategic Response.

· Build and maintain meaningful engagement with a broad range of external stakeholders across the public, private and third sector (including government agencies, advocacy communities, specialist tech and civil society organisations) across the globe to deliver the WeProtect Global Alliance strategic mission.

· Play an active role in building the operational resilience, financial sustainability and compliance capability and capacity of the Secretariat to provide a world class service to our members and Board to ensure WeProtect Global Alliance remains focused on creating a world where children and young people can access and participate in the digital world free from harm, sexual abuse and sexual exploitation.

Key Responsibilities

1. To lead the Strategy team, ensuring the research and policy portfolios are informed by best practice to achieve our mission, vision and embody our values.  This includes working across the Secretariat to deliver the existing strategy and collaborate with Executive Team to develop and implement our new strategy.

2. To be a thought leader, keep abreast of external trends and developments and changing circumstances to ensure the WeProtect Global Alliance Strategy remains relevant, targeted and focused on improving outcomes for children and young people in a rapidly changing legislative, operational and technology landscape.

3. To be accountable for strategy, research, policy and cross organisational projects and work streams.  This includes planning and organising relevant performance and delivery areas, being mindful of cross-cutting impacts and priorities.

4. To be accountable for the commissioning, delivery and impact of strategic projects, ensuring they are led and informed by participatory and advocacy principles to reflect the diversity of our membership, embed lived experience, and deliver the WeProtect Global Alliance mission.

5. To ensure the continuous development and effective delivery of the WeProtect Global Alliance Strategy in a fast paced, politically sensitive and rapidly changing external environment, including participating in and leading (where relevant) annual business planning, forecasting, setting, monitoring, reviewing and reporting on budgets and relevant donor requirements to support effective decision making throughout the year.

6. To provide exemplary leadership and line management to staff, including appraisals, supervision, team meetings, delegating, managing, engaging, developing and supporting staff to be the best they can be and achieve our strategic objectives in accordance with our vision and values.

7. Lead and develop effective working relationships with external partners, stakeholders, members and staff to maximise the collective impact of WeProtect Global Alliance (governmental, public, private, civil society and advocacy communities).

8. To take accountability for preparing papers, reports and presentations for internal and external meetings including senior management meetings, executive team, trustee, board and reference groups meetings. To attend, chair, and contribute to meetings, briefings, reviews, due diligence and auditing and compliance activities.

9. Represent the Executive Director and the Chief Operating Officer at internal and external events, share peer responsibility for problem solving challenges, creating a ‘one team’ approach to delivery and deputising were appropriate.

10. To be an ambassador, spokesperson and representative of WeProtect Global Alliance Secretariat at external events.

Expectations

As a member of the Senior Management Team (SMT) you will also have a pivotal role to play in supporting and improving the organisations effectiveness as we develop the WeProtect Global Alliance new strategy, operating model and ways of working to ensure we remain effective, responsive and relevant in an increasingly polarized political landscape as we enter the fourth industrial revolution.

As a global, multi-sector alliance, ensuring equity, diversity and inclusion (EDI) is embedded in everything we do is a critical priority. We embrace diversity and understand that being an inclusive organisation, recognising different perspectives, will enable us to be impactful and effective.  We are committed to ensuring all our employees are treated fairly and equitably at work and promoting equality in physical and mental health for all.

1. To attend and contribute to meetings, training and other events as required.

2. To actively participate in our supervision and appraisal process.

3. To ensure that all responsibilities and activities within this post are delivered in accordance with WeProtect Global Alliance core values and relevant corporate, organisational, financial and compliance policies.

4. To travel to meetings and fora which may require the need to work unsociable hours e.g. attending evening or weekend meetings.

5. To adhere to relevant legal and statutory requirements including Data Protection Act and the Health and Safety at Work Act.

6. To use WeProtect Global Alliance resources responsibly.

Person Specification

Essential criteria

Experience

1. Significant senior experience and demonstrable record leading a Strategy Team to deliver an ambitious child centred mission on the global stage.

2. Outstanding leadership and team management experience, including experience coaching and line managing direct reports.

3. Demonstrable effective influencing and negotiation skills and political judgment with a proven track record building productive and impactful professional relationship and partnerships with a wide range of individuals and organisations.

4. Demonstrable experience leading change and transformation with demonstrable qualities as a change agent. 

5. Demonstrable senior management level experience in project management, financial, donor and budget management, monitoring, evaluation and lesson learning across the fields of strategy, research and policy.

6. Significant experience commissioning high quality, high value research and policy projects and able to demonstrate the use of insights in long term planning and impact frameworks.

Skills

1. Outstanding communication skills and ability to effectively engage and build meaningful relationships with internal and external staff and stakeholders at all levels.

2. Outstanding self-management skills to work independently, autonomously and as part of a team, using own initiative and being flexible and adaptable to deliver as ‘one team’.

3. Excellent IT, project management, financial management and donor engagement skills.

4. Demonstrable excellent planning and organisation skills to deliver work to agreed timescales and standards.

Knowledge

1. Knowledge and understanding of WeProtect Global Alliance mission, vision, values and ambition and how it applies to this post.

2. Knowledge and understanding of a child centred approach to participation, advocacy and EDI and how it applies to this post, with a focus on embedding effective policies and processes.

3. Awareness of global child protection policies and procedures within the digital arena and a genuine passion for child protection.

Other

1. A willingness to travel and work unsocial hours (time in lieu can be claimed)

2. Commitment to your own continuing professional and personal development

3. To uphold high standards of work, standards and conduct in line with WeProtect Global Alliance values.

Diversity, inclusion and equity

We welcome applicants from all sections of the community, regardless of age, sex, gender (or gender identity), ethnicity, disability or sexual orientation. We particularly welcome applicants from ethnic minorities and other under-represented groups. 

Safeguarding and values

As a child-focused organisation, we have a strong commitment to child safeguarding and rigorous procedures. The successful candidate will be required to provide two referees and to undergo a criminal record check. 

All staff are expected to act at all times in a manner consistent with our values and in compliance with our policies and procedures, including our Safeguarding Policy and Code of Conduct.

Our values are: 

· Empowerment – collaboration, innovation, challenge

· Accountability – responsibility, delivery, safeguarding

· Respect – honesty, feedback, inclusion

Department: Governance, Compliance and Risk

Location: remote working, with travel including to Head Office in Aldgate, London on ad-hoc basis

Closing date: Tuesday 13th May at 11.59pm

First stage interview : 20th May (via MS Teams)

Second stage interview: 22nd May (via MS Teams) 

Annual leave: 33 days (plus eight bank holidays)

Benefits:

• enhanced maternity, paternity and adoption leave, and shared parental pay
• family-friendly policies
• 8% employer pension contribution (Aviva) or opportunity to continue NHS pension
• free health cashback plan (Medicash): employee cover plus up to four dependent children
• 24/7 virtual GP access (UK registered), plus access to Best Doctors
• free, confidential employee assistance programme (Medicash)
• access to a wellbeing app
• flexible working options including hybrid working, flexible working patterns such as part-time, compressed hours, and more*
• learning and development opportunities including bespoke training and access to LinkedIn Learning)
• commitment to employee health and wellbeing.
• we have a Menopause Friendly accreditation and are a Disability Confident employer

Background

Every three minutes someone in the UK develops dementia: a progressive and complex condition that can be devastating for the whole family. One in two of us will be affected by dementia in our lifetime – either by caring for someone with the condition, developing it ourselves, or both.

Dementia UK is the specialist dementia nursing charity that is there for the whole family. Our specialist nurses, known as Admiral Nurses, provide free, expert advice, support and understanding to help families care for their loved one. Every day, Admiral Nurses help families up and down the country to have the best life possible, for as long as possible.

About the role

Join Dementia UK as Head of Governance, Compliance and Risk, where you will help the charity and its workforce comply with all necessary regulations and manage risks to the organisation, its employees, clients, reputation, assets and the interests of stakeholders.

As part of the governance team, you will work with senior managers across the organisation as a trusted advisor, providing day-to-day coordination and oversight of all governance bodies, meetings and working groups. You will also support the efficient flow of information to the Director of Finance and Corporate Services, enabling them to update the Trustee Board effectively.

You will play a major role in making sure that the policies set by the charity are strictly followed by the entire workforce. This diverse workforce includes volunteers, employees, sessional workers and consultants. You will be responsible for maintaining messaging and behaviour that reflect the necessary rules and regulations, providing assurance that the charity complies with both external requirements and internal policies.

Additionally, you will oversee the operational requirements relating to insurance and develop effective plans to manage crises (including business continuity plans) or respond to compliance breaches.

The ideal candidate will hold a university degree in a business-related discipline, complemented by a relevant postgraduate qualification and professional certification (such as IRM Qualification, IA Cert, CIA, or Chartered Internal Auditor). You will demonstrate a thorough understanding of risk and regulatory frameworks, supported by extensive senior leadership experience in compliance and risk management within a public sector or not-for-profit environment. You will also have a strong track record of supporting internal audits from initiation through to the completion of action points, alongside a proven ability to engage and collaborate effectively with a wide range of stakeholders both within and external to the organisation.

If this sounds like you, join us in making a difference in the lives of those affected by dementia.

Our culture

In addition to a competitive salary and a generous benefits package, we truly value our people. It’s important for us to create a working environment that looks after our workforce to support them in achieving their full potential. You will become part of a diverse and dedicated team who are supported to use and develop their skills. We recognise and value the key role you will play in delivering our strategic plans for the benefit of those living with dementia.

Our staff have a voice. Representatives from different roles and levels across the organisation positively contribute to and lead on our working groups around health and wellbeing, menopause, and equity, diversity and inclusion.

Dementia UK is proud to welcome everyone. We aim for a truly inclusive culture with talented, diverse teams that represent a variety of backgrounds, perspectives, and skills. We celebrate difference and individuality and encourage everyone to join us and be their whole selves always.

Dementia UK is a Disability Confident Employer. If you’d like support to make an application, contact the recruitment team.

This role will be subject to a Basic DBS check.

By applying to join Dementia UK, you acknowledge that in the event you are successful for the role, any offer and your ongoing employment will be conditional on you having or obtaining the right to work in the UK.

*Please note that any decision on flexible working is based on business needs

Macular disease is the biggest cause of sight loss in the UK, with around 300 people diagnosed every day. The Macular Society is the only charity determined to beat the fear and isolation of macular disease with world class research, and the best advice and support.

To support people affected by macular disease now, the Macular Society provides a range of support, information and services. Our research programme is focused on finding new treatments and a cure to Beat Macular Disease forever.

This exciting role is responsible for delivering income from a range of donors and prospects, with a focus on trusts and foundations, lottery and statutory sources, as well as HNWI. We are looking for an ambitious and strategic fundraiser with a proven track record of raising significant funds from charitable trusts and foundations, lottery and statutory sources as well as HNWI, who, alongside our existing team, will help to grow and develop this area of fundraising for the Macular Society. The post holder will have a proven eye for detail, an analytical nature, first class relationship management skills and a flair for writing successful applications.

In return, we provide a great working culture – we do something worthwhile and are proud to work together to Beat Macular Disease – as recognised by our inclusion in The Sunday Times Best Places to Work 2023 list. 

We offer flexible working options, 26 days annual leave, rising to 27 after one years’ service, the ability to buy or sell annual leave, supportive family policies, and 6% pension contribution.

We are passionate about treating people fairly and as equals, doing so is instinctive to us. To Beat Macular Disease for all we know we have work to do. That’s why we are keen to hear from people of all backgrounds who have the skills and experience we are looking for. We particularly encourage applications from people from under-represented groups, to help ensure what we do and how we do it is inclusive – for everyone.

Department: Communications and Public Affairs 
Contract type: Permanent  
Hours: Full time
Salary: £36,000 – £38,000 per annum
Location: Home Based with UK wide travel as required
Reports To: Media and External Affairs Manager

The National Fire Chiefs Council (NFCC) is seeking a proactive and skilled Media Officer to join our Communications and Public Affairs team. This is a newly created role, offering the opportunity to help shape and strengthen NFCC’s voice in the national conversation around fire and rescue services.

Reporting into the Media and External Affairs Manager, you will play a central role in growing our media presence and positioning NFCC as the go-to source for journalists covering national fire and rescue issues. You will help to ensure our messages are clear, timely, and authoritative across all platforms.

Join us and help ensure that fire and rescue services have a strong, consistent voice on the national stage.

Key responsibilities:

Serve as a point of contact for incoming media enquiries.

Draft high-quality, publication-ready communications content – including press releases, news articles, opinion pieces and other engaging content. 

Support NFCC’s campaigns and policy initiatives by securing media coverage and developing strong relationships with journalists and editors.

Take ownership of key communications tools and systems, including media monitoring and audit of coverage. 

Act as the lead Comms officer on at least one area of NFCC’s work in partnership with the relevant NFCC teams and lead officers (but will also work on a wide range of our issues and areas).

Participate in an out-of-hours communications rota as part of NFCC’s communication support function (with some out of hours support – see job description for more information). 

What we are looking for:

Experience in a media, journalism or communications role. 

Excellent writing skills with the ability to produce accurate, compelling content under pressure. 

Confidence in handling media enquiries and building positive relationships with the press. 

Strong organisational skills and the ability to manage multiple priorities effectively. 

A collaborative approach, with experience working across teams and engaging with senior stakeholders. 

A good understanding of the UK media landscape and wider external environment. 

If this sounds like the kind of opportunity that you would be interested in, please have a look at the Job Description on the NFCC website and apply.

Working with us:

NFCC is a fully remote organisation, and all staff work from home. This role will involve some travel for stakeholder meetings, events, conferences, training sessions and team away days, for which travel expenses are paid.

How to apply:

Please complete the application form linked from the ‘apply now’ button on the NFCC Website. CVs will NOT be accepted for this position. 

Closing Date – Sunday 1 June with interviews being conducted on Teams on Tuesday 17 June. If you are not available for interview on this date, we will try to provide an alternative date, though we advise that we may not be able to do this.

NFCC is committed to safeguarding and promoting the welfare of children, young people and adults and will require a DBS check to be completed prior to commencing in post. 

NFCC is committed to being an inclusive employer. We comply with the Equality Act 2010, and we believe that everyone deserves to work in safe environments that are free from bullying, harassment and discrimination, abuse, and harm, where they feel supported, welcome, and able to thrive. 

NFCC acknowledges the duty of care to safeguard, protect and promote the welfare of children and vulnerable adults and is committed to ensuring safeguarding practice reflects statutory responsibilities, government guidance and complies with best practice, all staff are expected to share this commitment. 

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases.