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Parkinson’s UK is seeking a Clinical Lead for Therapy for the Parkinson’s UK Excellence Network national Clinical Leadership Team

We’re recruiting a Parkinson’s specialist therapist to join the Network’s national Clinical Leadership Team on a consultancy basis. The Clinical Leadership Team provides strategic guidance and clinical expertise to Parkinson’s UK and the members of the team are ambassadors for the Excellence Network.

You would be joining a group of experts from different backgrounds: doctors, specialist nurses, and members of the Parkinson’s community, all actively working towards the vision of high quality multidisciplinary care for everyone with Parkinson's.

You can find out more about the Clinical Leadership Team on our website.

Who can apply?

Any experienced UK-based Parkinson’s specialist therapist, with exceptional interpersonal and influencing skills.

You’ll have a good understanding of the landscape of health and social care delivery, education and workforce development to support the strategic aims and objectives of Parkinson’s UK.

Time commitment: 0.5 days per week (1 programmed activity) to be worked flexibly across the month.

Remuneration: monthly rate based on skills and experience.

Term of consultancy services: 3 years from date of appointment, with an option to extend for a further 3 years.

How to apply

Your application will be by a CV and a detailed supporting statement to show how you match what we’re looking for, as outlined in the role description above. Please state the geographical area you’re based in when you apply.

Shortlisted applicants will be invited to a 1-hour virtual interview.

Closing date for applications: 13 June 2025

About The Role
Closing Date: 20th May

Location: Though this is a predominantly home-based role, you will get lots of opportunities to get out and about to produce content with our incredible storytellers, supporters, volunteers, and staff. This will involve frequent trips to London, to our offices and events. Due to the reactive nature of social, this may occasionally be required at short notice. Therefore, our preferred candidate will be based in London or nearby.
Are you passionate about creating engaging content and building vibrant online communities? We are looking for a Social Media Officer to help shape and deliver our day-to-day social media activity, reaching and inspiring audiences through powerful storytelling and meaningful engagement.
Working as part of a dynamic team, you will develop compelling content across our key social channels, provide excellent community management, and collaborate across the organisation to ensure social media is used effectively and strategically.
In this role, you will play a key part in helping us meet our campaign, team and organisation-wide goals, always guided by data, insight and impact.
You will seek out and share stories from people affected by dementia, creating social content that connects emotionally and informs powerfully. You will stay on top of trends and spot opportunities to boost engagement, finding creative ways to highlight the impact of dementia and the hope we provide through support, research, and campaigning.
If you are a creative thinker with a passion for people, purpose and social media, we would love to welcome you to our team and continue our exciting journey together to make the greatest possible difference for those affected by dementia.
About you
Can you stop people from scrolling on social media?

- We’re looking for a self-motivated, proactive individual with a passion for social media and experience working across accounts with high volumes of user engagement. You’ll know how to create channel and audience-specific content that maximises user engagement and have a talent for spotting trends and opportunities to ensure we stand out from the crowd.
- The ideal candidate will have proven experience in managing active social media communities and understand the value of nurturing online audiences through considered community management approaches.
- You will be confident creating a range of impactful visual assets (graphics, video, photo), and really understand how to get the best results in each placement. You’ll be a great communicator with the ability to tell a great story via social content, adept at writing engaging copy, but also able to manage sensitive conversations on social.
- Brilliant interpersonal skills are also key to allow you to develop great relationships with internal teams and to work closely with people affected by dementia. Whether it’s a person with the condition themselves, a carer or someone who’s lost a loved one, you’ll be able to bring their experiences and stories to life through our channels.
- Lastly, a particular interest in using analytics tools to drive performance through data and insight is essential. You’ll be confident creating reports that align with strategic objectives and demonstrate business impact.

We’re Recruiting – Fundraising Manager 

From your UK home-base you’ll be flying the flag for the charity outside of Wales as a Fundraiser. You’ll put on quality fundraising events and build strong relationships through our reputation and Welsh links making a difference when it comes to people with cancer.

Picture being our Fundraising Manager and putting on fundraising events such as dinners and corporate sponsored events like golf or racing days. And, linking with London in Wales Week promoting networking opportunities with grant-givers, major donors, commercial, and corporate sources. Plus, you’ll help manage and set up our high value business network committees outside of Wales which we’ve already made a start on.

In this Fundraising job you can expect to be doing things like:

•  Sales & Relationship Management – you’ll be looking after a portfolio of our new and established individual and corporate high net worth donors
• Business Growth Development – you’ll have five figure income targets to meet so will plan your client cultivation work to report and present how your delivery is going
• Collaborating – you’ll interact with our key internal stakeholders about your work and join a team of colleagues across the business where sharing and building on ideas and taking on feedback is welcomed
•  Networking – you’ll promote ways our donors and prospective clients can engage with our work and navigate relationships to grow and build connections
• Event Management – you’ll plan, organise and deliver quality fundraising events with networking and income opportunities
• Stewarding -  through engagement and excellent customer care you’ll demonstrate our values in the way you work and encourage your portfolio of connections to become embedded in supporting our aims and wider work

To be our Fundraiser with a flair you’ll be skilled in areas where you can scope business development opportunities and turn them into income, manage commercial relationships and put on quality events, build an income pipeline and be self-motivated in pushing past targets.

Fundraising experience desired but not essential in comparison to your transferable skills. Similar jobs you may have experience in could be: Corporate Fundraiser, Fundraising Manager, Partnerships Manager, Business Development, Sales Executive, Recruitment Consultant, Recruitment Manager, Account Manager, Events Manager, Sales & Marketing, Estate Agency Sales, Travel Sales, Customer Care

We’d like your CV and a Covering Letter to demonstrate how you have done or could adapt to this type of Fundraiser role and match the job essentials. We’re looking for skills to show us you can deliver:

• Effective business relationships: Build and foster lasting working relationships among high net worth and corporate donor circles
• Exceptional customer care: Put into practice second to none donor care and a prestigious level of customer service
• Identify and scope viable business opportunities and build a growing income pipeline
• Plan, organise and manage events to fundraise and network
• Collaborate with the people around to come up with great ideas, put them into practice and take on feedback as well as lead and contribute
• Capture and communicate the results of your work across a range of people and discuss and influence groups to support our cause through talks, presentations and producing reports
• Be tenacious and self-motivated to proudly deliver quality work whilst making sensible decisions around priorities, organising your own time to meet deadlines and achieving goals

The details

Working 28 hours per week flexibly you’ll need a UK work base. The salary is £29,600 (or £37,000 FTE)

Days and hours can be built in and around our standard operating week as set out in our staff benefits. We’re open to making the working week fit into your own lifestyle and the nature and needs of this type of Fundraising role. With a lot of autonomy in where you run events to meet your annual target there may need to be some travel to a city/location where you’re generating the income or some events you run may be in evenings or weekends. 

Around going to work events for the role the rest of the job can be done from home anywhere in the UK. Our Cardiff City Centre Head Office is always available to you too. Most Team meetings and day to day colleague work is handled remotely but we’d expect to see you in the office for things such as our quarterly team meetings.

To Apply

Please email your CV and covering letter to our People Team.  Your application should demonstrate how your skills or experience match the job role essentials and your motivation behind your application. The closing date for your application to be submitted is by midnight the 14th May.

Your Staff Benefits

In return for joining us you’ll be part of a people orientated culture, make impact through a worthwhile cause and have Staff Benefits such as: 

Core working hours 11am-3pm to fit work your lifestyle and personal life around our 7am-9pm general operating hours (flexibility in this type of role required around events)

Super flexible place of work options with no minimum Cardiff Head Office weekly attendance requirement although we encourage as much in office work as possible

A generous 35 days annual leave including public holidays that increases with length of service (pro rata’d for part time staff)

• Your birthday off work once you’ve been here for 12 months.
• Opportunity to buy up to 10 days of additional annual leave per year
•   Occupational sick pay after completion of probationary period
• Contributory pension scheme
• A tailored induction and support programme to help you succeed and excel
• An Employee Assistance Programme (EAP) offering access to 24/7 confidential advice and support
• The opportunity to participate in staff volunteer activities to support the wider organisation
• The opportunity to learn from, grow with, support and develop people who volunteer with US

About us

Around 20,000 people are diagnosed with cancer in Wales every year. We’re proud to support over 10% of those and we want to be there many more.

We give help, hope, and a voice to everyone affected by cancer. We understand how cancer can impact every aspect of life and how it affects families and friends too. Our wide range of services offer information, advice, and specialist support to people living with cancer, and their loved ones.

We’re committed to listening to the real experiences of people affected by cancer in Wales to drive the changes that make a difference.

More about US

At Tenovus Cancer Care we’re committed to making our workplace diverse and inclusive where everyone feels they belong and can be their authentic selves at work. We’re proud to be an equal opportunities employer who does not discriminate based on the Equality Act 2010’s Protected Characteristics. All qualified applicants will receive equal consideration for employment and we will adjust our recruitment processes where we can to support people who wish to join us.

When our people talk about working here they’re proud to reflect our values. They’ll use words such as friendly, fun and welcoming to describe their experience and love our work culture around job flexibility. As well as it being a nice place to work for a good cause the staff benefits are good. On top of the above we’ve got a stylish Head Office in the heart of Cardiff and things to support you in and out of work like an interactive induction programme, an accessible Learning Platform, development opportunities and experienced managers. Plus a Staff Social Committee who organise regular get togethers!

Equal Opportunities

At Tenovus Cancer Care we’re committed to making our workplace diverse and inclusive where everyone feels they belong and can be their authentic selves at work. We’re proud to be an equal opportunities employer who does not discriminate based on the Equality Act 2010’s Protected Characteristics. All qualified applicants will receive equal consideration for employment and we will adjust our recruitment processes where we can to support people who wish to join us.

If we can support you with your application at all please contact our People Team.

Your Personal Data

We’re committed to being transparent about how we collect and use that data and to meeting our data protection obligations and you can find full details about this in our Job Application Privacy Notice here on our Work for us page on the Tenovus Cancer website.

Should you have any queries regarding the use of your personal data, please contact our People Team.

Join the leading national charity dedicated to supporting babies, families and neonatal healthcare professionals. This is an excellent opportunity for a creative and proactive programme officer to make a real difference to the lives of babies in neonatal care.

Role Summary 

One in seven babies is born premature or sick and needing care on a neonatal unit – this isn’t what most parents expect for their baby.

Bliss is the UK’s leading national charity for babies born premature or sick, and we are looking for a Baby Charter Officer to join our enthusiastic and passionate team.
 

• Location: South West England or East Midlands
• Salary: £25,000 FTE (£15,000 - £17143 pa actual salary)
• Terms:    21-24 hours per week, 12 month fixed term
   

Role Details

We are looking for someone with a passion to improve healthcare for babies born premature or sick, through supporting neonatal units to improve practice with the Bliss Baby Charter.

The Baby Charter is a national accreditation programme being undertaken by most neonatal units in the UK. It aims to improve outcomes for babies born premature or sick by encouraging neonatal healthcare professionals to involve parents in the care of their baby. This is known as Family Integrated Care, or FICare.

The ideal candidate will be able to demonstrate the following skills and experience:

•Excellent interpersonal skills, with experience of communicating with a range stakeholders 
•Demonstrable time management and organisational skills, and ability to coordinate several tasks at the same time and prioritise effectively across a busy workload
•A flexible, positive and solution-oriented approach to work
•A strong understanding of equity, diversity and inclusion, and the ability to work with and support people from diverse backgrounds
•Ability to use service-user feedback to continuously improve services and innovate
•Attention to detail, and experience of capturing and reporting on progress
•Experience of working with healthcare professionals.
 

For more details please view the job description and person specification below.

How to apply

Interested applicants are requested to submit the following documents

• Your CV (please ensure this does not include your age, gender or any other personal characteristics)
• Supporting statement explaining how you meet the criteria in the person specification. This should address the essential points of the person specification and is expected to be no more than 1000-1500 words long

This information is used when shortlisting candidates for interview. Please note this role has been re-posted, previous applicants need not apply.

Don’t meet every single requirement? 
Studies have shown that women and people of colour are less likely to apply to jobs unless they meet every single qualification. At Bliss we are dedicated to building a diverse, inclusive and authentic workplace, so if you’re excited about this role, but your past experience doesn’t align perfectly with every aspect of the job description, we encourage you to apply to tell us what you can offer our organisation. You could be just the right candidate for this or other roles

It is Bliss’ policy not to contact applicants who have not been invited for an interview so if you have not heard from us three weeks after the closing deadline, you should assume that your application has been unsuccessful.

Recruitment Timeline 

• The deadline for applications is 9am Wednesday 14 May 2025.
• First round interviews will be held virtually on w/c 19 May

• Second round interviews will be in person at our London Bridge offices on w/c 26 May

This post will be responsible for supporting the Financial Controller in all aspects of the financial management of the charity. This post will take an active role in supporting both overseas and UK staff with financial management. The post will also be responsible for producing monthly/quarterly project finance reports both internally and externally. The successful candidate will be an analytical, intelligent accountant who will provide high quality support for a range of teams across the organisation. They will have the ability and communication skills to build strong working relationships at all levels across the organisation, including non-finance staff. The successful candidate will have at least two years’ experience working in a similar role and will preferably be at least part qualified. 

Who are we?

Founded in 1996 as the Sleep Apnoea Trust Association, a charitable incorporated trust, we're a patient support charity run mainly by volunteer patients

Be a part of our mission in working to improve the lives of sleep apnoea patients, their partners and families

Key duties and reponsibilities:

Management Role

· Based on the policies of the charity as defined by the Trustees Board (created Oct 2022 AGM), manage the affairs of the charity with due respect for its heritage, status and independence.

· Within those defined policies, take decisions that allow the development of its business activities, liaising with other Trustees as necessary, and report to the Trustees on a regular basis.

· When necessary, liaise on allocation of duties to other Trustees on a cooperative basis.

· Represent the charity at occasional public events and meetings with collaborative partners and in negotiations, e.g. NICE, ARTP, Sleep Clinics.

· Act as main point of external contact and manage that contact as appropriate.

· Take purchasing decisions within the defined responsibility of the position.

· Modernise and develop the SATA business on as cost efficient basis as possible — goal is generally self-financing.

· Explore business opportunities as appropriate. 

· Identify risk, consult with other officers and recommend action for Board decision.

· Finalise move to paperless operation.

 

Administrative Duties

· Arrange Trustee Board Meetings.

· Manage Membership Database.

· Administer Membership Renewals.

· Register & acknowledge new memberships.

· Handle resignations, deaths and other membership issues with appropriate respect.

· Acknowledge Donations.

· Administer Gift Aid claim with Treasurer.

For the full job description and further information, please refer to the attachement below. 

People living with Parkinson's value the services and opportunities Parkinson’s UK provides, delivered by committed and skilled colleagues, volunteers and partner organisations. Following an investment of 1.5 million we have the opportunity to build on the quality and reach of our community services. 

About the role

You’ll empower your clients to take actions for themselves or will advocate on their behalf for better service, support and outcomes, so they can live their life with Parkinson's in the way they choose.

You’ll deliver tailored information and support through a range of channels including telephone, video and email and, where appropriate, home visits and in community settings.

You’ll be responsible for building excellent relationships with healthcare professionals and other relevant agencies, as well as our network of volunteers and groups.

What you'll do:

• Provide professional person centred, in depth support to clients by a range of means, ensuring the most efficient and effective use of resources.
• Provide support on a variety of health and social care issues, including appropriate emotional, employment and welfare benefits support and advocating with and on behalf of clients. 
• Work flexibly across the service responding to enquiries through a range of channels.
• Work closely with clinicians, specialist nurses and other professional colleagues to raise the profile of the service, increase depth of support and achieve improved outcomes for people with Parkinson’s.

What you'll bring: 

• Experience of managing and delivering individual case work, including advocating for clients and supporting people to navigate  the health and social care system 
• Experience and understanding of safeguarding and your role in keeping clients safe and  implementing organisational policies and procedure
• Ability to be calm and use emotional intelligence in challenging casework
• Demonstrable digital competence, with experience of effective use of a range of tools including online case management systems
• The ability to build effective working relationships with others including working within multi disciplinary teams internally and externally 

You must live in the area you’re applying for in order to carry out this role. 

Please apply by sending us your CV, together with supporting statements. The supporting statement should fully demonstrate how you meet all the criteria as stated in the "What you'll bring" section of the role description.

Interviews will take place week commencing 19th May 2025.

The successful candidate will be required to: 

• Live in the area specified- South East Northumberland, North Tyneside, South Tyneside or Sunderland. You must be able to travel freely and flexibly throughout the area and occasionally further afield without reliance on public transport
• Preferably hold a full driving licence
• Provide their own broadband service with a minimum download speed of 2Mb 

This role will require an enhanced Disclosure and Barring Service (DBS) check. You’ll be required to apply for one; refusal to do so will result in the offer being withdrawn. 

Anyone can get Parkinson’s. It’s vital that the people who work for Parkinson’s UK are representative of our diverse community. We actively encourage people from all sections of the community to apply, regardless of race, ethnicity, gender identity, age, disability, sexual orientation, or religion.

Head of Risk, Compliance and Governance - Charity - 6 Month Day Rate

A leading national charity dedicated to supporting individuals and families facing a significant health challenge is seeking a proactive and detail-oriented individual to join them on a temporary basis as their Head of Risk, Compliance and Governance to ensure the smooth continuation of key functions during a transition period.

This six-month contract offers a crucial leadership role, primarily focused on driving the risk management strategy and ensuring a robust compliance framework. You will line manage a team and collaborate across the organisation, playing a vital role in maintaining operational efficiency and safeguarding the charity's interests. This role offers remote working with an expectation of attending the office in [Specify Location, e.g., London] approximately once a month.

As Head of Risk, Compliance and Governance, you will be instrumental in maintaining a strong governance and risk culture, enabling teams to operate effectively and with confidence. This role requires a strong understanding of risk management principles, excellent communication skills, and the ability to lead and support a team.

Key Skills Required:

• Extensive Risk Management Expertise: Proven experience in developing and implementing risk management frameworks, including strategic and operational risk registers, and holding a relevant qualification.
• Compliance and Governance Oversight: Strong understanding of compliance requirements, policy development, and experience with company secretarial matters, including relevant regulatory body filings.
• Effective Line Management & Collaboration: Demonstrated ability to lead and support a team, fostering a collaborative environment and working effectively with stakeholders at all levels.
• Proactive and Detail-Oriented: Ability to work independently, manage conflicting priorities, and ensure meticulous attention to detail in all aspects of the role.

Contract Details:

• Duration: 6 months
• Rate: £450 - £500 per day - Inside IR35
• Location: Remote - one day per month in London

Apply now for immediate consideration for this impactful leadership opportunity.

URNFP is acting as an employment agency for this vacancy

Support Coordinator

We’re looking for an innovative, passionate, and professional individual with excellent communication and organisational skills to join the Stroke Recovery Service based in Lincolnshire. This is an exciting opportunity to work with stroke survivors and their families to provide stroke recovery support following a stroke.

There are two positions available:

1 x 28 hours per week – This is a fixed term contract until 31 March 2026

1 x 21 hours per week – This is a fixed term contract until 31 March 2026

Position: S11265 Stroke Support Coordinator

Location: Home-based Lincolnshire, however, frequent travel will be required as part of this role (may include team meetings or other work-related meetings)

Salary: Salary circa £21,948 per annum for 28 hours per week and £16,461 per annum for 21 hours per week (FTE circa £27,435 per annum)

Contract: Services are contracted and there is currently funding for this contract until 31 March 2026. 

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 18 May 2025. We reserve the right to close this vacancy early if we receive sufficient applications for the role. 

Interview Date: To be confirmed

Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

The service aims to identify and address the needs of stroke survivors and carers across the stroke pathway, by providing a range of innovative support solutions, supporting them to meet their desired outcomes. A key part of the role will be to support service users and the delivery of the service.

Reporting to the Stroke Service Delivery Coach, the Stroke Support Coordinator will:

• Support new stroke survivors and their carers from hospital discharge into the community.

• Take a person centred approach to goal setting and support to enable stroke survivors and their carers to improve communication

• Provide personalised information, advice and support.

• Support stroke survivors to make informed lifestyle changes, which will help them to prevent further strokes.

• Work collaboratively with NHS colleagues and other areas of the community to make a difference in the lives of people affected by stroke.

About You

You will have:

• Experience/background in a caring profession, ideally supporting people with disabilities

• Excellent IT skills and an ability to maintain accurate records.

• An affinity with the values of the Association.

• A flexible approach and an ability to effectively manage a caseload.

This role requires extensive travel across a large geographical locality to visit people at home and in community settings. Candidates must be able to demonstrate how they can meet this requirement of the role 

To fulfil the role, you must be a resident of the UK and have the right to work in the UK. 

When you click to apply, you will be able to see the full responsibilities and person specification for further information on the role. 

Please submit your CV and a supporting statement of no more than two pages demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience. Please state how many hours you are applying for.

If you are applying under the Disability Confident scheme, please indicate this in your supporting statement.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life. 

It’s only thanks to the generosity of supporters and donors that they can provide vital support.

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work. The charity has a variety of staff network groups and are committed to continuously improving diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Care Coordinator, Stroke Support, Stroke, Care, Care Worker, Support Worker, Carer, Care Team Leader, Support Team Leader, Volunteering Manager, Volunteer Coordinator, Support Group, Support and Advice, Social Care, Carer Support, Support Service. #INDNFP

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.

Macular disease is the biggest cause of sight loss in the UK, with around 300 people diagnosed every day. The Macular Society is the only charity determined to beat the fear and isolation of macular disease with world class research, and the best advice and support.

To support people affected by macular disease now, the Macular Society provides a range of support, information and services. Our research programme is focused on finding new treatments and a cure to Beat Macular Disease forever.

This exciting role is responsible for delivering income from a range of donors and prospects, with a focus on trusts and foundations, lottery and statutory sources, as well as HNWI. We are looking for an ambitious and strategic fundraiser with a proven track record of raising significant funds from charitable trusts and foundations, lottery and statutory sources as well as HNWI, who, alongside our existing team, will help to grow and develop this area of fundraising for the Macular Society. The post holder will have a proven eye for detail, an analytical nature, first class relationship management skills and a flair for writing successful applications.

In return, we provide a great working culture – we do something worthwhile and are proud to work together to Beat Macular Disease – as recognised by our inclusion in The Sunday Times Best Places to Work 2023 list. 

We offer flexible working options, 26 days annual leave, rising to 27 after one years’ service, the ability to buy or sell annual leave, supportive family policies, and 6% pension contribution.

We are passionate about treating people fairly and as equals, doing so is instinctive to us. To Beat Macular Disease for all we know we have work to do. That’s why we are keen to hear from people of all backgrounds who have the skills and experience we are looking for. We particularly encourage applications from people from under-represented groups, to help ensure what we do and how we do it is inclusive – for everyone.

As Senior Policy Manager, you will take a leadership role within the Policy and Influencing Team, providing strategic direction and subject matter expertise in health policy related to bowel cancer. Working closely with the Head of Policy and Influencing and Director of Research, Policy and Influencing, you will drive the development and implementation of policy initiatives that align with the organisation’s strategic priorities and positively impact the lives of people affected by bowel cancer. You will lead a team of policy officers and provide expert advice on complex policy issues, influencing decision-makers in government, healthcare organisations, and partner agencies across the UK.

Since last year, we have been gradually launching our new Excellence Network regional clinical lead roles across England as part of our new regional model in England. We're now recruiting for the final regional clinical lead in England to lead their regional network in London.

In September 2024, the Parkinson’s UK Excellence Network (PEN) moved to a new regional model in England and introduced the 7 newly-formed PEN regions in England, with the boundaries aligned to the 7 NHS England regions. Click here to read more about the new model.

The regional model in the devolved nations remains the same: there are 3 regions in Scotland, 2 in Wales and 1 region in Northern Ireland.

Last year we began gradually recruiting the consultancy services of regional clinical leads in each of the 7 regions in England, to help us deliver this new model.

By the end of 2024, we were delighted to have appointed 4 regional clinical leads. We welcomed Antonella Macerollo and Sarah Fraser in the north west and north east and Yorkshire, respectively. You can find out more about Antonella and Sarah here.

So far in 2025, Alistair Mackett and Emily Henderson joined us in January as the regional clinical leads for the east of England and south west. Read more about Alistair and Emily here.

And we will soon be welcoming 2 more regional clinical leads for the Midlands and south east, respectively. We will be announcing these appointments very soon so keep an eye out!

Join the regional clinical lead team

We are now recruiting for the final regional clinical lead vacancy in England to lead their regional network in London.

Who can apply?

Any UK-based healthcare professional, working in Parkinson’s or with an interest and expertise in the condition, with exceptional interpersonal and influencing skills is welcome to apply. Healthcare professionals living with Parkinson’s are also encouraged.

You’ll have a good understanding of the landscape of health and care delivery, education and workforce development to support the strategic aims and objectives of Parkinson’s UK.

Time commitment: 0.5 days per week (1 programmed activity) to be worked flexibly across the month.

Remuneration: monthly rate based on skills and experience.

Term of consultancy services: 3 years from date of appointment, with an option to extend for a further 3 years. You can then re-apply for the role if you wish.

Shortlisted applicants will be invited to a 1 hour virtual interview.

Closing date for applications: midnight on Monday 19 May.

Working with our Communications and Health Liaison Manager, we are looking for a team player with great communication skills and positive energy, to contribute to our social media presence, help create engaging content, answer member queries via social media, and help to continue to grow our online community.

The ADSHG is a well-established UK charity supporting people with Addison’s and adrenal insufficiency through its website, social media reach and member services.   Addison’s disease is a form of adrenal insufficiency and is a rare endocrine condition affecting 1:10,000, and both genders. Whilst treatable with time-critical daily medication, individuals with adrenal insufficiency are at risk of potentially life-threatening adrenal crisis, which occurs when physical or emotional triggers mean that prescribed medication no longer meets the body’s need for cortisol.  Adrenal crisis is a medical emergency and can be life-threatening if not diagnosed and treated in a short period of time.  Addison's and adrenal insufficiency are not widely understood, even within the medical community.     

Social Media

Our social media reach has grown steadily over the years, and, thanks to thoughtful content promoting audience engagement, it currently stands at a reach of over 31,000 across Facebook, Instagram, LinkedIn and X and with a growing reach on BlueSky.   Our audience consists of our members and non-members with a diagnosis of adrenal insufficiency, their carers and supporters, and healthcare professionals.

We use Loomly to help organise and schedule our posts, aiming to post at least 3 times a week.  Our community respond particularly well to both educational and emotive topics, but we aim to keep a good diversity between the focus of posts, and will include fundraising, news, updates, shop alerts, educational articles, member information etc. 

Our social media links our community back to our website for more information as well as signposting out to other organisations as appropriate.

Key Responsibilities

• Develop and implement our social media strategies to increase awareness and engagement 

• Collaborate with the Communications and Health Liaison Manager to create, schedule, and publish content across Facebook, Instagram, X (formerly Twitter), Threads, Bluesky, and LinkedIn 

• Use Canva to design visually appealing graphics in line with our brand guidelines 

• Schedule posts via Loomly 

• Create short reels or video clips to enhance engagement 

• Monitor and respond to comments and messages with patience, empathy, and clear language 

• Analyse social media metrics and provide regular reports on performance 

• Stay up-to-date with social media trends and best practices 

• Collaborate with the Communications and Health Liaison Manager to ensure consistent messaging and branding 

Requirements

• Proven experience in social media management 

• Excellent written and verbal communication skills 

• Ability to create short reels or video clips 

• Strong understanding of social media platforms and their respective audiences 

• Confidence in using Canva for content creation 

• Desired: Experience with scheduling posts via Loomly or similar 

• Highly organized with strong attention to detail 

• Proactive: ability to work independently and manage time effectively to make best use of the flexible work pattern and limited hours 

• Passion for health advocacy and supporting individuals within the Rare Disease space. 

Benefits

• Flexible working hours 

• Opportunity to make a meaningful impact to the lives of individuals with Addison's disease and adrenal insufficiency. 

• Gain experience working with a dedicated, passionate and energetic team. 

About you

Do you want to use your skills to make it possible for people with myeloma, an incurable blood cancer, to live longer and better lives?

Myeloma UK is looking for a motivated and pro-active Policy Officer to join our Patient Advocacy team within the wider Research and Advocacy directorate.  You will have experience of analysing, developing, and communicating policy issues, excellent communication and influencing skills and the ability to present findings and recommendations to a range of audiences.  The post holder will have excellent attention to detail and the ability to prioritise and work under pressure.

The successful candidate will be a highly regarded ambassador for Myeloma UK with a desire to continuously improve and to make a difference while working flexibility and using their own initiative.

Experience of public/patient engagement work, participating in government policy consultations and patient advocacy campaign work would be beneficial but not essential.

About the role

As the Policy Officer you will be part of the Patient Advocacy team who work to ensure that the patient voice is heard and acted upon by UK and devolved nations healthcare policy decision makers. You will support Myeloma UK’s ambition to deliver personalised medicine, such that every person living with and affected by myeloma and associated conditions has access to the best diagnostics, treatment and care services and quality of life experience.

Your role is vital to developing strategic approaches to UK health policy legislation and consultations to ensure that UK government and devolved nations healthcare policy supports the needs of people living with and affected by myeloma and associated conditions. 

You will support the Policy Manager to assess existing healthcare policies, regulations and legislation to understand their implications for myeloma-specific healthcare systems, providers and patients

About us

Myeloma UK is the only UK charity focused on myeloma and its related conditions.  We provide support and influence access to treatments, while researching a cure.  Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well.  Together, we support, so no one faces myeloma alone. 

We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future.

Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every patient live well with myeloma for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change in care.

Our culture

Wellbeing and staff engagement are at the heart of our culture.  We offer our employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working from home with hub-based office working, health plan, employee assistance plan and holiday purchase scheme and we are committed to providing learning and development opportunities for all our employees.

How to apply

If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending the following:

1. A cover letter telling us more about you and what you think makes you a good fit for this role

2. A CV that sets out your career history, with key responsibilities and achievements

Applications close on 12 May 2025 and interviews will be held w/c 19 May 2025.

Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:

· sex

· race

· disability

· age

· sexual orientation

· gender reassignment

· religion or belief

· marital status

· pregnancy and maternity

Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.