Patient information officer jobs

Senior Research Officer

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.
 

Job Summary - Senior Research Officer

We are seeking a confident and organised Senior Research Officer to join our small but ambitious Research Team. This is a hands-on role with real scope to contribute to how we fund and manage research, and to make a genuine difference to a programme that's helping to save lives.
 

The Senior Research Officer will lead the delivery of our grant funding processes from end to end - managing application rounds, overseeing the active portfolio, coordinating our scientific committees, supporting our research events and leading our approach to patient and public involvement in research. Working in a small, specialist team means you'll also have real scope to contribute ideas, help improve how we do things, and play a meaningful part in the development of the research programme beyond the day-to-day.

Interviews will be held on Thursday 16 April.

If you have a track record in grants administration, bring experience, confidence and good judgement, and are genuinely committed to making research funding work well, we want to hear from you.

 

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

About Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis (APF) is the UK’s leading patient charity dedicated to improving the lives of individuals and families affected by pulmonary fibrosis. Our mission is underpinned by values of compassionate, bold, expert and collaborative. We believe in creating a supportive environment in which both our employees and beneficiaries can thrive.

Founded in 2013 by people affected by PF and clinicians, APF has grown into a respected national charity rooted in community and evidence. We provide trusted information and support, help a growing network of support groups, campaign to improve access to care and invest in research to bring hope of new treatments. APF strives to be an organisation of equity and inclusion, welcoming people from all backgrounds – our team and volunteers aim to reflect the diverse communities we serve.

We have just launched an ambitious five-year strategy (2025–2030), co-created with the PF community, which focuses on expanding support, transforming care, and accelerating research. This strategy marks a step change with a clearer focus, stronger delivery model and greater ambition to ensure no one faces pulmonary fibrosis alone.

Role purpose

The Senior Challenge Fundraising Officer will lead the delivery and growth of APF’s third-party and mass participation challenge events portfolio.

This role exists to significantly grow income and participation by managing end-to-end third-party challenge events, developing community-facing charity-owned fundraising products and delivering excellent supporter stewardship

Working closely with the Head of Fundraising and colleagues across Communications, Services and the Operations Team, you will increase recruitment, empower supporters to raise ambitious funds, and create journeys that encourage long-term engagement with APF.

Success in this role means more people fundraising for APF, raising more income and feeling valued, supported and inspired to stay connected to our mission.

Key Responsibilities

1. Grow participation in third party

• Manage the full lifecycle of third-party and mass participation challenge events, from planning and recruitment through to stewardship and re engagement.
• Develop and execute creative marketing strategies to boost participation and attract new event participants.
• Draft engaging promotional content that inspires and engages our supporters in collaboration with the Communications team.
• Promote third-party events proactively across relevant channels and networks.
• Work with the wider Fundraising team to improve and refine the stewardship journey for challenge participants to maximise the participant experience.
• Identify and pursue opportunities to grow participation in new and existing events.
• Attend key events as required, managing on-the day logistics and volunteer coordination.

2.  Community Product Development

• Work with Head of Fundraising to shape and improve APF’s fundraising offer and remote products.
• Test and refine new fundraising concepts that increase accessibility and broaden participation.
• Work collaboratively across teams to ensure our community fundraising products align with wider campaigns and strategic priorities.

3.  Income growth and fundraiser mpowerment

• Inspire participants to achieve ambitious fundraising targets through engaging, creative communications.
• Develop and enhance fundraising materials, including participant packs and digital resources to support our fundraisers.
• Use insight and sector trends to identify opportunities to boost event visibility and maximise fundraising efforts.
• Monitor fundraising performance to ensure we’re meeting targets and delivering strong ROI on our challenge activities.

4. Stewardship and re-engagement

• Foster personal connections with supporters through thoughtful, tailored stewardship that keeps them engaged and feeling valued.
• Create clear re-engagement plans to encourage repeat participation and long-term loyalty.
• Collaborate with wider Fundraising and Services teams to support acquisition and ensure our supporters have a smooth, high-quality supporter journey.
• Represent APF publicly when required, acting as a confident ambassador for the charity at events and in public settings.

5. Data, insight and compliance

• Support on the management of CRM data to enable accurate segmentation, performance tracking and reporting.
• Monitor recruitment, participation, income and ROI to help inform future planning and improvements.
• Maintain up-to-date knowledge with GDPR regulations and compliance and ensure personal data is handled responsibly and securely.
• Work closely with the Governance and Operations Manager to ensure our fundraising activities are fully compliant with GDPR and the Code of Fundraising Practice.

How to apply

Please submit a CV and a covering letter (maximum of two pages) highlighting your skills and suitability to the role, reflecting the key responsibilities in the job description.

First stage interviews to be held virtually on 1st May 2026, second stage interviews to be held at the Peterborough office on 8th May 2026.

Corporate Partnerships Officer

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.

Job Summary for Corporate Partnerships Officer

• Join a high‑performing Partnerships and Philanthropy team of eight fundraisers specialising in securing high‑value support from corporates and charitable trusts.
• The ideal candidate will bring:
  • Experience in fundraising and relationship management.
  • Proven ability to develop and manage a fundraising portfolio.
  • Strong relationship‑building skills and a proactive, creative approach.
  • Excellent research, writing, presentation, and organisational capabilities.
  • The confidence to work independently while contributing effectively to team goals

Key Responsibilities

• Collaborate closely with the Senior Strategic Partnerships Manager, Corporate Partnerships Manager, and Senior Corporate Partnership Officers.
• Manage a portfolio of existing corporate partnerships, ensuring high‑quality stewardship and maximisation of income and mutual value.
• Develop and maintain a pipeline of new business opportunities.
• Lead or support:
  • Charity of the Year partnerships.
  • Corporate event management and support.
  • Partnerships with pharmaceutical companies.
  • Sponsorship initiatives.
  • Cause Related Marketing (CRM) collaborations.
• Contribute significantly to achieving ambitious team fundraising targets.
• Help drive improvements for everyone affected by bowel cancer through impactful partnership work.

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

About the Project

PKD Scotland: Outreach and Community Connections Project. 

It is estimated that around 5,000 people in Scotland could be living with Polycystic Kidney 
Disease. It is however often poorly understood and historically underfunded, meaning people 
can leave clinic after diagnosis with little support beyond medical appointments. Many tell us 
they don't know where to turn for emotional support or to meet others living with the same 
condition. We want to change that and with support from a National lottery Awards for All grant 
that is exactly what we are going to do. 

The eighteen-month project will see us reach into hospitals across Scotland to try and ensure 
that no one with PKD in Scotland has to manage their journey on their own. From diagnosis 
onwards we want all to be aware of the charity, the array of services that we offer and foster 
engagement. Two new volunteer led support groups will be established and a group of 
ambassadors recruited to support the ongoing connections we make to ensure that PKD 
remains in the spotlight. 

As our Scotland PKD Engagement Officer you will be central to the success of the project. 
Many people only reach us years after diagnosis, often when symptoms worsen, but we know 
that early connection can make a real difference. PKD is lifelong and people face new 
challenges at every stage. Having support around them helps them stay confident, informed
and connected.

About The Role

 
As PKD’s Scotland Engagement Officer, you will play a central role in delivering this ambitious 
outreach project. 

Reporting to the Chief Executive, you will raise awareness of the PKD Charity and its services, 
ensuring that people diagnosed with PKD are informed about available support from the earliest 
possible stage.

You will build and nurture relationships with NHS professionals and services across Scotland, 
helping embed PKD Charity information and resources into patient pathways. Alongside this, you 
will work closely with volunteers to establish two new PKD support groups and develop an 
ambassador programme to maintain long-term local engagement and visibility.

This is an exciting opportunity for a confident relationship-builder who enjoys working 
autonomously while contributing to a small and dedicated team. Your work will help ensure that 
people living with PKD across Scotland feel informed, connected and supported throughout every 
stage of their condition.

For more information and details on how to apply, please read the full Job Description.

Director of Charitable Impact

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.

Job Sumnmary for Director of Charitable Impact

As the Executive Director of Charitable Impact at Bowel Cancer UK, you will play a pivotal role in driving forward our mission: ensuring that everyone with bowel cancer is diagnosed at the earliest stages, receives the best possible care and that more people survive the disease and thrive beyond their diagnosis.

You will lead the charity’s research programmes, policy and influencing, patient services, healthcare professional education, and health information functions. You will ensure these programmes deliver measurable impact on early diagnosis, equity of access, and better outcomes for people with bowel cancer, particularly focusing on reducing health inequalities and addressing the growing incidence of bowel cancer in people under 50.

Working closely with the Strategy & Insight unit, you will embed robust evaluation and evidence into all our work and lead the development of new patient-facing services and digital innovations – including the use of AI – to expand our reach and improve outcomes.

You will bring strategic vision, sector expertise, and an inclusive, collaborative leadership style, guiding a team of around 40 passionate professionals to maximise Bowel Cancer UK’s charitable impact across the UK.

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

Senior Caseworker – Pathways

Location: Disability Action & Advice Centre, 4, Waldegrave Road, Teddington TW11 8HT

Contract: Permanent, Full-time, 35 hours per week

Salary: £30,000 to £36,000 (depending on experience)

Ruils is run by, and for, Disabled people. We exist to remove the barriers that prevent Disabled people from living independent lives. Our vision is a society where all individuals have choice and control to live independently. We provide information, advice, advocacy, befriending and activities to our clients and their families.

Pathways is a specialised welfare advice service that provides information, advice, advocacy and representation for Disabled adults (over the age of 18) living in the Richmond Borough. We work with clients, supporting them to navigate the complex Housing, Benefits and Social Care systems. In this role, you would be providing information, guidance and advice to Disabled people and their families, enabling them to have more choice and control over their lives.

We are also part of a larger network of Disabled-led advice services. Working together, we have developed pathways for Disabled trainee case workers, collated data on Housing and Benefits issues and have fed into important consultations and campaigns.

This is a unique and rewarding opportunity for you to work one-to-one with clients to effect change, whilst also having a positive impact on the wider system.

We are looking for someone who:

• Will bring experience of supporting people with complex welfare, housing or social care issues.
• Is confident advocating on behalf of clients when needed.
• Has an understanding of the welfare benefits system, disability rights and the Social Model of Disability.
• Can break down complex information so it feels clear and manageable.
• Works in a calm, methodical way, keeping accurate records.
• Is compassionate, patient and values-driven.

Duties and Responsibilities:

• Provide timely and accurate advice on welfare benefits, housing and social care to support Disabled people to live independently.
• Analyse clients’ situations, identify solutions and guide them through complex systems, signposting where appropriate.
• Work with clients on a short to medium term basis, helping with referrals, forms, letters, appeals and navigating processes.
• Support clients to gather evidence and prepare for Benefit or Housing applications and appeals, ensuring deadlines are met.
• Attend key meetings and appeals with clients, advocating for them and helping them put their case forward confidently.
• Develop accessible information resources (guides, bulletins) to help clients navigate health, care, benefits and housing systems.
• Build and maintain strong relationships with partners, contributing to forums, campaigns and shared problem-solving.
• Provide supervision and support to trainee caseworkers, including induction, case file reviews and contributing to their development.

What we can offer you:

• A vibrant and interesting work environment – every day is different.
• An experienced and supportive leadership team.
• Training and development opportunities.
• Flexible working.
• Kind and caring colleagues who work as a team.
• A cycle to work scheme.
• An employee assistance programme (EAP).

We operate a Guaranteed Interview Scheme. We will guarantee an interview to all Disabled applicants who meet the essential criteria for the post. Please state in a cover letter if you wish us to consider you for this Guaranteed Interview Scheme.

A full Job Description and Person Specification can be downloaded below. To apply, please visit our recruitment page via the ‘Apply’ button

Closing date: 17 April 2026.

Interviews: 19 May 2026 (face-to-face).

Policy and Public Affairs Officer at the British Liver Trust  

Communications Team 

Building momentum, Changing lives 

The British Liver Trust is the UK’s leading charity supporting children and adults affected by liver disease and liver cancer. We advocate for improved prevention, early detection, and equitable access to care for all people affected by liver conditions across the UK. Liver disease is a public health emergency – it is the third leading cause of premature death in the UK, with deaths increasing by 400% over the past two generations. 

We believe that liver disease and liver cancer are at a tipping point. By taking bold action ourselves and with others, we will start to shift that balance and seize this moment. We are looking for an experienced policy officer to support us on this journey and to directly contribute to change.

This is an exciting time for the Trust as liver disease is increasingly being recognised as a priority by the NHS and we have recently launched our new organisation strategy.   

We are seeking a policy and public affairs professional to support existing work and support our advocacy with key stakeholders across the UK and to help improve outcomes and care for all liver disease patients.

The role  

• Run the Secretariat for the All-Party Parliamentary Group on Liver Disease and Liver Cancer

• Support our policy development, including supporting our consultation responses

• Help secure parliamentary debates and speakers, and provide tailored and impactful briefings 

• Coordinate political outreach to grow our pool of supportive MPs 

• Monitor and horizon scanning 

• Represent the Trust at external meetings to amplify our profile and policy messaging

• Work closely with colleagues in the communications, outreach, roadshow and fundraising teams to ensure policy is embedded across the Trust’s work. 

The postholder will have the opportunity to influence change and improve outcomes and services for liver disease and liver cancer patients. 

Policy and Public Affairs Officer 

Salary £32,000 – £35,500 per annum  

Full time 35 hours per week  

Home-based with regular access to London and occasional visits to Winchester (HQ).  

We offer a range of benefits for our employees, including: 

• Life assurance 4x your salary starting from date of employment 

• 5% employer pension contribution, rising to 7.5% at 15 months and 10% at 27 months service (optional on contribution increase) 

• Holiday buy-back scheme (up to 3 days per annum) 

• 25 days paid annual leave (FTE) 

• BUPA health cash-back scheme; money back on everyday healthcare costs, 24/7 health advice line, employee assist programme, mental health support & wellbeing resources 

• Cycle-to-work scheme 

• Contractual sick pay offering up to five weeks’ full pay, dependant on length of service to support employee wellbeing 

• 3 days additional gifted leave between Christmas and New Year 

If you would like to apply for the role, please send:

• a covering letter explaining how your experience, skills and knowledge make you suitable for the role, with particular relevance to the Job Description

• an up-to-date CV, including two referees

Closing date: 5pm on Friday the 10th of April 

Interviews: to be held on Tuesday the 21st of April 

Oxford Hospitals Charity is seeking an approachable, proactive, and personable individual to join our Hospital Engagement Team in a job-share role, working across the Oxford University Hospitals NHS Foundation Trust to make a tangible impact on the lives of patients and staff.

This role is offered as a job share, with each postholder working 18.75 hours per week, alongside a colleague who is already in post. As a Hospital Engagement Officer, you will be a key link between the charity and our hospitals, meeting, motivating and inspiring patients, visitors and staff. Based primarily at the Charity Hub desk in the John Radcliffe Hospital, this varied and rewarding role will make the most of your skills in customer care and relationship-building. Whether speaking to new NHS staff at weekly staff inductions, inspiring visitors to support the charity through fundraising, or working alongside our incredible team of volunteers, you will play an important role in raising the profile of Oxford Hospitals Charity across our hospital sites. Working closely with your job share partner, you will ensure a collaborative and consistent approach to engaging with our hospital communities.

As a job-share, the preferred working pattern for this post is two full days (8:30-4:30 worked between Monday and Friday) and an additional half day. Alternative working patterns will be considered. Please indicate your preferred working pattern in your cover letter.

The closing date for this role is Wednesday 15th April at 5pm and any interested candidates should apply by sharing their CV and a covering letter detailing why they are suitable and their preferred working pattern.

We request no contact from agencies please.

The Compliance Officer will safeguard the charity by contributing to robust internal governance and compliance processes, supporting risk identification and management processes and being mindful of relevant legislation and regulation. This role will be able to interpret regulatory guidance and make suggestions for changes to internal processes, including but not limited to guidance published by the Charity Commission for England and Wales and the Information Commissioner’s Office.

Through the development and utilisation of new and existing processes, you will provide assurance to the charity’s leadership teams that the organisation operates in line with statutory obligations, internal policies and procedures and recognised best practice standards.

This role will co-ordinate and support the development, implementation, and regular review of policies and procedures that underpin strong internal controls and transparent decision-making. Responsible for supporting colleagues with identification, assessment, and monitoring of incidents and operational risks, helping to record proportionate controls and review periods to protect all stakeholders. In doing so, you will promote a culture of accountability, ethical conduct, and continuous improvement across the charity. 

This role focuses on the processes that support operational day-to-day governance and compliance, as opposed to overarching governance which falls to the responsibility of the CEO, supported by the Board Secretary/ Executive Assistance role.   

Working closely with the Finance and Operations Manager, Quality Assurance Manager and external Data Protection Officer to ensure a co-ordinated and streamlined approach to governance, compliance and risk across the whole organisation. 

This role is not responsible for: 

• Acting as Board Secretary 

• Strategic decision making 

• Providing legal advice 

• Acting as the Data Protection Officer 

You Will Bring: 

A strong understanding of internal governance frameworks, ability to implement and coordinate risk management principles and processes and a strong understanding of regulatory compliance. You will demonstrate exceptional attention to detail, sound judgment, and the confidence to ensure processes are applied across the organisation. With strong analytical and problem-solving skills, you will proactively help others to identify risk and implement and record effective mitigations and controls. You will be able to implement processes which support continuous learning and improvement of policies and procedures. You will work closely with others who have a responsibility for compliance, quality measures and risk identification processes ensuring seamless working across departments.

You will also bring excellent written and spoken communication and have strong interpersonal skills, which enable you to deliver training to others and to foster a culture of integrity around compliance. You will build trusted relationships across the organisation while maintaining independence and objectivity in your own role, having the confidence to speak up if change is needed or processes and practice needs to change. 

We’re looking for someone who is highly organised with attention to detail and is able to work collaboratively with a focus on operational delivery.

How to apply 

Please upload your CV and supporting cover letter outlining why you’re interested in the role. Please take your time to explain how your experience is relevant to this post.

Closing date: 9am Monday 6th April 2026 

Interviews:  

First stage virtual: w/c 13th April 2026 

Second stage in-person (Leeds): w/c 20th April 2026 

For more information, please refer to the attached recruitment pack.

Empowered Living Team Coordinator

Salary: Band 5 £18,341.64 - £22,327.60 per annum inclusive

Contract: Permanent, part-time, 18.75 hours per week

About the job role

An exciting opportunity has arisen as an Empowered Living Team (ELT) Coordinator at St Joseph’s. You will work as a key member of a committed and creative Therapies team, which offers innovative, holistic and person-aligned care and support to people with palliative and end-of-life care needs, and to their families and caregivers.

The post holder will provide coordination for, and service development of, the Empowered Living Service. This community-based service provides outstanding person-centred rehabilitative enablement for people living with a palliative diagnosis. Following a joint professional assessment, a detailed programme of patient-led goals is enabled and supported by a trained ELT volunteer in the patient’s own home. Volunteer recruitment, training, patient matching and regular support group/1-1 supervision is led by the ELT coordinator.

About you

• A skilled professional with experience in health and social care, education or community development.
• Experience of multi-disciplinary working in community rehabilitation settings.
• Experience working in an education or support role in relation to volunteers.

About us

St Joseph’s Hospice was founded in 1905 by the Religious Sisters of Charity and built on a rich Catholic heritage. Today, we are an Investors in Diversity-awarded charity, providing expert, compassionate care to people of all backgrounds, cultures, and beliefs across East and North London.

Our specialist palliative care services—delivered at home, in our in-patient unit, and through out-patient clinics—are grounded in respect for human dignity and guided by compassion, justice, and a deep commitment to quality. Our values guide us in everything that we do. We work to ensure that everyone receives the support they need, with kindness, understanding, and respect by delivering individualised, responsive and holistic support to patients and their families.

Why work for us?

We can offer you:

• Experience working in a dynamic team who are leading work on rehabilitation in palliative care.
• Development of specialist palliative care treatment skills.
• Opportunities and support to advance your communication around challenging topics such as death, dying, and loss.
• Exemplary multi-professional working with commitment to holistic care.
• 27 days holiday plus public holidays, increasing up to 33 days with service
• Subsidised café and early access to retail sale events
• Season ticket/Welfare loans
• Continuation of the NHS Pension Scheme or an excellent salary-exchange pension scheme.
• Santander cycles discount and cycle to work scheme
• Health Cash Plan and access to the EAP services

The job is based at St Joseph’s. Some local travel is essential. Full support and training will be provided in all aspects of the job by the hospice. There are excellent opportunities for learning and professional development. 

Join St Joseph’s team and find out more!

For further information and to apply, please visit our dedicated recruitment page via the 'Apply' button.

Closing date: Sunday, 12th April 2026.

We are an equal opportunity and a disability confident employer and welcome applications from all suitably qualified persons regardless of their race, sex, disability, religion/belief, sexual orientation or age.

Senior Families and Professionals Advisor

Fragile X Society

Salary: £40,000 to £46,000 depending on experience
Hours: Part-time  (22.5hours per week)
Location: Great Dunmow, Essex, with some flexible and hybrid working considered
Contract: Permanent

Help change lives for families affected by Fragile X

The Fragile X Society is the UK’s leading charity supporting individuals and families affected by Fragile X syndrome and associated conditions, including FXTAS and FXPOI.

For more than 35 years we have provided trusted information, emotional support, and practical guidance to families across the UK. Our work connects families with clinicians, researchers, and services while helping professionals better understand Fragile X.

We are now looking to recruit a Senior Families and Professionals Advisor (Adult Enquiries) to join our small and dedicated team as part of a planned transition when our long serving advisor retires later this year.

This is a rare and rewarding opportunity to take on a respected specialist role supporting families navigating complex health, social care, and life transitions.

About the role

This is a senior advisory role supporting adults, families, carriers, and professionals affected by Fragile X conditions.

You will provide information, guidance, and emotional support to individuals and families across the UK, helping them navigate services such as adult social care, benefits, housing, health services, and transition into adulthood.

The role also plays an important part in ensuring that the Fragile X Society continues to provide trusted, accurate, and meaningful information for families and professionals.

A structured handover and training period will be provided by the current postholder to help transfer specialist knowledge.

Key responsibilities

You will:

• Lead the handling of adult and carrier enquiries including those relating to Fragile X associated conditions such as FXTAS
• Provide emotional support and practical guidance to families navigating complex situations
• Maintain up to date knowledge of adult benefits, legislation, and social care services
• Work with clinicians, services, and professional networks supporting people with Fragile X
• Ensure the Society’s information resources and website content remain accurate and relevant
• Support colleagues through mentoring and case discussion where appropriate
• Contribute to the continued development of the Society’s information and support services.

About you

We are looking for someone with experience in complex advisory or support work within areas such as:

• disability services
• adult social care
• learning disability
• health services
• rare disease charities
• advocacy or advice organisations.

You will also have:

• strong knowledge of UK benefits systems and adult social care
• excellent communication and listening skills
• high levels of emotional intelligence and resilience
• experience supporting people in complex or sensitive situations
• the ability to work both independently and collaboratively within a small team.

Previous knowledge of Fragile X is not required, but an interest in learning about rare genetic conditions and the lives of families affected by them is essential.

What we offer

Working at the Fragile X Society means being part of a values driven charity where your work genuinely changes lives.

We offer:

• Salary of £40,000 to £46,000 (pro-rata) depending on experience
• 25 days annual leave plus bank holidays (pro-rata)
• Pension contribution
• Flexible and hybrid working options where possible
• Professional development opportunities including rare disease and clinical learning
• A supportive and collaborative team environment.

The role also includes the opportunity to work closely with leading clinicians, researchers, and national rare disease networks.

About the Fragile X Society

The Fragile X Society supports thousands of families across the UK and works closely with clinicians, researchers, and policymakers to improve understanding and support for Fragile X conditions.

Our mission is to ensure that every family affected by Fragile X has access to reliable information, compassionate support, and a community that understands their journey.

How to applyTo apply, please send:

• your CV and supporting statement explaining your interest in the role and relevant experience.

Further information about the Society can be found on our website.

Job Title: Digital Marketing Officer

Reporting To: Marketing & Communications Manager

Salary: £26,848 - £31,439

Hours: 37.5 hours per week

Duration: Permanent

Location: Alder Hey Children’s Charity, Liverpool / Hybrid-working

Job Purpose:

The purpose of this role is to support the planning, delivery and optimisation of Alder Hey Children’s Charity’s digital marketing activity across key channels, reporting to the Marketing & Communications Manager.

This is a hands-on digital role focused on day-to-day delivery, advertising and optimisation across the charity’s digital platforms. The Digital Marketing Officer will play a key role in ensuring digital advertising channels are engaging and effective in supporting fundraising, brand awareness and supporter engagement.

The role works closely with colleagues across Marketing, Fundraising and Communications, and supports the delivery of digital activity set by the Marketing & Communications Manager.

Main Duties/Tasks

Digital Duties:

Content Creation, Management, and Campaign Support

• Creating, editing, and publishing content across the charity’s digital channels (website, email, and ad channels) in conjunction with the Content Creation Officer and Marketing Officers.
• Managing day-to-day updates to the charity websites using the CMS, ensuring content is accurate, engaging and aligned to brand guidelines. Maintain high standards of brand identity across all digital touch points.
• Building and sending email communications using the charity’s email platform, supporting segmentation, stewardship and supporter journeys.
• Supporting the delivery of integrated marketing and fundraising campaigns through digital channels.
• Adapting digital copy for different audiences and platforms, including web pages, email campaigns and digital appeals.

Digital Marketing Optimization, Reporting, and Budget Support

• Optimising and supporting budget monitoring for AI Search, Paid Search, SEO, and Google Grant campaigns.
• Monitoring and reporting on digital performance using analytics and platform insights, identifying opportunities to improve engagement and effectiveness.
• Supporting paid digital fundraising activity by preparing and advising on content, assets, and copy, and assisting with reporting and optimisation under the direction of the Marketing & Communications Manager.

Brand Management, Compliance, and Collaboration

• Ensuring all digital content and activity complies with brand guidelines, accessibility standards, GDPR, and relevant regulations.
• Scheduling and managing organic content in line with agreed plans, adapting content where needed for different channels, working with Marketing Officers to ensure a consistent brand presence.
• Working with internal colleagues and external suppliers or agencies, where required, to support digital delivery.
• Supporting the Marketing & Communications Manager to maintain organised digital systems, content libraries, and workflows.

Other Duties:

• Be an outstanding advocate for Alder Hey Children’s Charity in line with the core values of the organisation.
• Be an active and supportive member of the Alder Hey Children’s Charity team, contributing to team development and working collaboratively with colleagues and volunteers.
• Attend and support events run by fundraising teams where required, including occasional out-of-hours working.
• Gain and maintain an in-depth knowledge and understanding of the charity’s work, priorities and future plans.
• Any other reasonable duties as required by your line manager.

Closing date: Monday 20th April, 12pm

Shortlisting: Wednesday 22nd April

Interviews: Tuesday 5th May

Senior Data Manager

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.

Job Summary for Senior Data Manager

• A senior data leadership role sitting at the heart of the Data & IT function, reporting to the CFO and working in close partnership with the Senior IT Manager — with this role taking lead responsibility for all things data
• Own and lead the charity's data strategy, working collaboratively with senior leadership to shape a forward-looking, insight-driven organisation
• Take full ownership of CRM operations (Raiser's Edge NXT), driving adoption, optimisation and continuous improvement to ensure the charity is truly getting the most from the system — unlocking the data, trends and insight within it
• Hold overall responsibility for the Charity Automation Roadmap, driving systems integration and automation to reduce manual effort and improve data flows across the organisation
• Develop Power BI dashboards and reporting frameworks that bring data to life — putting actionable insight into the hands of teams across the organisation
• Build strong, collaborative relationships across fundraising, finance and operational teams — translating business needs into practical technology solutions
• Champion data quality, GDPR compliance and governance, embedding robust standards and processes organisation-wide
• Line manage and develop a small data team, with a coaching-focused approach to performance and growth

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

Health Professional Education and Engagement Manager

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.

Job Summary

A key focus of our strategy is to reach and engage with as many people as possible, affected by and at risk of bowel cancer, by embedding our information and support services within NHS diagnostic, treatment and care pathways. As Health Professional Education and Engagement Manager you will play a central role in helping us achieve this. With a focus on developing networks in primary care and developing existing relationships with CNS’s and secondary care health professionals, you will work across the UK to understand the needs of these stakeholders and identify ways in which we can support them. You will lead the development of our health professional education programme, combining live education events with online learning modules.

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.