Action4Youth is seeking to appoint a talented new Chief Executive Officer to provide leadership, to develop and implement strategic and operational plans while leading on income generation, partnership and business development and being an effective advocate for the charity and its beneficiaries.
The role will commence on 5th January 2026 and is based between the Aylesbury office and The Caldecotte Xperience in Milton Keynes.
Key responsibilities:
- To support and advise the Chair and Board of Trustees in setting the vision, strategy and business planning of the organization
- To create and sustain effective multi-channel, multi-purpose income generation.
- To lead on organisational change: identifying and responding to internal and external challenges and influencing organisational culture so the organisation is supportive, inclusive and cohesive.
- To deliver an ambitious, aspirational and innovative strategy that has a clear, measurable impact.
The new CEO will be responsible for the day-to-day running of the Charity, providing effective leadership and direction for the organisation The successful candidate will instil in the positive culture of the organisation and motivate the team to achieve fantastic results. You will be a problem solver who understands the bigger picture and will be able to demonstrate this through your experiences. You will be able to develop highly effective partnerships, be an active listener, excellent communicator and be an ambassador for the charity.
Applications from all backgrounds, including charities and private sector, are welcome.
For further information and to apply, please visit our website.
Closing date: 15th September 2025, however please apply early as the closing date may be brought forward.
You will be joining us at a time that holds the greatest potential for fundraising in our history, following the launch of the UK Government’s Delivery Plan for ME and initial findings of the DecodeME genetics study (co-led by Action for ME) in Summer 2025.
Building on our charity’s already established level of support from major donors, you will provide exceptional relationship management to existing donors alongside growing our network of high value supporters.
Working closely with the CEO, alongside managing a portfolio of donors and prospects ensuring excellent stewardship, you will support our Breakthrough-ME Group (a group of high net worth and highly networked individuals). There is an established level of support from major donors at Action for ME so this is a role that will require exceptional relationship management to retain our current valued supporters while growing this crucial area of fundraising.
This would be an ideal role for an experienced philanthropy professional seeking to work for a small but ambitious charity, helping us to achieve our mission to improve the lives of all people affected by ME – better meeting their needs today while taking action to secure change for tomorrow.
Key duties
Major Donor Fundraising
• Successfully develop and implement the philanthropy strategy to secure and maximise funds from high value individuals for Action for ME achieving annual income of £250k+
• Set plans and budgets which will deliver income through major gift fundraising and philanthropic giving through family trusts and foundations, including quarterly forecasting.
• Manage a portfolio of prospects and donors at the £5k to £100k level, to develop and maintain strong and long-standing partnerships
• Work closely with the Director of Fundraising and Development and other colleagues to ensure that plans and activities for fundraising from high value individuals are integrated into the overall fundraising strategy and plan for significant growth.
• Be responsible for our Breakthrough-ME Group with high quality proposition development. Contribution to Group fundraising activities with a specific focus on ensuring their networks support pipeline growth for future fundraising.
• Lead the delivery of our biennial fundraising gala dinner, maximising income and new opportunities from attendees.
• Develop engaging and inspiring opportunities to steward and cultivate support creating a calendar of activities including events, presentations, approaches, networking and meetings.
• Utilise the CRM database (Raisers Edge) to provide the data required to strategise your approach to philanthropy, monitor progress and provide a high-quality donor experience.
• Ensure utilisation of insight & data, producing management information data to inform planning and strategy development.
• With the Director of Fundraising & Development, create inspiring cases for support and resulting propositions with clear budgets and outcomes.
• Create adequate systems and processes to support the major donor programme.
• Undertake and manage research into prospects and major donors, preparing for approaches and presentations and briefing senior leadership and trustees for donor meetings and events.
• Develop and maintain relationships with donors, a wide range of staff and volunteers from trustee level down.
• Provide regular feedback and internal reporting to line management.
• Work with other fundraisers to ensure that all fundraising opportunities and leads are followed up – particularly in corporate, community and trust fundraising.
• Work with Trustees, the Chief Executive and members of the Leadership Team to develop relationships with major donors.
• Self-administrate including managing your own diary and meetings, keeping accurate and up to date records of activity
• Occasional travel to London, Bristol & events
Other duties
• To positively promote the work and activities of Action for M.E. at all times.
• To contribute to the team’s overall, ongoing and annual planning and budgeting.
• To undertake any other reasonable activity in line with the responsibilities of the post as requested by the Director of Fundraising and Development, Chief Executive or any other senior Action for ME management.
• Act as an advocate for the Charity and its work.
• To work in accordance with Action for ME’s values of collaboration, equity and empathy.
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Community Fundraiser - Home Counties
Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?
Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within Buckinghamshire, Bedfordshire, Hertfordshire, Northamptonshire and Essex.
Key Responsibilities:
- Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects
- Steward supporters to help drive the charity’s fundraising activities and growth
- Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders
- Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research
Requirements:
- At least one year of fundraising experience, with a proven track record in income generation
- Strong experience in supporter stewardship
- Excellent communication skills, with the ability to engage and inspire supporters and partners alike
- Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure
If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.
We will give preference to those candidates living in the Bucks, Beds and Northants areas of this region.
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.
We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process. Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.
Closing Date: 26th September 2025
We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.
To find a cure for all types of brain tumours To increase the UK investment in brain tumour research

The client requests no contact from agencies or media sales.