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We are seeking a passionate and committed Chief Executive Officer who will help us unite the global Prader-Willi syndrome (PWS) community to collectively find solutions to the challenges of the syndrome. Our vision is to create a world where people with PWS receive the services and supports they need to fulfil their potential and achieve their goals. PWS is a complex genetic disorder characterised by low muscle tone and failure to thrive at birth, and later evidence of short stature, intellectual disabilities, behavioural and psychiatric challenges and impaired satiety.
IPWSO is the international umbrella body for PWS associations around the world with 47 full paying country members and contacts in over 120 countries. We are committed to supporting people with PWS and their families whatever their needs and wherever they live.
What we do
We build communities between people with Prader-Willi syndrome, their families and the professionals who support them to share knowledge and expertise and improve outcomes for people with Prader-Willi syndrome and their families everywhere.
We want everyone with Prader-Willi syndrome to get equal access to diagnosis and treatment no matter where in the world they live. We want to ensure better, more consistent outcomes for people with the syndrome and their families.
We work to ensure research into the condition works for everyone and reflects the diverse experiences and environments of those living with the syndrome around the world today.
Main purpose and scope of role
Working closely with the President and the Board of Trustees, the CEO will provide strategic vision and leadership and will strive to ensure that IPWSO delivers its charitable purposes and remains successful and sustainable.
Duties and Responsibilities (to include but not limited to)
Leadership
· Strive to ensure that the charitable purposes of IPWSO are followed and that it delivers the public benefit set out in its governing document.
· Take overall responsibility for the management and administration of IPWSO.
· Provide support and information to the Board of Trustees to enable trustees to fulfil their roles and legal responsibilities.
· Pursue close cooperation with, and accountability to, IPWSO’s members.
· Act as an ambassador for IPWSO by representing IPWSO at events and networking to build new strategic relationships.
· Keep abreast of relevant new research, treatment recommendations and service developments for people with Prader-Willi syndrome.
Governance
· Strive to ensure that IPWSO has governance systems in place that enable it to consistently fulfil its legal, statutory and regulatory responsibilities.
· Maintain awareness of risks and changes in the external environment that could affect IPWSO and advise the Board of Trustees accordingly.
· Together with the President manage complaints (including from whistle-blowers) and recommend actions to the Board of Trustees
Finance and Fundraising
· Work with the Treasurer and the Finance Committee to ensure the overall financial health and sustainability of IPWSO.
· Work with the Treasurer and the Finance Committee to prepare budgets for review by the Board of Trustees and to enable IPWSO to operate within its financial means.
· Seek to ensure that appropriate financial reports are submitted to the Charity Commission and other entities as required.
· Support the work of the Fundraising Committee and strive to ensure a sustainable income from both IPWSO members and individual, corporate, philanthropic and government donors.
· Build relationships with potential donors and prepare funding proposals.
· Seek to provide high quality support to existing donors, by means including the preparation of regular reports and updates.
· Seek out and build new income streams.
Staff, Trustee and Volunteer and Committee Support
· Provide support to staff, trustees and volunteers to enable them to carry out their duties.
· Deputise for other staff members during periods of leave.
· Conduct annual reviews with staff.
· Participate in the recruitment of new staff as required.
· Provide support and advice to IPWSO committees and conference organisers.
Project Support
· Seek to ensure that all IPWSO projects are designed and implemented in accordance with IPWSO’s mission and objectives.
· Support IPWSO’s Project Managers and others who lead IPWSO projects and, if necessary, manage projects directly.
Person specification
Experience, Knowledge and Skills
Essential
Proficiency in English.
Experience of working in a leadership role in the charitable sector either as a CEO or as part of a wider Senior Management Team.
Ability to articulate a compelling vision to inspire others
Broad understanding of global development issues, geopolitical dynamics, and cultural nuances and able to take into account the diverse contexts in which IPWSO operates.
Strategic Thinking: experience of leading and or contributing towards strategic development as well as experience of organizational management and supporting change.
Collaborative approach: outstanding interpersonal and communication skills, with the ability to build and maintain positive relationships, based on mutual respect and shared goals.
Experience of managing budgets, financial planning, preparation of funding applications and report writing.
Experience of working with volunteers.
Desirable
Fluency in another language.
Experience of working in a leadership role in an international organisation within health or disability either as a CEO or as part of a wider Senior Management Team.
Knowledge / experience of PWS.
Willingness to travel internationally as needed to support IPWSO’s priorities.
An understanding of charity operations and governance structures in the UK.
Personal Attributes
Essential
Enthusiasm for IPWSO’s work and commitment to its vision, mission and values including dedication to equity, diversity, and inclusion.
Empathy for disadvantaged people.
Cultural sensitivity and respect. Confidence and ability to work well with people from different backgrounds from around the world.
Highly self-motivated and able to work on own initiative as well as part of a team.
Adaptability and flexibility. Able to navigate change and uncertainty. Able to accommodate international time zones as well as GMT for UK based staff. 20% of time may be outside of normal working hours.
Ethical leadership.
Resilience and determination.
Desirable
Desire to empower and mentor staff and foster a culture of learning, growth, and innovation.
Please submit your CV with a covering letter of no more than 2 A4 pages, describing how you meet the requirements of the role and the criteria outlined in the person specification. Include in your covering letter the names, positions, organisations, email and telephone contact of two referees, one of whom should be your current most recent employer. References will only be sought once your express permission has been granted. Please send to nmcnairney@ipwso. org. The closing date for applications is 9.00 am (UK time) on 25 October, 2024.
Using Anonymous Recruitment
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Actively Interviewing
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We are looking for an experienced leader to run our Crosslight Branch, staff and volunteers in West Kent (with locations in across Tonbridge, Sevenoaks and Tunbridge Wells), and to provide debt advice, case management, and money education to Crosslight’s service users.
Our ideal candidate has prior debt advice experience combined with experience of leading and supervising staff and volunteers. We understand that these are unique skills and therefore if you have leadership experience gained in other social welfare settings, there may be an opportunity to train as a debt advisor if you can demonstrate that you possess the skills, maturity and determination to become proficient in this element.
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3-5 days per week (flexible working options considered)
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Hybrid working: it is expected that a minimum of 3 days per week will be spent working at locations where we have offices or where we provide services to our clients
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Based in Tonbridge with travel to West Kent sites, and occasional travel to London
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Our system keeps your personal information hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About Us
Inspire is a charity based in East London. We inspire children and young people across London and beyond, using data to understand the barriers they face and connecting them with a range of employers and opportunities to open doors to their success.
We have over 30 years of experience in delivering high quality services and programmes to children, young people, schools, local authorities and employers. Working alongside our large network of employer volunteers, our programmes inspire and support children and young people to create a positive future for themselves in their journey from the classroom to workplace. We provide them with independent careers guidance, high aspirations and strong employability skills.
The Opportunity
An excellent opportunity has arisen for an organised, self-motivated and confident individual to join our Work Related Learning Team as a Senior Programme Officer. This role is a development opportunity, and we are seeking someone who is willing to assist with administration tasks as well as develop their skills in coordinating and delivering programmes in schools and businesses. You do not need to have held a senior role previously for your application to be considered. The Senior Programme Officer will be line managed by a Programme Manager. We would invite anyone seeking experience in moving up from Programme Officer level to apply.
Our Work Related Learning team has an excellent reputation in developing and delivering workshops and programmes which educate children and young people on the world of work and opportunities available to them once they complete their education.
The successful applicant will co-ordinate and deliver high quality programmes for students in primary and secondary schools and young people who are unable to attend mainstream education.
This role will enable you to use your presentation and creativity skills to support development and delivery of workshops and programmes. You will use your communication skills to manage recruitment and liaison with volunteers and communicate with a range of schools and other stakeholders to ensure everything is well organised and runs without a hitch. You will be responsible for managing admin and physical resources used by schools, as well as preparing evaluation reports.
Key responsibilities of the role include:
- Provide support and coordination on a range of programmes
- Manage recruitment and liaison with volunteers' participation in events
- Prepare and deliver volunteer training
- Attend, support and deliver events in schools and other external venues
- Prepare evaluation reports
- Liaise with stakeholders including schools, businesses and volunteers
- Prepare, plan and manage our physical programme resources, including printing
- Responsible for admin tasks relating to programme delivery
- Possibility for line managing staff
If you have the skills and desire to join our team, please see our job description for more details.
Interview arrangements
The interview selection process will include a skills-based test. Further details will be provided to applicants who are invited for interview.
How to apply
Please submit your CV and covering letter.
Inspire is committed to safeguarding and promoting the welfare of children and young people. The successful candidate will be required to apply for an Enhanced Disclosure via the Disclosure and Barring Service.
Closing date
This position is available immediately. We will review applications as we receive them and aim to appoint as soon as we meet the right person.
Unfortunately, due to the number of applications we receive, we will not be able to contact unsuccessful applicants.
The client requests no contact from agencies or media sales.
- Full-Time (35 hours per week)
- £37,000 per annum
- 28 days plus statutory holidays
- NEST workplace pension
An exciting, challenging and rewarding opportunity to join the farm’s staff team!
We are looking to recruit a highly motivated, experienced and multi skilled person to support our existing staff team and provide leadership and management for the strategic and day-to-day running of Lawrence Weston Community Farm.
Working closely with our Trustees, the post holder will lead on:
- The delivery and rolling development of our three year business plan in line with the farm’s charitable aims and objectives and identified local need
- Set priorities for fundraising thereby ensuring a stable financial base from which to increase our income from community business activities
- Oversee and ensure robust financial management, including budgeting and reporting
- Provide supportive leadership of the staff team
- Ensure the farm’s effective governance, accountability and compliance with legal and policy requirements.
- Partnership work, networking and developing new strategic initiatives
- Continue our commitment to equality, accessibility and sustainability in all aspects of the organisation
For further information about this post and how to apply, please see the home page of the farm’s website and follow the links.
The deadline for application is 5pm on Friday 20th September 2024. Previous applicants need not apply.
Interviews will be taking place on Friday 4th October 2024.
Lawrence Weston Community Farm is a community-managed project that aims to improve the quality of life for local people.
The client requests no contact from agencies or media sales.