Head of fundraising jobs in Brighton and hove
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About Metabolic Support
Metabolic Support is the UK umbrella patient organisation for people affected by Inherited Metabolic Disorders (IMDs) – rare, lifelong genetic conditions affecting around 40,000 people in the UK and over 1.4 million worldwide. Since 1981, we have been at the forefront of rare disease advocacy, research, newborn screening and community support, empowering people with IMDs to live well.
About the Role
This is a senior, strategic and hands-on role leading our fundraising and communications activity. You will drive sustainable income growth, raise our profile nationally and internationally, and tell our community’s stories with clarity, compassion and impact.
Working closely with the Chief Executive, you will shape and deliver an ambitious fundraising strategy, develop diverse income streams, and build strong relationships with trusts, foundations, corporates, major donors and supporters. You will also lead our communications and brand, ensuring consistent, high-quality messaging across all channels.
As part of a small, agile team, this role suits a confident self-starter with emotional intelligence, strong leadership skills and a passion for making a tangible difference in rare disease.
Key Responsibilities
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Lead and deliver an integrated fundraising and communications strategy
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Grow income across trusts & foundations, corporate partnerships, individual giving, major donors, community and events
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Act as an external ambassador for Metabolic Support
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Oversee communications, marketing, social media and brand development
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Manage donor relationships, stewardship and CRM (Nutshell)
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Provide fundraising forecasts, reports and budgets to the Board
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Ensure compliance with GDPR and fundraising regulations
About You
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Proven experience in fundraising, communications or income generation
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Strong track record in at least one key fundraising area (e.g. trusts, corporates, major donors)
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Excellent written and verbal communication skills
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Confident relationship-builder and storyteller
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Highly organised, proactive and comfortable working autonomously
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Strong alignment with Metabolic Support’s mission and values
Other Information
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UK-based with eligibility to work in the UK
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Willingness to travel and work occasional evenings/weekends
The client requests no contact from agencies or media sales.
Thank you!
Stay Up Late is a charity fighting for the right of people with learning disabilities and autistic
people to live full social lives — to go out, stay up late, and have fun. We’re best known for
Gig Buddies, our flagship project built around music, nightlife, and friendship.
This is a senior, hands-on leadership role, providing strategic and practical leadership across
income generation and financial management. Fundraising and sustainability are shared
responsibilities at Stay Up Late — this role leads and coordinates that work, helping us focus
on what will have the greatest impact while ensuring strong, proportionate financial
oversight.
You’ll bring senior charity finance experience, a good understanding of income generation,
and a collaborative, values-led approach. You’ll be comfortable working closely with the
Director, trustees, staff, and freelancers in a small organisation where trust and teamwork
matter.
Closing date: 9am, Monday 23 February
Interviews: after 5 March
Start date: flexible
To apply, complete the application form on our website.
We’re committed to equality, inclusion, and doing things differently — applications are
encouraged from people who share our values.
Registered Charity
6 - 10
Stay Up Late is a grassroots charity that enables adults with learning disabilities and autistic people to lead active social lives and make decisions
The client requests no contact from agencies or media sales.