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Chief Executive, Cavernoma Alliance UK
Home-based within the UK
28 hours (including some evening and occasional weekend work)
Actual salary: £35,840 to £38,079
Equivalent full-time salary: £48,000 to £51,000
Cavernoma Alliance UK is a well-established UK charity supporting people affected by cavernoma, a rare condition involving clusters of abnormal blood vessels in the brain or spinal cord.
Founded in 2005 by people with lived experience of cavernoma, we provide peer support, trusted information, awareness raising and research advocacy for the cavernoma community. We also work closely with leading neurologists, neurosurgeons and researchers across the UK to help improve clinical care, information and research for people affected.
We are now looking for a new Chief Executive to lead and be an ambassador for the work of CAUK. This is a meaningful and varied role in a small charity where your contribution will be visible. It would suit someone looking for a senior charity role with real purpose, flexibility and a close connection to the community they support.
You will be joining an organisation with a supportive Board of Trustees, a staff team that cares deeply about the community we serve, highly committed volunteers, and strong clinical and research partnerships.
We are in the second year of our five-year strategy, ‘Together For a Cure - 2025 to 2030’, and are making good progress across our priorities. The current Chief Executive is leaving after three and a half years in post to take up a new opportunity, and the charity is in a positive and stable position.
A major focus for the role over the coming years will be supporting delivery of a five-year UK-wide clinical trial starting in August 2026. This study could potentially identify the first medication treatment for cavernoma.
Alongside this, the role will focus on maintaining sustainable income, supporting high quality peer-led services through our Head of Volunteering and Member Services and volunteer team, and continuing to grow CAUK’s reach and awareness, particularly online.
We would particularly welcome applications from people with previous charity management experience, whether within a small charity or in a more senior role within a larger organisation. We are also open to applicants who can demonstrate a strong understanding of the charity sector through trustee, professional or voluntary experience.
This is a home-based role with flexibility, although there will be occasional travel across the UK, typically every 1 to 2 months, including meetings in London.
If you would like an informal conversation about the role before applying, we would be happy to arrange this with the current Chief Executive and/or Chair of Trustees.
Key dates
Applications open: 27 May 2026
Closing date: 9am, 22 June 2026
Stage 1 interviews will be held virtually during the last week of June.
Stage 2 interviews will be held in person shortly afterwards.
How to apply
To apply, please read our Recruitment Pack carefully and then complete our online application form using the link below. You will also need to email your CV to us using the contact details provided in the Recruitment Pack.
Please note that applications submitted without both a completed application form and CV will not be considered.
We are unable to accept enquiries or applications from recruitment agencies.
To have a cure for cavernoma that people living in the UK can access.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
As one of the UK's best employers, we believe in putting people at the heart of everything we do. We are looking for an experienced and proactive Animal Care Tutor, to join Inscape House School
Together we make a difference, develop and learn, and support each other. Every day with us is different, but our mission remains the same: To champion the rights, needs and ambitions of the people we support - they are at the heart of everything we do. We stand by them and we work together for change.
We believe that everyone deserves a chance to learn and space to thrive and that the right education can change lives. You’ll help break down barriers to education for young people, helping them learn and grow at their own pace.
The Role
Inscape house school is recruiting for a tutor to to deliver Animal Assisted Intervention (AAI) and teach animal care, welfare, and related work experience skills to students within our secondary provision. The Animal Assisted Intervention Tutor will design and deliver accessible, meaningful and aspirational animal-care and AAI-based learning opportunities, including accredited qualifications such as BTEC and/or ASDAN in Animal Care (or similar).
Inscape House School is a non-maintained ASC specialist day school for children and young people aged 5 to 19 years. It is part of the Together Trust, a charity that has been providing care, education and support in the Northwest of England since 1870. The post holder will be a member of Inscape House School on the Cheadle campus.
Hours: 37.5 Hours
Contract - Permanent
Location: Inscape House School, Cheadle, Stockport
Reports: Deputy Head Teacher
Responsibilities Include but are not exhaustive;
Teaching
Management of Staff
Curriculum Knowledge
Accurate and productive use of assessment
Professional Communication
Training
About You
Benefits
Applications are very welcome from all regardless of age, disability, marriage or civil partnership, pregnancy or maternity, religion or belief, race, sex, sexual orientation, trans status or socio-economic background. We are committed to making reasonable adjustments for disabled people. We positively encourage applications from those with lived experience.
If there is any part of your lived experience you want to keep confidential in some way please talk to the Recruitment or HR shared service teams and we will do what we can to support you
This role will expire 31st May - Please do apply soon as we have the right to close the role early.
The Together Trust is committed to safeguarding and promoting the welfare of the people we support and expects all our staff and volunteers to share this commitment.
Safeguarding checks will be undertaken for the successful candidate in line with our safer recruitment policy, including an Enhanced DBS check (at no cost to yourself).
This role will involve regulated activity.
We are a UK charity supporting children in care and people with disabilities, autism and complex needs in the North West.
The client requests no contact from agencies or media sales.