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This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The role
We are seeking an experienced Manager of Philanthropic Giving with a strong track record in securing major gifts. The ideal candidate will excel at building trusted, long-term relationships with donors and feel confident leading conversations that result in significant philanthropic support. This role will also contribute to the development and delivery of a trusts and foundations strategy, helping to grow and strengthen our portfolio.
Working closely with the CEO, senior leadership and trustees, you will develop compelling funding propositions, steward donors and funders through excellent reporting and engagement, and represent myaware at meetings, events and networking opportunities. You will also maintain accurate records through our CRM system, track performance against targets, and contribute to income planning and reporting. This is a strategic and hands-on role with real impact for people affected by myasthenia.
The Manager of Philanthropic Giving will be predominantly home based within the UK (with occasional working and meetings at Derby HQ) and will work in co-operation with the fundraising team and all myaware colleagues to deliver agreed fundraising targets and campaigns. Own transport is essential for this role as occasional travel throughout the UK will be required to attend donor meetings, events and networking opportunities, as well as the ability to travel to the Derby office. There may be the need to occasionally work during weekends and evenings and therefore there is a need to work flexibly when required.
Who We Are Looking For
We are looking for an experienced and motivated fundraising professional with a strong track record in major donor fundraising along with experience in Trusts and Foundations fundraising. You will have experience in personal communication in asking for high level funds, and experience of stewarding high net worth individuals to maintain high levels of engagement over a significant period. You will have experience of Trusts and Foundations fundraising including pipeline management and stewardship, writing compelling funding applications and impact reports.
You will be a strategic thinker with excellent interpersonal, research and organisational skills, confident managing a complex pipeline and working collaboratively across teams. You will be comfortable working independently, using CRM systems, and engaging senior stakeholders, including trustees and high-level donors. Most importantly, you will share myaware’s values, demonstrate empathy with our cause, and be committed to making a meaningful difference through philanthropy.
If this sounds like you, we would love to hear from you.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Application instructions
Candidates should submit their CV and tailored covering letter by: 11:30pm on Monday 25th May 2026.
Provisional interview date will be week commencing: 01.06.2026
Interviews will be held over Microsoft Teams.
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
The client requests no contact from agencies or media sales.
As Fundraising Lead- Midlands & South Wales, you will lead Philanthropy and Corporate fundraising across your region, developing relationships with high‑net‑worth individuals, senior business leaders and corporate partners.
You will manage Centre Fundraising Managers, and support them on planning and prioritisation, work with Fundraising Boards as appropriate, and share best practice across Maggie’s. You will also help develop new fundraising opportunities.
This role requires a confident and collaborative leader who can coach teams, manage multiple stakeholders, work independently across a large region, representing Maggie’s with clarity and credibility.
There are four fundraising leads covering Scotland, North and North Wales, Midlands and South Wales and South. This role will work closely with the following centres: Cardiff, Swansea, Cheltenham, Nottingham, Oxford, Northampton, (Birmingham, Coventry – not yet open).
Please note that first stage interviews will be held on Tuesday 9th June through Microsoft Teams. Second stage interviews will be held in person. Date and location TBC.
Maggie's provide free cancer support and information in our centres alongside NHS hospitals and online.
The client requests no contact from agencies or media sales.
Job title: Head of Co Production
Location: Working from home
SCIE Vision
We are committed to building a society which enables people who draw on social care to live fulfilling lives.
At the SCIE, we are driven by our values:
· Progressive – always learning and developing.
· Inclusive – working together for equality, diversity, and fairness.
· Credible – evidence-based, robust, and reliable.
· Transparent – open and honest.
· Committed - focused on making a difference to people’s lives.
The role:
We’re looking for a senior leader to make co-production the way we work — not a project, not a principle, but embedded practice across the organisation.
This is a high-impact role shaping how lived experience drives strategy, design, delivery, and decision-making. You’ll lead a specialist team, but your influence will stretch internally and externally.
You’ll be responsible for turning ambition into action — building a clear roadmap, strengthening capability, and ensuring co-production is consistent, credible, and genuinely embedded into our work.
You’ll lead the development and delivery of new co-production products and partnerships, generating income and strengthening our position as a sector leader in co-production practice.
What we are looking for:
Example as below
• Embedding co-production across the organisation so it becomes business-as-usual.
• Developing and delivering co-production products internally and externally and generating new income streams.
• Leading a bold roadmap for culture change and continuous improvement
• Influencing partners across social care and beyond.
• Strengthening governance, accountability, and consistency of practice
If you can help shift co-production from aspiration to reality — we want to hear from you.
What we offer in return:
We offer excellent staff benefits including a competitive salary and homeworking allowance. We provide an employer pension contribution above the statutory minimum, an award-winning employee assistance programme, and an attractive holiday package which rises with length of service. Benefits of working for SCIE can be found here Work for the Social Care Institute for Excellence - SCIE
If you would like to access the application form in a different format or if would like any assistance that might help improve your experience while completing the application, please contact us.
We reserve the right to close the advert at any point we are actively reviewing applications.
Job Description
Job Title: Digital Content Officer – SEND
Responsible To: Senior Parent Adviser - SEND
Team Membership: Helpline/IAS- (Information, Advice and Family Support Directorate)
Hours: 14 hours a week
Salary scale:
Scale point 26
£32,168.00 FTE
£12,867.20 – actual (14 hours a week) plus £26.00 a month home working allowance
Contract: Fixed – until 31 March 2027
Location: Home based - UK
Job Purpose:
To write engaging plain English website copy on SEND law and related education law matters in England.
To help ensure the provision of quality information, advice and support to parent carers.
Main Duties:
To write quality plain English copy for the Contact website.
To review, edit and update existing SEND and education related copy on the Contact website.
To work with the education helpline team to identify and prioritise the information and advice needs of parent advisers and parent carers.
To write and develop content to respond to common SEND and related education law concerns of parent carers.
To help ensure our information and advice reaches more families by working with the comms team to promote our IAS through social media, and digital channels.
To build positive working relationships with colleagues, contributing to a culture of mutual respect, trust, and shared responsibility.
To respect diverse experiences and perspectives within the team and contribute constructively to problem‑solving and decision‑making.
Demonstrates awareness of education legislation, statutory guidance, and good practice in England.
A commitment to the provision of quality information and advice.
General duties
In common with all Contact staff, the post holder will be expected to work in accordance with the aims of Contact and to observe the policy and procedures set out by the directors of the charity.
The post holder will be expected to assist with any reasonable duty at the request of the line manager for the post.
Staff will be expected to attend and participate in Contact staff meetings and the staff annual conference.
Staff will be expected to attend training events relevant to their specific responsibilities.
Staff will be offered supervision, support and annual review s incorporating their training needs.
The client requests no contact from agencies or media sales.
The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.



Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
SV 2 is a registered charity supporting victims and survivors of sexual abuse and sexual assault across Derby City and Derbyshire. We deliver specialist support, education and prevention services, including ISVA and ChISVA services and a BACP‑accredited therapy service.
We are looking to expand our pool of experienced, trauma‑informed Clinical Supervisors to provide reflective, supportive and ethically focused supervision to staff working across our services. This supervision plays a vital role in promoting safe practice, practitioner wellbeing, professional development and robust safeguarding and ethical decision‑making.
You may undertake monthly clinical supervision to one or more of the following areas;
ISVA teams (monthly group supervision across North and South Derbyshire + quarterly individual supervision
Supervision must be trauma‑informed and reflective, aligned with the BACP Ethical Framework (or equivalent), and attentive to risk, safeguarding, vicarious trauma and burnout.
About you:
You will hold a Level 5 or Level 6 (or equivalent) Clinical Supervision qualification, be registered/accredited with BACP/UKCP/NCS (or equivalent), and hold a recognised Level 6 counselling/psychotherapy qualification.
You’ll have experience delivering group supervision, strong knowledge of sexual violence and trauma, and a commitment to CPD and safeguarding practice. An Enhanced DBS is required.
Please apply via CharityJob with your CV and a covering letter
The client requests no contact from agencies or media sales.
The Talent Set are delighted to be partnering with Our Future to recruit their new Head of Scaling (Maternity Cover)
Our Future is a growing organisation working to put communities in control of their town’s future. We support local people to shape a shared vision, drive change from the ground up, and unlock long-term funding while influencing national policy to better support community-led change.
Having started in Grimsby and expanded to Rochdale, we’re now building a national movement.
The Role
As Head of Scaling (maternity cover), you’ll lead delivery of our plans to scale impact, including the growth of the Our Future model nationally, supporting towns to adopt via diverse scaling delivery models, and the delivery of tools and products to support this work.
You’ll support the infrastructure, partnerships and programmes that help towns take control of their future. This is a hands-on leadership role that blends strategy and delivery. You’ll work alongside others to turn ambition into action and build something that lasts.
This role begins with a handover period working alongside the current Head of Scaling, with a focus on getting up to speed with Our Future's newly developed scaling strategy and preparing for its delivery. From May 2026, the organisation will be transitioning from strategy development into active delivery- and this will be the primary focus of the cover period. The incoming Head of Scaling will play a central role in driving that transition forward, turning plans into action across all areas of the scaling programme.
Key Responsibilities
Experience & Skills
You will bring:
Knowledge & Understanding
Personal Qualities
What We Offer
How to Apply
To apply, please submit your CV demonstrating your suitability for this role by clicking the 'apply now' button.
Please Note: All speculative/ direct CVs sent will be forwarded to The Talent Set for review.
Commitment to Diversity
The Talent Set are committed to diverse and inclusive recruitment practices, ensuring equal opportunities for all applicants regardless of race, religion or belief, sex, sexual orientation, gender reassignment, marriage and civil partnership, pregnancy and maternity, disability, or age. We actively encourage applications from a wide range of backgrounds and are always happy to make reasonable adjustments to ensure a fair recruitment process.
About you
Do you want to use your skills to make it possible for people with myeloma to live longer and better lives? We are looking for a Peer Service Co-ordinator who will facilitate the delivery of our Peer Service and collaborate on the future development and improvements of the service.
You will have experience of recruiting, training, and supervising staff or volunteers. Experience working with a diverse range of communities would be an advantage as we are looking to increase our reach. The role holder will have an understanding of the challenges that may arise from delivering digital/telephone support and the ability to understand and meet training and development needs of volunteers.
You’ll have excellent communication, organisational and IT skills as well as being self-motivated, committed with a desire to make a difference and willing to develop and expand the role. Experience of facilitating peer support services, with a focus on volunteer/user involvement in service delivery would be an advantage but not essential.
About the role
The Peer Service Co-ordinator will facilitate and develop the Peer Service, a tailored support service utilising volunteers to provide peer support both in and out of standard office hours.
The postholder will be expected to train and develop the volunteers who support the Peer Buddy service, make suggestions for improvements and recruit and train new volunteers to increase the diversity of the volunteer pool. You will support in delivering ongoing improvements and further service development to enhance the offerings of the peer service while working with the Peer Service Lead to ensure possible risks have been identified, assessed and effective risk management strategies have been put in place.
You will need to develop and maintain a good understanding of myeloma and its’ related conditions, including patient need, and develop and evaluate the service in line with this.
This role will be part of the team responsible for running this service and provide supervision and training to volunteers. They will be expected to adhere to safeguarding principles and good governance.
About us
Myeloma UK is the only UK charity focused on the incurable blood cancer, myeloma and its related conditions. We provide support and influence access to treatments, while researching a cure. Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well.
We are committed to bringing together the best and brightest people to help us ensure that every person affected by myeloma has an empowered present and a hopeful future.
Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every person living with myeloma, live well, for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change.
Our culture
Wellbeing and staff engagement are at the heart of our culture. We offer employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working which includes both home and hub-based office working, health plan, employee assistance plan and holiday purchase scheme. We are committed to providing learning and development opportunities for all our employees.
How to apply
If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending the following:
1. A cover letter telling us more about you and what you think makes you a good fit for this role
2. A CV that sets out your career history, with key responsibilities and achievements
Applications close on 9am on 11 May 2026 and interviews will be held w/c 18 May 2026
Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:
· sex
· race
· disability
· age
· sexual orientation
· gender reassignment
· religion or belief
· marital status
· or pregnancy and maternity
Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Research Grants Manager
We’re looking for a Research Grants Manager to join the team.
Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.
Position: CE401 Research Grants Manager
Location: Home-based, UK nationwide however, occasional travel will be required as part of this role (may include team meetings or other work-related meetings)
Hours: Full-time, 35 hours per week
Salary: Circa £47,000 per annum (inner London weighting £3,950 per annum or outer London weighting £2,475 per annum may be applied in accordance to where you live)
Contract: Permanent
Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.
Closing Date: 8 May 2026. We reserve the right to close this vacancy early if we receive sufficient applications for the role.
Interview Date: 20 May 2026
The Role
The Research Grants Manager leads the design, delivery and governance of the Association’s research funding portfolio. The role ensures that all Association funded research schemes, including fellowships and project grants, are strategically configured, rigorously governed and effectively delivered in line with the Association’s Research Strategy.
The role will ensure that research funding schemes are aligned with external research developments and designed to maximise long-term impact. The role includes formal accountability for embedding high-quality, inclusive and structured lived experience participation within research funding processes.
The Research Grants Manager is the organisational lead for research funding operations, ensuring the Association maintains a sector-leading, transparent and strategically focused funding programme.
Key responsibilities will include:
About You
You will:
To fulfil the role, you must be a resident of the UK and have the right to work in the UK
Please state any preferences for flexible options in your covering letter.
Finding strength through support
The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.
They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.
It’s only thanks to the generosity of supporters and donors that they can provide vital support.
The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.
The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.
A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work.
You may also have experience in areas such as Research and Grants Manager, Research Manager, Grants Manager, Scientific Research, Health, Social Science, Social Science Research.
Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People. #INDNFP