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Job Title: Online Engagement and Inclusion Lead (Young People’s Services)

Organisation: Kids

Location: Remote work with occasional travel to London for in-person meeting

Hours: 36 hours per week

Contract: Fixed term for 2 years

Salary- £31,000 - £33,000

Purpose

This role leads the coordination of Kids’ online engagement and digital inclusion work for young people with SEND, including information provision, participation, and wellbeing support. You will deliver a two-year Online Wellbeing and Resilience Support Programme, including identifying and engaging digitally excluded young people to help them access vital digital tools and services. The role also drives collaboration across the Digital Services Consortium (a collaboration of 12 children’s charities), embedding shared learning, outcome measurement, and inclusive digital practices across Kids, and will create new capacity to work with young people to scope and deploy online campaigning activity.  

Responsibilities

• To lead and coordinate Kids’ online engagement and inclusion work for young people with SEND. This includes Kids’ online information provision; voice/ participation and wellbeing work.
• To develop and deliver Kids’ two-year digital inclusion programme, Online Wellbeing and Resilience Support Programme* to ensure reach and impact is maximised.
• To work with the Digital Services Consortium Driving Digital Inclusion members on shared digital project outcome measures and community of practice, ensuring learnings and online engagement and digital inclusion principles are captured, shared and built into the organisation.
• To identify and recruit (working closely with colleagues from services across Kids) digitally excluded young people to the digital inclusion programme so they can become digitally included and access much needed support and guidance.
• To establish a holistic and joined up approach to Young People’s online engagement and digital inclusion with Kids.
• To create new capacity to work across all services and teams, and with a range of young people, to scope and deploy online campaigning capabilities in line with Kids’ Speak Up and wider national and local influencing work.

Key to your success in the role will be:

• Ensuring an audience-led approach, leading and championing an important collaborative way of working across Kids existing young people's services.
• Confidently working within the Kids digital infrastructure and context – understanding where we are at on our digital journey, building excellent problem-solving relationships with marketing, IT, change team and young people’s services colleagues.
• Helping to embed digital inclusion practices across the organisation.
• Applying strong digital, data and analytical skills to enable you to baseline, track and measure progress.
• Demonstrating excellent attention to detail whilst being flexible to adapt to the needs of a new programme.
• Influencing the broader Kids service teams to identify and engage digitally excluded young people.
• Centering the voices and needs of young people with SEND.

Person Specification

Experience

• Proven experience working in digital engagement initiatives, ideally with young people or vulnerable groups.
• Involvement in programmes that promote digital inclusion and wellbeing.
• Experience in outcome measurement, impact reporting, and using data to inform practice.

Desirable

• Experience in co-producing content or services with young people, including those with SEND.

Skills

• Strong project management skills, with the ability to coordinate multiple workstreams and meet deadlines.
• Excellent communication skills, both written and verbal, tailored to diverse audiences including young people, professionals, and stakeholders.
• Skilled in using digital tools and platforms to deliver services and measure engagement.
• Ability to work collaboratively across teams and build strong internal and external relationships.

Knowledge

• Knowledge of safeguarding principles and practices in online environments.
• Awareness of current trends in digital engagement and youth participation.
• Knowledge of inclusive digital design and accessibility standards.
• Understanding of digital inclusion principles and the barriers faced by digitally excluded young people.

Personal Attributes

• Passionate about inclusion, equity, and empowering young people.
• Committed to co-production and user-led design.
• Growth mindset and proactive approach to problem-solving.
• Committed to continuous learning and sharing best practices.
• Flexible and adaptable, with a collaborative mindset.

*About the funded programme

Kids Online Wellbeing and Resilience Support Programme will help young people with SEND (aged 13 – 25 years) build resilience, positive self-regard and meaningful connections.

Our goal is to reduce isolation and protect mental health through a supportive, inclusive digital environment. We’ll begin by consulting directly with young people to understand what they need most. Together, we’ll co-create new online content and resources that truly reflect their voices and experiences. 

 What the Programme Offers: 

• Online information with resources codesigned with young people with SEND. 

• A series of interactive webinars and guided online activities. 

• Free devices and data to improve access to those who need it most, plus the support to ensure everyone can participate.

We will reach over 1,800 young people over the two year funded period.

Partner Acknowledgements

Thanks to National Lottery players, the Digital Services Consortium (DSC) has received over £1.5 million over two years from The National Lottery Community Fund, the largest community funder in the UK. The DSC has also received a grant of £400,000 from BBC Children in Need for two years to provide digital support for disabled or seriously ill children and young people and their family members across the UK. Virgin Media O2 and Vodafone have generously donated devices and data through the Good Things Foundation National Databank and Device Bank which will help address affordability barriers.

Are you ready to shape accessible and engaging digital experiences for diverse audiences?

We have TWO opportunities for a Digital Products Manager responsible for the development, delivery and improvement of our digital products. You will lead work on our website, microsites and other platforms, ensuring they meet the needs of our user communities and support the MND Association’s strategy. The Digital Products Manager will work with colleagues, agencies and suppliers to design, optimise and manage digital platforms that are secure, accessible and engaging.

The Digital Products Managers will work closely with teams across the Association to lead the development of user-focused platforms that drive supporter engagement, grow income, accelerate research, and improve support for people living with and affected by MND. 

We are recruiting for two roles within:

• Research and Services & Partnerships
• Income Generation and Engagement

When applying, please clearly state which team(s) you are interested in working with.

Key Responsibilities:

• Manage the Association’s digital product portfolio, including websites, microsites and third-party platforms
• Lead a programme of continuous improvement with our digital agency to deliver the best experience for our digital audiences
• Scope new products, map user journeys and enhance existing services to design or optimise digital experiences
• Advise on the procurement of new third party digital platforms and technology
• Translate business and user requirements into technical specifications and user stories
• Ensure compliance with security and accessibility standards
• Ensure all content is produced to SEO best practice and work with our digital agencies to improve website content
• Use data, analytics and usability testing to improve user experience and journeys
• Manage Google Analytics and Google Tag Manager, producing insights and identifying opportunities for development
• Support colleagues with training, guidance and communities of practice

About You:

• Technical skills in Drupal CMS and Microsoft Dynamics 365
• Experienced across the full product lifecycle with knowledge of team roles and documentation
• Strong understanding of user-centred design, user journeys and testing
• Awareness of best practice and emerging trends in digital technology
• Broad knowledge of accessibility principles and tools to support inclusive design
• Confident using audience insight, data and analytics to inform decisions
• Able to manage competing priorities and balancing multiple projects

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies
• 24/7 GP access via phone and video
• Life assurance and confidential counselling helplines
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
• Access to Benefit Hub for discounts on everyday shopping
• Enhanced pension scheme
• Opportunities for training and personal development
• Hybrid working

The job description and information about working for the MND Association is available in the candidate pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders. As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

Hybrid Working and Flexibility: Expectation to attend the office 1 day per month for team meetings. Flexibility to attend more regularly when needed in line with business requirements.

Do you have experience of providing high-quality administrative and governance support in a complex organisation?

We are recruiting a Governance Co-ordinator to join our Governance Team at the Motor Neurone Disease (MND) Association. This is a key role providing essential company secretariat support to the Board of Trustees, Committees, the CEO Office and the Head of Governance & Compliance. As Governance Co-ordinator, you will help to ensure the Association maintains the highest standards of governance through efficient administration, effective meeting support and accurate record keeping.

Key Responsibilities:

• Support the Head of Governance & Compliance to provide efficient and effective administration for Board and Committee meetings, including maintaining the meeting calendar and timetables.
• Organise logistics for meetings, including dates, venues, travel and accommodation.
• Provide full secretariat support to the Board and Committees, including preparing Chair briefings, attending meetings, drafting minutes and actions.
• Collate and distribute papers and presentations in line with agreed timescales, ensuring accuracy and clarity.
• Liaising with senior leadership, Trustees and others at senior levels on all aspects of Board and Committee meetings.
• Prepare, proofread, collate and distribute Board and Committee papers and presentations on time.
• Provide administrative and planning support for the Annual General Meeting and Trustee elections.
• Assist the Head of Governance and Compliance with implementing recommendations from governance reviews, including updating templates, policies and processes.
• Maintain accurate statutory records with Companies House and the Charity Commission.
• Manage the Board of Trustees SharePoint page.

About You:

• Experience of Board or Committee administration, including minute taking and organisation of Board/Committee meetings.
• Experience of working with meticulous attention to detail accuracy in all aspects of work.
• Experience managing confidential information with discretion and diplomacy.
• Excellent planning and organisational skills.
• Strong communication skills, with experience of building effective relationships at all levels.
• Ability to work both independently and as part of a team, with a flexible approach.
• Proficient in Microsoft Office, SharePoint and MS Teams, including experience of supporting hybrid meetings.
• Awareness of the principles of good governance.

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.
• Hybrid working.

The full job description and further information about working for the MND Association is available in the candidate pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

This role is home-based, with attendance once a week in either Northampton or London.

Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.

Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.

If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.

As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.

About Dravet Syndrome UK

Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.

What you will bring

Essential

· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.

· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.

· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)

· Demonstrable experience of working in charity, patient advocacy or healthcare sectors

· Ability to deal with people at all levels with empathy, tact and credibility

· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences

· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website

· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively

· Strong organisational and project management skills, with the ability to prioritise

· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)

Desirable

· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development

 Why join Dravet Syndrome UK?

Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.

The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.

Our commitment to diversity

As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.