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We are seeking a passionate and committed Chief Executive Officer who will help us unite the global Prader-Willi syndrome (PWS) community to collectively find solutions to the challenges of the syndrome. Our vision is to create a world where people with PWS receive the services and supports they need to fulfil their potential and achieve their goals. PWS is a complex genetic disorder characterised by low muscle tone and failure to thrive at birth, and later evidence of short stature, intellectual disabilities, behavioural and psychiatric challenges and impaired satiety.
IPWSO is the international umbrella body for PWS associations around the world with 47 full paying country members and contacts in over 120 countries. We are committed to supporting people with PWS and their families whatever their needs and wherever they live.
What we do
We build communities between people with Prader-Willi syndrome, their families and the professionals who support them to share knowledge and expertise and improve outcomes for people with Prader-Willi syndrome and their families everywhere.
We want everyone with Prader-Willi syndrome to get equal access to diagnosis and treatment no matter where in the world they live. We want to ensure better, more consistent outcomes for people with the syndrome and their families.
We work to ensure research into the condition works for everyone and reflects the diverse experiences and environments of those living with the syndrome around the world today.
Main purpose and scope of role
Working closely with the President and the Board of Trustees, the CEO will provide strategic vision and leadership and will strive to ensure that IPWSO delivers its charitable purposes and remains successful and sustainable.
Duties and Responsibilities (to include but not limited to)
Leadership
· Strive to ensure that the charitable purposes of IPWSO are followed and that it delivers the public benefit set out in its governing document.
· Take overall responsibility for the management and administration of IPWSO.
· Provide support and information to the Board of Trustees to enable trustees to fulfil their roles and legal responsibilities.
· Pursue close cooperation with, and accountability to, IPWSO’s members.
· Act as an ambassador for IPWSO by representing IPWSO at events and networking to build new strategic relationships.
· Keep abreast of relevant new research, treatment recommendations and service developments for people with Prader-Willi syndrome.
Governance
· Strive to ensure that IPWSO has governance systems in place that enable it to consistently fulfil its legal, statutory and regulatory responsibilities.
· Maintain awareness of risks and changes in the external environment that could affect IPWSO and advise the Board of Trustees accordingly.
· Together with the President manage complaints (including from whistle-blowers) and recommend actions to the Board of Trustees
Finance and Fundraising
· Work with the Treasurer and the Finance Committee to ensure the overall financial health and sustainability of IPWSO.
· Work with the Treasurer and the Finance Committee to prepare budgets for review by the Board of Trustees and to enable IPWSO to operate within its financial means.
· Seek to ensure that appropriate financial reports are submitted to the Charity Commission and other entities as required.
· Support the work of the Fundraising Committee and strive to ensure a sustainable income from both IPWSO members and individual, corporate, philanthropic and government donors.
· Build relationships with potential donors and prepare funding proposals.
· Seek to provide high quality support to existing donors, by means including the preparation of regular reports and updates.
· Seek out and build new income streams.
Staff, Trustee and Volunteer and Committee Support
· Provide support to staff, trustees and volunteers to enable them to carry out their duties.
· Deputise for other staff members during periods of leave.
· Conduct annual reviews with staff.
· Participate in the recruitment of new staff as required.
· Provide support and advice to IPWSO committees and conference organisers.
Project Support
· Seek to ensure that all IPWSO projects are designed and implemented in accordance with IPWSO’s mission and objectives.
· Support IPWSO’s Project Managers and others who lead IPWSO projects and, if necessary, manage projects directly.
Person specification
Experience, Knowledge and Skills
Essential
Proficiency in English.
Experience of working in a leadership role in the charitable sector either as a CEO or as part of a wider Senior Management Team.
Ability to articulate a compelling vision to inspire others
Broad understanding of global development issues, geopolitical dynamics, and cultural nuances and able to take into account the diverse contexts in which IPWSO operates.
Strategic Thinking: experience of leading and or contributing towards strategic development as well as experience of organizational management and supporting change.
Collaborative approach: outstanding interpersonal and communication skills, with the ability to build and maintain positive relationships, based on mutual respect and shared goals.
Experience of managing budgets, financial planning, preparation of funding applications and report writing.
Experience of working with volunteers.
Desirable
Fluency in another language.
Experience of working in a leadership role in an international organisation within health or disability either as a CEO or as part of a wider Senior Management Team.
Knowledge / experience of PWS.
Willingness to travel internationally as needed to support IPWSO’s priorities.
An understanding of charity operations and governance structures in the UK.
Personal Attributes
Essential
Enthusiasm for IPWSO’s work and commitment to its vision, mission and values including dedication to equity, diversity, and inclusion.
Empathy for disadvantaged people.
Cultural sensitivity and respect. Confidence and ability to work well with people from different backgrounds from around the world.
Highly self-motivated and able to work on own initiative as well as part of a team.
Adaptability and flexibility. Able to navigate change and uncertainty. Able to accommodate international time zones as well as GMT for UK based staff. 20% of time may be outside of normal working hours.
Ethical leadership.
Resilience and determination.
Desirable
Desire to empower and mentor staff and foster a culture of learning, growth, and innovation.
Please submit your CV with a covering letter of no more than 2 A4 pages, describing how you meet the requirements of the role and the criteria outlined in the person specification. Include in your covering letter the names, positions, organisations, email and telephone contact of two referees, one of whom should be your current most recent employer. References will only be sought once your express permission has been granted. Please send to nmcnairney@ipwso. org. The closing date for applications is 9.00 am (UK time) on 25 October, 2024.
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About the Role
The Global Alliance for Improved Nutrition (GAIN) is seeking a visionary and strategic financial leader to join our team as Chief Finance Officer (CFO). This executive-level role offers a unique opportunity to shape the financial future of an organization committed to tackling the global challenge of malnutrition. . In the face of increasing global challenges like COVID-19, the conflict in Ukraine, and worsening malnutrition and hunger, we are driven by our strategy to transform food systems for the benefit of the most vulnerable populations.
The Role
As CFO, you will play a pivotal role in our Strategic Management Team (SMT), providing financial leadership that aligns with our bold strategy. You will ensure that GAIN’s financial plans are robust, transparent, and meet the highest standards of probity, while also ensuring compliance with donor requirements for budgeting and reporting. You will lead GAIN’s finance team, providing the strategic direction necessary to support our ambitious goals.
This role can be based in London (UK), Nairobi (Kenya), or New Delhi (India), offering flexibility for the right candidate.
Key Responsibilities include:
- Strategic Financial Leadership: Provide expert financial analysis, strategic guidance, and sound financial management across GAIN. Lead the finance team to support the organization’s strategic goals.
- Corporate Finance: Develop and manage GAIN’s corporate finance activities, ensuring robust financial systems and processes that are user-centric and future-proofed for a growing organization.
- Budgeting and Reporting: Oversee effective budgeting and financial planning, supporting the development and use of KPIs, and ensuring transparency and value for money.
- Risk, Compliance, and Controls: Manage relationships with external auditors and ensure compliance with all relevant accounting standards. Oversee risk management, financial controls, and regulatory compliance.
Your Profile
The ideal candidate will have a distinguished career in finance, ideally within the non-profit or related sectors, and a proven track record at the Finance Director or CFO level in a multi-country context. Key attributes include:
- A recognised professional finance qualification (e.g., ACA, FCA, CPA).
- Extensive experience in strategic financial planning, budgeting, and managing financial operations in a complex, global environment.
- Strong leadership and team management skills, with the ability to lead a geographically dispersed team.
- Deep understanding of diverse regulatory environments, particularly those relevant to Swiss Foundations.
- Expertise in donor and project funding, FOREX, and cash optimisation in a non-profit context.
- Excellent communication skills, with the ability to engage with a wide range of stakeholders, including Board members, donors, and non-financial staff.
About our Offer
Why Join GAIN? This role offers the opportunity to lead the financial strategy of a growing and highly respected organisation with a global impact. As a member of GAIN’s C-suite, you will contribute to collective strategic decision-making and play a crucial role in driving positive change. If you are passionate about improving global nutrition, thrive in a dynamic environment, and are ready to take on the challenges and opportunities that come with this role, we want to hear from you.
Benefits
Competitive Salary: A competitive salary package will be offered, commensurate with experience and qualifications.
GAIN has a fair and competitive salary structure that allows for annual progression subject to good performance. In addition, GAIN offers a total of 37 days holiday per year (including annual leave, public holidays and additional office closure days), an attractive pension scheme and competitive insurance cover including health, travel and life assurance.
We are committed to the health of our staff, especially in these challenging times, and have developed a programme of wellbeing that includes flexible working, additional leave allowances, wellbeing days, mindfulness coaching and access to independent and confidential counselling.
For more information about GAIN, our work, and the impact we are making, please visit our website.
About GAIN
The Global Alliance for Improved Nutrition (GAIN) is a Swiss-based foundation launched at the United Nations in 2002 to tackle the human suffering caused by malnutrition. Due to COVID19, conflict in Ukraine and climate change, malnutrition and hunger have worsened significantly since 2019, reversing a decade of progress. There is growing recognition that our food systems need to change if we are to reverse these trends.
GAIN’s Strategy aims to transform food systems to make healthier diets from sustainable food systems accessible to all people and especially those whose are most vulnerable to shocks. By 2027, we aim to improve the access of 1.5 billion people to nutritionally enhanced staple foods, improve the access of 25 million people to healthier diets, and support positive food system change in 10 countries. This is bold and complex, and the only way to achieve this is to work together with partners including governments, businesses, and civil society at the country and global level. These goals, and the ways of achieving them, build on our twenty-year legacy of transforming people’s lives with improved nutrition through concerted action and effective policy change.
Our Working Culture and Environment
We provide a flexible working environment that includes a combination of home and office working opportunities through our global hybrid working policy. This encourages our staff to have a healthy work-life balance and increases staff motivation, enriches employee wellbeing, and improves performance and productivity.
All of our positions are based in one or more of GAIN’s designated offices as stated on our job advertisements. Successful candidates will be based in one of GAIN’s country offices and must have the existing right to live and work within a reasonably commutable distance of the relevant city / cities in which the role is advertised. Please note, that GAIN does not sponsor working visas and relocations.
GAIN reserves the right to withdraw an offer of employment for candidates who are considered to ineligible under the above conditions during or after the recruitment process.
To apply, please go to our website and follow the links to Careers at GAIN.
This advert closes on 27th September 2024. Early applications are encouraged. GAIN reserves the right to close this advert early should we receive suitable candidates ahead of the closing date.
The Global Alliance for Improved Nutrition is committed to equality of opportunity and creating an inclusive environment where diversity is valued. We are keen to reflect the diversity of our society at every level within our organisation and therefore welcome applications from talented and committed people from all backgrounds, representing the diverse societies we operate in.
The client requests no contact from agencies or media sales.