The Brain Tumour Charity Jobs

Job summary:

Recently named Charity of the Year by Just Giving Awards 2022, we’re committed to moving further, faster to accelerate change for everyone affected by a brain tumour. Brain tumours kill more children and adults under 40 in the UK than any other cancer. We know that a cure can’t wait.

Our involvement work brings together our community to mobilise urgent change in research, support, campaigning and awareness through the power of their united voices. The insight from our involvement network inspires and drives all our work across The Charity. This role involves actively engaging and stewarding everyone across all relevant and interested groups. This includes providing support to those living with a brain tumour diagnosis, their family and their friends. As part of our services team, you will ensure we engage all groups including those disadvantaged and less heard from, championing the voices of our wider community to grow our involvement network.  You will also collaborate with those professionally committed to the cause, including our research community, to ensure that people affected by brain tumours have the chance to both shape and participate in research opportunities. You will be responsible for measuring and sharing the difference we are making through the delivery and analysis of our Improving Brain Tumour Care Surveys, empowering the community to identify the gaps in treatment and care experiences, so we can make a difference where it matters most.

Who we’re looking for:

The successful candidate will have experience of working with individuals, groups and communities and have the ability to communicate complex information in clear, engaging ways. As a highly motivated and established champion of community involvement, you will have a proven track record of delivering a programme of involvement activities, including tools and resources to support meaningful patient and public involvement in research. You will be keen to use your leadership and relationship building skills to make a real difference, and have an instinct to listen, support and enable the community to drive change. You will have excellent people and influencing skills and the ability to identify smart opportunities, develop action plans and deliver change. With a willingness to learn, you will be evidence-led and analytical when delivering new approaches to involvement across the organisation.

Key accountabilities:

· Grow the involvement of the community in driving development of The Charity’s work including support, campaigns, fundraising, research and strategy

· Develop the involvement strategy and engage teams across the organisation to maximise the use of involvement

· Promote, advise on, and facilitate involvement activities including but not limited to focus groups, workshops and developing and undertaking surveys

· Collaborate with our Research team, contributing to the design and implementation of policies relating to research involvement

· Steward and look after the involvement network and develop their experience in a structured way over time

· Manage our Young Ambassador and Involvement Champion programmes

· Ensure we engage all groups including those disadvantaged and less heard from

· Innovate in involvement by bringing in ideas from others and developing partnerships across the wider ecosystem, in the field of brain tumours and outside the sector

· Identify the gaps in experience of treatment and support of the brain tumour community through the Improving Brain Tumour Care surveys and other feedback mechanisms 

· With the Head of Services, ensure that all services are developed in collaboration and close partnership with representatives from our community from the outset

· As part of the wider services team, work closely with the team and community to review service delivery and development of new content

· Ensure effective operational cover of the support services when required, including own participation in delivery of services

· Provide feedback to funders and other stakeholders in a suitable format on our Improving Brain Tumour Care Surveys and involvement outcomes as required

You’ll be a great fit if:

We encourage you to apply to the role even if you do not meet all of the criteria.

Experience:

· Proven track record in a similar role for at least two years i.e. leading on involvement and participation work especially in a health, research, social care or third sector environment

· Experience of developing, implementing and evaluating patient and public engagement and involvement strategies and methodologies, preferably in a research environment

· Designed and run user insight work, including online and in person workshop facilitation and interviews

· Designed and built online surveys, including delivering quantitative and qualitative research methods and their application

· Experience of working with and supporting people affected by neurological disorders and/or people affected by brain tumours

· Recruitment, training and supervision of volunteers

· Proven experience of identifying, working to and delivering on Key Performance Indicators and clearly demonstrating impact

· Experience of using a CRM database to accurately record data and create reports that will drive operational, funding and strategic decisions forward

Knowledge, Skills & Abilities:

· A good understanding of patient and public involvement and the health research environment (including the research process and methodology)

· Analytical and insight measurement.  Particularly adept at Excel and using survey tools

· Excellent communication skills especially digital channels, social media and online communities

· Proven strategic relationship and network building skills

· Excellent and persuasive communicator with internal and external stakeholders (written, oral including public speaking and presentations)

· Empathy with the aims, objectives and activities of The Brain Tumour Charity

· Ability to motivate and inspire others to deliver exceptional outcomes

· Ability to work as a part of an agile, flexible team and contribute to group and individual targets

· Proven ability to work remotely/independently

· Ability to work well under pressure and to deliver to targets

· Highly organised, confident self-starter and capable of taking initiative, working flexibly and creatively

· Commitment to continuing professional and personal development

· Knowledge of the NHS and local and national government and their structures

· Knowledge of health, the human brain, cancer or brain tumours

*Please note that the responsibilities listed are not exhaustive and this job description may be subject to change as the role evolves over time.

What we’d like to give you:

You’ll be joining a collaborative, bold and innovative team of individuals who put our community first and are connected by a passion to make a real difference.

Location: While contracted to our office in Fleet, Hampshire, our team supports a blend of office and home working provided you have adequate broadband and IT capability, with an average of 2-3 days in the office each week.

Working hours: This role is 37.5 hours per week, with some out of hours working.

Benchmarked salary: c.£43,350 (dependent on level)

Our amazing benefits:

· 25 days annual leave (pro-rated for those who are part-time). Increases yearly with length of service

· Celebrate your work anniversary in true Charity style

· Occupational Sick Pay

· Hybrid working

· Flexible working

· Charity pension

· 1 day life leave per year to celebrate a special moment of your choice

· Wellbeing support including professional counselling

· A personalised on-boarding programme

· Cycle to Work Scheme

· Perkbox – our team discount portal

· Health care vouchers

*Some of these benefits are non-contractual and are subject to change

 

Diversity & Inclusion:

The Brain Tumour Charity is committed to promoting diversity and inclusion in all aspects of our organisation. We particularly welcome applications from individuals belonging to minority ethnic groups, LGBTQ+ communities, people with disabilities, and other underrepresented communities.

We strive to create a workplace that celebrates diversity and provides equal opportunities for all candidates and we encourage all individuals to apply even if they don’t meet all the criteria.

Eligibility to work:

Whilst we'd love to have you on board, we want to be upfront as we’d hate to waste your time applying for a role where we can’t take you on. At the moment, we're unable to offer visa sponsorship for any of our positions. We're currently seeking candidates who are already authorised to work in the UK without the need for sponsorship, who can remain on a permanent basis.

How to apply to our team:

Please apply by clicking the red ‘join our team’ button on our website, attaching your CV and a covering letter explaining why you want the role, what you would bring to the team and how your skillset and experience will enable us to make a real impact for those affected by brain tumours.

We are keen to ensure that our recruitment process is inclusive so if you’d find it beneficial to submit your application in a different format, please drop us a line at careers @thebraintumourcharity .org.

Advert close date: 10 May 2024

First interview date and location: TBC over Zoom

Second interview date and location: TBC at our office in Fleet

The post holder will also:

· Contribute to achieving the objectives of The Brain Tumour Charity

· Live and breathe our values by being bold, collaborative and innovative, with a community-first  approach to everything you do

· Undertake any additional and ad hoc tasks as required

· Participate in team meetings and other meetings as required

· Monitor and evaluate activities and provide written reports

· Represent The Charity at external events in a professional manner

· Work within an equal opportunities framework

· Adhere to all The Charity’s policies, procedures and working

· Ensure all records are held in compliance with GDPR, The Fundraising Regulator Code of Practice and The Brain Tumour Charity policies

We process your data in accordance with the Data Protection Act 2018 and the General Data Protection Regulation. For full details, please read our privacy policy for job applicants.