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Wolfram Syndrome UK (WSUK)
WSUK is a small national charity based in West Sussex that supports children, young people and adults affected by Wolfram Syndrome (WS) and their parents/wider families. WS is an ultra-rare genetic disorder which causes a complex range of symptoms, including diabetes mellitus, vision problems, renal problems, deafness, and neurological problems. WSUK provides current, accurate and family-friendly information, raises awareness of WS among health professionals and the public, and helps to fund WS research. For further information visit the Wolfram Syndrome UK website
WSUK Adult Support Co-ordinator Role
WSUK is seeking a part-time adult support co-ordinator (2.5 days per week, working over 4-5 days, 0.5 FTE, £14.1k-£15.6k per annum), based in the Midlands area. This home-based role will provide support to WS affected adults and their families to help improve the quality of their lives. Through liaising with professionals (including the WS expert clinical team at Queen Elizabeth Hospital (QEH), Birmingham), external or advocacy organisations, this role will help facilitate access to the services to which WS affected adults and their families are entitled. The adult support co-ordinator will help adults and their families to increase their confidence and independence in living with their condition. This role will also act as an important point of contact for WS affected adults, providing advice and support in confidence.
Skills and experience
Applicants should have several years’ experience in a similar position, working with people affected by sensory loss, long-term medical / genetic condition, or disability. Applicants should also have a strong desire to help improve the lives of adults living with a long-term condition or disability and be confident in talking with people with a range of abilities and diverse cultural backgrounds.
Applicants should have experience in working effectively as part of a remote team, be confident in working independently and in managing conflicting priorities.
Some limited UK travel will be required (particularly to meet WS affected adults during their WS clinic visit at QEH, Birmingham (6 clinics per year) and the annual WS conference. An enhanced DBS check will be required.
The client requests no contact from agencies or media sales.
Based at Head Office, in Saunderton near High Wycombe, Buckinghamshire, with flexible hybrid working
35 hours per week – Full-time/part-time could be considered
About Us
National charity Hearing Dogs for Deaf People, trains dogs to transform the lives of deaf people and provides hearing loss services – because nobody with hearing loss should feel alone.
About The Role
Overview:
Key Responsibilities:
About You
The following attributes are considered essential for the job:
The following attributes are considered desirable for the job:
Please note: This post is exempt from the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 due to its duties involving the protection of children and/or adults at risk. Applicants are therefore required to disclose all spent and unspent convictions, cautions, warnings, and reprimands, as well as any relevant non-conviction information. The successful candidate will be required to undertake a Disclosure and Barring Service (DBS) check in accordance with the Police Act 1997 (Part V).
Please apply by providing your CV and Cover Letter by 3rd April 2026.
If you seek a fresh and rewarding challenge, look no further than Open Country! Seeking to help disabled people to access and enjoy the countryside, we embrace a wide range of fundraising methods, so this role could be adapted to suit either full-time or part-time work. We are also able to cater for your particular skill set, though core duties would likely include:
This is a hands-on, dynamic role requiring creativity, insight and panache, coupled with great communication and relationship-building skills.
You will work collaboratively with our Finance and Fundraising Manager at our Head Office in Harrogate, though an element of home working can be considered.
Appointment to this post is subject to a satisfactory Disclosure and Barring Service check.
Open Country exists to help people with disabilities to access and enjoy the countryside.



The client requests no contact from agencies or media sales.
We are looking for a passionate Disabled person to join our organisation as a Trainee Caseworker.
Hours: 21-28 hours per week (flexibility around working hours/pattern)
Trainee Salary Band: £24,720 - £28,840 (pro rata and per year)
Start Date: 1 May 2026 or as soon as possible thereafter
Location: Hybrid (Home and Vestry Hall, Mitcham)
Contract Type: Fixed term until 1 May 2027.
Over one year, we will train, develop and coach an individual to build skills to provide casework support relating to health, welfare benefits, grant applications, discretionary travel, housing, aids and adaptations and/or adult social care.
The role will support our accredited Information and Advice Service and Speaking Up Service.
Previous experience is not essential but a passion to fight for justice and an interest in learning and developing your skills, knowledge and practice is.
Disabled people in Merton face marginalisation and disadvantage. We navigate barriers and work to create a borough that is truly inclusive.
The client requests no contact from agencies or media sales.
Operations and Finance Officer
Pathfinders Neuromuscular Alliance
18 hours per week | £16–£17 per hour
12-month contract (with potential to extend)
Flexible / Remote working
Pathfinders Neuromuscular Alliance is a user-led national charity supporting people with muscle-weakening conditions. We provide peer support, advocacy, research and campaigning to improve quality of life and drive systemic change.
We are now recruiting an Operations and Finance Officer to strengthen our internal systems and help ensure the smooth and sustainable running of the organisation.
About the Role
This is a key Officer-level role supporting financial administration, governance processes, HR coordination and organisational systems. You will work closely with the CEO and support the trustee board.
You will not hold financial sign-off authority, but you will be responsible for ensuring processes are accurate, organised and compliant.
Key Responsibilities
Setting up supplier payments for CEO approval
Importing and reconciling bank statements in accounting software
Supporting budget tracking and financial record keeping
Inputting payroll data and liaising with payroll providers
Collating and submitting DBS applications
Tracking HR processes (supervisions, appraisals, probation reviews)
Organising trustee and staff meetings
Maintaining policy review schedules and compliance deadlines
Improving and documenting internal systems and processes
About You
We particularly encourage applications from people with lived experience of neuromuscular conditions or other long-term disabilities. Reasonable adjustments will be provided throughout the recruitment process and in the role.
We are looking for someone who:
Has experience in administration, finance or operations
Is highly organised and detail-oriented
Is comfortable using spreadsheets and digital systems
Can manage multiple deadlines and confidential information
Is confident escalating queries where needed
Shares our commitment to equity, co-production and inclusion
Experience in the charity sector is welcome but not essential.
What We Offer
Flexible working arrangements
A supportive, values-driven team
The opportunity to shape and strengthen a growing national charity
A genuine commitment to lived experience leadership
To apply, please submit your CV and a short covering statement outlining why you are interested and how you meet each criteria.
Interviews will be held on Monday 13th April
To apply, please submit your CV and a short covering statement outlining why you are interested and how you meet the criteria.
The client requests no contact from agencies or media sales.
The main purpose of this role is to write persuasive funding applications to secure the income needed to enable Cerebral Palsy Plus to continue its work.
The postholder will build and maintain strong relationships with new and existing supporters and contribute to the development of all areas of fundraising.
The part-time fundraiser will also work with the Director to contribute to the development and implementation of Cerebral Palsy Plus’s Income Generation & Fundraising strategy.
The client requests no contact from agencies or media sales.