Senior Involvement Officer

This role plays a pivotal part in delivering that mission by leading and developing meaningful involvement opportunities for our community. You will lead key involvement programmes such as our Young Ambassadors and Involvement Champions, empowering people affected by brain tumours to share their experiences, influence our work and connect with others. You will build strong, inclusive networks that ensure diverse voices are represented and actively engaged across the organisation. Your work will champion lived experience and ensure involvement remains at the heart of everything we do.

WHAT WE'RE LOOKING FOR:

An experienced involvement professional who thrives in a fast-paced environment and brings strong communication and relationship-building skills. You’ll have a solid track record in managing programmes and delivering high-quality, inclusive involvement opportunities. Confident working with diverse communities, you’ll be passionate about amplifying lived experience and driving impact. Experience of working with young people is highly desirable, along with the ability to support and inspire others to contribute meaningfully and shape our work

KEY ACCOUNTABILITIES:

·       Lead the delivery of the Young Ambassador Involvement Champion Programmes, including recruitment, onboarding, events, training and ongoing support

·       Coordinate and deliver regular meetings, activities and development opportunities for Young Ambassadors and Involvement Champions

·       Build trusted relationships with programme participants, ensuring a positive and meaningful experience

·       Support the ongoing development and improvement of involvement programmes, using feedback and learning

·       Manage research involvement activity, coordinating opportunities for lived experience contributors to support projects

·       Deliver workshops, events and co-production activities with a range of stakeholders, including young people

·       Provide practical advice and support to colleagues to help embed involvement in their work

·       Ensure all involvement activity is accessible and designed to meet to the needs of people affected by brain tumours, including those with cognitive, physical and communication challenges, removing barriers so everyone can participate meaningfully

·       Plan and facilitate focus groups using inclusive, trauma-informed approaches to gather meaningful lived experience input

·       Design and deliver qualitative surveys that are accessible and engaging, ensuring high-quality responses from a diverse range of participants

·       Analyse qualitative data from involvement activities and surveys, identifying key themes and insights to inform service improvement and organisational work

·       Proactively identify and address inequalities in involvement, ensuring underrepresented and marginalised groups have equitable opportunities to take part and influence change

·       Track activity and contribute to reporting, helping demonstrate the impact and value of involvement