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Join Beacon to drive projects that place patients at the heart of translational research, shaping progress and improving outcomes with and for rare disease communities.
OVERVIEW OF THE ROLE
Beacon, now in its second decade of operation, has experienced substantial growth over the last three years, including an organisational rebrand and expansion into international projects. We are now recruiting a Senior Patient and Scientific Engagement Officer to play a central role in delivering ambitious projects that put patients at the heart of translational research.
This role sits at the crossroads of patient involvement and scientific communication, building meaningful collaborations between patients, researchers, and other stakeholders. You’ll provide essential operational support and subject expertise to ensure projects run smoothly and reflect the real-world needs of the rare disease community.
You will contribute primarily to two of Beacon’s major collaborative initiatives: REMEDi4ALL, a European-wide drug repurposing platform with over 25 partner organisations, and the LifeArc Translational Research Centres for Rare Disease (LifeArc TrC4RD), a UK-wide partnership. In this role, you will work directly and regularly with partners across these consortia, encompassing patient group leaders, patient representatives, academic researchers, clinical trialists, and beyond. You will act as a vital interface between patients and researchers in both projects, coordinating activities, facilitating collaboration, and embedding patient perspectives throughout the work. While these will be your main focus, you will also support other initiatives across the charity, particularly those aimed at advancing scientific understanding of rare diseases and strengthening patient involvement in research.
This is a varied position offering the chance to apply and further develop your expertise across areas such as patient and public involvement, scientific content development, training, and stakeholder engagement. We are looking for someone with a strong grasp of both the scientific and patient landscapes, who can balance attention to detail with big-picture awareness and work confidently in highly collaborative settings with multiple partner organisations. This role offers a unique opportunity to make a tangible contribution to advancing rare disease research and ensuring patients’ voices drive progress across the UK and Europe.
See our full job description for more information on REMEDi4ALL and The LifeArc TrC4RD
MAIN DUTIES AND RESPONSIBILITIES
Your main responsibilities will span aspects of project delivery, stakeholder engagement, and patient-centred scientific support. In this role, you will:
- Support the delivery of Beacon’s work within REMEDi4ALL and the LifeArc TrC4RD, collaborating directly with partners across these consortia to coordinate activities and ensure timely delivery of shared goals.
- Assist in the preparation of project materials, reports, and updates for consortium meetings and communications.
- Write, review, and refine accessible, patient-facing materials that explain complex scientific concepts and research projects clearly.
- Help design and deliver patient engagement strategies for major collaborative projects, ensuring patient perspectives are embedded throughout.
- Support and liaise with REMEDi4ALL Patient Champions and the LifeArc Patient Engagement Group, including coordinating mentorship, facilitating input into project teams, and managing communications.
- Build and maintain strong working relationships with patient advocates, researchers, funders, and partner organisations, ensuring clear communication and effective collaboration.
- Contribute to the planning and delivery of multi-stakeholder meetings, workshops, and webinars that bring together patients, researchers, and other partners to discuss research priorities and approaches.
- Support the creation and delivery of training materials, sessions, and talks for patient groups, researchers, and other stakeholders on topics such as patient and public involvement (PPIE) and rare disease research.
- Participate in project discussions to understand current patient engagement and provide input or signposting to improve engagement and support.
- Represent Beacon and its work at consortium meetings, external conferences, and events – both as a delegate and, where appropriate, as a speaker.
- Support other Beacon-led projects as required, particularly those focused on advancing patient knowledge, engagement, and scientific understanding.
- Provide hands-on support for the on-the-day delivery of Beacon events, training programmes, and other charity activities.
PERSON SPECIFICATION
This is a mid-to-senior level role. Candidates should have professional experience in scientific engagement, patient involvement, or research coordination, and be ready to contribute confidently to collaborative consortium projects with external partners.
We are looking for someone with a strong commitment to patient-centric approaches, who is willing to advocate for patients’ perspectives and priorities, while also navigating the need for compromise and collaboration across multiple organisations.
Essential
- Relevant professional experience (e.g., life sciences, medical communication, translational research, or patient engagement), ideally accompanied by a scientific qualification.
- Experience in patient and public involvement or patient engagement within research, ideally in health contexts.
- Strong understanding of scientific processes, translational research, or clinical research, with the ability to communicate complex concepts clearly to non-specialist audiences.
- Ability to work effectively within multi-partner or consortium projects, collaborating with external organisations.
- Confidence in liaising with a wide range of stakeholders, including patients, researchers, funders, and partner organisations.
- Experience developing accessible, patient-centred materials, training, or communications.
- Excellent organisational skills, with the ability to manage multiple tasks and deadlines while maintaining attention to detail.
- Strong interpersonal skills and confidence in building relationships across diverse groups.
- Ability to work independently and proactively, while contributing effectively as part of a team.
- Commitment to patient-centred research and improving outcomes for the rare disease community.
- Flexibility to travel for in-person meetings, workshops, and events within the UK and internationally multiple times a year.
Desirable
- Experience supporting or delivering training sessions, workshops, or webinars for patient or professional audiences.
- Familiarity with drug repurposing, translational research, or rare disease research environments.
- Experience managing or contributing to multi-stakeholder research projects.
- Experience working or volunteering in the charity or not-for-profit sector.
- An understanding of rare diseases, health charities, or small-organisation dynamics
WORKING AT BEACON
Beacon is a small, tight-knit team, with a friendly atmosphere and strong commitment to our beneficiaries. We aim to give all employees opportunities to pursue their interests, develop their skills, and shape their career path.
We offer flexible working practices to help our staff balance their personal and professional lives, including hybrid working (50% split between home and office working) and flexible hours. We also recognise the substantial benefits of in-person collaboration and communication for the organisation, team morale, and for individual staff development, and are committed to maintaining this as a core part of how we work.
After the initial in-person onboarding period, we’d like this role to be based in the office for around 2–3 days a week on average (though not necessarily every single week) to support effective teamwork, strong communication, and smooth daily operations.
BENEFITS
- 25 days holiday, plus bank holidays and Christmas to New Year closure
- Flexible working practices including hybrid working and flexitime
- Time off in lieu to support appropriate work/life balance
- 5% pension contribution
- Annual training budget to support personal and professional development
- A close knit and friendly small team environment
- Frequent opportunities to meet with beneficiaries and expand your professional network
- Employee Assistance Programme (EAP) including access to mental health support, 24/7 GP service, discounted gym membership, shopping savings and more
6 - 10
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Job title: Deputy Director of Global Development, Asia
Salary: circa £80,000 to £90,000
Location: Hybrid/South Kensington and White City (with travel to other Imperial campuses/meetings as required).
This role is based at Imperial’s White City campus. This role is a hybrid role, and the post holder will normally be expected to work 60% of their time onsite or out on university business.
Imperial College London seeks an accomplished and strategic development professional for the position of Deputy Director of Global Development, Asia – a key position as we prepare to launch our first university-wide fundraising and alumni engagement campaign.
Imperial is one of the world’s great universities, ranked second globally and first in the UK and Europe. Our excellence in research and education is matched by our commitment to solving global challenges - from climate resilience and global health to transformative technologies and sustainable innovation.
As a member of the Principal Gifts and Global team, you will lead our development efforts across Asia and also oversee fundraising in the Middle East and Africa. Working closely with colleagues in Advancement and in partnership with senior academic and university leadership, you will shape and deliver the College’s philanthropic strategy in these regions. The role will be central to cultivating major philanthropic relationships, supporting regional engagement for Imperial’s President and senior representatives, and contributing to the wider success of our global campaign.
Reporting to the Director of Development: Principal Gifts and Global and working closely with senior leadership across the university and the Advancement Division, you will lead a high-performing team focused on principal gifts and international development. You will also serve as the strategic lead for Asia, while overseeing development efforts in the Middle East and Africa.
This is a unique opportunity to shape and lead our engagement with high-net-worth individuals and stakeholders across these regions, connecting them to Imperial’s world-leading research and innovation ecosystem.
This position is an opportunity for an experienced fundraiser with international vision, deep cultural awareness, and a strong record of securing significant gifts. The role will require diplomacy, strategic insight, and the ability to operate effectively within a complex global institution. Experience working across Asia and fluency in one or more Asian languages would be advantageous.
If you share our belief in the transformative potential of STEMB and are inspired by the chance to help deliver lasting global impact through education and research, we encourage you to consider this unique opportunity.
This is one of three exceptional opportunities to join our dynamic team. As we continue to expand our international presence, we are recruiting for the following key leadership roles:
- Director of Development: Principal Gifts & Global
- Deputy of Global Development, North America
Each of these roles offers a unique opportunity to shape our strategic direction and build impactful partnerships.
Interested?
Please familiarise yourself with the attached Candidate Pack.
To apply, please submit a CV and covering letter.
Further Information
Imperial College is partnering with Constellate Global Talent on this search.
No agencies please.
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Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Terms:
- Start date: 3rd November 2025
- Salary: £24,512 per annum actual salary (£30,640 FTE, inclusive of £3,990 London Weighting)
- Location: Hybrid - across South London community hubs, HMP Bronzefield, remote working
About Women in Prison
Women in Prison is a national, women-led, feminist organisation. We deliver front line support to women harmed by the criminal justice system, through our work in prisons, in the community and ‘through the prison gate’ as they resettle back into their communities. We also campaign for systems change that addresses the root causes of offending, reduces the harmful impact of prison, and creates workable, community-based alternatives to imprisonment.
Job Description:
Job Purpose:
This role will be based in both HMP Bronzefield and in our community-based hubs in South London, delivering specialist housing support with women impacted by the criminal justice system in prison and the community.
Key responsibility areas
- To deliver an effective accommodation intervention for women impacted by the criminal justice system.
- To develop effective relationships with key stakeholders, such as housing departments, probation, prison, to ensure a collaborative approach to women’s accommodation needs.
- To provide expert advice and support to colleagues, including upskilling through information and training sessions.
- To work with colleagues to take a system change approach to tackling key issues, such as housing, for women affected by the criminal justice system.
For full job description, please download the recruitment pack.
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Using Anonymous Recruitment
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The Florence Nightingale Foundation is seeking an active registrant of the Nursing and Midwifery Council (NMC), with a Postgraduate qualification in a relevant discipline such as healthcare leadership, organisational development, or education to be our Head of Leadership Development, responsible for ensuring that our programmes and opportunities are truly world class.
The Florence Nightingale Foundation (FNF) was launched in 1934. We support and develop nurses and midwives as leaders, to promote health, improve care and save lives across the world, maintaining Florence Nightingale’s legacy. The Florence Nightingale Foundation Academy was launched in 2020 and offers a comprehensive portfolio of leadership development opportunities, including our prestigious scholarships as well as outstanding online, hybrid and in-person programmes, webinars and conferences. Academy membership connects senior nurses and midwives across the UK and internationally, helping to shape and guide national and global healthcare agendas.
We are seeking a Head of Leadership Development who will provide senior leadership as part of the Academy team, responsible for ensuring that all our programmes and opportunities are truly world class. Your leadership contribution will support continued integration of the functions of FNF’s Academy, evolution and growth of our programmes portfolio, and build our world class team.
As an active registrant of the Nursing and Midwifery Council (NMC), with a relevant Postgraduate qualification in a relevant discipline such as healthcare leadership, organisational development, or education, you will use your significant experience in designing and delivering leadership development programmes and proven track record in quality assurance to drive the continued development of our programme portfolio.
As an expert leadership development practitioner with deep knowledge of adult educational principles and an advanced professional skillset, you will be able to integrate and apply your personal experience of senior organisational leadership into your personal leadership development practice and guide the practice of others. Your track record of business development and income generation through delivery of compelling proposals will help you to cultivate a robust pipeline of sustainable income opportunities.
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Students’ Union UCL is an organisation that exists to make more happen. We are the representative body for University College London’s (UCL) students, one of the most diverse student communities in the world. UCL students have the potential to do anything, and the Union plays an essential role in helping them to achieve things they may have never thought possible. As a charity we employ over 130 career staff and over 250 part-time student staff, and deliver a wide range of services and representative functions for students. We work in partnership with UCL towards a fantastic experience for all of our 48,000 students and to ensure that university life enables them to develop the skills, experience and confidence to become the leaders of the future.
Our vision is of an outstanding experience for all UCL students and to be one of the best students’ unions in the UK and the world.
It's an exciting time to join our growing organisation as we lead the delivery of UCL’s ground-breaking Student Life Strategy. This is enabling us to build more programmes to improve students’ mental and physical wellbeing, promote genuine equity for all, build students’ skills and confidence, develop their international connections and intercultural skills, and make a real contribution to our local community.
We support hybrid working. Excellent benefits including defined benefit pension scheme and generous holiday entitlement. We are proud of high levels of staff engagement and pride ourselves on being a great place to work.
This is a part time (0.4 FTE) and 1 year contract job opportunity. This role is based at our Bloomsbury campus with work across various football facilities across London. We will consider applications to work on a flexible and job share basis wherever possible.
We are looking for a Football Development Officer to support the delivery of TeamUCL's new focus sport, football. The role combines football delivery with desk-based sports administration and student engagement. We are looking for someone passionate about developing football in all forms - from running beginner friendly sessions to working with students to co-create community volunteering projects.
Do you have experience delivering sports leagues and events? Do you want to support students to develop professional skills through football? If the answer is yes, then we want to hear from you. Our ideal candidate will be able to deliver football sessions for a range of abilities, have experience of working with and motivating volunteers and good verbal and written communication.
Registered Charity
An outstanding experience for all UCL students and to be one of the best students’ unions in the UK and the world.
The client requests no contact from agencies or media sales.