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Page 2 of 15
Remote
£60,000 per annum + excellent benefits
Full-time
Contract (Fixed-term, 12-month contract (reviewed annually))

Actively Interviewing

This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!

Job description

We are delighted to be partnering with The Ehlers-Danlos Society, a global organisation that puts people with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) at the centre of everything they do. Their mission is to help the world understand these conditions better, accelerate research, and provide education that truly changes lives.

The organisation is looking for an innovative and strategic Learning & Education Director to lead and grow the Society’s global education portfolio. In this role you will give direction and shape long-term learning strategies, educational initiatives, inspire multidisciplinary teams, and ensure every program reflects scientific rigour, and the lived experience of the EDS/HSD community.

To succeed in this role, you’ll bring:

  • Bachelor’s degree (required) and advanced degree or diploma (PGCE, Master's or PhD (preferred) in Education, Healthcare, Public Health, Instructional Design, or related field.
  • Significant leadership experience in healthcare and medical education, with a track record of overseeing learning portfolios.
  • A deep understanding of healthcare education and evidence-based learning principles.
  • The ability to communicate complex medical or educational concepts clearly and confidently to diverse audiences.
  • Experience and network with clinicians, academic institutions, research bodies, and advocacy groups.

If you want your work to directly influence how healthcare professionals understand, diagnose, and support people living with EDS and HSD, bridging knowledge gaps and raising the standard of care worldwide, then this is the role for you!

For more information, please contact Katherine Anderson-Scott, Executive Director, Charisma Charity Recruitment. Applications should be submitted via the Charisma website and include your CV and a supporting statement.

We welcome and encourage applications from people of all backgrounds. We do not discriminate on the basis of disability, race, colour, ethnicity, gender, religion, sexual orientation, age, or any other category protected by law.

The Ehlers Danlos Society asks every successful candidate to give their consent for us to obtain two written references, consent to a DBS check, and to provide us with documentary proof of qualifications. Any offer of employment will be conditional on these requirements being satisfactory.

Location: Fully remote (UK-based), with occasional travel

Closing date: 19 January 2026

Charisma vetting interviews will need to be completed by close of play on the 27 January in preparation for shortlist submission on the 28 January.

Interviews with The Ehlers-Danlos Society:

  • 1st stage interviews: w/c 9 February 2026
  • 2nd stage interviews: w/c 16 February 2026

Please note: the chosen candidate will need to be available to attend the annual retreat on 16 March 2025 (this can be attended while the candidate is serving notice. All expenses will be paid, however, if the chosen candidate subsequently withdraws and doesn’t join The Society, the candidate will be expected to reimburse the organisation). 

Posted by
The Ehlers-Danlos Society View profile Organisation type Registered Charity Company size 21 - 50
Posted on: 22 December 2025
Closing date: 19 January 2026 at 12:48
Job ref: 7639
Tags: Training / Learning, Education, Health / Medical, Learning Disability