Engagement and Communications Co-ordinator

PMRGCAuk is a small national charity dedicated to supporting people affected by polymyalgia rheumatica (PMR) and giant cell arteritis (GCA). We have a big impact, supporting patients with our small staff team and with the help of a proactive team of volunteers and working closely with leading rheumatologists and researchers to improve diagnosis and treatment of these conditions. As we continue to grow, we are looking for a passionate and dynamic Engagement and Communications Coordinator.

Key focus of the role

PMR and GCA are often unknown by the public and among health professionals and this newly created role is designed to support the charity in raising awareness of the condition, in order to improve diagnosis, treatment and outcomes for those affected.

Key responsibilities

·       Be an ambassador for the organisation and for PMR/GCA - making opportunities to raise the profile of both PMRGCAuk and PMR/GCA more broadly

·       To work with medical trustees and patrons to develop a network of health professionals who will advocate for good treatment of PMR/GCA

·       To work at a national level to promote good practice and lobby government, influencing government policy where possible

·       Support the development of a network of volunteer ambassadors who can deliver information talks and awareness-raising activities

·       To support the Deputy Director to develop a strong social media presence and support with specific campaigns

·       To ensure the website is fit-for-purpose and updated regularly, working with trustees, staff members and volunteers to develop content that is up-to-date and useful to all that visit the website

·       To manage the external voice of the charity, including ensuring our information and resources are current and relevant and producing external communications when appropriate.

·       To attend professional events and develop strong networks with health professionals and the wider general public

·       To support the membership strategy, taking every opportunity to encourage membership uptake, including professional membership

·       To support trustees with research, campaigns and awareness raising, including participation on working groups, policy campaigns, lobbying, etc.

 Who We're Looking For:

• A proactive self-starter with experience of communicating with a range of different stakeholders and building networks
• Someone with experience of creating and communicating information in a range of different formats, including public speaking, development of written/video materials and managing the digital presence of an organisation.
• Someone with experience of working in a small voluntary organisation who recognises the needs to be flexible and adaptable
• Someone with knowledge of the UK voluntary sector and a passion for improving health outcomes.
• A strong communicator with excellent writing, project management, and financial skills.
• Someone who is confident with IT systems and has strong digital skills.

Full time – 37.5 hours per week

Salary range £34-36,000 FTE

Fixed term contract – 2 years

Location: Home based with occasional travel to meetings in London

This is a fixed-term contract for a period of two years. The fixed-term nature of the post reflects the charity’s current operational and financial planning cycle. Any extension beyond this date will be at the charity’s discretion based on organisational need and affordability.

Please apply by sending a copy of your CV and a cover letter (no more than 2 sides) outlining why you feel you would be the perfect fit for this role and what you could bring to the organization.

Potential applicants are sometimes put off if they don’t meet 100% of the requirements. We think individual experience, skills and passion make all the difference, so if you meet the majority of the criteria, we’d love to hear from you.

Closing date: 5th March 2026