Freelance Senior Advocacy Officer

Cardiomyopathy UK is the only UK charity dedicated to supporting individuals and families affected by cardiomyopathy. We provide clinical information, emotional support, and work to influence policy and practice so that everyone affected by cardiomyopathy receives timely diagnosis, high-quality care, and support.

Our established Change Maker volunteer network brings together people with lived experience of cardiomyopathy who share their stories and the expertise it provides to advocate for meaningful policy and practice change. Change Makers contribute in a range of ways, from running awareness raising activities and supporting social media campaigns to engaging with MPs. Their work helps drive improvements in care pathways, raise public understanding of cardiomyopathy and provide valuable input into Cardiomyopathy UK’s policy development.

As the network enters its next phase, we are seeking a skilled and passionate Freelance Senior Advocacy Officer to help take it forward.

Role Purpose

The Freelance Senior Advocacy Officer will lead the growth and development of our Change Maker network, ensuring volunteers are supported, empowered, and equipped to influence change at local, regional, and national levels. In this role, you will work closely with the Policy Manager to design and implement a strategic plan for the network, and provide the training, tools and resources our volunteers need to advocate effectively. The ideal candidate will bring expertise in advocacy, campaigns or volunteer engagement, along with strong project management skills.

As a 0.4 FTE freelance role, responsibilities will be phased and prioritised over the course of the contract. 

Please see the job description and person specification for further details.