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Job Title: Equipment Advice and Outreach Officer
Reports to: Chief Executive / Practice Lead
Contract: Fixed term, 18 months
Hours: Part-time, approximately 22.5 hours per week (0.6 FTE)
Location: Home-based in England, with regular travel across a large region and occasional overnight stays
Salary: £20,556 (Full-time equivalent salary (FTE): £34,259)
About Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance is a user-led charity run by and for people with muscle-weakening conditions. We provide advocacy, peer support, information, training and campaigning to help disabled people live with greater confidence, connection and control.
We are developing a new service model to help adults with neuromuscular conditions identify practical needs relating to equipment, adaptations and wider day-to-day transitions, and to connect them to people with relevant lived-experience expertise.
Purpose of the Role
The Outreach and Practitioner–Evaluator will help Pathfinders identify adults with neuromuscular conditions who may benefit from practical support around equipment, adaptations and wider day-to-day challenges.
The role is not primarily to provide complex specialist advice directly. Instead, the postholder will:
- build relationships with services and organisations to identify potential clients
- hold structured conversations to understand people’s needs
- offer initial information, practical resources and signposting
- connect people to Pathfinders’ lived-experience specialists where more specific insight is needed
- support the development of reusable lived-experience resources, including short videos, blogs and written guidance
- collect routine feedback and help document and evaluate the service
Pathfinders’ lived-experience specialists are people with direct personal experience of neuromuscular conditions and of specific issues, transitions or practical solutions. A key part of this role is helping people access that expertise.
The role is to help people make sense of what might help, what routes may be available, and who they may need to speak to next. It is not to guarantee that equipment will be obtained, but to improve people’s understanding, preparedness and access to relevant expertise and pathways.
Main Responsibilities
1. Outreach and relationship-building
- Build and maintain relationships with clinics, hospices, charities, networks and other relevant services.
- Travel regularly to external settings to identify potential clients and raise awareness of the service.
- Confidently approach professionals, families and individuals to explain the offer and encourage engagement.
- Help create practical referral and engagement routes into the service.
- Prioritise outreach activity in line with project aims and agreed target regions.
2. Needs identification and support coordination
- Hold 1-to-1 conversations with adults with neuromuscular conditions and, where appropriate, family members or supporters, to identify practical needs relating to equipment, adaptations and wider day-to-day challenges.
- Provide initial information, signposting and relevant resources within agreed boundaries.
- Recognise when an issue would benefit from connection to a Pathfinders lived-experience specialist and facilitate that connection.
- Recognise when an issue requires statutory or clinical input and support onward referral or escalation where appropriate.
- Work with Pathfinders staff to help ensure people are connected to the most appropriate source of practical or professional support.
3. Working with lived-experience specialists and resource development
- Work with freelance lived-experience specialists to identify practical solutions, insights and examples relevant to the issues raised by service users.
- Support and encourage lived-experience specialists to share their expertise in accessible ways.
- Help coordinate and develop practical resources based on lived-experience knowledge, including short videos, blogs and written guidance.
- Contribute to ensuring these resources are accessible, organised and responsive to recurring needs identified through the service.
4. Documentation and evaluation support
- Maintain accurate records of outreach activity, contacts, needs identified, resources shared, onward connections and follow-up.
- Support the collection of routine feedback, including post-support forms and short follow-up conversations.
- Use agreed templates and systems to document contacts clearly and consistently.
- Share reflections and emerging themes with the team to support ongoing learning, evaluation and service development.
5. Teamworking and service development
- Participate in regular supervision, planning and reflective review meetings.
- Work collaboratively with the Chief Executive, Advocacy Officer, freelance lived-experience specialists and external partners.
- Contribute to the refinement of service processes, boundaries and referral pathways.
- Support dissemination of learning through briefings, webinars or other outputs as required.
Additional Requirements
- Regular travel across England is required, typically around once per week, with priority given to areas closest to the postholder’s base in the first instance.
- Some travel may involve overnight stays.
- The postholder must have access to and use of a car for work purposes, although train travel may be used for some visits.
- Travel expenses and mileage will be reimbursed in line with organisational policy.
Person Specification
Essential
- Confident, outgoing and comfortable starting conversations with new people in professional and community settings.
- Experience of outreach, community engagement, advice, advocacy, support work or case coordination.
- Strong organisational skills and confidence managing follow-up, coordination and documentation.
- Comfortable using forms, spreadsheets, databases or case-recording systems and completing paperwork accurately.
- Familiarity with equipment, adaptations or practical support issues affecting disabled people.
- Ability to identify needs and know when to seek support, connect someone to lived-experience expertise, or refer on.
- Strong communication skills and a sensitive, respectful approach with service users, families and professionals.
- Ability to work independently while remaining well connected to a small team.
- Able and willing to travel regularly across England, including occasional overnight stays.
- Access to and use of a car for work purposes.
- Commitment to inclusion, dignity and user-led practice.
Desirable
- Experience of working alongside people with lived experience to co-produce support or resources.
- Experience of gathering feedback or supporting service evaluation.
- Knowledge of health or social care systems.
- Personal or close lived experience of disability or long-term conditions.
We are aiming to recruit immediately for this role with the first round of interviews on 1st June, but will conduct further interviews if necessary until we identify a suitable candidate.
Please identify how you meet the person specification in your cover letter
Behind every research breakthrough, there is a process that makes it possible.
A conversation that helps shape an idea. A fair and thoughtful review. A decision that backs the right work at the right time.
As a Research Grants Officer, you will be part of that process.
You will help run a research funding programme that is not only efficient, but fair, inclusive and supportive. Working closely with the Research Grants Manager and colleagues across the Research and Influencing directorate, you will manage funding rounds and support a portfolio of active research projects.
You will be there from the very first question a researcher asks, through to the moment funding decisions are made, and beyond. Along the way, you will help create a positive experience for everyone involved, from early career researchers to leading experts, and the volunteers who bring lived experience into the process.
It is detailed work. But it is work that makes a real difference.
What you will do
You will be at the centre of the grants process, helping to keep things running smoothly and making sure people feel supported at every step. No two days will look exactly the same, but your focus will always be the same, helping great research happen.
In this role, you will:
- Manage grant applications from start to finish, making sure each stage runs smoothly and on time
- Be a friendly and reliable point of contact for applicants, answering questions and helping them submit strong proposals
- Coordinate peer review and lay review, bringing together expert insight and lived experience to inform funding decisions
- Prepare papers for funding panels, attend meetings and capture clear, accurate notes of what is discussed and agreed
- Share outcomes with applicants in a clear, respectful and timely way
- Support the management of funded projects, helping track progress and making sure reporting is up to date
- Build relationships with researchers, clinicians and volunteers, helping them feel valued and encouraging them to stay involved
Alongside this, you will look for ways to improve how we work. That might mean updating guidance for applicants, spotting trends in our data, or helping to shape a process that is simpler, fairer and more accessible.
You will also be part of the wider team, supporting events, responding to enquiries and stepping in to help colleagues when it matters.
About you
- You have experience in, or a strong interest in, science, health or policy, and are curious about dementia research and the difference it can make
- You build positive relationships with a wide range of people, including senior researchers, and enjoy working with others
- You communicate clearly and confidently, whether you are writing, speaking or explaining something complex in a simple way
- You are organised and reliable, with strong attention to detail and the ability to manage your time well
- You take initiative and are comfortable working independently, while knowing when to ask for input or support
- You work well as part of a team and are willing to step in and help when deadlines approach
- You care about inclusion and want to make sure the way you work is open, respectful and accessible to others
We know that people do not always apply for roles unless they meet every requirement. If this role interests you but you are not sure you tick every box, we would still encourage you to apply.
This position is offered on a fixed-term contract/secondment basis until June 2027.
Interviews for this role are provisionally scheduled to take place during the week commencing 1st June 2026.
About Alzheimer's Society
Dementia is the UK's biggest killer. One in three people born in the UK today will develop dementia in their lifetime.
At Alzheimer's Society, we're the UK's leading dementia charity and the only one to tackle all aspects of dementia by giving help and hope to people living with dementia today and in the future. We give vital support to people facing the most frightening times of their lives, while also funding groundbreaking research and campaigning to make dementia the priority it should be.
Together with our supporters, we're working towards a world where dementia no longer devastates lives.
Our values make sure that our focus is clear for the challenges and opportunities ahead and remind us of what we all stand for.
Our commitment to Equity, Diversity, Inclusion & Belonging
We need to ensure the voices around our table better reflect and understand the communities we exist to serve. We strongly encourage individuals to apply who have a disability, impairment or health condition or individuals who identify as Black, Asian or from another minority ethnic background, as these groups are currently under-represented at Alzheimer's Society.
We want everyone we work with, as a colleague, volunteer, supporter, or someone we support, to feel included and that they belong at Alzheimer's Society.
Our Equity, Diversity and Inclusion Strategy here along with our internal employee forum and Employee Lived Experience network groups help us promote inclusion and belonging, becoming an engaged and inclusive organisation for all our people.
Our hiring process
During your recruitment process we want to make sure that you bring your whole self and can be at your best. We are working hard to ensure our recruitment process is as inclusive as possible, so please do inform us of your experience and anything you think we could do better by completing our candidate survey when you apply. Please also contact Alzheimer's Society Talent Acquisition Team via [email protected] for application support or any adjustments you might need.
To ensure fairness and consistency to select the best candidate for this role, all our applications are anonymised up until an interview has been confirmed. We recognise the benefits of AI, but if you're considering using it to submit your application, we encourage you to reflect on the value it truly adds. AI tools often lack the personal touch and authenticity that set candidates apart. We want to hear your unique perspective, experiences, and skills, so we encourage you to showcase them in your own voice.
We try to avoid closing roles early where possible, however if we receive a high volume of applications, we may close earlier than the advertised closing date. Should this occur, we will aim to provide you with at least 48 hours' notice.
We are committed to safer recruitment and ensuring the welfare of those we work with, due to the nature of some of our roles, we might need to carry out a Criminal Record Check at the relevant level. You can read more information via our Website.
Giving back to you
Our employees work hard every day to make a true difference in people's lives. We are proud to support them with a range of benefits, recognition and many options for working agilely, all contributing to a strong work life balance. We also have various learning programmes to support you in your development and help you grow to realise your potential and shape a career with Alzheimer's Society.
You can also visit our Working for Us pages, which give you more information about what it's like to be an employee at the Society.