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Every day, the TSA’s small support and information team make a real difference to people affected by the rare genetic condition Tuberous Sclerosis Complex (TSC) and their loved ones. In this vital role, you will help to maintain our high support standards at the TSA, including through operating on the TSA Support Line, developing content for a wide range of platforms and needs, and occasionally attending virtual and in-person TSA events.

You'll be part of a flexible, passionate, welcoming and wholly home-based team, who know they improve the world every single day. The role includes (pro-rata) 25 days annual leave plus 8 bank holidays and the working days that fall between Christmas Day and New Year.

On the TSA Support Line, you will provide support and information regarding TSC via telephone, email and webchat. You will offer an informed, non-judgemental and empathetic listening ear to individuals and families at every step of their journey. The type of enquiries we receive are wide ranging, covering matters such as health, social care and education. You will also engage with professionals supporting people with the condition.

You will have a key role in researching, developing, and updating information across our various platforms including (but not limited to) content for our website, social media, support line materials, leaflets, e-newsletter and our community magazine. The primary audience of the materials will be the TSC community. Materials used by NHS clinics and clinicians are also developed by us, which you will have a central part in developing.

You will help to ensure that our internal processes are effective, and the information that we provide to the TSC community is timely, up-to-date, and relevant.

You will attend TSA events (virtually and in-person) to market the TSA Support Line services, participate in sessions and assist in support-related issues.

We are a small but very impactful charity, where roles are wide-reaching. Although this role is focused on support and information services, the successful candidate should also expect to get involved with projects from other TSA teams including communications, research and fundraising.

Responsibilities

1. TSA Support Line

1.1 Through the TSA Support Line, you will provide information and support to individuals living with TSC, their families and professionals by telephone, email and webchat, ensuring that:

• All enquiries received through the TSA Support Line receive a response based on high quality, up-to-date and evidence-based information.
• You log, triage and respond to enquiries received by telephone, email, post and webchat in line with agreed timelines, policies and procedures.
• You direct non-support related enquiries to appropriate TSA staff, taking messages where necessary.
• You are sensitive and responsive to the needs of the individuals living with TSC, family members and health, social care and education professionals using the TSA Support Line.
• You provide time-limited, structured support through formal case management processes for a small number of individuals and families who are most vulnerable and who need regular help and support. This includes individuals with learning disabilities, autism and complex needs, and families who face a wide range of challenges accessing health, social care and education services for their loved ones.
• You collect and accurately record data enabling the TSA to monitor and evaluate the performance of the TSA Support Line, including usage data (such as number and length of calls), qualitative information (feedback from service users) and data collected in conversation (such as logging broad categories of issues that service users are facing).
• You support individuals and families who wish to apply for financial support from the TSA Support Fund, helping them to complete the relevant application forms, ensuring that they supply documentary evidence, and logging their application appropriately for audit and compliance.
• Your support demonstrates best practice and complies with the law on safeguarding (making sure we are working appropriately with vulnerable adults and children) and data protection (making sure that we are handling all sensitive data appropriately).
• You proactively engage with regular reflective practice and supervision to safeguard your own health and wellbeing and support individual and team learning. This will include individual supervision through regular 1-2-1s with your line manager and team supervision through weekly calls for all those working on the support line.
• You will contribute your expert insight into the challenges and issues that the TSC community are facing to help colleagues across the organisation develop information materials, online resources and event agendas for communications channels including the TSA’s community magazine ('Scan'), our website, social media and events.
• You will ensure that internal processes for recording TSA Support Line enquiries, and signposting information on the support line, are maintained to a high standard and kept up to date.

1.2 You will play a key role in the TSA’s safeguarding as part of your work on the TSA Support Line and in supporting other members of staff with any questions that they have.

1.3 You will ensure confidentiality in the provision of the TSA Support Line, managing conversations and relationships tactfully and diplomatically with members of our small community who may also interact regularly with the charity at face-to-face and virtual events and through our social media channels. 

1.4 You will work closely with colleagues from across the TSA to ensure that our support and information services are joined-up with and informed by other services offered by the TSA more broadly across our website, social media channels, Scan and face-to-face and virtual events.

1.5 You will help to ensure that the TSA Support Line demonstrates best practice in the provision of support and information. You will work with the Joint Chief Executive and Support and Information Manager to develop proposals to develop and market the service that are joined-up with the support provided across our website, social media channels, Scan and face-to-face and virtual events.

2 Support, information and signposting

2.1 Ensure that high quality, up-to-date and evidence-based information is available to individuals and families living with TSC, and the professionals that support them. Regularly review, draft and develop new materials to support people affected by the condition.

2.2 Work with the Joint Chief Executive and Support and Information Manager to develop appropriate and consistent information to signpost TSA Support Line service users to external partner organisations that can provide specialist support for specific aspects of TSC (such as autism or mental health issues) and living with TSC (such as finding a job or facing bereavement).

2.3 Initiate and maintain regular contact with NHS TSC clinics across the UK to encourage greater communication and support between the TSA and TSC clinics. This could include encouraging clinics to join the NHS TSC Rare Disease Collaborative Network (RDCN), liaising with TSA Medical Advisers about medical support line enquiries, or working with clinics to better understand how the TSA can best help them.

2.4 Work closely with the rest of the TSA including communications, research and fundraising, to demonstrate current knowledge of the work of the organisation and developments in TSC.

2.5 Keep up to date with external events and news and draft relevant content for social media, physical media, e-news and the community magazine, Scan, to support and inform the TSC community.

2 TSA events

2.1 Attend TSA face-to-face and virtual events each year to market the TSA Support Line to people living with TSC, their families and professionals (up to approximately seven face-to-face events per year). General events assistance for the event on the day of face-to-face events will also be expected (for example, this could include time on the reception desk or directing attendees between sessions). Face-to-face events could include Outlook (for adults living with TSC), Big Day (our annual meeting for everyone in the TSC community), Family Fun Days (for younger families), TSA Togethers (regional events) and events for NHS TSC clinicians. Time off in lieu will be given for evening and weekend events, or events outside of your usual working days.

2.2 Help to generate ideas for sessions at TSA events by identifying any trends in information and support needs through the TSA Support Line.

4 Supporting health, social care and education professionals

4.1 Develop and maintain training and education materials to help health, social care and education professionals to better understand the impact of TSC.

4.2 Act as a point of contact for professionals who contact the TSA, working with colleagues to build credibility and strong working relationships with them.

Other requirements of the post

The post holder must be prepared to work flexibly to meet the needs of the organisation. This will entail occasional evening and weekend work. Regular travel within the UK will be needed for team meetings, TSA events and training provision. This would normally require access to a car (mileage will be paid) or travel by public transport (tickets will be paid).

The post holder will be expected to have adequate homeworking facilities to allow them to fulfil the role to the best of their abilities.

A DBS disclosure will be required prior to taking up post.

Training on helplines from the Helplines Partnership and on the Virtual Call Centre and database, Beacon, by the in-house team can be provided.

We are looking for a Finance Officer to join our team to administer the financial affairs of the District. This role will include working closely with the District Secretary and Treasurer to implement financial policies and controls, assisting with preparing budgets and accounts, managing payroll, processing receipts and payments and maintaining appropriate accounting records. 

Role Purpose and Objectives

To administer the financial affairs of the District including preparing budgets and accounts, managing payroll, processing receipts and payments and maintaining appropriate accounting records. 

Responsibilities

Financial Controls and Policies

• Support the District Treasurer to implement proper financial policies and controls, ensuring appropriate accounting codes for churches and charities are complied with.

Budgets and Accounts

• Assist the District Secretary, Treasurer and Resourcing Mission Committee to prepare budget and circuit assessments for the District with reference to the District Mission Plan.
• Work with the District Secretary and Treasurer to prepare annual accounts for the District, including liaising with the auditors and helping to draft the Trustees’ Annual Report, particularly with regard to accounting practice and policies.
• Support the District Secretary as needed to ensure compliance with the Methodist Church and Charity Commission requirements, including supplying the information for HMRC P11D forms.

Payroll

• Ensure District employees’ and ministers’ payroll information is correct and liaise with the central Methodist payroll bureau so that staff are paid on time.

Administration of Bank Accounts

• Monitor cash flow and administer transfers between bank accounts.
• Set up approved payments in online banking and liaise with signatories to authorise these for payment.
• Liaise with the Treasurer and/or District Secretary on transactions with the Central Finance Board and Trustees for Methodist Church Purposes, preparing paperwork to facilitate drawdown of funds.
• Administer changes to banking mandates.
• Administer changes to Direct Debits and Standing Order instructions.

Receipts and Payments/Book-keeping

• Check invoices and expenses claims for accuracy, before sending to authorised persons for approval.
• Record all bank transactions for all bank accounts on a monthly basis.
• Produce monthly fund summaries, with detailed analyses.
• Provide monthly ‘sub-accounts’, where required, for specific projects

Other key tasks

• Manage the District’s Financial Record systems, including archiving information as necessary
• With the District Secretary, review and renew the District’s Insurance Policies. 
• Maintain the District’s Asset Register.
• Other duties commensurate with the role as agreed with the District Secretary.

For an informal conversation about the role please contact Lisa Murphy, District Secretary. To apply, please complete the application form and submit by the closing date and time. CVs will not be accepted. 

Interviews to take place during the week beginning 7th July 2025.

OUTLINE OF THE ROLE

Work with the Trustees to devise and lead new fundraising initiatives that fulfil the objectives of the Trust's Fundraising Strategy and annual income budget, with particular focus on regular giving across all alumni, gifts from high-net-worth individuals, and legacies. This will involve:

• Developing and delivering improved communications to build a stronger connected donor network.

• Locating, engaging and retaining alumni to support and promote the Trust, focused on ensuring their long-term impact on the Trust and its beneficiaries.

• Work with the Trustees/Trust Fundraising Committee to devise and implement new fundraising initiatives.

• Work with the Trustees/Trust Fundraising Committee to identify and engage new volunteers to support the Trust's activities.

KEY TASKS

Work with the Trustees and Fundraising Committee to devise and implement the following:

• Improve communications

The Trust has a strong, growing, and engaged network of loyal alumni who already support the Trust's beneficiaries through fundraising and volunteering. However, the Trust's communications need to be improved in order to increase the numbers of donors who provide sustained financial support and inspire all donors to raise their level of donations. Continually find opportunities to engage new donors and ensure clear consistent messaging.

• Manage and maintain donor data

The Trust needs to maintain a full and accurate database of all donors and fundraising activities to support long-term tracking and inform future fundraising. This also requires networking among alumni and being vigilant to changes in alumni data.

• Research and approach alumni whose connection with the Trust has lapsed

Continue to grow the active network through researching and motivating dormant and lapsed alumni to reconnect with the Trust.

• Research untapped prospects

Research the database with a view to identifying dormant and untapped opportunities, especially regarding

high-net-worth individuals and legacies. Ensure fundraising approaches are well-targeted and informed in order to maximise the chances of success. This will expand to include non-alumni sources, including institutional sources such as foundations and other trusts.

• Ensure long-term donor connection

Communicate with all donors to demonstrate the impact they can make by showcasing the current and long-term outcome of programs. Deliver a diverse selection of communications to engage different audiences, with a clear plan for all members of the network. Ensure donors are connected to the Trust, value the Trust's activities and actively help fund opportunities.

• Reporting to the Trustees

Create an annual donor impact report to the Trustees, and other stakeholders such as alumni, that delineates donor statistics, reviews communications and events that have taken place during the past year and identifies potential prospects and events for developing in the coming year. Also provide a lower-level oral report of fundraising activities and communications to the Trustees at their quarterly meetings.

• Deliver income growth target

Acquire enough new donations to meet agreed annual income growth targets set by the Trustees.

You will be expected to perform different tasks as necessitated by your changing role within the charity and its overall objectives. For instance, organizing fund-raising specific events in different regions. This position could evolve into a full-time commitment with a support team, but at the present time, support to this role will be provided through the existing network of volunteers.

The National Youth Agency is looking for a new Assessment & Data Administrator to join our Academy Team.
 
Contract: Permanent
Hours: Part time – 18.5 hours per week
Salary: £25,000 per annum (pro rata £12,500)
Remote: This role is homebased with occasional travel for staff residentials and other events.
 
What we do
 
As the national body for youth work, the NYA has a dual function. We are the professional statutory and regulatory body (PSRB) responsible for qualifications, quality standards, and safeguarding for youth work and services in England. In line with our charity mission and aims, we also champion youth work through research, advocacy, campaigns, and programmes.
 
We work in partnership and believe in collaborative leadership, listening to youth workers and the youth work sector so that we can understand their needs and respond to the challenges they face. We are ambitious for youth work and for young people and integrate youth voice and influence across our work
 
About the Role
 
We are looking for someone who thrives on following set processes and being organised, with exceptional attention to detail. Accuracy and a drive for perfection are essential qualities for anyone undertaking this role. 
 
The Assessment and Data Administrator role is responsible for assisting with online assessment systems to ensure that full compliance of awarding organisations requirements are adhered to. Additionally, this individual will be the first point of call within the team for candidate or customer queries around our operational processes. 
 
We are looking for a positive, self-starter with strong organisational skills, who is confident with managing multiple tasks, and priorities and is able to provide an efficient support. The ideal candidate will be able to work well in a team and also work of their own initiative, confidently communicate with stakeholders at varying levels of seniority and display judgement, integrity and trustworthiness as you will be privy to learner information.
 
To be considered for this role, the successful candidate must have previous experience of working with IT and online learning platforms and be confident in managing the breadth of tasks within this function.
 
Key responsibilities for this role will include:

• Registration of learners across awarding organisation(s) for all courses.
• Maintenance of learner records with the awarding organisation(s).
• Supporting lead IQA in preparation for external quality assurance visits.
• Management of and claiming of completed certificates and their distribution to learners across all courses. 
• Maintaining accurate records of learner data for reporting and planning purposes. 
• Supporting the Academy team by providing data on learner number, course breakdown and completion rates. 
• Handle incoming enquiries relating to Academy operational processes. 
• Create effective interactions with customers across various platforms. 
• Collaborate with cross-functional teams to escalate and resolve complex customer queries, fostering a seamless customer journey. 
• Managing customer queries and assigned inbox. 
• Ensure the NYA follows best safeguarding best practice. 
• Ensure all operational activity and youth work content is to the highest quality, representing the position of NYA as the National Body for Youth Work in England. 
• Ensure the NYA follows best safeguarding best practice. 
• Ensure all operational activity and youth work content is to the highest quality, representing the position of NYA as the National Body for Youth Work in England. 
• Develop and maintain an understanding of NYA internal processes and the wider Youth Work qualification landscape. 
• Effectively troubleshoot and answer customer queries, seeking appropriate solutions and liaising with other departments to ensure customer support is delivered to the highest standard. 
• Maintain in-depth knowledge of NYA Academy products and services. 
• Contribute to the development and improvement of the customer service knowledge base, ensuring relevant and up-to-date information is available. 
• Provide support to the Academy Team and wider NYA as appropriate 
• Provide effective call handling day-to-day.
• Any other duties that may reasonably be required of the role.

 
Please refer to our Candidate Pack for more information on the role and the requirements.
 
Why Work for NYA?
 
NYA operates as a people-first organisation, prioritising the well-being and needs of its employees.

• NYA offers an exceptional flexible working approach which encourages our team to balance professional responsibilities with their personal life.
• A remote based team, spread across England, fostering inclusivity and diverse talent. Despite geographical distances between team members, NYA maintains a highly motivated and connected team through the optimisation of digital tools.
• NYA is committed to supporting the continual personal and professional development of our team and helping them achieve their ambitions.
• We provide 25 days leave plus 8 days, life assurance scheme, 5% employer pension contribution and a comprehensive Employee Assistance Programme via Spectrum.life with unlimited specialist support available to all NYA employees.

 
How to Apply:
 
Please download our applicant pack to find out more about the role and requirements
 
To apply, please submit the following via our online application platform by 11:59pm on Sunday 29th June 2025:

• A detailed CV setting out your career history, with responsibilities and achievements in line with the person specification in the About You section.
• A covering letter (maximum two sides) highlighting your suitability for the role and how you meet the requirements in the About You section.
• We will request data for our EEDI monitoring purposes, providing this is optional.

 
Please note: the covering letter is an essential part of the application process and will be assessed as part of your full application. We use AI detector software, so cover letters or CV’s with over 30% AI generated content with be disregarded. We understand that AI tools can offer support to candidates who have learning differences, which is why we will accept applications with some AI assistance. CV’s will not be accepted without a cover letter.
 
The National Youth Agency is an equal opportunities employer.
 
At NYA our inclusive culture means that we embrace individual differences and understand that we need a diverse team to achieve our organisations mission.
 
We wish to recruit candidates from all backgrounds to ensure our team reflects the rich diversity of the communities we serve. We encourage applications from anyone regardless of disability, ethnicity, heritage, gender, sexuality, religion, socio-economic background and political beliefs but we particularly welcome applications from global majority candidates and those from other minoritised ethnic groups in the UK as they are currently underrepresented in our team.
 
Youth Work changes lives
 
Which is why we’re committed to ensuring that as many young people as possible get to benefit from the national body for youth work in England, the National Youth Agency (NYA) exists to champion its transformative power. We believe all young people should have the opportunity to benefit from the life-changing impact of extraordinary youth workers and trained volunteers.
 
We help to grow youth work provision in ways that keep it effective, relevant, safe and engaging, to help millions of young people reach their potential and thrive. We do this by providing guidance, support, advice, training and staff development opportunities for youth workers and youth work organisations. At the heart of everything we do are young people themselves. We work hard to ensure their voices are integrated into all our work, to develop provision that truly meets their needs.
 
REF-221 931

Join Our Mission at Neuroendocrine Cancer UK

We are seeking a passionate and experienced Individual Giving Fundraiser to join our small, dynamic team during an exciting period of growth. This newly created role is pivotal in shaping and delivering our individual giving strategy, helping to secure the long-term sustainability of our work.

You will lead on developing and implementing initiatives to grow our regular giving and legacy programmes, while identifying new opportunities to engage and inspire individual supporters.

This is a fantastic opportunity for someone who is ambitious, creative, and ready to make a real impact in a growing charity.

About Neuroendocrine Cancer UK (NCUK)

Neuroendocrine Cancer UK is a national charity with a clear mission: to support and inform patients and families from diagnosis, enable access to the best care and treatment, stimulate research, raise awareness, and influence improvements in outcomes.

We deliver our mission through four strategic priorities:

1. Patient support and advocacy
2. Education and awareness
3. Research and innovation
4. Policy and service improvement

If you’re ready to bring your skills and passion to a cause that matters, we’d love to hear from you.

Academy Associate Tutor/Assessor - National Youth Agency

The National Youth Agency is looking for a new Associate Tutor/Assessor to join our Academy Team.

Hours: As and when required
Salary: £120 per day
Remote: This role is homebased/remote working

What we do

As the national body for youth work, the NYA has a dual function. We are the professional statutory and regulatory body (PSRB) responsible for qualifications, quality standards, and safeguarding for youth work and services in England. In line with our charity mission and aims, we also champion youth work through research, advocacy, campaigns, and programmes.

We work in partnership and believe in collaborative leadership, listening to youth workers and the youth work sector so that we can understand their needs and respond to the challenges they face. We are ambitious for youth work and for young people and integrate youth voice and influence across our work

About the Role

As the National Body for Youth Work in England, we are ambitious for youth work and for young people and are determined that all young people should have the opportunity to benefit from the life-changing impact of qualified youth workers and trained volunteers.

To support our mission we are seeking enthusiastic, skilled and JNC qualified professionals to join us as Academy Tutor/Assessor Associates.

Our Academy Tutor/Assessor Associates will deliver inspiring training, develop and review resources and ensure all activities are in line with both NYA and external expectations of quality and expertise.

The post will require a commitment to continuing engagement across the sector and beyond to ensure the NYA Academy’s work is rooted in the needs of young people and youth work.

The Academy Team are reflective expert trainers and facilitators. They support the development of knowledge and skills; deliver innovative and engaging training that benefits youth work and young people; and work with colleagues from the NYA and the wider field to ensure that youth work is promoted and protected, for the benefit of all young people.

The Academy Tutor will ensure the NYA is at the forefront of developing its products and services.

You will work alongside a committed, lively team working together to transform the lives of young people through the power of youth work.

Key responsibilities for this role will include:

• Developing and delivering training along with the development of programmes (including accredited training).
• Supporting learners and monitoring their progress through regular reviews and assessments.
• Contributing to the ongoing development and improvement of resources and processes.
• Building positive relationships with learners to promote their engagement and to achieve successful outcomes.
• Ensure all learners have a supportive and positive learning experience
• The post holder should promote the NYA’s extensive offer and maintaining its reputation in the fields of expertise.
• Ensuring the voice of young people is heard loudly across the NYA and in all aspects of our work.
• Ensure the NYA follows best safeguarding best practice.
• Ensure all operational activity and youth work content is to the highest quality, representing the position of NYA as the National Body for Youth Work in England.
• Participating in team meetings, session planning and evaluation meetings.
• Compliance with all NYA policies and procedures.
• Compliance with all safeguarding policies and health and safety requirements.
• Undertaking any identified training in line with the role including safeguarding and undergoing a DBS check.

Please refer to our Candidate Pack for more information on the role and the requirements.

How to Apply:

Please download our applicant pack to find out more about the role and requirements.

To apply, please submit the following via our online application platform.

A detailed CV setting out your career history, with responsibilities and achievements in line with the person specification in the About You section.

A covering letter (maximum two sides) highlighting your suitability for the role and how you meet the requirements in the About You section.

We will request data for our EEDI monitoring purposes, providing this is optional.

Please note: the covering letter is an essential part of the application process and will be assessed as part of your full application. We use AI detector software, so cover letters or CV’s with over 30% AI generated content with be disregarded. We understand that AI tools can offer support to candidates who have learning differences, which is why we will accept applications with some AI assistance. CV’s will not be accepted without a cover letter.

The National Youth Agency is an equal opportunities employer.

At NYA our inclusive culture means that we embrace individual differences and understand that we need a diverse team to achieve our organisations mission.

We wish to recruit candidates from all backgrounds to ensure our team reflects the rich diversity of the communities we serve. We encourage applications from anyone regardless of disability, ethnicity, heritage, gender, sexuality, religion, socio-economic background and political beliefs but we particularly welcome applications from global majority candidates and those from other minoritised ethnic groups in the UK as they are currently underrepresented in our team.

Youth Work changes lives

Which is why we’re committed to ensuring that as many young people as possible get to benefit from it.As the national body for youth work in England, the National Youth Agency (NYA) exists to champion its transformative power. We believe all young people should have the opportunity to benefit from the life-changing impact of extraordinary youth workers and trained volunteers.

We help to grow youth work provision in ways that keep it effective, relevant, safe and engaging, to help millions of young people reach their potential and thrive. We do this by providing guidance, support, advice, training and staff development opportunities for youth workers and youth work organisations. At the heart of everything we do are young people themselves. We work hard to ensure their voices are integrated into all our work, to develop provision that truly meets their needs.

REF-221839

The Director of Finance and Resources is responsible for managing the charity’s finances efficiently and accurately, ensuring that all financial activities are carried out in compliance with statutory, regulatory and contractual requirements. Playing a key role in strategic planning, including planning for future budgets and allocation of resources in collaboration with the CEO and Board, the Director of Finance & Resources also leads on HR and IT for the Trust and supports the implementation of good governance practices. The role oversees the production of monthly management accounts, line-managing the Finance Officer who takes care of day-to-day financial functions. You will provide financial recommendations to the Finance & Audit Committee (which meets quarterly), ensuring that the Trust’s financial practices adhere to statutory regulations and legislation. The Director of Finance & Resources also leads on the Trust’s annual audit and production of Annual accounts, filed with the Charity Commission. For this role you will need to have strong experience in finance, accounting or a related field, demonstrating excellent analytical skills and numerical proficiency alongside capability to think strategically and facility to communicate effectively both verbally and in writing.

Everyone associated with the Trust works remotely and has always done so. Our team, Board, volunteers and partners are UK-wide and so meetings and events are held regularly in London and across the country. You will report to the CEO and line manage the Finance Officer. As a member of the Senior Management Team, you will regularly collaborate with our Board of trustees and, particularly, the Chair and members of the Finance & Audit Committee.

Some core hours will be required but a degree of flexible working will be possible. Some travel will be expected in order to attend in-person meetings. The Trust is committed to each team member’s professional development and offers regular opportunities to undertake formal and informal training.