Jobs for the Disability sector

Join an amazing charity that makes a difference for the more than 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.

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We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.

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As part of our safer recruitment and safeguarding responsibilities, this role requires a DBS check and professional/character references. We are committed to inclusion and will consider each application fairly.

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About you:

The Creative and Content Officer is an exciting role at MDUK, that will sit within the Marketing and Communication Team. 

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You will develop and create impactful content across a wide range of formats, managing production workflow, and supporting our brand work.

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You will help deliver projects using your skills and those of external partners in the production of content such as design artwork, social graphics and copy. You will also support in the project management of creative projects.

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About us:

Muscular Dystrophy UK is a charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically. 

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This is an exciting time to join Muscular Dystrophy UK. We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.

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Benefits:

We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We believe in supporting our people both professionally and personally.

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Alongside a competitive salary, we offer a comprehensive benefits package designed to promote wellbeing, work–life balance, and career development. Our offerrange of benefits includes ​great pension contributions, life insurance, cycle scheme, health cash plan, employee assistance programme, instant retail and events discounts, and much more...

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Location: We operate a hybrid model (home and office, London SE1). 

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Closing date: Tuesday, 6th January 2026

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NB Interviews likely to be held on Monday, 12th January 2026

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Please download the job description to see full role responsibilities

The postholder will support adults with learning disabilities and/or autism to have their voices heard, engage in the community, and influence the services they use. Key responsibilities include:

• Organising Mystery Shops: Plan and run mystery shopping activities to ensure members experience high-quality services from statutory and other organisations, providing timely feedback to help providers improve.

• Coordinating Speak Out Meetings: Organise and facilitate monthly Speak Out campaign meetings and support members’ participation in LD Partnership Board meetings.

• Supporting Campaign Participation: Assist members to take part in and report on campaigns at Borough, Londonwide, and UK levels, with the aim of improving services for adults with learning disabilities.

• Supporting Consultations: Help members engage in consultations at local, regional, and national levels, ensuring their views are captured and communicated effectively.

We are seeking someone who can empower our members to stand up for themselves, share their opinions, and actively participate in community life. Excellent organisational, communication, and interpersonal skills are essential, alongside a good understanding of the challenges faced by adults with learning disabilities and/or autism. This role is central to helping members Speak Out in Hounslow and increasing their visibility and influence as valued community members.

About Working Well Trust

Working Well Trust is a mental health and employment charity in London. All of our projects share the aim of improving the lives of people with mental health support needs, learning disabilities and/or complex issues through training and employment.

We are recruiting an In Work Employment Support Specialist to join our In Work Service based in Tower Hamlets. This role focuses on supporting people to remain in employment and supporting employers to retain staff who are experiencing mental health challenges.

What you’ll be doing

If you were working with us, you would manage a caseload of clients who are currently in work and have mental health support needs. Your role would focus on helping people remain in their jobs, build confidence at work, and address challenges early before they escalate.

You would work directly with employees to understand their needs, strengths, and workplace challenges. Where appropriate, you would engage with employers to explore reasonable adjustments, communication strategies, and practical solutions that support retention. This requires confidence, professionalism, and a solution-focused approach when working with both individuals and organisations.

In cases where a return to the current role or employer is not possible, you would support clients to explore alternative outcomes. This may include securing alternative employment or working towards a settlement agreement in a supportive and informed way.

You would deliver support using a person-centred and strengths-based approach, while maintaining accurate records and working to agreed outcomes. You would also collaborate with referring teams and other professionals to ensure coordinated, client-led support.

The role is part-time, working 21 hours per week, including one late evening to ensure accessibility for people who cannot meet during working hours. You would be based in Tower Hamlets two days per week, attend meetings with employers across London, and have the option to work from home one days per week.

What you’ll need

Experience of in-work or retention support is not required. However, we are looking for someone who has:

• Experience in employment support or a related role.

• A strong interest in mental health and its impact in the workplace.

• Confidence engaging with employers and discussing sensitive workplace issues.

• Excellent communication and organisation skills, with the ability to manage a caseload effectively.

• A genuine desire to help people stay in work and support employers to retain staff.

We welcome applications from people with lived experience of mental health, either personally or through a close contact. Full training will be provided.

What we offer beyond your salary

• 30 days annual leave plus paid public holidays (FTE)

• Employer pension contribution of 6%

• Flexible hybrid working arrangements

• Wellbeing Hour every fortnight (FTE) for activities that support your wellbeing

• Training and ongoing professional support

Working Well Trust is an equal opportunities employer and Confident about Disabilities.

What’s next

Before you apply, please note the following:

• We actively recruit and carefully review all applications. We only progress candidates who provide meaningful answers to the screening questions.

• Due to rapid service expansion, we have onboarded 20 external hires in the last six months.

• Career development is real here: in the past year, 10 colleagues have progressed internally into Senior roles, Project Lead, Team Lead, and Operations Manager positions. We value ambition and celebrate progression.

If you are ready to help us build a service that supports people maintain meaningful work, click Apply to submit your CV and answer the screening questions. Telephone and final interviews will be confirmed.

Start your application today and take the next step in a rewarding career.

Join an amazing charity that makes a difference for the more than 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.

​

We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.

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As part of our safer recruitment and safeguarding responsibilities, this role requires a DBS check and professional/character references. We are committed to inclusion and will consider each application fairly.

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About you:

The Senior Fundraising Database Officer is an exciting role at MDUK, that will sit within the Fundraising Team. 

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You will manage and optimise Muscular Dystrophy UK’s supporter database, ensuring accurate data, compliant Gift Aid claims, and effective segmentation for fundraising campaigns.  Your role will include data imports, cleaning, and reporting, while providing actionable insights to support recruitment and retention strategies.

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About us:

Muscular Dystrophy UK is a charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically. 

​

This is an exciting time to join Muscular Dystrophy UK. We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.

​

Benefits:

We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We believe in supporting our people both professionally and personally.

​

Alongside a competitive salary, we offer a comprehensive benefits package designed to promote wellbeing, work–life balance, and career development. Our offerrange of benefits includes ​great pension contributions, life insurance, cycle scheme, health cash plan, employee assistance programme, instant retail and events discounts, and much more...

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Location: We operate a hybrid model (home and office, London SE1). 

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Closing date: Monday, 5th January 2026

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NB Interviews likely to be held on Thursday, 15th January 2026

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Please download the job description to see full role responsibilities

Shop Manager

Fixed term for 3 months

£23,581.58 a year (£12.96 per hour).

Windermere, Cumbria LA23 1DX

Make a real difference to the lives of disabled people

Would you like to work at the heart of your local community? Are you able to inspire a team of brilliant volunteers? Do you have retail experience and are looking for the next step in your career?

If you answered yes to these then we have the perfect opportunity for you.

The role

As Temporary Shop Manager at Scope's Windermere shop, you’ll have autonomy to run your shop using your creativity and flair to flourish in our retail environment. Our retail roles are full of variety, and every day is different! One day you might be generating and processing stock and designing an eye-catching window display. The next day you might be recruiting and training our wonderful volunteers. Every day there will be a different challenge that you’ll find extremely rewarding. You will have relevant experience in retail but a great attitude and willingness to learn is just as important.

About you

As Shop Manager you’ll be passionate about retail and have a love of fashion with experience of running a shop, or you’ll be looking for a management role as the next step in your career.

To be successful in this role, you will:

· Be commercial

· Have a can-do attitude and always put the customer’s needs first.

· You’ll be a dedicated team player with a strong work ethic

· Have excellent accuracy and attention to detail.

Please make sure you explain in your application, with examples, how you can meet these important skills.

We ask you to show an appreciation of Scope’s values and our ambition of creating equal futures with disabled people.

About working in our shops

Our shops are the face of our retail brand, run by a dedicated, creative and passionate bunch of superstars. Focusing on sustainable fashion, engaging with local communities and leading our volunteers to deliver a great colleague and customer experience, we raise much needed funds to deliver an Equal Future for disabled people and their families.

Shop hours

It’s important for you to know that Scope Charity Shops are open every day, so some weekend and Bank Holiday cover is needed. We work 35 hours a week, working five days out of seven.

Our values - pioneering, courageous, connected, open, fair

By living our values and trusting each other, we empower our colleagues to make decisions. By giving our colleagues freedom and space to spark creativity for innovation, we can push boundaries, change mindsets and be empowered to change the game with grit and determination and a sense of urgency.

Disabled candidates

We are a disability equality charity. We encourage applications from disabled people and people with impairments, conditions, and access needs. We want to create a workforce that is a true reflection of the communities we serve.

Scope will interview all disabled candidates who meet the essential criteria for the post. This is part of our commitment as a Disability Confident Leader. Just let us know in your application that you are applying under the Offer an Interview Scheme. This was previously known as the Guaranteed Interview Scheme.

Some applicants might need adjustments during the application process. If you require adjustments through your journey with us, please email us via our website. You can find out more about interview adjustments on the Scope website too.

Equality, Diversity and Inclusion

At the heart of everything we do at Scope is Equality, Diversity, and Inclusion.

We encourage people of colour and other underrepresented communities to apply and join Scope. We believe that this will bring new ideas and help us work better. We know that a variety of perspectives and viewpoints will greatly support the work we do and help us to reach all communities. 

We want everyone to feel like they belong. We value each person as an individual. We will treat everyone with dignity and respect and we want to recognise all parts of a person's identity.

We are a disability equality charity. So, we will build a culture that is accessible and inclusive first. We will aim for the same high standards in all our work. We will listen, learn and keep improving.

Scope benefits

We believe hard work deserves reward and recognition. We offer a wide range of benefits including:

· 35 days annual leave

· flexible working (where we can)

· company pension

· excellent training and career development

· strong colleague networks across disability, LGBTQ+, race equality, carers, women and young colleagues

· Wellbeing incentives like a discounted gym membership, cycle to work scheme, and much more.

One in four of us in the UK are disabled and we are a diverse, proud, and vibrant community. We’re here to create an equal future with all disabled people. We campaign to transform attitudes to disability, tackle injustice and inspire action. We are creating a powerful movement of disabled people, allies, organisations and businesses.

Together we will be unstoppable.

Please note that successful candidates will be subject to an enhanced DBS check.

We welcome all applications by 11:59pm GMT on 11th January 2025.

Barnet Mencap is a very well-established local charity which provides services and support for people with learning disabilities, autistic people, and their family carers, while also campaigning alongside them to improve their lives. The organisation aims to create a world where people with learning disabilities are valued equally, have their voices heard and are included in the community. 

We are looking to appoint a new CEO to lead the organisation and ensure it continues to provide its much-valued services.

The successful candidate will have: 

• Experience in a senior role in a relevant service i.e. Learning Disabilities, Children or Adult Services

• Experience of developing a strategy and monitoring framework in a similar environment 

• Experience of effective partnership working at a strategic and practical level 

• Proven track record of income generation and financial management 

• Knowledge of charity governance, regulation for a medium size charity, and working effectively with a board of trustees.

• Knowledge of the Health and Social Care environment, including key policies and legislation 

• Understanding of Health and Safety and Safeguarding in a service delivery environment 

• Understanding of the Social Model of Disability and how to apply it to deliver empowering person-centred projects and services 

Please read the full Job Description, Person Specification and Recruitment Pack for further information on the role. 

To apply, please send your CV alongside a covering letter explaining how you meet the criteria in the person specification. 

The successful candidate will be required to complete an enhanced Disclosure and Barring Service application in line with Section 115 of The Police Act 1997.   

 Closing Date: 16th of January 2026 

Interview dates are planned for the 10th and 11th of February 2026.  

Listening Books are looking for a diligent, pro-active person to join our small team in the maternity cover role of Titles and Copyright Co-ordinator. If you have excellent organisational and communication skills, a broad knowledge of books and the UK publishing industry, would like to expand your experience in the charity sector and are interested in representing a charity that supports anyone with a print impairment, then we would love to hear from you.

Listening Books is a charity that provides an excellent audiobook lending service to people whose illness, disability, specific learning difficulty or mental health condition impacts on their ability to read the printed word. Our audiobook catalogue contains over 10,000 titles and reaches over 100,000 members across the UK. We believe that books should be accessible to everyone. The successful candidate will be responsible for buying and processing all new titles for our catalogue and regularly liaising with publishers to maintain our excellent relationships with them, ensuring all our contracts and paperwork remains up-to-date. The candidate will be responsible for both the administrative and technical aspects of adding new titles to our catalogue via our download platform, OverDrive Inc. Training will be given but a high level of computer literacy is essential. The candidate will also be responsible for managing the budget for titles and must have previous experience of handling basic budgets.

We can offer flexible working arrangements, including remote, office-based, or hybrid options for the right candidate. There is also some flexibility in how hours are distributed across the week; however, we would prefer that a portion of the hours be worked on Thursday or Friday.  A salary of £28,000 per annum (pro-rata) and a matched contribution pension scheme up to 8% of salary, following successful completion of the probation period.

Closing date for applications is Tuesday 6th January at 11.59pm and interviews will be held via Zoom on Monday 12th and Tuesday 13th January. Depending on volume of applications received, we reserve the right to close the vacancy earlier than this date, so please apply early if you are interested.

Please include your CV and a covering letter, telling us why you would be suitable for the role, paying close attention to the job description and person specification, which can be found when you click on 'Apply Now'.  Applicants who do not submit a covering letter will not be considered.

All appointments are subject to two satisfactory references, including a previous employer, evidence of the right to work in the UK and a basic DBS check. Privacy notice: Details of unsuccessful applications will be held on record under the lawful basis of Listening Books’ legitimate business interests for a period of 6 months before being securely destroyed.

About the Role

Do you have a creative flair and a passion for collaboration? We’re looking for someone to help shape and deliver a public engagement and events programme that showcases Headway East London’s occupational projects in art, food and music, strengthens partnerships, and raises awareness of brain injury.

The role is to work closely with our members, you will co-produce events, workshops and creative projects that highlight their experiences and talents. Also, nurture and develop relationships with partners and stakeholders, identify new opportunities for collaboration and ensure members are meaningfully involved in all aspects of engagement.

Principal Duties and Responsibilities

Public Engagement Programme Delivery

• Support the delivery of a public engagement programme that raises awareness of brain injury and showcase our creative work in art, food, and music.
• Work closely with the Director of Development and staff teams to identify and develop opportunities for public engagement (e.g. exhibitions, performances, and community events).

​Member Co-production and Creative Participation

• Work closely with members to support their participation in projects and events, ensuring their voices and experiences contribute to the planning and delivery.
• Support in facilitating steering groups or member planning sessions to shape ideas and gather feedback for improvements.

Partnerships and External Relationships

• Support in building and maintaining positive relationships with local organisations, cultural venues, and community partners to broaden our reach and profile.
• Represent Headway East London at events, meetings and community forums, acting as a positive ambassador for the organisation and its members.

 Event, Operations and Delivery

• Support all logistical aspects of events, including venue booking, liaising with suppliers, organising materials, and coordinating volunteers.
• Contribute to event promotion and audience engagement, including managing guest lists, ticketing, and attendee communications.

Monitoring, Evaluation and Reporting

• Support the collection of feedback, stories, and data from events and projects to evaluate their success and impact.
• Support with monitoring and reporting processes that inform fundraising, communications, and project planning. 

Key Relationships - Internal and External

Internal: All staff, Members (service users) and their families, Volunteers

External: Public audiences - supporters and funders Partner organisations, Corporate stakeholders, Contractors

Other

Apply the Headway East London values and behaviours to every aspect of the role at all times.

Protect and enhance the interests and reputation of Headway East London internally and externally.

Commit to the organisational principles of: coproduction equity, diversity and inclusion sustainability.

Headway East London is an Equal Opportunities Employer and we are committed to ensuring that all staff are motivated, skilled and rewarded by their work. We welcome applicants regardless of race, religion or belief, colour, national origin, sex, sexual orientation, disability, age and other protected status as required by law. We promote and protect human rights; they are the foundation of what we do. We want to be an inclusive place where a diverse mix of talented people want to come and contribute their unique strengths and perspectives. We are focused on equality and believe that all the fascinating characteristics that make us different, make us more able to deliver our life-changing work with passion and creativity.

Assistant Benefits Advisor
Salary £24,000 FTE (rising to £27,000 per year FTE after 1 year and completion of training) 
17.5 - 21 hours per week, 6.6 weeks holiday   
Remote working with occasional travel for events and meetings in West Sussex

Are you passionate about working with SEND families? 
Do you have the transferable skills and qualities to train as a benefits advisor?

We have an exciting opportunity for someone to join a rapidly growing caring charity with the benefits of flexible family friendly working (from home), generous holiday, pension scheme, travel expenses, laptop and phone provided.  

Reaching Families was established in 2008 to empower, inform and support parent-carers and families of children and young people with special educational needs and disabilities in West Sussex.  We achieve this through the delivery of our services providing information, training and peer support.

Our Benefits Advice Service provides support to parents of children and young people with SEND in West Sussex applying for Carer’s Allowance, Disability Living Allowance (DLA) and Personal Independent Payments (PIP).  Offering 1-2-1 advice sessions on the above benefits, support with claim checking of draft applications, information resources on benefits and other sources of financial support, and training workshops on DLA, PIP and Universal Credit.

We are looking to recruit a skilled and motivated Assistant Benefits Advisor to join our team
The post holder will be responsible for supporting our Benefits Advisor with the delivery of information, advice and guidance on Carers Allowance, Disability Living Allowance (DLA) and Personal Independence Payment (PIP) to parent-carers of children and young people with special educational needs and disabilities (SEND) in West Sussex.  This is a training role with the view to promotion to Benefits Advisor following completion of training. 

Person Specification (essential):
• Understanding of challenges facing parents and carers of children with SEND 
• Passionate about improving the life chances of children with SEND and their parents/carers, and families
• A highly motivated self-starter with a flexible approach to working life 
• A creative and strategic thinker 
• Committed to professional and personal development and lifelong learning 
• Ability to work independently and manage a diverse and demanding workload 
• Comfortable working with people from a diverse range of backgrounds
• Excellent inter-personal and communication skills
• Excellent writing and editing skills 
• Experience of using MS Office including SharePoint
• A good all-round education including GCSE’s (or equivalent) or NVQ level 2 

See attached job description for details and full criteria 

We welcome applications from all members of the community and value diversity in the organisation. Please contact us if you require any reasonable adjustments to be made to the application or interview process due to any disability or health requirements. 

Closing date for applications is 12th January 2026

Interviews to be held in Littlehampton on 21st/22nd January 2026

To apply please complete the attached application form and share why you feel you fit the role and person specification (see attached documents) 

Are you organised, proactive, and enjoy being a reliable support to a busy team?

Join NASS as our Administrative Assistant and provide essential administrative support that helps our team work towards better diagnosis and care for people living with axial SpA - an invisible, often misdiagnosed inflammatory condition affecting the spine.

WHAT MAKES THIS ROLE SPECIAL

This is an exciting time to join our small but dedicated team as we approach our 50th anniversary in 2026. We're passionate about transforming lives for people with axial SpA, and this varied role provides essential administrative support that helps us deliver on our mission. The role is 21 hours per week with flexible working arrangements across the week to suit your needs, with at least one day par week in our London office. We need someone who enjoys variety, is comfortable working independently, and takes satisfaction in contributing to the team's success.

WHAT YOU'LL DO

You'll provide varied administrative support including managing correspondence, processing post, sending membership materials, and helping with event administration. You'll maintain accurate records by entering data into Salesforce- our customer database, checking reports match, and organising documentation. You'll also help keep the office running smoothly by liaising with suppliers and assisting with health & safety compliance.

WHO WE'RE LOOKING FOR

You'll have experience in general administrative roles with strong organisational skills and excellent attention to detail. You'll be proficient in Microsoft Office (particularly Excel), reliable, proactive, and able to work independently whilst being a supportive team player. Experience with Salesforce is desirable but not essential.

WHY CHOOSE NASS

NASS is the only UK charity dedicated to axial SpA. Recently shortlisted for Medium Charity of the Year, we campaign for early diagnosis, work with the NHS, and support thousands across the UK.

Benefits: Competitive salary, flexible working, 10% pension contribution, 15 days annual leave, plus bank holidays and additional leave over Christmas, hybrid working, professional development, employee assistance programme, and more.

Our culture: We truly value our people. You'll become part of a dedicated team doing meaningful work that directly impacts the lives of people living with axial SpA. This is a role where you will be supported to succeed and genuinely appreciated for your contributions.

Commitment to equality, diversity & inclusion: NASS is proud to welcome everyone. We aim for a truly inclusive culture with talented, diverse teams that represent a variety of backgrounds, perspectives, and skills. We celebrate difference and individuality and encourage everyone to join us and be their whole selves always.

We particularly encourage applications from individuals with lived experience of axial SpA and from underrepresented groups in the charity sector.

HOW TO APPLY

To apply, please submit:

• Your CV highlighting relevant experience
• A one page covering letter explaining why you're interested in this role and how your skills and experience match our requirements

Application Deadline: 5pm on 7 January 2026
Interviews: Week of 12-16 January 2026 (in person at our London office)

CONTACT INFORMATION

For informal enquiries about this role, please contact Justyna Potiopa, Head of Finance and Administration.

NASS is an equal opportunities employer. This appointment is subject to a 6-month probation period and receipt of two satisfactory references.

Major Donor and Trusts Manager
Home based, remote working 
£36,000 pa plus excellent benefits (FTE £45,000 pa)
28 hours per week
Fixed-term contract for 12 months

The Major Donor and Trusts Manager will play a pivotal role in driving RNID’s High Value fundraising strategy. You’ll manage a diverse portfolio of major donors and trusts, strengthen stewardship processes, and develop innovative engagement strategies. Working in close partnership with the Senior Philanthropy Manager and High Value colleagues, you’ll help unlock transformational gifts that make a lasting impact.

You will:  

· Cultivate and manage relationships with major donors and trusts.


· Design and deliver innovative stewardship plans.

· Create engaging funding proposals and impact reports.

· Work with advocates and internal teams to identify new prospects. 

· Plan and deliver donor cultivation events. 

You’ll bring a proven track record of securing significant gifts (five and six-figure), excellent relationship-building skills, and the ability to craft compelling proposals. Highly organised and self-motivated, you’ll be confident using CRM systems and managing multiple priorities. Exceptional written and verbal communication skills are essential, along with a collaborative approach and a passion for RNID’s mission to create an inclusive world for people who are deaf or have hearing loss or tinnitus.

No essential qualifications are needed, but a good standard of written English and attention to detail is a requirement.

We are RNID: the national charity supporting the 18 million people in the UK who are deaf, have hearing loss or tinnitus. Together, we will end the discrimination faced by our communities, help people hear better now and fund world-class research to restore hearing and silence tinnitus. We work with our communities and partners across industry, government, charity, education and more to change life for the better.

We champion the value of difference and equality and celebrate our diverse and inclusive workforce. We actively encourage applications from eligible candidates from BAME backgrounds or who are deaf or hard of hearing. With almost 20% of our employees having a disability we proudly hold Disability Confident Leader status and guarantee an interview for disabled applicants meeting the minimum essential criteria.

Closing date: 2 January 2026.
Interviews: w/c 12 January 2026.

Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

Main Purpose of the Role: 

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.   
  
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

Specific Tasks: 

1. Proactive Family Support  

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)  

• Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear   

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care  

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern  

2. Advanced and End-of-Life Care Support 

• Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care. 

• Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

• Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing. 

• Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making. 

• Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations. 

• Offer signposting to bereavement support and follow-up services for families after loss. 

3. Wellbeing Tracking and Outcome Measurement  

• Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)  

• Collaborate with families to co-create action plans and track progress  

• Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.  

4. Community Engagement and Event Delivery  

• Organise and deliver regional meetups (minimum one per quarter)  

• Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)  

• Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)  

• Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne 

5. Stakeholder Collaboration  

• Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities  

• Represent Action Duchenne in across your regions and build relationships with local networks  

6. Administration and Reporting  

• Maintain accurate records of all interactions and support provided  

• Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact  

• Support development of CRM processes and service delivery improvements  

7. Key Performance Indicators (KPIs):  

• New contact acknowledgement email: within 3 working days

• New contact follow-up call: within 7–10 working days 

• Families contacted per week: 12–15 hours of direct contact

• Regional meetups: 1 per quarter

• Support groups delivered: 9–12 per year

• CRM data entry: within the same day of interaction

• Family outcomes tracked: via wellbeing questionnaire and action plan 

• Number of families receiving end-of-life care guidance or resources per quarter. 

• Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request. 

• Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services. 

• Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Please find the job specification, including required skills and qualifications below.

Application deadline: 22nd December at 9am GMT.

Are you passionate about inclusive music making and supporting adults with learning disabilities to express themselves creatively? Do you enjoy bringing people together through rhythm, sound and shared experiences?

Stepping Stones Learning and Leisure is a small and welcoming Southwark charity that supports adults with learning disabilities to live connected, confident and fulfilling lives. We offer creative, social and practical sessions throughout the week. Music plays an important role in promoting positive wellbeing, and helps people build confidence, try new things, and feel part of a community.

We are looking for a friendly and engaging Music Facilitator to lead our weekly music sessions. You will encourage participants to explore a range of instruments, express themselves and enjoy the experience of making music together. Our groups include adults with a wide range of learning disabilities so sessions must be accessible, adaptable and delivered with flexibility and patience.

About the Role

As our Freelance Music Facilitator, you will plan and deliver inclusive sessions that may include:

• exploring different instruments
• rhythm and percussion activities
• creative music making
• group interaction and confidence building
• simple performance or sharing moments

You will also complete required paperwork including Individual Learning Plans, course outlines, schemes of work and track progress across each term.

What We Are Looking For

• Experience working with adults with learning disabilities
• Experience leading music sessions or creative workshops
• Confidence using a variety of instruments
• Ability to plan accessible, engaging activities for mixed ability groups
• Friendly communication skills and a patient, encouraging approach
• Reliable, organised, and able to manage the routine administrative tasks involved in lesson delivery

About us

REMAP is a unique national charity. It brings together two groups of people: volunteers skilled at making things and disabled people who need specialist equipment. Each year, around 3,000 pieces of custom-made equipment help transform the lives of disabled people.

REMAP’s army of ingenious inventors designs and makes equipment for young and old alike and then provides it free of charge. The aim is always to help people achieve quality of life, filling the gap where no suitable equipment is available commercially.

With an exciting strategy that will continue to place the client at the heart of our work, we seek an experienced charity sector Volunteer Recruitment Officer to help us deliver on our mission and vision.

REMAP is an organisation that encourages its team members to contribute their thoughts and ideas actively and work together to achieve its aims and ambitions. You will be given the space to work autonomously and grow in the role, but with the support of your colleagues and line manager when you need us. You can work to your strengths and share your successes and learning with the broader team, who will, in turn, look to share their experiences and learning.

The Role

The Volunteer Recruitment Officer role is critical to the charity's long-term sustainability and is pivotal in ensuring our branches have the volunteers and guidance they need to support our clients going forward.

This is both an internal and external-facing role, focused on recruiting volunteers and developing initiatives that will streamline how we recruit and welcome new volunteers into our network of branches.

We are seeking an experienced volunteering officer, who has a strong background in both volunteer recruitment and project delivery. Experience in being part of a team going through a change programme involving volunteers is advantageous. You will thrive in a busy environment, have excellent people skills and have a positive ‘can-do’ attitude.

As a small charity, the role will require balancing practical tasks with project delivery and innovation. Building on the strategy that has already been prepared for you, you will work closely with our Volunteer Administration Officer and our Operations Manager to help REMAP support our branches across the UK.

About You

We want you to bring relevant experience, passion, dedication, creativity, and flair to our work.

To be considered for this role, you will have demonstrable experience in a similar position and be comfortable working with a diverse range of volunteers/people. As a self-starter, you can work at pace and quickly assess and deliver to changing priorities in a busy remote team. You will have excellent interpersonal skills, be able to coordinate multiple tasks/activities and have the flexibility to respond to changing demands.

You will be proactive, enthusiastic, and excited about joining an organisation with ambitious plans to future-proof its services and reach more disabled people. Experience working in a remote environment is highly desirable.

Additional information about the role

Place of work: Fully remote, with occasional 1/2 nights away for year-round events.

Working Hours: 22 hrs (pattern to be discussed)

Salary: 13,400 - £15,000 (actual salary), dependent on experience

Holiday entitlement: Begins at 25 days per annum (pro-rata), in addition to public holidays.

Application Instructions

To apply, please send your CV and a separate cover letter of no more than two A4 sides, setting out how you meet the job description and personal specification. 

We are a Disabled Confident employee.

Candidates who fail to follow the instructions will automatically be screened out of the selection process.

Closing date for Applications: 12th January 2026.

Interviews: Interviews for the role will be held on the week commencing 19th January 2026.

If you would like further information about the role, or have any questions, please contact Kelly, Operations Manager via the contact us information on the REMAP website.