Research officer jobs in brighton, brighton and hove

Role Overview

The Talent Set are delighted to partner with our client on a fantastic Head of Fundraising Strategy role.

We are seeking an experienced and strategic leader to join this social welfare charity, with a focus on developing and implementing a fundraising strategy that drives growth and sustainability. As Head of Fundraising Strategy, you will be responsible for leading a team to deliver high-impact fundraising initiatives, working closely with the Director of Fundraising, Communications and Policy to ensure the ambition and interests of the directorate are represented in the new organisational strategy.

Key Responsibilities:

• Develop and implement a comprehensive fundraising strategy that aligns with the organisation's vision and goals
• Lead a team to deliver high-impact fundraising initiatives, including research, planning, and execution
• Collaborate with internal stakeholders to ensure alignment and effective communication
• Analyse data and market trends to inform fundraising strategies and drive performance
• Build and maintain relationships with key stakeholders, including donors, sponsors, and partners
• Manage complex funding arrangements

Person Specification:

• Extensive experience in fundraising, with a deep understanding of different forms of fundraising and the opportunities that exist for a values-driven organisation
• Strong project management skills, with the ability to lead complex, cross-organisational initiatives
• High financial literacy and experience of complex funding arrangements
• Excellent communication and relationship-building skills
• Ability to work independently and as part of a team
• Strong analytical and problem-solving skills

What’s on Offer:

Salary:£60,000
Working set up: Remote with occasional travel to London, 4 days per week 
Contract Length: 12 months 
 

How to Apply:

To apply, please submit your CV demonstrating your suitability for this role by clicking the 'apply now' button (please do not apply via email). 

Commitment to Diversity:

The Talent Set are committed to diverse and inclusive recruitment practices, ensuring equal opportunities for all applicants regardless of race, sexual orientation, disability, age, or gender. We actively encourage applications from a wide range of backgrounds and are always happy to make reasonable adjustments to ensure a fair recruitment process.

Head of People and Culture

Salary:  £48,000 - £51,000 - depending on experience (pro-rata)

Contract Type: Permanent 

Hours: Part Time - 3 days a week (typical example of hours 09.30-17.30 but with flexibility)

Location: Remote with periodic travel to London (to our Elephant & Castle, central London office) and external meetings as required to meet the needs of the role

Responsible To: CEO

Application Deadline: 22nd September 2025

Responsibilities

Strategic HR Leadership

• Develop and execute the overall people and culture strategy aligned with Hatch’s overall vision, values and organisational strategy.

Organisational Culture & Employee Experience

• Work with the CEO to champion a values-driven, inclusive, and purpose-led culture that supports employee engagement and well-being.

• Design and oversee initiatives to enhance employee satisfaction, psychological safety, and workplace trust.

• Lead initiatives that reinforce cultural norms and behaviours aligned with organisational values.

Diversity, Equity & Inclusion (DE&I) Leadership

• Develop and lead the Hatch’s DE&I strategy

• Set DE&I KPIs; monitor progress and report to leadership in the quarterly board papers.

• Set up and work with an internal DE&I working group to implement DE&I Strategy 

• Organise training and education programmes on unconscious bias, inclusive leadership, and anti-discrimination.

• Oversee equitable hiring, compensation, promotion, and development practices.

Employee Relations & Engagement

• Act as a senior point of contact for complex employee relations matters.

• Build systems for transparent communication, feedback, and conflict resolution.

• Analyse quarterly engagement surveys and eNPS score data and develop action plans for improvement.

Governance, Compliance & Reporting

• Deliver reports on key people and culture metrics to the Senior Leadership Group (SLG) and Board, ensuring data-driven insights support strategic decision-making.

• Ensure all people-related policies, procedures, and contracts are regularly reviewed and updated, aligning with organisational needs, values, and current employment legislation.

• Maintain compliance with employment laws and regulatory requirements, minimising organisational risk and promoting ethical practices.

• Support the organisation in responding to emerging workforce-related risks.

• Develop and manage the people and culture budget annually

Compensation and Benefits

• Ensure our pay, benefits and progression framework support employee well-being and align with DE&I principles.

Learning and Development

• Identify skill gaps and oversee the creation of learning strategies to support upskilling and reskilling.

• Promote a continuous learning culture and leadership development at all levels.

Talent Attraction, Management and Succession Planning

• Lead the design and execution of robust talent acquisition, development, and retention strategies.

• Oversee performance management frameworks to drive growth and accountability.

• Continually develop Hatch’s employee value proposition to build Hatch’s brand as an employer of choice 

• Further develop our performance management framework to encourage high performance, professional development and values alignment

• Support and enhance our approach to leadership development and succession planning and providing support and advice to the team and managers to navigate these

HR Operations

• Act as owner of the Factorial HR system, ensuring data accuracy, functionality, and ongoing optimisation.

• Review and approve staff expenses in line with Hatch’s policy.

• Oversee all onboarding and offboarding processes, ensuring a smooth employee experience across the lifecycle.

• Manage changes to staff working hours, salaries, and contractual terms.

• Lead and coordinate recruitment processes, including job postings, candidate management, interviews, and offers.

Person Specification 

Skills

• An all rounder, able to develop a big picture vision and deliver on the details

• A keen eye for identifying talent and passion for developing people (in both their professional and personal growth)

• A focus on diversity and inclusion as a competitive business advantage

• Ability to build authentic relationships across a diverse group of stakeholders 

• Excellent communicator on all levels with demonstrated empathy and strong interpersonal skills

• Analytical skills and and ability to make, and support others to make, data-informed decisions

• Project management skills

• Problem-solving skills

Experience

• Proven experience in a similar leadership role, preferably within the social enterprise or nonprofit sector

• Demonstrated experience in developing and implementing people and culture strategies, talent management, and performance management programmes

• Leadership of end to end employee life cycle

• Partnering with business stakeholders across a whole organisation, especially senior stakeholders

• Leading people & culture project rollouts

• Developing a positive performance culture

• Experience with recruitment and HR systems advantageous

UK-based/ Colchester or Home-based with monthly travel to Colchester office. Overseas travel with trips lasting from 10-14 days. 

This post requires the candidates to have independent rights to live and work in the UK

Background

Lepra is dedicated to addressing leprosy and lymphatic filariasis (LF) and their consequences through direct support, advocacy, and the promotion of inclusive communities. We work in Bangladesh and in India, through our sister organisation, LEPRA Society. We work in partnership with people affected by leprosy and LF to improve detection, ensure access to treatment and care, and promote inclusion and wellbeing. Last year we finalised our new Global Strategy for 2024-30, which will guide us in our efforts to accelerate progress towards global targets for leprosy and LF, and towards our vision of a world free from leprosy and LF.

Job Context

Our Global Strategy marks a significant evolution in our organisational direction, introducing innovative approaches and renewed priorities. This includes our first-ever global Theory of Change (ToC), our most comprehensive Monitoring, Evaluation, Accountability and Learning (MEAL) framework to date, a Research and Innovation strategy, and a dedicated Advocacy sub-strategy to guide our influencing efforts.

With the Lepra Advocacy Strategy, we will be working over the next 6 years to strengthen our approaches to our advocacy efforts. The post holder will play a key role in supporting the roll out of the Advocacy strategy working closely with the Director of Programmes and Advocacy, the Head of Research, the Senior Programme Manager, the Programme Officer and the teams where we work.

Job Purpose

This role is an exciting role within the programmes team in response to evolving needs. The incoming post holder will work within the 5 person UK’s Programme and Advocacy team and will drive, advise and support the team in relation to Lepra’s advocacy profile. We are looking for an enthusiastic, motivated, strategic and creative person who has outstanding skills to engage and work with a diverse team. We are looking for someone to work with a clear strategy and then develop, grow and successfully shape the future of Lepra’s advocacy efforts.

Working Relationships

Reports to Lepra UK’s Director of Programmes and Advocacy (DPA)

Works closely with the Programmes and Advocacy Team

Close working links with colleagues in India and in Bangladesh and the UK’s communications team

International travel as needed for programmes oversight and support, and external representation.

Key responsibilities

Advocacy Delivery (50%)

Under the supervision of the DPA implement Lepra’s global Advocacy strategy and coordinate advocacy initiatives.

Serve as the driver of advocacy efforts, facilitating the transitional year of implementation including coordinating the Advocacy Steering Group; advocacy toolkit development; action planning.

Represent Lepra in specific fora and advocacy networks and within the broader leprosy and NTD community in close coordination with the DPA.

Produce quarterly advocacy newsletters

Maintain quarterly reports on flagging areas of concern and actioning steering committee advice.

Assist in the preparation of policy documents and the presentation of papers for publication, conferences, or specific institutions and/or individuals - identifying and targeting the most appropriate audiences.

Support and contribute to the development and implementation of initiatives that foster an inclusive, equitable, and diverse environment across organisational programmes, policies, and advocacy efforts.

Support and contribute to initiatives that promote inclusion and equity, with a strong focus on developing the leadership and advocacy capacity of people with lived experience of leprosy, ensuring their voices are central in decision-making and programme design.

Knowledge management / Learning and Development (20%)

Support the preparation of Lepra advocacy and policy documents.

Disseminate knowledge so that it is integrated into Lepra’s portfolio to amplify the impact for target audiences and improve their outcomes.

Facilitate the new knowledge and learning hub and forge a clear path for its evolution.

Facilitate knowledge sharing through updating the communications team with relevant materials for the new programme folder on the website.

Organise and develop advocacy training.

Develop and take ownership of the new programme’ s team knowledge sharing approaches.

Develop a workplan of knowledge sharing events. 

Support annual review meetings.

Communications (10%)

Assist the programmes team with the documentation of Lepra examples and models of best practice, at the same time identifying and developing mechanisms and avenues for the effective dissemination of this knowledge – internally and externally.

Assist the programmes team, DPO, Chief Executive and Country Programme staff in the synthesis of complex technical/scientific information adapting it to language and formats easily used by target audiences.

Contribute to content development of community engagement materials (public information, brochures, leaflets) that help explain the operations and impact of Lepra’s work to LF and/or leprosy affected communities.

Maintain good working links with Lepra’s UK Fundraising and Communications Team, contributing towards UK facing communications materials as and when required.

Prepare updates, papers, and reports for trustee meetings, funding partners, and wherever else applicable.

External representation (10%)

Support the Chief Executive, DPA and programmes team to maintain and expand existing strategic relationships with key international stakeholders to further Lepra’s advocacy strategy and advance Lepra’s agenda.

Ensure Lepra’s external profile is raised and become the go-to organisation for the leprosy community in terms of advocacy and policy briefings.

Support the preparation of documents for presentation, publication or dissemination at international fora.

Develop/support the development of country specific briefing notes/press kits with the communications team.

Represent Lepra at key events, conferences, and meetings to enhance our visibility and opportunity for impact.

Safeguarding (5%)

Promote a culture of respect, transparency, and accountability within Lepra’s implemented projects.

Ensuring that safeguarding mechanisms are in place and remain at the heart of all activities.

Support the integration of strong safeguarding and PSEA practices into project design and delivery.

Monitoring, evaluation, and impact (5%)

Ensure that all advocacy and knowledge transfer efforts are captured and embedded in appropriate results frameworks, objectives, outputs, indicators and Key Performance Indicators (KPIs). Provide inputs to Lepra’s reports, according to Lepra’s needs.

Person Specification

Qualifications

Essential

Relevant degree level of education in Public Health, Social Sciences, Global Health, Human Rights, Political Sciences or equivalent experience.

Desirable

Relevant post-graduate qualification

Relevant professional health-related qualification

Knowledge and Experience

Essential

Minimum of 2 yrs experience of advocacy/campaigning/policy work with an overseas development organisation

Experience of working to advance the rights of excluded populations

Extensive knowledge of global health issues and an up-to-date familiarity with issues and practice in the international development sector

Experience in planning and implementing successful strategies/campaigns/advocacy in Asia.

Experience in programme/project planning, budgeting, M&E and reporting, within a non-governmental organisation, including the preparation of reports for institutional donors.

Ability to analyse and act on data.

Experience of working on issues in relation to disability, mental health, gender, human rights and social inclusion.

Experience in project coordination and management.

Desirable

At least two years’ experience as an advocacy manager, preferably gained with an overseas development organisation or in academia, in a similar health focused role.

Familiarity with data visualisation tools and packages.

Proficiency in one or more Indian languages (e.g., Hindi, Tamil, Bengali, Telugu, etc.) is an asset.

Skills, Attitudes and Personal Qualities

Highly motivated individual with excellent interpersonal and communication skills, both written and verbal to build strong relationships, negotiate and persuade a wide range of audiences, with confidence at presenting and representing.

Proven strength in both written and verbal communication

Able to reach, network with and communicate to a wide range of stakeholders and potential stakeholders.

Excellent attention to detail, and organisational and time management skills

Ability to manipulate and analyse data to draw useful conclusions to improve programme delivery.

Ability to use databases, Word, excel, PowerPoint and other Office packages

Ability to work independently, be flexible and prioritise workload.

Ability to travel within the UK and overseas.

The right to work in the UK.

We operate a non-bias recruitment process and run our job advertisements through anonymous recruitment methods.

We offer a lot of flexibility in working practices and there is free reserved parking available at our Colchester office. We also offer 26 days annual leave plus public holidays (pro-rated), pension, Employee Assistance Programme and support from an in-house well-being team.

Only shortlisted candidates will be contacted and invited for interview. Please check your email inbox and spam/junk mail folder for any email correspondence for this vacancy.

If you require any reasonable considerations such as access or information in an alternative format, please inform us soon as you are able so that we can make the appropriate adjustments.

Please do not use AI to help you write cover letters, CVs and responses to any screening questions.  We want to hear your original voice.

WDC’s Games For Waves initiative engages the gaming and streaming communities to raise funds and awareness for whale, dolphin and ocean conservation. The Influencer Lead will help drive this mission by developing strategic digital fundraising events, managing relationships with creators and influencers, and creating impactful content.

About GNDR

We are the Global Network of Civil Society Organisations for Disaster Reduction (GNDR), the largest global network of organisations committed to working together to improve the lives of people affected by disasters worldwide. Since being established in 2007, we have grown into a network of 2,010 member organisations across 132 countries, representing millions of people on the frontlines of hazards, climate change and mass displacement. Through transformative, evidence-led programming and powerful advocacy, we are driving climate action and disaster resilience alongside our members across the globe.

About the role

GNDR is seeking a motivated and strategic leader to join our Senior Leadership Team (SLT) as Head of Fundraising, Impact and Communications on a full-time basis for a fixed-term maternity cover of one year.

In this pivotal role, you will be responsible for driving forward GNDR’s fundraising and communications strategy, increasing our reach, impact, and income in alignment with the organisation’s strategic priorities.

You will lead a fully integrated function spanning fundraising, monitoring and evaluation, and communications. This includes ensuring a joined-up and collaborative approach to consistent, distinctive messaging and engagement activities. These efforts underpin successful fundraising outcomes and support GNDR’s wider organisational goals – particularly our work in influencing policy and engaging external decision-makers.

This maternity cover role comes at an exciting moment in GNDR’s journey. We are currently evaluating our existing strategy and designing a new five-year organisational strategy that will unlock fresh opportunities to deepen our impact, extend our reach and amplify our global voice. 

The successful candidate will play an essential role in ensuring our fundraising, MEAL and communications operations remain strategically aligned and fully responsive to this evolving context.

Overall scope of the role

The remit of this post will cover the following core responsibilities:

• Sustainability and income growth
• Effective donor relations
• Funding proposals
• Impact measurement
• External communications
• Training and capacity building
• Leadership and governance
• Line management and team development

Candidate requirements

We are ideally looking for candidates who have the following core skills and experience:

• Fundraising & Communications: Proven success securing funding from donors, trusts and foundations, with strategic experience in NGO fundraising and communications
• Leadership & Strategy: Strong team leadership, capacity building, and strategic planning skills within humanitarian or development contexts
• Interpersonal & Cultural Agility: Excellent communicator, culturally sensitive, adaptable, and able to thrive in fast-paced, diverse environments
• Project & Proposal Delivery: Skilled in developing proposals, and producing high-quality reports and budgets
• Technical & Analytical Skills: A sharp analytical mindset and strong decision-making capabilities
• A strong commitment to equity, diversity, inclusion and alignment to GNDR’s core values

Eligibility

We are accepting applications from candidates eligible to work in the UK. Candidates will need to be able to travel internationally when necessary. 

This role will be predominantly remote. However, we are currently piloting a revised hybrid working model for our UK-based team, which includes monthly in-person meetups at a flexible workspace in London. This arrangement remains subject to the outcome of the ongoing consultation, with the trial period scheduled to conclude at the end of October.

Please note that all offers of employment at GNDR are conditional and subject to satisfactory background checks.

We welcome applications from candidates who meet most of the essential criteria outlined in the job specification below.

A full Job description is attached, or please visit our website.

Salary

The gross annual salary for this role is £56,098 per annum based on working full-time.

This is a one year, fixed-term full time contract.

Start date

We are ideally looking for candidates who are available to start in November 2025. However, we recognise that availability may vary due to individual notice periods, and we are happy to accommodate some flexibility where possible.

How to apply

Please submit an up to date copy of your CV (max. two A4 pages) and a Cover Letter (max. one A4 page) outlining skills and experience relevant to the role by email to HR.  Please include in the subject of the email, the following: “Application for the Head of FRIMCO role”.

Please note: we are unable to accept incomplete applications.

If you have any questions or need to discuss any adjustments to the recruitment process, please contact our recruitment team. Full contact details are availble on our website, please follow the link below.

Interview

Week commencing 13 October

Please note: The interview process usually consists of two online stages which may include a role-specific task. Interviews are typically conducted by a panel of two to three members, including the Hiring Manager. Applicants are encouraged to advise us of any adjustments required to ensure the whole recruitment process is accessible and equitable.

Our commitment to equity, diversity and inclusion

We are dedicated to creating a team that embodies the rich diversity of the society and communities we serve. Our commitment lies in cultivating an inclusive environment, where everyone has the opportunity to thrive.

We strongly encourage applications from individuals of diverse backgrounds, including those from underrepresented ethnicities, nationalities, socioeconomic circumstances, LGBTQIA+ and individuals with disabilities. We celebrate the unique experiences and perspectives that every candidate brings and are dedicated to ensuring fair and equitable opportunities for all.

We’re committed to making our recruitment process as accessible and inclusive as possible for individuals of all needs and abilities. If you require any adjustments at any stage of the recruitment process, please contact us. Contact information are available on our website.

Find out more about our commitment to equity, diversity and inclusion by visiting our website.

Our benefits and wellbeing

At GNDR, we are committed to cultivating a happy and healthy working environment for all our staff.

We provide a competitive salary and benefits package across all of our locations. 

Find out more about our approach to wellbeing and our benefits by visiting our website.

Flexible working

In order to support and encourage a healthy work-life balance for our staff, we are happy to consider flexible working requests as part of our recruitment process. As a global organisation, most staff work remotely depending on their role and location. 

If you have any questions on any of the above information or if you have any specific requirements that would enable you to participate more fully in the recruitment process,  please contact our recruitment team. All contact information are available on our website.

Head of Internal Audit

We’re looking for an enthusiastic and motivated individual to join the team as the internal auditor.

Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.

Position: SIT60 Head of Internal Audit

Location: Home-based. However, occasional travel will be required as part of this role (may include team meetings or other work-related meetings)

Salary: Circa £33,500 (FTE circa £51k) (inner London weighting £2,595 pro rata or outer London weighting £1,495 pro rata may be applied in accordance with where you live)

Hours: Part-time, 23 hours per week

Contract: Permanent

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 10 October 2025. We reserve the right to close this vacancy early if we receive sufficient applications for the role.

Interview Date: 21 October 2025. Depending on the outcome a second interview may be arranged.

Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

The role reports to the Associate Director of Legal and Governance, with an independent reporting line to the Chair of the Finance Committee.

The role will provide a comprehensive programme of internal audits into the activities of our charity and will report to our Finance Committee with recommendations for improvement. This is a crucial role in safeguarding the charity’s assets and reputation.

Key responsibilities will include:

• To establish effective and robust operational and strategic Internal Audit plans for the Charity and to report on progress of the plan
• To carry out the Internal Audits within the Internal Audit Plan, within the agreed timetable and budget shown in the Plan, to report on them, to present them to Board and Committee meetings and to monitor progress.
• To liaise with externally sourced providers of internal audit services in support of the role and for conducting internal audits into specialist areas of activity of the charity (such as IT arrangements).
• To maintain a strong working relationship with the Finance Committee, its Chair and the Chief Executive and to act as a Business Partner to all Executive Directors in relation to internal audit.
• To contribute to the Charity’s efforts to avoid fraud, including by advising on new policies and to lead on fraud investigations where appropriate
• To ensure a joined-up approach to both the external and internal audit work, minimising duplication and feeding into the external audit risk assessment.
• To liaise effectively with colleagues to ensure any potential new financial systems have adequate consideration of internal controls.
• To keep up to date with Internal Audit practice and developments and advise the Charity in relation to internal audit matters.

About You

You will have:

• A qualification in internal audit or accounting (e.g. CIA, MIIA, AAT, ACCA, CIMA) as a minimum.
• A good knowledge of how charities operate and their main processes including Finance, HR, Fundraising and CRM systems.
• An in-depth knowledge of risk based internal auditing techniques, including testing and sampling methodologies.
• A good understanding of charity related compliance requirements, and appropriate counter-fraud measures and risk management processes
• An ability to act with authority and provide an independent voice on internal audit matters affecting the charity.

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

When you click to apply, you will be able to see the full responsibilities and person specification for further information on the role.

Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience. Please state any preferences for flexible options in your covering letter. Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of supporters and donors that they can provide vital support. 

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work. The charity has a variety of staff network groups and are committed to continuously improving diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Auditor, Lead Auditor, Head Auditor, Head of Internal Audit, Head of Internal Auditing, Director of Internal Audit, Director of of Internal Audit, Internal Auditing Director, Internal Audit Director, Senior Auditor, CIA, MIIA, AAT, ACCA, CIMA. #INDNFP

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.

Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.

Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.

If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.

As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.

About Dravet Syndrome UK

Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.

What you will bring

Essential

· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.

· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.

· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)

· Demonstrable experience of working in charity, patient advocacy or healthcare sectors

· Ability to deal with people at all levels with empathy, tact and credibility

· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences

· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website

· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively

· Strong organisational and project management skills, with the ability to prioritise

· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)

Desirable

· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development

 Why join Dravet Syndrome UK?

Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.

The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.

Our commitment to diversity

As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.

Benefits Advisor
Salary £27,000 FTE,  17.5 - 21 hours per week, 6.6 weeks holiday   
Remote working with occasional travel for events and meetings in West Sussex
 

Are you a skilled benefits advisor with a passion for maximising income for children and young people with special educational needs and disabilities?  

We have an exciting opportunity for someone to join a rapidly growing caring charity with the benefits of flexible family friendly working (from home), generous holiday, pension scheme, travel expenses, laptop and phone provided.  

Reaching Families was established in 2008 to empower, inform and support parent-carers and families of children and young people with special educational needs and disabilities in West Sussex.  We achieve this through the delivery of our services providing information, training and peer support.

Our Benefits Advice Service provides support to parents of children and young people with SEND in West Sussex applying for Carer’s Allowance, Disability Living Allowance (DLA) and Personal Independent Payments (PIP).  Offering 1-2-1 advice sessions on the above benefits, support with claim checking of draft applications, information resources on benefits and other sources of financial support, and training workshops on DLA, PIP and Universal Credit.

We are looking to recruit a skilled and motivated benefits advisor to join our team
The post holder will be responsible for the delivery of advice and guidance on Carers Allowance, Disability Living Allowance and Personal Independence Payment to parent-carers of children and young people with SEND in West Sussex.

Person Specification (essential):
• Proven experience of providing welfare and benefits advice preferably gained with either children or adults with disabilities
• Experience of using CRM databases 
• Experience of using MS Office including SharePoint
• Understanding of challenges facing parents and carers of children with SEND 
• In-depth knowledge of Carers Allowance, DLA and PIP)
• Passionate about improving the life chances of children with SEND and their parents/carers, and families
See attached job description for details and full criteria 

We welcome applications from all members of the community and value diversity in the organisation. Please contact us if you require any reasonable adjustments to be made to the application or interview process due to any disability or health requirements. 

Closing date for applications is 6th October 2025 

Interviews to be held in Littlehampton on 16th October 2025 

To apply please complete the attached application form and share why you feel you fit the role and person specification (see attached documents)