Learning manager jobs in southam, warwickshire

Since 1979, Advice UK has been supporting advice organisations by helping them to be efficient, competent and effective, and by campaigning for a policy environment that supports advice agencies and people needing advice. They are a small but mighty charity who support their members to provide advice to 2.8 million people in 2024 alone. They are working towards a world in which every individual, regardless of means, is able to access the advice they need in order to exercise their rights and deal with any legal and social welfare challenges they may face.

Charity People are partnering with AdviceUK to help in their search for a passionate Press Officer to help them achieve their vision.

Contract: Permanent role
Salary: 28,733 plus Regional Weighting (up to £4,677 in London). All staff also receive £600 per year work from home allowance

Location: Hybrid role which will be predominantly home-based with some travel and meetings in London
Hours: Full-time, 35 hours per week with flexible working options fully supported
Closing date for applications: Tuesday 27th May
Interviews: Interviews will be held in person at the charity offices in London on the 10th and 12th June with travel costs reimbursed

Core responsibilities within your role will be to:

• Work with the Head of Policy and Public Affairs to set up a new press office function for AdviceUK.
• Shape proactive, impactful media plans as well as responding to reactive media inquiries.
• Manage relationships with journalists and craft attractive copy for press releases and a range of other communications purposes.
• Support team members to identify media and communications opportunities related to their work.
• Brief and thoroughly prepare senior staff and AdviceUK members for appearances in broadcast media.
• Liaise with the marketing team to identify opportunities to promote policy and public affairs work through social media and other owned channels.

The purpose of this role is to support the policy and public affairs team to raise awareness of AdviceUK, their campaigns and the work of their members through the media. You will be an excellent communicator who can draft engaging copy for press releases and other media. You will be a fast learner, who can pick up new topics and issues with ease, and you'll be data-focused, able to use robust evidence to support press comments.

We would love to hear from you if you have the following skills and experience:

• Previous experience working in a press office environment, working on proactive and reactive comments and campaigns.
• Experience building contacts and relationships with journalists from a wide range of media outlets.
• Experience preparing senior staff for media appearances
• The ability to draft press releases and web copy on a range of issues
• A track record of delivering successful high impact press campaigns.
• Experience working sensitively with case studies and vulnerable individuals

If you're interested in learning more about this opportunity, please send your CV to Alice at Charity People in the first instance. 

Charity People and actively promotes equality, diversity, and inclusion. We match charity needs with skills and experience of candidates, irrespective of age, disability (including hidden disabilities), gender, gender identity or gender reassignment, marriage and civil partnership, pregnancy and maternity, race, religion or belief, or sexual orientation. We do this because we know greater diversity will lead to even greater results for the charities we work with.

Role Summary

As Head of Development, you will define and execute a bold fundraising strategy aligned with our mission and priorities. You’ll develop and strengthen relationships with major donors, trusts and foundations, climate philanthropists, and institutional funders—particularly in the US and Europe.

You will lead the strategic direction for income generation and play a key role in strengthening our visibility in key philanthropic spaces. This role requires entrepreneurial thinking, the ability to work across continents and cultures, and a hands-on approach to building systems and narratives that resonate with diverse funders.

Job Details

Reports to: President and CEO
Department: INT Development
Direct reports: International Fundraising Manager, Grant Writing Manager, Supporter Engagement Coordinator
Location: Remote, possible in the UK, NL, DE, BE or ES - in exceptional cases, potentially US (ET zone) 
Hours: full-time
Salary: dependent on experience and location, e.g. £52k- £62k in the UK

Responsibilities

Fundraising Strategy & Innovation:

• Design and deliver a fundraising strategy that scales ProVeg’s income from major donors, climate (and other relevant) foundations, and institutional funders.
• Identify and pursue new revenue streams aligned with our climate and food system mission.
  Collaborate with leadership to strengthen our theory of change, donor engagement frameworks, and funding cases.

Donor & Stakeholder Engagement:

• Cultivate and steward relationships with high-net-worth individuals, trusts, foundations, corporate contacts and strategic partners.
• Represent ProVeg in donor meetings and high-level external events.
• Support the Senior Leadership Team and President in managing key donor relationships.

Team Leadership & Development:

• Lead and grow the international fundraising function to increase income, capacity, and global reach.
• Drive team culture and performance, fostering professional development and a focus on measurable outcomes.

Cross-Organisational Collaboration:

• Collaborate with Communications, Programme, Finance, MEL, and Country teams to strengthen our fundraising infrastructure, materials, and processes.
• Ensure effective fundraising data management and internal reporting systems.

Qualifications

Required:

• Minimum 5 years of senior-level fundraising experience, ideally with major donors and foundations in the US and/or Europe.
• Proven track record of securing six-figure + gifts, including new donor acquisition and multi-year commitments.
• Deep understanding of the climate philanthropy and/or food system transformation space.
• Experience working in international NGOs or with cross-country fundraising collaboration.
• Excellent stakeholder management and interpersonal skills across sectors and cultures.
• Strong writing and proposal development skills.
• Entrepreneurial mindset: comfortable building systems, not just managing them.
• Outstanding written and verbal communication skills (minimum C2-level English).
• Strong analytical skills and experience measuring the success of fundraising activities.

Preferred:

• Familiarity with effective altruism and impact-led giving.
• Comfortable engaging in discussions around equity, justice, and sustainability in fundraising contexts.

Benefits of working with us

• A strong organisational focus on personal development, with a designated training budget.
• Provision of a work laptop.
• Flexible, trust-based working arrangements and home-office arrangements.
• Career-development support.
• Mindfulness programme - free Headspace account for you and up to 5 friends or family members
• A workplace that encourages everyone to bring their whole selves to work. We are an inclusive workplace for our diverse employees around the world.
• And, last but not least, the opportunity to be part of a great team and work towards a world where everyone chooses delicious and healthy food that is good for all humans, animals, and our planet!
   

When?

Application deadline: 06.06. 
First (People & Culture) interviews: 09.-13.06. 
Trial task submission deadline: 23.06.
Final (hiring team) interviews: 07.-11.07. 
Earliest starting date: 01.08.

Further information

Your application should include a cover letter and CV. Please indicate your motivation for the role and describe how you meet the requirements. Please send us your application using our online form. Thank you!

Important: Please make sure to use your own words and ideas on the cover letter. The goal is for us to know you better in order to assess if this role and your motivation are a good fit. Letters written with AI, or written in a language other than English, will be disregarded.

Location: Remote in Europe

Salary: Depending on experience (including unpaid and other experiences) and capacity to take on responsibility, the salary range is:

• £73,135 - £79,230 for the United Kingdom

• €60,150 - €76,263 for France

• €83,439 - €89,399 for Netherlands

If the successful candidate is outside of the UK, France, or NL, the salary and benefits will be adjusted based on local market equivalencies.

About Us

The Sunrise Project is a global network of independent organizations united by a common mission: scaling social movements to drive the global transition beyond fossil fuels. We've developed a unique model that combines strategic grant-making with campaigning, supporting interconnected organizations to create powerful change aligned with our mission.

The Sunrise Project Inc. is a proud member of The Sunrise Project network. Our organizational culture is dynamic and adaptable. We're committed to supporting our team members to thrive as we tackle the urgent challenge of climate change. We believe that a diversity of experiences and perspectives strengthens our strategies, teams, and movements.

The Sunrise Project Inc. takes the broadest possible view of diversity and encourages First Nations people, people of colour, people living outside of cities, people living with disabilities, neurodiverse, and LGBTQIA+ people to apply. We are continually working on becoming a better workplace for everyone. Find out more here.

About the Program

The Europe Regional Finance program has evolved out of our Financial Regulation and Policy Program that began in 2019 with a narrow focus on European central banks. Since then, we've expanded to shape financial regulation and policy globally to accelerate clean energy and create lasting systemic change in how public finance addresses climate challenges. Now the Europe Regional Finance program will focus on EU Policy and Finance and UK Policy and Finance. 

About The Role

The purpose of this role is to contribute to achieving the objectives in the EU Financial Policy and Regulation project, specifically the work on public finance, fiscal policy and industrial strategy. Together with partners and allies, this role will help stop the political polarisation of net zero and contribute to building the broader case for public investment by establishing and propagating a narrative linking the opportunities of the clean energy transition with improving conditions for households and communities. This role sees the big picture and can translate it into actionable plans for maximum impact.

We support networks of organisations to work together to achieve outcomes that would not be possible by individual organisations acting alone. We expect all roles at Sunrise to actively support the capacity building of these networks and partner organisations. 

About You

You have experience working on public finance, fiscal policy, or industrial strategy. You understand what it takes to hold the big picture, and translate complicated campaign strategies into actionable steps. You enjoy digging into the policy details, but are able to focus on the key ways to move the campaign forward for maximum impact. You’re able to work with diverse networks of organisations from trade unions to business leaders. You have a strong understanding of the political context which dictates our work and what's possible, but also innovative in thinking through solutions and opportunities to do things differently. You have experience working in Europe. You’re flexible and willing to change course when needed and respond to opportunities, but are able to keep the systemic change we want to achieve in mind. 

Key Responsibilities

• Leads on the development and implementation of high-impact campaign strategies and tactics to achieve our programmatic goals, objectives, and key results, in accordance with our values and JEDI commitments. 

• Sources, builds, and maintains strategic relationships with key partners, facilitating collaborative efforts to co-develop and implement strategies.

• In collaboration with the research team, identifies and develops a plan to fulfill complex research and analysis to inform the development of effective campaign strategies and plans.

• Provides strategic advice to partners and community groups to enhance the strategic impact of their campaigns.

• Ensures alignment between global public finance work and associated projects across the wider Global Finance Program.

• Fosters the development and growth of a well-informed, effective, and powerful network and individuals dedicated to our cause, and contributes to the broader movement's progress.

• Designs and evaluates grant proposals and strategies in collaboration with partners, manages grants and oversees a portfolio of grantees ensuring the delivery of high-impact initiatives to support the movement's impact.

• Drives and facilitates inclusive and transparent strategic decision-making processes, including campaign evaluation and impact reporting.

• Acts as a key influencer, coach, and strategic advisor, and may manage consultants and/or teams with responsibility for the management, development and growth of others.

• Regularly evaluate projects at 3 months, 6 months and annually during the first year and every 6 months after that.

• Aligns programmatic strategies and OKR’s with Sunrise’s Values and mission.

Required skills and experience

• Advanced level campaigning experience in European public finance, industrial strategy, and fiscal policy in a similar role including unpaid, grassroots or lived experience.

• Proven experience researching, building, and incubating new strategies in consultation and coordination with partner organizations.

• Ability to work with the team to execute grants. 

• Ability to successfully manage across cultures, and a track record of creating inclusive work cultures, both internally and with partners.

• Demonstrated ability to work in a very dynamic environment with a high degree of flexibility and agility. 

• A high level of emotional intelligence with excellent interpersonal communication and group facilitation skills.

• A passion for action on climate change and a commitment to social justice, equity, diversity.

Desirable Skills and Experience

• Experience grant making would be beneficial. 

• Experience working fundraising would be an advantage.

Job requirements

• You must have full working rights in the country in which you will be working. The Sunrise Project is unable to sponsor applicants for employment visas.

• Previous employment reference checks will be required for successful applicants.

• Attend local in person partner events as appropriate.

• Intermittent travel with advanced notice may be/is required.

How Sunrise supports its staff

The Sunrise Project is committed to creating a workplace that supports our staff to do their best work and develop professionally. Sunrise has the following in place to help us achieve that, noting pro rata will apply for part time staff and/or temporarily appointed-fixed term staff.  The successful candidate will be hired via a Professional Employment Organisation (PEO) on behalf of the Sunrise Project, so conditions of employment may vary.

• Statutory benefits and entitlements of the country/province in which you are employed.

• Sunrise may provide additional benefits, where in-country entitlements are less than our standard package, where applicable including:

  • Paid Parental Leave that is gender-neutral & inclusive of all types of families, incl. Parental Return To Work & Keeping In Touch Program

  • Life Leave (up to 40 days p.a. for significant personal reasons)

  • Public Holiday + Cultural Leave

  • Workspace Benefits incl: Macbook & accessories, initial $2,000* for home workspace & IT equipment + $800* every 2 years + up to $75/mth phone/data/internet (equivalent local currency) .

  • Shared office support

Additionally we offer:

• Flexible Working Policy

• VIDA - An AI tool to support your health and wellbeing

• Regular all-org and team meetings & retreats

• Learning & Development Program incl. a professional development budget for every staff member

• Coaching & manager support with regular 1:1 meetings

• Annual performance & development reviews with 360 feedback

• A co-developed work plan to ensure clarity on your role & key responsibilities

• We provide our staff with a voice on issues that concern them via consultation, caucuses, working groups, and surveys.

How to apply for this job

We recognise that racism, sexism, ableism, homophobia, classism and other forms of discrimination creates structural barriers that impact opportunities to formal education and experience. 

You’ll be taken to Be Applied to complete your application.

About The Role
Audience Insight Researcher – 12 Months Fixed-Term Contract
Closing Date: 29th May 
Contract: This is a 12-month fixed-term contract, with the possibility of an extension
Interviews: 16th June 
 
Application Process: Please ensure you apply with your most updated CV and a supporting statement explaining why you believe you would be the most suitable individual for this position.
Are you ready to use your expertise as a market researcher to deliver truly actionable insights that will help Alzheimer's Society drive the change needed for people affected by dementia?
Do you have the skills and passion to make a difference through research, supporting one of the UK's most pressing health and social care challenges?
An exciting opportunity has arisen for an Audience Insight Researcher to join the Audience Insight team at Alzheimer's Society on a fixed-term contract. We are looking for an exceptional individual with proven experience in designing, conducting, and delivering qualitative and quantitative ad hoc primary research projects. The focus of this role is on producing clear, insight-led recommendations that support teams across the organisation in making evidence-based decisions.
The Audience Insight team operates as a hybrid internal agency and consultancy, leading transformative market research that shapes strategic direction. Our work spans a wide range of audiences, including supporters, service users and the public, and includes both primary research and analysis of secondary data sources. We also partner with trusted external agencies on key large-scale research initiatives.
All our projects are insight-driven and strategically aligned, providing high-quality consultation rooted in a deep understanding of the needs and priorities of internal stakeholders.
You will:

- Design and conduct qualitative and quantitative market research projects.

- Project manage throughout the project lifecycle.
- Determine the appropriate methodology to meet the project objectives, budget & deadlines.
- Design questionnaires and discussion guides.
- Conduct qualitative interviews and moderate group discussions.
- Programme surveys to be conducted with supporters.

- Analyse qualitative and quantitative data.
- Lead on the evaluation of data from market research tracking projects.
- Write reports that provide insight and actionable recommendations.
- Present to internal stakeholders.
- Collaborate with colleagues on the Audience Insight team to deliver market research and reporting excellence.
- Build and manage relationships with internal stakeholders.
- Build relationships with and manage external partners.
- Manage ongoing MR projects.
- Ensure market research conforms with all GDPR, compliance and information governance, as well as the MRS Code of Conduct.

About You
You are:

- Passionate about championing the diverse needs of people affected by dementia.
- Proficient in designing, conducting, and analysing both qualitative and quantitative market research.
- An experienced qualitative moderator, confident in facilitating engaging discussions.
- Skilled at producing insightful, story-led reports that communicate findings.
- An excellent communicator, both written and verbal
- Highly organised, with the ability to manage multiple priorities and meet deadlines.
- Detail-oriented, with a meticulous approach to your work
- Proficient in the MS Office suite, particularly PowerPoint and Excel
- Experienced in survey programming tools (e.g., Forsta, SmartSurveys) – desirable.
- Knowledgeable about the MRS Code of Conduct, GDPR, and data protection regulations.
- A collaborative team player who thrives in a supportive working environment
- Self-motivated, proactive, and eager to learn and develop.

Fundraising lead (fixed term 12-month contract, 0.4 FTE i.e. 14 hours a week)

JustMoney Movement is seeking a part-time Fundraising lead to help us grow a more sustainable funding base. The role will work with senior staff to develop our strategic case for support to target small organisational/ institutional donors (£1-5k grants/ donations).

We are a Christian charity using education and advocacy to work towards our vision of a fairer, greener future, through the transformation of our financial system and wider economy. We want to grow and diversify our funding base, reducing our dependence on a small number of grants, and building a movement of allies who feel part of the community and are willing to financially support it.

The Fundraising lead will work with senior staff to develop a case for support for our overall strategy and use this to target small organisational/ institutional donors including small trusts; corporates and organisations; and churches. 

Role description

· Grade 3.1 expected FTE salary £35,700 pro-rated to 0.4 FTE/ 14 hours a week = £14,280 (subject to annual inflationary pay review).

· Fixed term 12-month contract. This post has funding for 1 year.  If successful, there could be scope to extend the role for longer.

· Remote based: this role will be based from home, with occasional travel to meetings in London or elsewhere in the UK, for which expenses will be payable. This role is equivalent to 2 days a week but hours can be worked flexibly through the week.

· This role requires applicants to have the right to live and work in the UK.  

· Whilst this is advertised as a staff role, we would consider applications from consultants taking on the role as part of their portfolio.

Please apply via Charity Job with your CV and a cover letter outlining how you meet the person specification below, by 9am on 2 June 2025. Interviews (via Zoom) will be on 9 or 10 June.

Role Requirements

· Develop and deliver JustMoney Movement’s core fundraising strategy for small organisational/ institutional donors (donations/ grants of between £1-5k) targeting small trusts, organisations, corporates and churches.

· Work with senior staff to create a ‘case for support’ for JustMoney Movement’s overall strategy.

· Identify, develop and steward relationships with aligned small trusts, organisations, corporates and churches (in conjunction with other staff, especially the Executive Director [ED] and Director of Movement Building [DMB]).

· Design and implement the initial year of an annual programme of fundraising communications with these audiences including proposals, stewardship and reporting.

· Work closely with the ED and DMB to ensure prospects are passed on for a bespoke approach where appropriate.

· Help to set realistic targets for the ‘foundation’ 12/18 months, and take responsibility for meeting these, providing regular updates to senior staff and trustees.

· Maintain contacts and work with others in the team to develop appropriate systems and processes to support this area of fundraising.

Person specification

Essential

· Empathy with JustMoney Movement’s vision and work.

· Experience of leading one or more of the following areas of fundraising for a charity:

o Small trusts and foundations

o Corporate/ organisational

o Churches

· Experience of developing a Case for Support.

· Creative and imaginative thinker finding new opportunities to reach new potential funders.

· Exceptional organisational skills, including attention to detail and the ability to multi-task.

· Persuasive written and verbal communication skills.

· A strong “can-do” attitude, combining practical, hands-on skills with a strategic mindset.

· Ability to work collaboratively within a small team, as well as working independently.

· An understanding of and demonstrable commitment to equal opportunities, diversity and inclusion.

· As the charity is a Christian organisation, the successful applicant will be expected to be in sympathy with the Christian faith and will demonstrate a commitment to the mission, principles, values and practices of the organisation.

Ideal

· Experience of working in a Christian charity or church setting

· Familiarity with economic justice (e.g. banking, finance or tax justice) issues, especially within a Christian framework

Administrator - National Youth Agency

The National Youth Agency is looking for a new Administrator to join our Core Operations Team.
 

Contract: Permanent
Hours: Full-time - 37 hours per week
Salary: £25,000 per annum
Remote: This role is homebased with occasional travel for staff residentials and other events. Ideally the post-holder will live in commutable distance to our office in Leicester.
 
What we do
 
As the national body for youth work, the NYA has a dual function. We are the professional statutory and regulatory body (PSRB) responsible for qualifications, quality standards, and safeguarding for youth work and services in England. In line with our charity mission and aims, we also champion youth work through research, advocacy, campaigns, and programmes.
 
We work in partnership and believe in collaborative leadership, listening to youth workers and the youth work sector so that we can understand their needs and respond to the challenges they face. We are ambitious for youth work and for young people and integrate youth voice and influence across our work
 
About the Role
 
We are seeking an experienced administrator to support the smooth running of our charitable work through a range of administrative tasks. You will join a committed, lively team working together to transform the lives of young people through the power of youth work.
 
This role will be responsible for providing an efficient and effective, day to day, administrative support function for the wider organisation.
 
We are looking for a friendly, professional, and enthusiastic individual with a broad set of administrative skills who can deliver an extremely high level of customer service to our stakeholders and colleagues. The role is extremely varied and an ability to multitask is essential.
 
This role would suit someone who is confident, flexible and has great communication and organisational skills.
 
We need a self-starter who enjoys a challenge, can hit the ground running and is able to work remotely. A key person in the office, you will help support the work of other team members and become a valuable asset to the charity.
 
Key responsibilities for this role will include:

• Co-ordination and arrangement of meetings and events.
• Acting as the point of contact for internal and external stakeholders ensuring all telephone and email enquiries are dealt with effectively and in a timely manner.
• Finance administration; supporting with processing expenses and the reconciliation of credit card payments.
• Create, maintain and update confidential records.
• Preparing reports, documents and presentations for internal and external meetings.
• Support meetings including providing agendas, minutes and briefing documents.
• Booking travel, accommodation and venues.
• Performing data entry tasks.
• Any other duties that may reasonably be required of the role.

 
Please refer to our Candidate Pack for more information on the role and the requirements.
 
Why Work for NYA?

• NYA operates as a people-first organisation, prioritising the well-being and needs of its employees.
• NYA offers an exceptional flexible working approach which encourages our team to balance professional responsibilities with their personal life.
• A remote based team, spread across England, fostering inclusivity and diverse talent. Despite geographical distances between team members, NYA maintains a highly motivated and connected team through the optimisation of digital tools.
• NYA is committed to supporting the continual personal and professional development of our team and helping them achieve their ambitions.
• We provide 25 days leave plus 8 days, life assurance scheme, 5% employer pension contribution and a comprehensive Employee Assistance Programme via with unlimited specialist support available to all NYA employees.

 
How to Apply:
 
Please download our applicant pack to find out more about the role and requirements
 
To apply, please submit the following via our online application platform by 11:59pm on Friday 13th June 2025:
 
A detailed CV setting out your career history, with responsibilities and achievements in line with the person specification in the About You section.
 
A covering letter (maximum two sides) highlighting your suitability for the role and how you meet the requirements in the About You section.
 
We will request data for our EEDI monitoring purposes, providing this is optional.
 
Please note: the covering letter is an essential part of the application process and will be assessed as part of your full application. We use AI detector software, so cover letters or CV’s with over 30% AI generated content with be disregarded. We understand that AI tools can offer support to candidates who have learning differences, which is why we will accept applications with some AI assistance. CV’s will not be accepted without a cover letter.
 
The National Youth Agency is an equal opportunities employer.
 
At NYA our inclusive culture means that we embrace individual differences and understand that we need a diverse team to achieve our organisations mission.
 
We wish to recruit candidates from all backgrounds to ensure our team reflects the rich diversity of the communities we serve. We encourage applications from anyone regardless of disability, ethnicity, heritage, gender, sexuality, religion, socio-economic background and political beliefs but we particularly welcome applications from global majority candidates and those from other minoritised ethnic groups in the UK as they are currently underrepresented in our team.
 
More about us
 
Discover more about the National Youth Agency and our work on our website.
 
REF-221644

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases.