Action for Pulmonary Fibrosis, the UK’s leading health and research charity for Pulmonary Fibrosis is seeking an inspiring CEO to lead strategic growth, advocate for patients, foster partnerships, drive fundraising, and shape innovative research initiatives, providing the visionary leadership to empower our community and transform care for those by pulmonary fibrosis.
Pulmonary fibrosis (lung scarring) describes a group of interstitial lung diseases where the lungs become progressively stiffer and smaller, eventually leading to low oxygen levels in the blood. Pulmonary fibrosis (PF) affects around 70,000 people in the UK. Progressive pulmonary fibrosis is a life-limiting disease. While trends in life expectancy are improving, no one can tell an individual exactly how long they will live, making our work hugely urgent for our community.
Action for Pulmonary Fibrosis (APF) is the leading national charity dedicated to enhancing the lives of individuals affected by pulmonary fibrosis (PF). We are a nationwide charity with a remote-based team and an HQ in Peterborough. Our VISION is to STOP pulmonary fibrosis in its tracks. Established in 2013 by people affected by PF, carers, and healthcare professionals, APF funds support programs (by far the major part of our work), invests in global research and supports other research initiatives, campaigns for improved care and diagnosis, and raises awareness of these diseases. Our pioneering efforts have transformed the landscape of PF awareness and care standards, empowering people and advancing research.
As our next CEO, you will champion the centring of people, drive strategic growth, foster existing and new partnerships, and enhance our fundraising efforts. Leading a dedicated team, you will shape and execute a dynamic five-year strategy, prioritising impactful initiatives to improve the well-being of people. This includes expanding outreach, enhancing care pathways, and influencing transformative change in partnership with stakeholders. You must embody innovation, ambition, collaboration, and resilience to advance our mission and drive positive outcomes for the PF community.
Key details:
Role: Chief Executive Officer (CEO) – Action for Pulmonary Fibrosis
Salary: circa £75,000
Contract: permanent, full time
Location: Peterborough – flexible working but on average, 2 days per week in the office
As well as a strong alignment with our mission, vision and values, you will demonstrate:
- Strategic and entrepreneurial thinking, providing clear direction and rigorous planning.
- Ability to lead, inspire, and motivate high-performing teams.
- Highly effective communication and interpersonal skills, fostering trust and maintaining a positive culture.
- Ambition and innovation in developing realistic and challenging plans.
- Judgement and decisiveness in tough prioritisation decisions.
- Strong ambassadorial skills, building strategic relationships with stakeholders.
- Effective organisational skills and ability to prioritise shifting demands.
- Sharp financial acumen in budgeting and resource management.
- Outstanding track record of strategic leadership, ideally within a national charity.
- Deep understanding of NHS structure, commissioning, and service delivery.
- Proven experience in influencing and developing partnerships with senior stakeholders.
- Sound understanding of service delivery, income generation, and fundraising.
- Accomplished in risk and crisis management and robust governance.
- Desirable: Some understanding of respiratory medicine and the needs of people affected by respiratory conditions and diseases.
If you would like to receive an Information Pack for this CEO role with full details, including how to apply, please send a confidential expression of interest by clicking Apply, which will send your details to our consultant, Jenny Hills at Harris Hill. She will respond with full details. For an informal and confidential conversation about this position, please contact Jenny via the same method with suitable times to talk.
Closing date for applications: 9am Monday, 13th May 2024.
Harris Hill Charities Recruitment Specialists operates an equal opportunity policy and commits to treating all of our candidates and jobseekers fairly. We welcome and encourage applications from everyone regardless of age, disability, sex, gender, sexual orientation, pregnancy and maternity, race, religion or belief and marriage and civil partnerships.
Clicking apply will send your contact details to Jenny Hills, who will reply with a comprehensive appointment brief which also contains details of how to submit a formal application.
For more than 50 years, the British Dyslexia Association (BDA) has been the voice of people living with dyslexia. We aim to influence government and other institutions to promote a dyslexia friendly society that enables dyslexic people of all ages to reach their full potential. The BDA is established as the leading dyslexia charity in the UK.
Unfortunately, the need for our support and services is high. Although awareness of dyslexia and other specific learning difficulties has grown, there are ongoing and widening gaps in access to the identification of dyslexia and the provision of expert learning support. Our national Helpline is busier than ever, supporting almost 5,500 people each year, reminding us on a daily basis why we must keep fighting for the rights of our beneficiaries.
Against a challenging backdrop for so many organisations, last financial year we saw continued growth in income from fundraising and training. We invested in growing our team and identified five strategic objectives for the period 2023-2026, and activities are currently underway to deliver these priorities. Our next CEO will continue to oversee these whilst laying the foundations for our next strategy cycle which we intend to publish in 2026. As such, the timing of this appointment allows the successful candidate the opportunity to work with the Board and other key stakeholders to articulate the long-term vision for our charity, establishing a plan that enables us to expand our reach and deepen our programmes.
The role of CEO at the BDA is one of both challenge and immense reward, offering the chance to lead a passionate and skilled team dedicated to making a tangible difference in society. The ideal candidate will bring strategic thinking, leadership experience and a commitment to promoting inclusion for our beneficiaries in education, in work and in life. The successful candidate will also need to demonstrate their financial acumen and business development and delivery skills, as achieving our mission will depend on financial security and sustainability.
We are excited about the next stage in our development as a charity and the opportunity to support even more people with dyslexia to reach their full potential. If you would like to be part of that journey, then we would love to hear from you.
To download a full copy of the candidate brief and learn more about the role, please click the ‘Apply’ button, where you will be redirected to the website of our recruitment partner, Tall Roots. If you would like an informal discussion about the role, please email Mark Crowley or Natalie Sanders at Tall Roots.