Patient advocacy and policy officer jobs
About us
Join our team at the MPS Society, one of the leading rare genetic disease charities in the UK aiming to transform the lives of individuals and their families affected by MPS, Fabry and other related lysosomal diseases. This is a rare opportunity to join our Support & Communities teams who provide direct support, practical guidance and other patient focused activities to over 1500 members and their families, UK-wide.
Our Support Team raise awareness both within the MPS community and external agencies, offering information, advice, support, and advocacy in a range of areas including clinical management, health and social care, housing, education, transition, independent living, palliative care, and bereavement.
Ideal candidate
As a Senior Support Officer, you will primarily be responsible for raising awareness and providing a high-quality support and advocacy service to our members and their families. You will be a relationship builder who cares about the community we serve and ensures that the individual (or family) remains at the centre of support. You will have experience in multi-agency working and an in-depth understanding of the needs of those with disabilities, their families and carers. Demonstrable experience and knowledge of health and social care, education and relevant assessment processes are essential.
As deputy safeguarding lead officer for both shildren and vulnerable adults you will take the lead in the absence of the safeguarding leads and be confident sharing your knowledge with new recruits through mentoring.
You will have excellent written and oral communication skills, with the ability to uphold best practice, challenge poor policy and inappropriate decisions. Excellent IT skills and the ability to plan, prioritise and deliver to tight timescales are essential. You will be self-motivated and highly organised, juggling many strands of work.
As part of a small, dedicated team, you will have a positive attitude and a willingness to work collaboratively with your colleagues and external parties to raise awareness, advocate for our membership, as well as supporting the delivery and development of services for the MPS Society community.
Whilst a relevant qualification within health & social care, education or a related field is desirable, other knowledge and work experiences may be equally as valuable in this role. Prior knowledge of MPS and related conditions is not required however a special interest in neurology and working with individuals with neurological disabilities is advantageous. In-depth support and training to develop expertise in MPS and related conditions, and the needs of those affected by these progressive, life-limiting conditions will be provided.
What we can offer you
Join us and you will be working for a caring charity offering:
- A competitive salary
- Generous annual leave of 25 days plus bank holidays (pro-rata for part time hours)
- Extra leave between Christmas and the New Year
- Pension
- Life assurance (subject to the conditions of the scheme)
- Employee assistance programme offering support 24/7
Further information
The successful candidate must be eligible to work in the UK.
This is a full-time role (35 hrs per week) however part time hours, with a minimum of 28 hrs per week may be agreed for the right candidate. Salary will be pro-rata for part-time.
The main duties, responsibilities and essential requirements of this role can be viewed on the attached job description.
This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.
This role is offered on a hybrid basis with a minimum of 2 days in our Amersham office each week. As part of the role, UK wide travel is necessary. This may on occasion include early morning and/or evening working and sometimes overnight stays. You may also occasionally be required to attend evening or weekend conferences and events. We have policies in place to ensure that any unsociable hours worked are fairly compensated.
We encourage candidates to visit the MPS Society website to learn more about us and the community we serve. Alternatively, if you would like an informal chat about the role or the work of the MPS Society, please contact Bethanie Pentecost.
Disclosure & Barring Service (DBS)
The MPS Society is a charity that provides a range of care, support and activities for children and adults at risk throughout the UK. This is provided through our dedicated support and advocacy service, telephone helpline, clinical research, online activities and forums, annual events, patient expert meetings, focus groups and conferences. MPS staff, trustees and volunteers may be asked to be involved in the delivery of its regulated services and activities.
This post is exempt under the Rehabilitation of Offenders Act 1974. Due to the sensitive nature of the duties undertaking, the post holder will be expected to undertake a DBS check as part of the recruitment process and for this to be reviewed on a regular basis.
Next steps:
Applications: Please provide your CV and a supporting statement (maximum 750 words) outlining your understanding of how rare, complex and progressive conditions such as Mucopolysaccharidoses (MPS), including their neurological impacts, can affect individuals and families across the life course. In your response, please describe the experience, skills and approaches you have developed that would support you to carry out the Senior Support Officer role, including (where relevant) supporting people with complex needs, working across health, education and social care systems, and providing advice, advocacy or casework support.
Kindly note, applications received without a supporting statement will not be considered.
Closing Date: Whilst we have an initial closing date of 20th March, we reserve the right to close this vacancy early if we receive enough suitable applications to take forward to interview and assessment.
1st interviews: Initial virtual interviews will be held end March/early April.
2nd interviews: Final face-to-face interviews and assessments will be held on 16th & 17th April at MPS House, Amersham.
To transform lives through specialist knowledge, support and advocacy, and research.
The client requests no contact from agencies or media sales.
About the role
The Social Media and Marketing Officer will deliver high-performing digital marketing campaigns that drive supporter acquisition and engagement. Working within the charity’s Policy and Communications team, you will focus on content creation to support a broad range of charity initiatives, ranging from fundraising campaigns to promoting events including our annual conference and signature fundraising event, the Duchenne Dash, and disseminating news to our stakeholders and community.
Reporting to the Director of Policy and Communications, you will lead the execution of digital campaigns, work to strengthen our presence on social media and grow our audience to amplify our communications and marketing activity, produce impactful marketing materials, work with community representatives and ambassadors to develop case studies and support with wider marketing and communications activity.
In the role you will:
- Support the implementation and delivery of multi-channel campaigns that build awareness of Duchenne UK’s work, promote our events, projects and outputs, and support fundraising goals.
- Take responsibility for the charity’s social media channels (Facebook, Instagram, LinkedIn and TikTok), ensuring consistent, engaging, and mission-led content – planning, scheduling and publishing content.
- Help manage the digital marketing content calendar and coordinate content with colleagues across the organisation.
- Create a variety of digital content, including graphics, videos, reels, stories, blogs, and newsletters.
- Monitor and, where appropriate, respond to, and engage with followers and messages.
- Manage the charity’s regular e-newsletter using tools such as Dotdigital.
- Stay up to date with trends in digital communication and identify opportunities for innovation.
- Create detailed campaign plans, including channel selection, content requirements, and delivery timelines.
- Monitor campaign performance using analytics tools and dashboards, providing actionable insights.
- Ensure staff and volunteers feel informed and inspired through engaging internal updates and on-brand messaging.
- Harness social media channels to raise the profile of the organisation and promote our work and policy positions and grow our audience on LinkedIn, Facebook and Instagram.
Person Specification
Essential experience:
- Experience of writing for a range of audiences and using different channels to produce convincing, clear and succinct content across a range of platforms such as socials, blogs, web and print.
- A strong eye for detail and the ability to create content that resonates.
- Experience of using digital and social media for influencing and campaigning purposes.
- Experience supporting the development of and implementing social media strategies to increase engagement, reach and donations.
- Experience managing competing demands, meeting deadlines, and juggling multiple projects effectively.
Essential skills and attributes:
- Highly motivated with a passion for improving the life outcomes of people living with DMD. Proficient with all main Microsoft Office packages
- Ability to demonstrate sensitivity to the needs of patients and families, with resilience to navigate challenging situations.
- Proficiency with digital platforms, content management systems, and marketing tools.
- Excellent interpersonal skills with people of all ages and backgrounds.
- Ability to work on own initiative.
- Ability to build excellent working relationships both internally and externally.
- Good organisational and workload management skills.
Desirable experience:
- Experience delivering impactful social media led fundraising strategies
- Experience running social media presence for an organisation and harnessing social media to promote and showcase events
- Experience using Dotdigital or similar digital marketing software and producing newsletters and other marketing emails.
Desirable skills:
- Graphic design skills and working knowledge of Canva and Adobe design suite.
- Experience with Pay-Per-Click (PPC) campaigns across platforms such as Google Ads and Meta Ads Manager.
Benefits
- 25 days of annual leave + 8 days of public holidays (both pro rata)
- Summer Fridays – half days on Fridays in July and August (pro rata)
- Flexible working policy
- Hybrid working with a minimum of 2 days in the office per week
- Standard Employer Pensions contributions after 3 months
- Team wellness day and team away day
- Training and development opportunities
Terms and conditions
The appointment is subject to satisfactory references and an initial six-month period of probation, during which performance will be regularly reviewed.
The applicant must have the right to work in the UK and provide relevant ‘right to work’ documentation.
Relevant training will be provided during induction as well as opportunities to develop your career through experience of different aspects of the charity’s work and working with colleagues on new initiatives.
Sound like the job for you? We’d love to hear from you.
The client requests no contact from agencies or media sales.
As Helpline Care Navigator (HCN), you will act as the first point of contact for individuals, families and health professionals across the North and North East region.
You will deliver compassionate, person-centred support and clear, practical information via telephone and email, ensuring people affected by PSP & CBD feel heard, informed and supported at every stage of their journey. Alongside direct support, you will actively engage with health and social care professionals, neurology clinics and wider partners to strengthen local awareness of PSP & CBD and enhance referral pathways across the region.
This is a key role in maintaining continuity, quality and momentum within our Helpline service during a period of maternity leave and you will be reporting to the Helpline and Support Services Manager.
Hours of Work & Annual Leave
- 35 hours per week - this may include working some unsociable hours, including evenings and weekends.
- 28 days plus bank holidays. Pro-rated for part time role.
The main office is in Milton Keynes, and we have a hybrid working policy with most staff spending one day a week in the office and the remainder working from home. There is flexibility in the arrangements that need to be agreed upon with the line manager.
Key Responsibilities
- To be ‘first point of call’ for people with PSP & CBD and their families living in North and Northeast region including, Greater Manchester, Merseyside, Lancashire, Cumbria, North Yorkshire, Tyne & Wear & Northumberland. Providing people with support and information over the phone and via email.
- To raise awareness of PSP & CBD across all health and social care disciplines in the region by engaging with HSCP’s and neurology clinics.
- To provide accurate information in all aspects of PSP & CBD in response to enquiries and signpost onto other organisations where appropriate.
- Ensure a maximum response to all helpline calls, emails and enquires.
- To keep clear and accurate records and statistics of enquires received and actions taken.
- To carry out a maximum number of proactive calls to people affected by PSP & CBD within the region as directed by the Helpline Manager.
- Develop and maintain the existing database of key health and social care professionals and regional services.
- Attend outreach events to build the profile of PSPA services amongst health and social care professionals.
- Work with the Director of Policy and Influencing to identify ways in which services and care can be improved for families affected by PSP & CBD in the region.
- To signpost to PSPA Support Groups and services.
- Liaise with external services to signpost to local support.
- Take an active part in the delivery and planning of information and support events, which may include the possibility of overnight stays and weekends.
- Liaise with the fundraising team to signpost to fundraising activities.
- Liaise with the Volunteer Coordinator to maintain and build volunteering in the region.
- To attend and contribute constructively to team and other meetings as required.
- To ensure the implementation of policies, procedures and quality standards as defined by PSPA.
- Contribute to the development of literature and articles for PSPA Matters.
- To undertake any other tasks, by agreement as required, in support of the work of PSPA.
The duties may be changed and/or varied to meet changing circumstances at the discretion of the CEO and Board of Trustees.
Person Specification
Essential Criteria:
- Experience in delivering helpline and/or information and support services
- Excellent listening and interpersonal skills, with the capacity to listen actively understanding different points of view
- Ability to keep accurate records
- Willingness to undertake training and continuing personal development
- Experience of and sensitivity to communicating with audiences from a range of backgrounds
- Strong IT skills, with experience in MS Office products and customer relationship management software
- Flexible and reliable attitude and the ability to self-organise and to work without direct supervision
- Good communication skills, both oral and written and excellent telephone manner
- Ability to manage difficulty questions, emotions and situations in a calm and confident way.
Desirable Criteria:
- Knowledge of PSP & CBD or other neurodegenerative diseases and/or experience of working in the NHS
- An understanding of Safeguarding and an ability to follow relevant policies and procedures
- Knowledge of healthcare or social care systems.
For more information about this role, please visit our website.
Benefits
- Pension Scheme
- Employment Assistance Programme
CREATING A BETTER FUTURE FOR EVERYONE AFFECTED BY PSP & CBD.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Have you got what it takes to help St Margaret’s Hospice raise over £10m+ every year? Do you have a passion for people and building relationships to realise vital income? Do you have experience of fundraising or the commercial acumen to know what makes a great charity retail brand? Can you craft a compelling case for support and negotiate multi-year six figure grants?
Join St Margaret’s Hospice as our Director of Income Generation and play a vital role in ensuring fundraising and retail remain central pillars of our new five-year strategy.
What can you expect to be doing?
As a senior leader, you’ll help shape the future of St Margaret’s at a defining moment for the hospice sector, where financial sustainability is essential.
Hospices play an integral role in local communities, and here at St Margaret’s, we pride ourselves on thinking of our income generation activities as an extension of the care and compassion that is core to who we are.
Working closely with your peers within the executive, as well as the Board, you’ll be an ambassador for St Margaret’s, and expected to represent the hospice. You’ll develop and own pivotal relationships both internally and externally, and role model the values of compassion, collaboration and ambition, while holding yourself and others to account so the best interests of St Margaret’s are always met.
What can you expect to be good at?
From legacies to lottery, challenge events to collections, merchandising to retail operations, you’ll know how to raise significant funds, and will be experienced in leading and inspiring teams to achieve their goals.
Ideally, you will have a strong grounding in charity, either as a fundraiser yourself or having worked in charity retail. Alternatively, you may have transferable skills and the drive to learn and apply your knowledge and experience in a hospice setting.
Either way we are looking for an individual who can demonstrate relevant and lived experience, tenacity, curiosity and a hunger to succeed.
We also welcome high performing individuals who are looking for their first director role.
We invite applications from a diverse range of backgrounds and experiences and are committed to helping you thrive. If you're excited about this role but don’t meet every requirement, we still encourage you to apply.
What can we offer you?
- Salary: £80,000 to £87,975 per annum
- Location: Taunton or Yeovil, with regular travel across Somerset
- Contract: Permanent
- Working Pattern: Full time (37 hours per week), including some evenings and weekends
Holiday entitlement
- 29 days holiday, plus bank holidays, increasing to 33 days after 5 years
- Ability to buy and sell annual leave
Pension scheme
- NHS employees eligible to continue with their NHS pension scheme*
- Non-NHS employees will receive 5.5% employer and 5% employee contribution.
Plus…
- Life assurance cover
- Health Cash Plans
- Virtual medical care with unlimited access to a GP 24/7,
- Confidential and free 24-hour Employee Assistance Programme for you and your family offering: Counselling, Support, Legal, Financial and Medical Information and Advice
- A Vitality & Wellbeing health portal.
- Blue Light Discount Card
- Enhanced maternity leave*
- Excellent learning and development opportunities
- Free on-site parking in Yeovil and Taunton
- Volunteering and fundraising opportunities
*Eligibility criteria applies
How to Apply
Click the apply button to complete the online application form and upload your CV.
As part of the application process, you will be asked for to complete a supporting statement detailing how your skills, knowledge and experience align to the person specification.
You can learn more about the role via the candidate pack attached to this advert or, for an informal chat with our CEO, Joanna Hall, contact the Recruitment Team.
With a new CEO in post, and momentum being built as we roll out our new strategy – it’s an exciting time to join the team. We look forward to learning more about you and why you think you can be a great match for St Margaret’s.
Closing date: 6th March 2026. We may close this vacancy early if we receive sufficient applications for the role.
Unfortunately, we are not able to offer visa sponsorship at this time.
DBS Information
This role requires a criminal background check via the disclosure procedure.
The Disclosure and Barring Service offers a confidential checking service for transgender applicants. This route gives applicants the choice not to have any gender or name information disclosed on their DBS certificate and is available for all levels of DBS check.
The client requests no contact from agencies or media sales.
CamRARE is on a mission to make life with a rare condition easier through connection, collaboration and community.
Applications close: 9 a.m. Monday 9th March 2026
Location: Hybrid (with in person meetings in Cambridge and across the UK)
Who we are
CamRARE are a well-established, well-respected charity with a strong track record of impact over the past decade. We exist, as there are over 10,000 rare conditions that affect 400 million people globally. Receiving a diagnosis can take years. Most rare diseases have no treatment and often poorly coordinated care.
Our goal is to have a strong collective voice in improving services and influencing policy so that families affected by rare conditions can access good healthcare, find a diagnosis, reach the right treatment or support.
We are now at a pivotal point of growth. We are investing in the next phase of our development, supported by a strong budget and a healthy level of unrestricted reserves. This growth brings opportunity, but also responsibility.
We need a Chief Executive who can lead our fundraising strategy, build a sustainable business plan and grow our reach and visibility so that more families can access support.
A distinctive feature of our work is that we connect two pillars that are often kept separate: community and research. Through our unique in-person community, we bring families together in a way that is rare in this field. In parallel, we are building an ambitious research focus, including an emerging platform designed to connect patients and researchers, support new ideas, and strengthen patient-led research. We believe families and researchers achieve more when they work together, and we are proud to be a trusted connector with a broad network.
Leading CamRARE
As Chief Executive, you will provide strategic leadership for the charity, oversee governance and operations, develop and execute the strategy set by the Board of Trustees, and build key external partnerships. This role leads fundraising efforts and develops high-level external stakeholder relationships with Government bodies, including healthcare organisations/departments, Industry, patient and charity organisations, and Research Institutions involved in rare disease.
This is a key role to build, strengthen and nurture the charity's connection with the rare disease community, empowering them and fostering an inclusive and supportive network.
We are looking for someone who can:
- Lead the next chapter of our strategy with the Board, translating ambition into clear priorities and a deliverable plan
- Develop and drive a compelling fundraising and income generation strategy, including exploring novel and commercial routes where appropriate
- Be the public face and voice of the charity, with the ability to listen deeply to families and communicate their needs with clarity and credibility
- Sustain, enhance and grow community support, including improving reach into underserved areas and strengthening what we offer across key life stages
- Strengthen and stabilise funding for our research work, including the next phase of our research network platform and services that can generate income from research partners
- Build confident, values-led leadership across the staff team, with strong emotional intelligence and a people-first approach
About you
We are open-minded about background, but we expect you to bring:
- A strong track record of revenue generation, fundraising, and building sustainable income
- Strategic leadership capability, with the creativity and judgement to stay focused and avoid diluting impact
- Confidence in representing an organisation externally, including public speaking and partnership-building
- High emotional intelligence and a leadership style that puts people first
- Comfort working in a flexible pattern, with regular in-person presence at events in Cambridge, London and across the UK (and occasionally Europe)
Working pattern and accessibility
The role is flexible, with an expectation of roughly 60% remote working and 40% in person, including travel for events and meetings.
We are also open to discussing options such as compressed hours or an 0.8 FTE arrangement, depending on the candidate and what will set the role up for success.
We are committed to inclusion and accessibility and can offer adjustments throughout the process. We also have experience supporting colleagues through Access to Work.
Why this opportunity?
This is a CEO role with genuine scope to shape the next five years. You will inherit a strong foundation, a committed Board, and a team that cares deeply about families and impact. If you are motivated by growth, visibility, and meaningful change, you will find huge purpose here.
Please click 'Redirect to recruiter’ to be redirected to the Peridot Partners website, where you can find full details of the candidate profile and register your interest to apply.
Applications for this role close at 9 a.m. Monday 9th March 2026
We’re an executive search firm working across third sector, education and membership sectors to transform leadership and inspire change.
We are delighted to be partnering with the British Society for Haematology (BSH) to recruit a permanent Policy Officer to join their Impact and Evidence team.
With over 3,000 members worldwide, BSH is the largest UK organisation dedicated to all aspects of haematology. Since 1960, they have brought professionals together to transform patient care. This is an exciting opportunity to play a key role in shaping policy that supports the haematology workforce and improves outcomes for patients across the UK.
As Policy Officer you will lead on monitoring and analysing the political and policy landscape relevant to haematology, developing evidence-based briefings, reports and recommendations for senior leadership and external stakeholders. You’ll build and manage relationships with funders, members and partners, contribute to advocacy strategy, and represent the Society at key events.
We’re looking for a strong communicator with experience of working within a charity or membership policy environment, who can translate complex information into clear, compelling messaging for a range of audiences. You’ll be highly organised, politically aware, and comfortable managing competing priorities in a fast-moving external landscape. A genuine interest in influencing change and improving the experience of a professional membership community is essential.
What makes this role unique?
You’ll join a small team with lots of opportunity to take ownership and influence changes. The society is led by an ambitious CEO, who is looking for a collaborative team-player who is excited to build relationships with their funders, members and partners. They are also undertaking a big digital transformation project, and an increasing brand awareness in the sector means there is a great opportunity to utilise connections and become a player of note in the health sector.
- Location: Angel, London.
- Hybrid working: 2 days a week in the office. This includes a team anchor day, fortnightly, every other Wednesday.
- Closing date: 9am Tuesday 3rd March. Please apply now for more information and the full job description.
- Interviews will take place in the London offices, w/c 9th March
If you’re passionate about evidence-led policy and want to contribute to meaningful change within a respected national medical membership organisation, we’d love to hear from you.
As leading charity recruitment specialists and a certified B Corp™, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.
Campaigns and Public Affairs Officer
We’re looking for a Campaigns and Public Affairs Officer to help turn insight, lived experience and evidence into powerful public campaigns that drive change for people affected by bowel cancer. You’ll play a hands-on role in delivering creative, inclusive campaigns that mobilise supporters, grow engagement and help people take meaningful action across the UK. Working closely with colleagues across policy, communications and fundraising, you’ll support the design and delivery of campaign actions, digital activity and events, while also contributing to our wider influencing work with decision-makers. This is a UK-wide role, with an initial focus on devolved nations, ideal for someone who’s passionate about campaigning, motivated by impact and excited to be part of a team pushing for earlier diagnosis and better care.
About Us
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.
We currently have around 95 staff based in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to grow our staff team to deliver our ambitious strategy, On a mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a future where nobody dies of bowel cancer.
Safeguarding
Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.
Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Corporate Partnership Officer
Alton, Hampshire
(flexible/remote but with weekly visits to our charity’s head office in Alton, Hampshire)
Up to 35 hours per week
Permanent
C.£30,000 depending on experience
About us
7.2 million people in the UK have chronic kidney disease (CKD), a diagnosis that can turn your world upside down.
For 50 years, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by this lifelong condition. We continue to provide practical, emotional, and financial support for individuals and their families, while also working with healthcare professionals to improve care services and campaign for change.
Kidney disease can affect anyone and there is no cure. We are here for the young and the old, for those struggling to make ends meet, for families and loved ones. We fight tirelessly, giving our total support, to improve the lives of kidney patients and their families.
We’ve grown significantly over the past five years. But this is just the start – we want to grow our income significantly in the next three years. We have to – there are so many people who need us.
We’ve been making quite a splash recently – our ‘Cost of Staying Alive Report’ made the front cover of The Guardian last year, and the follow up ‘Left Out in the Cold’ report was recently featured on Sky News and in The Evening Standard. Our ‘Priced Out of Existence’ campaign was shown on the BBC 6 o’clock and 10 o’clock News and referenced by media across the UK. Our #BloodyAmazingKidneys campaign has reached more than 6 million people and 294,000 of those have taken our digital kidney health checker.
We’re building partnerships with leading companies across the UK, raising the profile of kidney disease and working with them to make sure that their customer service teams understand the needs of kidney patients throughout the country, working with them to make sure that kidney patients are top priority for their vulnerable customer teams. We’re working with global pharmaceutical companies developing world class patient information and advice. And we want to identify more companies in different sectors who are passionate about supporting people with kidney disease, which is why we are expanding our Corporate Partnerships team.
The charity is set to build on this success and aims to continue this growth, so that we can reach more kidney patients and their families, providing critical support at a time when it is needed now more than ever.
About the role
The Corporate Partnerships Officer will play a key role in this growth, managing and securing new corporate partnerships with support from the Corporate Partnerships Manager. Our corporate partnership income has grown from zero in 2020 to c£2.3 million in 2025. It is a very exciting time to be joining the charity and our Fundraising team.
Primarily, you will be responsible for managing your own portfolio of corporate partnerships, growing strong relationships, delivering partnership activities, and proactively securing new corporate partnerships, including charity of the year relationships. You'll further support the Corporate Partnership Manager and Director of Fundraising, Marketing and Communications as needed with key activities within larger partnerships, developing a well rounded understanding of how Kidney Care UK works in partnership.
You will also work closely with the Events, Marketing & Communications teams to promote and support all opportunities to drive corporate income growth ensuring strong collaboration.
Key duties will include;
- Managing relationships with key contacts,
- Delivering partnership activities such as renal unit visits or training presentations to key staff,
- Delivering informative annual reports,
- Proactively secure and onboard new partnerships within your target area.
You will do this by stewarding the significant number of existing relationships and partnerships we already hold and maximising any opportunities that exist. Alongside this, you'll be working with the Corporate Partnership Manager to manage a personal goal of generating new partnerships through proactive engagement to and through our supporters, beneficiaries, networks, and contacts.
The right candidate will have a proven record of building strong and rewarding relationships, and confidence in managing and building these relationships autonomously. You will be a driven and enthusiastic fundraiser with experience of cultivating new relationships across a range of businesses and sectors and a willingness to learn and develop your skills.
The role will adapt and develop with the individual and offers huge potential for personal and career development.
What we offer
Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their family:
- Flexi-time – we are flexible about start and finish times, and flexible about your location.
- Annual and Christmas leave – we offer 25 days annual leave for full time employees plus bank holidays. We also close for three days between Christmas and New Year, and you don’t need to take this from your annual leave allowance.
- Pension – you’ll be eligible for and auto-enrolled into a pension scheme.
- Health cashback plan – ability to claim back a wide variety of routine medical treatments.
- Employee Assistance Programme – access to a wide variety of support including counselling, health resources and advice.
- Cycle2Work scheme
- Learning and development – you’ll be able to access the full benefits of our membership of Fundraising Everywhere and Charity Comms.
We are the UK's leading kidney patient support charity



The client requests no contact from agencies or media sales.
Job Title: Health Advocate Educator - Maternity Cover
Location: Warwickshire
Salary: £25,857.12 per annum
Contract type: Full Time, Fixed Term (Until 1 April 2027 - Maternity cover)
Hours: 37.5 hours per week
This is an opportunity to join Refuge as a Domestic Abuse Health Advocate Educator supporting women and children who are impacted by domestic violence. You will work closely with victims of domestic abuse from the point of crisis, to provide high quality independent advocacy and support to survivors of domestic abuse at the highest risk and their children.
The Health Advocate Educator will support healthcare teams to identify domestic abuse at an early stage and ensure appropriate responses and referral pathways are offered to female, male and non-binary survivors of domestic violence and abuse. In addition, the post holder will directly support survivors of domestic abuse and hold their own case load.
The post holder will collaborate with the local ICB and Service Manager to strengthen connections with healthcare teams and create effective partnerships that support survivors.
This post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies.
Closing Date: 09:00am 9 March 2026
Interview Date: 16 March 2026
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Join an amazing charity that makes a difference for the 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.
We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.
As part of our safer recruitment and safeguarding responsibilities, this role requires a DBS check and professional/character references. We are committed to inclusion and will consider each application fairly.
About you;
This is a terrific opportunity to play a fundamental role as Helpline and Support Officer at Muscular Dystrophy UK’s and provide tailored advice and practical support to individuals and families affected by muscle-wasting and weakening conditions.
This is a new, 12months fixed term, full-time position that has been created to strengthen the delivery of key services, improve efficiency, and enhance the overall experience for those we support as we deliver our new strategy.
The Helpline and Support Officer role sits within the Services and Support Directorate and provides tailored advice and practical support to individuals and families living with muscle wasting and weakening conditions from the point of diagnosis and beyond.
You'll support people to navigate the UK’s health, social care and welfare systems, enabling access to the services, benefits and equipment they are entitled to.
You'll be involved in informal advocacy, helping service users communicate their needs to overcome barriers; while ensuring they receive high-quality and ongoing support throughout their journey.
About us:
Muscular Dystrophy UK is a charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically.
This is an exciting time to join Muscular Dystrophy UK. We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.
Values and behaviours:
- A positive attitude and approach that reflect the charity’s values.
- Seek opportunities to contribute to the development of the charity.
- A commitment to and an understanding of disability issues, equality, diversity and inclusion.
- Always demonstrate role model behaviour.
Benefits:
We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We believe in supporting our people both professionally and personally.
Alongside a competitive salary, we offer a comprehensive benefits package designed to promote wellbeing, work–life balance, and career development. Our offerrange of benefits includes great pension contributions, life insurance, cycle scheme, health cash plan, employee assistance programme, instant retail and events discounts, and much more...
Location: Head Office, London SE1 (with flexibility for hybrid working)
Closing date: Sunday 15th March 2026
Interview dates: NB: Please note that we are interviewing on a rolling basis and may close the advert earlier than the stated deadline if we successfully fill the role.
Please download the job description to see full role responsibilities
We connect a community of more than 110,000 people living with one of over 60 muscle wasting and weakening conditions and people around them.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
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To navigate the collaboration between BDEF and Adult Social Care (Bristol City Council), making sure that people with lived expertise lead decisions about the services they rely on, guided by the Co‑Production Policy and Disability Equality principles. Please see the attachments for full Job Description and Person Specification, including links to definitions and relevant policies.
Co‑Design and Co‑Production Worker
Hours: 28 hours per week. Must be flexible and be available for occasional work outside of usual work hours.
Salary: £30,229.28 pro rata (depending on successful completion of the Probationary Period). For the hours, this would work out at £24,183.43 annually. Point 7 on BDEF Pay Policy.
Purpose: To navigate the collaboration between BDEF and Adult Social Care (Bristol City Council), making sure that people with lived expertise lead decisions about the services they rely on, guided by the Co‑Production Policy and Disability Equality principles.
Reports to: Director of BDEF.
Based at: Chelsea Room, Easton Community Centre, Kilburn Street, Easton, Bristol, BS5 6AW. However, we support flexible working arrangements and hybrid working as we are committed to supporting our workers to meet their needs. If this is relevant for you, this can be discussed.
Contract: This is a fixed term contract until March 2029.
Access: We are a Disabled people led organisation. This role is for Disabled people to apply for. As such, support to make reasonable adjustments and/or support to apply for Access to Work will be embedded from the start of working with us.
As an organisation, we also use Social Model Identity First language such as ‘Disabled people’ and ‘impairments’ or ‘health conditions’.
We know there are Disabled applicants who will have faced many barriers in developing their careers. When you read the job description and person specification, think about your potential to meet the requirements.
If there are items on the person specification where you feel you don't strictly meet the skills or experience listed but you already have strategies, support, or technology to meet these skills in a way that works for you (or you feel with the right support you could excel at) then please apply.
Co-Design and Co-Production
BDEF’s Director previously supported Bristol City Council Adult Social Care to create a Co‑production Policy. This policy was developed because there was no clear, fair, or consistent way for the Council to involve people with lived experience of using Adult Social Care services.
The policy:
- Is designed through co-production between Disabled people, Carers, Community and Voluntary Sector workers and council officers.
- Clearly defines consultation, engagement, co‑design and co‑production.
- Sets expectations for inclusive, equitable involvement.
- Has been fully adopted and approved by Adult Social Care.
- Is intended to guide all future Adult Social Care work.
Following feedback, Bristol City Council has now contracted BDEF, a Disabled‑people‑led organisation, to take this work forward. This, as part of this contract, role will focus on supporting, embedding and putting the policy into practice, ensuring that people with lived expertise are meaningfully involved in shaping Adult Social Care services.
The role will work closely with people with lived expertise of Adult Social Care services (Disabled people and carers among others), Bristol City Council Adult Social Care officers, community and voluntary organisations and BDEF colleagues. The role holder will work directly with BDEF Director who will offer advice and support.
The main duties will include:
1. Planning and delivering agreed co‑design and co‑production projects (up to three per year, or fewer larger projects). This will involve working jointly with the Council and people with lived expertise throughout each project. There will be a need to make sure that projects follow the Co‑production Policy.
2. Facilitating quarterly sessions of the Co‑production Policy Advisory Group who are the people who helped create this policy. Their remit is to offer advice to council officers on how best to use the Co-Production policy within their work.
3. Building and maintaining relationships between community members, the Co-Production Policy Advisory Group, community and voluntary organisations, Adult Social Care at Bristol City Council, and BDEF (Bristol Disability Equality Forum).
4. Supporting Disabled people and others with lived expertise to take part fully and confidently and help people to understand their role and how their input influences decisions. This will also mean identifying and connect with new people with lived experience who want to be involved.
5. Making sure that all projects involve people with a diverse range of experiences, identities and cultures and who are representative of Bristol’s communities.
6. Monitoring progress and report impact, tracking the progress of co-design and co-production work. This would include producing clear, accessible reports at the end of each project.
7. Where possible and appropriate, support Council officers to work in a co‑productive way. This would include promote correct usage of co‑production language and definitions.
8. To make sure that the right range of support available is accessible and that people with the widest range of impairments and differences are included.
9. To implement BDEF’s Equality, Diversity and Inclusion policy and to develop and share anti-discriminatory practice and to challenge any systemic oppression, discrimination, prejudice and stereotyping amongst Disabled people and in other organisations.
10.To work within BDEF’s safeguarding policies and to develop best practice in safeguarding and supporting adults at risk.
Any other tasks corresponding with the post, as required. Whilst this summary is detailed, it does not necessarily specify every task or activity required to achieve these outcomes.
General Accountabilities:
So far as reasonably practicable, the post-holder must promote safe working practices with regard to both themselves, volunteers and anyone else in the office or at meetings.
Work within the Codes of Conduct, Constitution and all other policies of BDEF.
Make sure that output and outcomes (quality of work) are of a high standard and comply with current standards.
Undertake any other duties, determined by the Director and trustees, as required.
Context:
BDEF is a voluntary sector charity of, and for, all Disabled people who live, work or study in the Bristol area. It seeks to engage with Disabled people in the Bristol area in identifying and addressing equalities issues of concern to both our existing and potential members.
Deadline:
Please return the application (in whatever form you choose) by 5pm on Tuesday 24th March 2026.
We will accept applications in the forms of written word, voice recording and/or video if writing an application form isn’t the best format for you. Application packs are also available in accessible formats.
If you would like this application form in any other format or would like to submit your application in a different format, please contact us.
With your CV, please include minimal relevant experience, including volunteering, professional and other. The focus in assessing your application will be based on your answers to the screening questions.
We will not accept applications that appear to be written entirely by generative AI without personal input.
The client requests no contact from agencies or media sales.
Context
Our vision is to bring hope to every one of our patients across London, when they need us most, where they need us most. Our mission is to use everything we know, our specialist skills and unmatched experience to save lives and ensure the best outcomes for every one of our patients and their families. We’re a charity that works alongside the NHS and our life-saving service is made possible by our supporters.
This is an exciting time to join London’s Air Ambulance Charity. In early 2025, we launched our new 15-year strategy, setting the direction for the service to our 50th anniversary in 2039. This strategy gives us the opportunity to tell the unique story of the service – we see more incidents requiring life-saving care at the scene than any other air ambulance service. London brings unique challenges and our new strategy requires us to tell a broader story of what we do and the impact we have.
Alongside this, we’ve developed an ambitious Engagement Strategy to put the people of London at the heart of our fundraising and marketing. Legacy giving is a critical part of our long-term sustainability, and this role is central to embedding a culture of legacies across the organisation. We’re at the early stages of our legacy programme, so this role presents a real opportunity for someone to grow and develop a successful income stream, as well as ensuring our supporters have meaningful opportunities to make a lasting impact.
About the role
The Senior Legacy Manager will lead the development and delivery of London’s Air Ambulance Charity’s legacy programme, ensuring legacy giving is embedded across fundraising and marketing activity and is front of mind across the organisation.
This role is responsible for managing our legacy marketing programme, working closely with the marketing team to deliver compelling, sensitive and effective activity. The postholder will also oversee our outsourced legacy administration partner, ensuring legacy gifts are processed efficiently, compliantly and in line with best practice, through regular performance monitoring and review.
Working across the Fundraising and Marketing Directorate, the Senior Legacy Manager will champion legacies as a vital form of support, collaborating closely with all teams in the directorate. This will include working with the major donor team to identify and develop high-value legacy opportunities and supporting the community engagement team to integrate in-memory and legacy messaging into the community talks programme and engagement activity within the community.
The role also plays a key part in connecting our legacy and in-memory programmes, working with the community engagement team and the Deputy Director to develop a joined up in-memory strategy that ensures a coherent and compassionate supporter experience.
About the person
You’ll be an experienced and confident legacy fundraising professional with a passion for building long-term impact. You’ll be a strong collaborator who can influence across teams and seniority levels, and a persuasive advocate for the importance of legacy giving. You’ll combine strategic thinking with hands on delivery, ensuring legacy activity is well planned, insight led and supporter centred. Comfortable working across disciplines and a self-starter, you’ll play a key role in embedding a culture of legacies across London’s Air Ambulance Charity.
The client requests no contact from agencies or media sales.
Salary: £38,000 per annum
Hours: 37.5 hours per week
Location: Hybrid working, with regular attendance at Head Office
Duration: Permanent
The Role
The Marketing and PR Manager leads Devon Air Ambulance’s media relations, public relations, and integrated marketing activity to build awareness, advocacy, and income, shaping the organisation’s narrative through compelling PR and multi‑channel campaigns while safeguarding its reputation. They will manage proactive and reactive press activity, oversee social media strategy, produce and approve high‑quality content, and maintain strong relationships with media and stakeholders. The role works collaboratively across teams to create cohesive supporter journeys and develop patient and supporter stories. Additionally, the postholder integrates AI‑enabled and monitoring tools to enhance coverage and content quality, ensures brand and regulatory compliance, and line‑manages the Marketing and Communications Officer to support workload, development, and wellbeing.
The Candidate
We're looking for a strong communicator with proven PR and marketing experience. You will create compelling content, lead multi‑channel campaigns, manage media relations, and confidently handle sensitive stories. The role will suit someone who is creative, collaborative, and digitally skilled, and someone who will bring professionalism, empathy, and the ability to thrive in a fast‑paced, varied role.
The Package
Salary: £38,000 per annum.
As a valued member of the team you will have access to a wide range of employee benefits including:
- 25 days annual leave plus 8 bank holidays (pro rata)
- Maternity/Paternity & Adoption leave
- Pension scheme
- Occupational sick pay scheme
- Free counselling and financial wellbeing services
Alongside our excellent staff benefits, we will support your ongoing development to build your skills, experience and career.
BVSC is looking for a Grassroots Development Officer to work with small, often informal voluntary, community and social enterprise (VCSE) organisations across Bexley. This role offers hands-on support to grassroots groups delivering vital services designed and led by the communities they serve, particularly those facing health and social inequalities.
The post-holder will provide practical guidance on governance, funding, safeguarding, sustainability, and other organisational development needs. You will help groups strengthen networks, increase visibility, and overcome barriers to growth, supporting them to deliver even greater impact.
This role focuses on organisations working with young people, older residents, minority ethnic (global majority) and migrant communities, people with special educational needs and disabilities (SEND), and communities in the north of the borough where grassroots activity is most needed.
Key areas of work include:
- Identifying: Engaging with grassroots groups to understand their services, users, and development needs.
- Connecting: Building relationships and establishing a network of micro VCSEs to encourage peer support and knowledge sharing.
- Developing: Offering tailored capacity-building support, including advice on governance, funding, communications, coordination, and premises, and coordinating grant rounds.
- Promoting: Supporting recognition of grassroots groups by health partners and the wider community, boosting their visibility and impact.
We are looking for someone approachable, organised, and committed to equality and inclusion, with experience of supporting VCSE organisations and working with diverse communities.
Don’t meet every single requirement? At BVSC we are dedicated to building a diverse, inclusive and authentic workplace, so if you’re excited about this role but your experience doesn’t align perfectly with every criteria in the job description, we encourage you to apply anyway. You may be just the right candidate!
This is a unique opportunity to make a meaningful difference to small community organisations and the people they serve.
At Bexley Voluntary Services Council (BVSC), we’re passionate about strengthening our local voluntary and community sector to make a real difference.
Salary: £34,000 - £36,000 depending on experience
Contract Type: Permanent
Full time: 37.5 hours per week
Benefits: We want all our employees to feel valued and engaged and are committed to offering a positive working culture along with a good work-life balance. As well as ensuring we pay our employees fairly, we offer the following benefits: Flexible working, Generous annual leave, Private Medical Insurance, including dental and optical, Pension Scheme, Sick Pay, Death in Service, Employee Assistance Programme, Bike Loan Scheme, Cycle2Work Scheme, Eyecare, Discount Portal.
Closing date: Tuesday 10 March 2026
Telephone interviews will be held week commencing 16 March 2026
Interviews will be held week commencing 23 March 2026
No agencies please
Be a part of an energetic and vibrant team who are driven by the desire to improve the lives of people living with kidney disease. Our vision is the day when everyone lives free from kidney disease.
The senior campaigns adviser will play a pivotal role in delivering our 2020–2030 strategy. To improve the lives of people affected by kidney disease, we must ensure the condition is firmly on the UK’s health and life sciences policy agenda. In this role, you will help make that happen by developing and delivering powerful, engaging campaigns that mobilise supporters behind our key policy asks.
We are looking for an experienced campaigns professional who is energised by the opportunity to grow and inspire a committed supporter base. You will be a natural relationship-builder with a flair for crafting creative, compelling communications, and you will bring hands-on experience of running effective digital campaigns.
If you are interested in the position, please complete the online application form and submit together with your CV.
We are committed to providing equal opportunities for everyone and encourage applications from all sections of the community.
About Kidney Research UK:
Kidney Research UK is the leading charity in the UK focused on funding research into the prevention, treatment and management of kidney disease. Our vision is the day when everyone lives free from kidney disease and for more than 60 years the research, we fund has been making an impact. But kidney disease is increasing as are the factors contributing to it, such as diabetes, cardiovascular disease and obesity, making our work more essential than ever.
At Kidney Research UK we work with clinicians and scientists across the UK, funding and facilitating research into all areas of kidney disease. We collaborate with partners across the public, private and third sectors to prevent kidney disease and drive innovation to transform treatments.
Over the last ten years we have invested more than £71 million into research. We lobby governments and decision makers to change policy and practice to ensure that the estimated 7.2 million people living with all stages of kidney disease in the UK have access to the most effective care and treatment, and to make kidney disease a priority.
Most importantly, we also work closely with patients, ensuring their voice is heard and is at the centre of everything we do, from deciding which research to invest in to how we plan our priorities and our work across the charity.
Those patient contributions are vital, always helping us and our partners to understand what life is like with kidney disease, always ensuring we see the patient behind the treatment and always reminding us that behind every statistic and every number is a person – the patients and the carers who inspire our mission and push us forward to make a difference and change the future of kidney disease.
You may also have experience in the following: Campaigns Manager, Senior Policy and Campaigns Officer, Advocacy Manager, Public Affairs and Campaigns Lead, Senior Communications and Campaigns Officer, Senior Advocacy Adviser, Engagement and Campaigns Lead, Policy and Campaigns Specialist, Charity, Charities, Third Sector, Not for Profit, NFP, etc.
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