Hiv jobs
We are recruiting a Van Peer Coordinator to support our Hepatitis C peer project in the Oxford & Thames Valley area. This role involves driving a van across the region and working with people affected by substance use and hepatitis C.
Peers use their lived experience to raise awareness of hepatitis C, reduce stigma, and help people access testing and treatment.
About you
You will:
- Be confident driving a van and travelling long distances
- Have experience working with people affected by substance misuse
- Have lived experience of hepatitis C, or experience supporting someone who has
- Be reliable, compassionate, and well organised
- Have good communication skills
- Hold a clean driving licence (essential)
What you’ll do
- Recruit and support volunteer peers
- Work with NHS hepatitis C teams, drug and alcohol services, and homelessness services
- Coordinate education sessions and community-based hepatitis C testing
- Support people into hepatitis C treatment and ongoing care
This role requires regular travel across Oxford & Thames Valley.
The Hepatitis C Trust is a charity dedicated to eliminating hepatitis C in the UK by 2030.


The client requests no contact from agencies or media sales.
Contract: Fixed Term, 12 month contract
Salary: £29,849 - £35,493 per annum
Closing Date: Monday 16th February 2026
Interviews will be held week commencing 23rd February 2026
Centrepoint, the UK’s leading youth homelessness charity, is looking for a Supporter Care Officer to join our Fundraising Strategy & Operations Team based in London on a 12-month fixed term basis.
About us
We help vulnerable young people by giving them the practical and emotional support they need to find a job and live independently. Centrepoint provides homeless young people with accommodation, health support and life skills in order to get them back into education, training and employment. We want to end youth homelessness by 2037.
Together with our partners, we support over 16,000 young people each year.
About the role
The Fundraising Strategy and Operations team delivers high quality operations support to the wider Fundraising Directorate including Strategic Liaison with Service teams, Compliance, Supporter Journeys and Communications, and Supporter Care.
The role sits within our friendly and dedicated Supporter Care team. In addition to providing operations support to the Fundraising Directorate, the team provides a high standard of customer service to Centrepoint supporters and members of the public.
The role works alongside two other Officers and the team Manager to help steward and grow our compassionate supporter base, securing Centrepoint’s long term future, and enabling us to reach our strategic goals through helping to maximise fundraised income and increase donor loyalty.
The role involves working independently, collaborating with colleagues and third-party suppliers, and using a variety of technical systems to fulfil a range of supporter-related responsibilities.
These include, but are not limited to, liaising with existing and prospective supporters, managing fundraising complaints, processing donations, processing supporter data; and ensuring all tasks are carried out in compliance with GDPR, Data Protection, and other regulatory requirements.
There is also the opportunity to work on projects, volunteer at events, and participate in a range of training to support personal and professional development.
About you
· Experience of working in Supporter Care or customer focused team
· Excellent organisational skills, with the ability to plan and work to tight deadlines
· Excellent written and verbal communication skills
· Excellent interpersonal and relationship building skills
· Ability to work well with others and on your own initiative
· Ability to investigate and resolve problems
· Ability to be flexible and switch between tasks as needed
· Literate in IT with experience of using MS Office – prior CRM use (e.g. Raiser’s Edge) is desirable
· Basic understanding of GDPR and Data Protection
What you’ll be doing
· Interacting with existing and prospective supporters via multiple communication channels
· Resolving complaints in line with our policy, escalating feedback where necessary
· Listening to and quality checking calls handled by the third-party contact centre
· Supporting with required training of the third-party contact centre call handling team
· Processing fundraising donations
· Maintaining supporter records on the Raiser’s Edge CRM system
· Helping to ensure team processes are accurate, efficient, and up to date
· Helping to ensure the team meets its service SLAs and KPIs
· Maintaining a good understanding and working knowledge of new sector regulations
· Supporting the delivery of strategic projects in line with the Supporter Care strategy
Why join Centrepoint?
In return for your efforts, you’ll receive a competitive salary, excellent training and development, and a host of staff benefits including:
· 25 days of annual leave per year, rising by one day per year to a maximum of 27 days
· Healthcare cash plan (Cover the costs of a wide range of medical treatment including Dental, Optical, Complementary and Alternative therapies).
· Private Medical insurance
· Income protection
· Employer pension contributions of 5%
· Access to Cycle 2 Work loan scheme
· An interest-free travel loan
At Centrepoint we challenge the discrimination within society that contributes to youth homelessness, and we are just as committed to fairness and equality within Centrepoint itself. We are passionate about ensuring all of our colleagues are made to feel included in the work we do and that we value the rich diversity within the organization.
We are an equal opportunities employer and we welcome applications regardless of sex, gender, race, age, belief in any religion and none, gender identity, ethnic origin, class, sexuality, nationality, appearance, unrelated criminal activities, disability, responsibility for dependents, part time or shift workers, being HIV positive or living with AIDS, lived experience of homelessness or using young people’s services and any other matter which causes a person to be treated with injustice.
Centrepoint’s policy is to recruit, employ and promote people on the basis of their suitability for the work to be performed, and to this end, our aim is to ensure that all applicants, employees and volunteers receive equal treatment.
Don’t miss out on this fantastic opportunity to join our team as a fixed term Supporter Care Officer click ‘Apply’ now!
* This role is predominantly remote but you will be asked to come to our Brighton office few times a year
Who we are
We’ve been on the frontline of the world’s response to HIV and AIDS for over 25 years, working with marginalised people who are denied HIV prevention and treatment simply because of who they are and where they live.
Set up in 1993 to work with community groups in the countries most affected by the global AIDS epidemic, we’ve continually adapted our approach, looking for innovative ways to break down the barriers that marginalise people living with, or at risk of acquiring, HIV. All with one goal in mind – a future free from AIDS for everyone, everywhere.
Everything we do is rooted in our two key beliefs:
- That the lives of all human beings are of equal value.
- That everyone has the right to access the HIV information and services they need for a healthy life.
Today, we work with communities in more than 40 countries, taking local, national and global action on HIV, health and human rights.
As a global partnership that is open to everyone, we can only do what we do – and achieve what we want to achieve by working with partners from grassroots community groups to national governments. Our partners drive change where it matters, shaking up the status quo and making a noise on issues the world often chooses to ignore.
Are you the Candidate we’re looking for?
Frontline AIDS is recruiting a maternity cover for the Lead: Financial Accountant role. This is a crucial leadership role within the finance team at Frontline AIDS, which oversees all core accounting work. The roles remit includes preparing monthly management accounts, overseeing balance sheet reconciliation work and ensuring balance sheet integrity, managing the accounts payable team and working as the finance business partner for all strategic finance work. The role has three direct reports.
How to apply
Find out more by downloading the full job description and person specification below. If you are excited by this opportunity and think it’s right for you, we’d love to hear from you so apply using the button at the top of this page and upload your CV along with a covering letter outlining why you are a great match for this role.
JDLead_Financial Accountant_Core Accounting JD Jan 2026.pdf - please note this link only works via Internet Explorer browser (not Chrome)
Closing Date is: 11 February 2026
Interview Date is: TBA
We have transitioned to a hybrid model of working. We are currently working from home but you will also be required to spend time working alongside your team as appropriate. The successful applicant will need to hold the right to work in the UK.
Frontline AIDS is committed to diversity and inclusion in its hiring approach. We welcome applications from Black people, and other people of colour, people with disabilities, people living with HIV and LGBTIQ+ and non-binary individuals.
All offers of employment will be subject to satisfactory references and a criminal records check. Having a criminal conviction and/or any other information divulged on the DBS/PVG or country equivalent check would not necessarily prevent you from working for the charity, but any recruitment decision will be dependent on the nature of the position sought and the circumstances and background of the offence.
Protection of Children and Vulnerable Adults
Frontline AIDS operates a rigorous recruitment and selection process that reflects our commitment to child protection. The Protection of Children and Vulnerable Adults Policy can be downloaded here
We want a future free from AIDS for everyone, everywhere.


The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Location: London, hybrid (1 to 2 days per week in office)
Contract: 3 month fixed-term contract
Hours: Full-time (35 hours per week)
Salary: £42,400 per annum
Prospectus is delighted to be supporting our client in their search for an Internal Compliance Project Lead. The organisation is a leading HIV and AIDS charity based in Islington, and is looking for support with a large compliance project that aims to deliver their Compliance Update Programme, which entails identifying and closing compliance gaps, mitigating regulatory and operational risk, and coordinating stakeholders.
Responsibilities
- Leading end-to-end programme and project management, including planning, identifying risks/issues, and maintaining tracking.
- Overseeing all compliance areas, ensuring adherence to GDPR and the Fundraising Regulator's Code.
- Coordinating stakeholders, including internal working groups and external compliance service providers.
- Delivering high-quality governance and reporting, including maintaining policies and coordinating meetings.
Requirements
- Recent, relevant experience in a similar role within the not-for-profit sector.
- Confidence in all areas of charity compliance and governance.
- Excellent organisational and project management abilities.
- High level communication and interpersonal skills.
Applications will be reviewed on a rolling basis so please apply ASAP and submit your CV in Word format.
As a specialist Recruitment Practice, we are committed to building inclusive and diverse organisations, and welcome applications from all sections of the community. We invest in your journey as a candidate and are committed to supporting you in your application.
Job Title: Public Affairs & Policy Lead – Devolved Nations
Job Type: 12-month contract
Hours: 21 hours/ week
Department: External Affairs
Salary: Pro rata £22,173 – £23,205 (FTE £36,955 - £38,509)
Reports to: Director of External Affairs
Location: Hybrid – COSRH Office (London Bridge), home working. For anyone wishing to work remotely in Scotland, Wales and Northern Ireland, home working with occasional travel to London will also be considered. Generally, travel to Scotland, Wales, Northern Ireland and where applicable, London, should be assumed to occur at least 12 times a year in total.
The role:
The Policy and Public Affairs Lead for Devolved Nations will drive CoSRH’s engagement and policy work in Scotland, Wales, and Northern Ireland. This key strategic liaison role will support the Director of External Affairs in enabling delivery of the CoSRH’s Hatfield Vision across all UK nations, and in supporting CoSRH members and interests in Scotland, Wales and Northern Ireland.
For this new role, we are seeking an experienced and forward-looking individual interested in developing the strategic and influencing work of CoSRH in Scotland, Wales and Northern Ireland, and in ensuring that CoSRH represents members and their interests across the UK.
Who we are:
The College of Sexual and Reproductive (CoSRH) is the leader in the field of sexual and reproductive healthcare, and we are the voice for professionals working in this area. As a multi-disciplinary professional membership organisation, we set clinical guidance and standards, provide training and lifelong education, and champion safe and effective sexual and reproductive healthcare across the life course for all.
Key tasks:
a. Stakeholder engagement:
- Lead CoSRH’s stakeholder engagement programme in Scotland, Northern Ireland and Wales - influencing policy debate, contributing to building internal capacity on devolved and regional issues, and in building key relationships.
- Collaborate with colleagues across CoSRH to develop and deliver a strategic programme of engagement across Scotland, Wales, and Northern Ireland, ensuring that the work of member committees in devolved nations feeds into wider CoSRH activity, inclusive of the Hatfield Vision, and that the CoSRH President maintains appropriate oversight at Taskforce level.
- Manage internal and external relationships with key individuals and organisations including parliamentarians, civil servants and policymakers in the devolved governments of Scotland, Northern Ireland and Wales; staff and member representatives of sister organisations like British Association for Sexual Health and HIV and Royal College of Obstetricians & Gynaecologists, and nation-specific networks and collaborative groups such as Cross-Party Group for Women’s Health in Scotland, and Women’s Health Wales.
- Develop, deliver, and evaluate plans for specific areas of policy and stakeholder engagement work, including influencing decision-makers, building, and strengthening support among key regional and national stakeholders in the devolved nations.
- Working in collaboration with the Director of External Affairs and Chairs of the CoSRH Scotland, Wales and Northern Ireland Committees, to represent CoSRH at a variety of conferences, meetings, and events across the three devolved nations.
b. Policy, Public Affairs & Partnership Building
- Monitor the external environment for issues that may impact on SRH, and help identify, analyse and grasp opportunities to influence policy and public opinion relevant to CoSRH’s work within the three devolved nations, outlining CoSRH’s position/response to policy and public opinion developments.
- Develop and oversee the effective monitoring of parliamentary activity in the devolved nations in relation to sexual and reproductive healthcare and related interests.
- Produce policy briefings for the organisation’s leadership including President, Officers and CEO as relevant.
- Advise on, assimilate evidence for and produce responses to external consultations issued by Government departments and other relevant agencies across the three devolved nations, consulting with members and drawing on relevant policy documents.
- Engage with CoSRH members, policy makers and the public across the three devolved nations including supporting the CoSRH Media and Communications Manager role where necessary, helping with media and social media output.
c. Committee support
- Work with the CoSRH External Affairs & Membership & Engagement Teams to provide secretariat support as required to CoSRH’s member committees in Scotland, Wales and Northern Ireland.
- As required, work with the CoSRH External Affairs & Membership & Engagement Teams as well as devolved nation chairs to develop and implement meetings and their agendas, record actions and discuss strategic approaches to the delivery of actions with relevant leaders.
- As required, work with the CoSRH External Affairs & Membership & Engagement Teams to ensure that the work of member committees in devolved nations feeds into wider CoSRH activity, inclusive of the Hatfield Vision, and that the CoSRH President maintains appropriate oversight at Hatfield Vision Taskforce level.
Key skills and attributes
Essential:
- Proven public policy experience, ideally within the health sector, with a good understanding of devolved policymaking and influencing opportunities.
- Knowledge of the healthcare systems across the three devolved nations.
- Experience in developing relationships with a broad range of stakeholders, including developing partnerships for collaboration on joint initiatives, projects and/or events, in order to deliver organisational impact.
- Demonstrable experience of drafting clear and engaging briefings and policy submissions, tailored to different audiences.
- Ability to work proactively and independently supporting colleagues in nations as well as part of a broader team function.
- Demonstrable evidence of supporting the delivery of business priorities and delivering stakeholder engagement plans.
- Ability to manage a varied workload with flexibility and adaptability.
- Ability to quickly grasp complex issues and provide analysis.
- Outstanding attention to detail
- Excellent prioritisation and time-management skills.
Desirable:
- Experience of working in charity and/or membership organisation.
- Experience of organising parliamentary or stakeholder events.
- Knowledge of sexual & reproductive healthcare policy.
Join our team and contribute to the exciting work of the External Affairs team - influencing policy and practice through evidence-based advocacy as well as raising awareness of SRH among our partners, members and the wider public across the UK.
A flexible approach to working hours is necessary as there are some evening meetings in various locations and, with occasional travel possibility elsewhere in the UK, although many of them take place virtually.
NB: In order to fulfil this role you should be resident in the UK with a valid right to work; we are unable to sponsor people requiring a work visa.
We will offer you:
We offer a range of benefits at CoSRH to support staff wellbeing, including:
- 25 days holiday, with an additional 2 days leave after 2 years of service, and a further 3 days after 5 years.
- Birthday leave
- Flexible working culture
- Pension and life assurance scheme: 10% employer contribution / 5% employee contribution after successful completion of probation. This also includes access to life assurance at 4x annual salary and an income protection scheme.
- Employee Assistance Programme (EAP)
- Employee discounts portal
- Free Lunch Thursday
- Enhanced maternity, paternity & adoption pay
- Free eye tests
- Training and development
To Apply
To apply please follow this link – Public Affairs & Policy Lead – Devolved Nations job - Hybrid - College of Sexual and Reproductive Healthcare
Deadline for applications is 15 February 2026 at 12pm
Interviews are likely to take place w/c 2 March 2026
We want you to have every opportunity to demonstrate your skills, ability and potential; please contact us if you require any assistance or adjustment so that we can help with making the application process work for you.
We value diversity, promote equality and encourage applications from people of all backgrounds. We are working hard to minimise unconscious bias and your application will be anonymised to support this.
NB: In order to fulfil this role you should be resident in the UK with a valid right to work; we are unable to sponsor people requiring a work visa.
The College of Sexual and Reproductive Healthcare (CoSRH) is the leader in the field of sexual and reproductive healthcare.



The client requests no contact from agencies or media sales.
We’re looking for a Legal Adviser who sees law as part of a wider movement for justice to join our social justice legal team in London. You’ll work alongside people harmed by drug criminalisation, poverty, and inequality — delivering outreach advice and casework in benefits, housing, and debt, while contributing to policy and advocacy that strengthens communities and challenges harm at its roots. If you believe legal work should build power, shift systems, and stand in solidarity with those most affected — this could be the role for you.
Since Release’s inception in 1967, the organisation has continuously and actively advocated for open access to justice for all individuals with a specific emphasis on substance misuse and dependency. By addressing the legal needs of people who use drugs and those in recovery the consequences can have a profound and positive affect not only for the individual but also for those who live, support and work with them. Reducing health and income inequalities’ significantly improves a person’s life chances and integration back into their community. Whilst legal services are available to the public via other sources, our client group will often be unable to access such services because of fear of stigma or discrimination.
We also operate a national drugs and legal helpline, and produce a number of free informative publications for the public, and specialist guidance material aimed at professionals in the substance misuse and dependency field.
Details:
Salary: £28,000 – £31,000 + 5% pension
Contract: Permanent, 35 hours/week
Holidays: 29 days + public holidays
Location: Hybrid – Spitalfields, London / Remote
Closing Date: 5:00 pm, Thursday 05 February 2026
Interviews: Commencing Wednesday 11, Thursday 12 or Friday 13 February 2026.
Start Date: Ideally March/April 2026
This is a full-time position (35 hours per week) working a minimum of 3 days a week from our office in Spitalfields, London with the remaining 2 days working from home, if desired. The working hours are 10am – 6pm Monday to Friday with a one-hour lunch break.
The post holder will join our social justice legal team and will be required to deliver a minimum of 2 services through our in-person and ‘virtual’ legal services to clients attending alcohol/drug treatment centres, homeless day centres, and sexual health clinics. The legal advice, assistance and representation we provide has a particular focus on debt, housing including homelessness, and welfare benefits. The post holder will also be required (after a period of induction and/or training) to provide advice on Release’s national legal helpline pertaining to the criminal law and the criminal justice system related to drugs offences, and broader legal advice through our new Harm Reduction Hub drop-in service. In addition to the delivery of legal services, the postholder will also be required to assist with the policy work undertaken by the organisation.
We have been successful in tendering for legal aid contracts for Community Care and Public Law, and there may be opportunities for the post holder to work within these in the future.
As a member of our dynamic social justice legal team, based in London, your responsibilities will include:
- Delivering a minimum 2 legal outreach services at alcohol/drug treatment centres, homeless day centres and sexual health clinics in the London area, and with training deliver our expanding ‘virtual’ legal outreach services to clients elsewhere in the country.
- Completing casework resulting from our legal outreach services on issues including welfare benefits, housing, and debt;
- Providing advice to the public and professionals about legal issues connected with drug use (training will be provided);
- Updating our specialist publications;
- Contributing to our local and National policy commentary/response on drugs, and all associated legislation;
- Assisting with the development of our website and other IT-related service initiatives and their legal compliance.
Minimum requirements for the post include:
- Completion of LLB, GDL, or SQE1 and minimum six months’ experience in social welfare legal advice and casework in areas such as crime, housing, benefits, or debt.
If you think you can make a difference as a Legal Adviser for Release then please download and read the job description and person specification together with the application guidelines for details.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
As an interim Supervising Solicitor in Public Law, you will supervise and carry out CPAG’s public law legal aid cases, to benefit families and children in poverty. You will play an active role in managing CPAG’s legal practice and conduct high-profile public law litigation.
We are looking for someone who is passionate about using the law to advocate for the rights of, and directly improve the lives of, families in poverty. The ideal candidate will be a solicitor (E&W qualified) with experience of conducting public law litigation and legal aid (publicly funded) work. You will be able to supervise the casework of colleagues, such as CPAG’s junior or trainee solicitor(s) and welfare benefit advisers. You may have experience of working with clients in vulnerable situations or with additional needs, for example, survivors of domestic abuse, refugees, disabled people or children and young people.
We welcome applications from individuals with the skills and experience outlined and we can be flexible about working arrangements. We operate a hybrid working system and would be happy to discuss any flexibilities required. CPAG is committed to equity, diversity and inclusion which you can read more about in the job pack.
We welcome applications on a secondment basis.
For more information about this post and to apply download the Supervising Solicitor - Public Law (Interim)
Child Poverty Action Group works to prevent and end child poverty – for good.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Introduction and Purpose of the post:
We are seeking an experienced, values-driven Clinical Services Manager to provide clinical leadership, operational oversight, and strategic development for our Talking Therapies for Anxiety and Depression service.
You will be responsible for ensuring the delivery of safe, effective, high-quality, and culturally responsive psychological therapies, while supporting and developing a multidisciplinary clinical team.
This role combines clinical leadership, service management, workforce development, and quality assurance, with a strong emphasis on inclusive practice and community accountability.
Main duties and responsibilities:
Clinical & Professional Leadership
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Provide senior clinical leadership across the service, ensuring safe and ethical practice in line with professional, legal, and organisational standards.
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Maintain oversight of clinical risk, safeguarding, and governance arrangements.
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Promote culturally responsive, anti-oppressive, and LGBTQ+ affirmative clinical practice.
Service Management & Development
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Lead day-to-day operational management of the Talking Therapies for Anxiety and Depression service
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Oversee access, waiting times, outcomes, and service performance
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Use data, feedback, and community insight to drive service improvement
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Contribute to service development, innovation, and funding or commissioning requirements
Workforce Leadership & Supervision
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Line manage clinical staff, including therapists, supervisors, and trainees
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Ensure high-quality clinical supervision, reflective practice, and CPD opportunities.
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Foster a supportive, psychologically safe, and inclusive team culture
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Provide training, supervision, guidance, and consultation to other professionals who directly contribute to the formulation and treatment of individual patients, including those in other teams within the organisation.
Equity, Inclusion & Community Engagement
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Embed anti-racist, culturally informed, and LGBTQ+ inclusive frameworks across the service.
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Work collaboratively with community organisations and stakeholders
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Champion the voices and experiences of ACH, Global Majority, and LGBTQ+ service users
Personal specification
The remaining sections outlines what criteria will be used to appoint the suitable candidate.
Criteria are marked as (E) are essential and (D) desirable. (I) would indicate which criteria shall be evaluated at the interview.
Experience, Knowledge, Skills, Abilities - Values and Motivations:
Connected: Creating a compassionate and supportive community.
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Ability to build trusting relationships with staff, service users, and external partners (E, I)
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Experience of collaborative, multidisciplinary team working (E, I)
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Strong communication skills, including the ability to engage sensitively across cultural, racial, and LGBTQ+ identities (E, I)
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Commitment to reflective practice, supervision, and staff development (E, I)
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Experience of engaging with service user feedback to inform service delivery (E, I)
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Experience working in partnership with community organisations, voluntary sector, or grassroots groups (D)
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Lived or professional experience working closely with ACH, Global Majority, and/or LGBTQ+ communities (D)
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Experience co-producing services or pathways with service users and communities (D)
Fair: We strive for equity - no-one's needs should go unmet.
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Strong commitment to equity, diversity, and inclusion in mental health services (E, I)
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Understanding of structural inequalities and their impact on mental health and access to care (E, I)
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Experience delivering or overseeing culturally responsive and LGBTQ+ affirmative psychological therapies (E, I)
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Knowledge of safeguarding, ethical practice, and clinical governance frameworks (E, I)
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Commitment to fair, transparent, and supportive people management practices (E, I)
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Join BBS UK and help deliver compassionate support within NHS highly specialised clinics, supporting children and families living with Bardet-Biedl syndrome.
At Bardet-Biedl Syndrome UK (BBS UK), we are dedicated to improving the lives of those affected by this rare genetic condition. Our charity provides specialist support services that help children, young people and families feel informed, supported and able to navigate complex health and care systems, working in partnership with NHS Highly Specialised BBS Clinics.
We are seeking a compassionate and organised individual to join our Clinics Support Team as a Patient Liaison Officer (PLO). This role offers a unique opportunity to deliver charity-led support within specialist paediatric clinics at Great Ormond Street Hospital, working alongside NHS multi-disciplinary teams while remaining part of a close-knit and supportive charity team.
About the Role
As a Patient Liaison Officer, you will play a vital role in ensuring families feel prepared, supported and heard before, during and after their clinic appointments. You will provide emotional and practical support, advocacy and system navigation, helping families to understand their care and access appropriate support, while referring more complex casework to BBS UK’s specialist Advice Service.
You will:
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Support families before, during and after NHS Highly Specialised BBS clinic appointments
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Facilitate clinic attendance by preparing families for appointments, addressing concerns and helping to reduce “Did Not Attend” rates
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Attend specialist BBS clinics at Great Ormond Street Hospital, and St Thomas' Hospital, providing on-the-day support to families and clinicians (Approximately 2-4 days per month)
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Act as a key point of contact between families and clinical teams, supporting communication and information-sharing
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Provide light-touch advocacy, information and signposting in relation to health, education, social care and local authority support
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Identify unmet needs or emerging issues during clinic interactions and refer families to the BBS UK Advice Service for specialist advocacy and follow-up
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Support families during key transition points, particularly the move from paediatric to adult services
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Maintain accurate and confidential records using BBS UK’s CRM system (CharityLog)
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Contribute to service evaluation, quality improvement and the wider work of BBS UK
This is a home-based role with attendance at clinics in central London and occasional travel to other clinic sites and BBS UK events. Travel expenses will be reimbursed in line with BBS UK policies.
Who We’re Looking For
We are looking for an experienced individual with a background in supporting children and families, who can work confidently in a clinic-based, people-facing role.
Essential Experience & Skills
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Experience working with children, young people and families, ideally within health, social care, education or the voluntary sector
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Strong communication skills, with the ability to engage sensitively with families experiencing distress or uncertainty
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Experience providing emotional and practical support to individuals with complex or long-term conditions
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Ability to organise and manage multiple tasks, prioritise effectively and work independently
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Good IT skills, including Microsoft Office and case management/CRM systems (e.g. CharityLog)
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Understanding of safeguarding principles and professional boundaries
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A strong commitment to improving outcomes for people living with rare or complex conditions
Desirable Experience & Skills
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Knowledge of Bardet-Biedl Syndrome or other rare or genetic conditions
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Experience working alongside or within NHS services or multi-disciplinary teams
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Understanding of education, health and social care systems in England
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Experience supporting families affected by disability or visual impairment
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Ability to travel for work, including clinic attendance (travel expenses reimbursed)
Why Join BBS UK?
BBS UK is a small, dedicated charity making a meaningful difference to the lives of children, young people and families affected by Bardet-Biedl Syndrome. Our Clinics Support Team is widely recognised by families and clinicians as an essential part of the specialist BBS service.
By joining us, you will:
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Have a direct and positive impact on families at critical points in their care journey
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Be part of a supportive, values-driven charity team
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Work flexibly from home while delivering face-to-face support in specialist clinics
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Receive training, supervision and ongoing professional development
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Contribute to a nationally recognised rare disease support service
Additional Information
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DBS Check: An enhanced DBS check is required for this role
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Safeguarding: Completion of safeguarding training within the first month of employment
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Flexible Working: Occasional evening or weekend work may be required, with time off in lieu provided
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Hours: This is a permanent, part-time role (20 hours per week)
How to Apply
If you’re passionate about supporting children and families living with a rare condition and would like to be part of a dedicated charity team, we’d love to hear from you.
If you would like to discuss the role before applying, details can be found in the application pack.
Application Deadline: 8th February 2026 - please note we are actively interviewing and will close applications early if a suitable candidate is found.
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.

The client requests no contact from agencies or media sales.


