Scotland Engagement Officer

About the Project

PKD Scotland: Outreach and Community Connections Project. 

It is estimated that around 5,000 people in Scotland could be living with Polycystic Kidney 
Disease. It is however often poorly understood and historically underfunded, meaning people 
can leave clinic after diagnosis with little support beyond medical appointments. Many tell us 
they don't know where to turn for emotional support or to meet others living with the same 
condition. We want to change that and with support from a National lottery Awards for All grant 
that is exactly what we are going to do. 

The eighteen-month project will see us reach into hospitals across Scotland to try and ensure 
that no one with PKD in Scotland has to manage their journey on their own. From diagnosis 
onwards we want all to be aware of the charity, the array of services that we offer and foster 
engagement. Two new volunteer led support groups will be established and a group of 
ambassadors recruited to support the ongoing connections we make to ensure that PKD 
remains in the spotlight. 

As our Scotland PKD Engagement Officer you will be central to the success of the project. 
Many people only reach us years after diagnosis, often when symptoms worsen, but we know 
that early connection can make a real difference. PKD is lifelong and people face new 
challenges at every stage. Having support around them helps them stay confident, informed
and connected.

About The Role

 
As PKD’s Scotland Engagement Officer, you will play a central role in delivering this ambitious 
outreach project. 

Reporting to the Chief Executive, you will raise awareness of the PKD Charity and its services, 
ensuring that people diagnosed with PKD are informed about available support from the earliest 
possible stage.

You will build and nurture relationships with NHS professionals and services across Scotland, 
helping embed PKD Charity information and resources into patient pathways. Alongside this, you 
will work closely with volunteers to establish two new PKD support groups and develop an 
ambassador programme to maintain long-term local engagement and visibility.

This is an exciting opportunity for a confident relationship-builder who enjoys working 
autonomously while contributing to a small and dedicated team. Your work will help ensure that 
people living with PKD across Scotland feel informed, connected and supported throughout every 
stage of their condition.

For more information and details on how to apply, please read the full Job Description.