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PNH Support is celebrating its 10 year anniversary this year! Much has changed for patients living with the ultra-rare blood condition paroxysmal nocturnal haemoglobinuria (PNH) during this time including the development of a number of new treatments which have transformed many lives. Despite this, patients still face other continuing challenges, for example, dealing with fatigue and the psychological impact of living with a chronic disease. Importantly, patients also need their voices to be represented independent of healthcare professionals. As PNH Support can only continue to support the PNH community with the help of Trustees and volunteers, we are seeking new Trustees to become actively involved in our management and governance including the implementation of our recently developed 5 year strategy. Whether you are an experienced Trustee, or are considering your first appointment, wewould love to hear from you!

Our vision is “No PNH patient in England, Wales and Northern Ireland is alone. All are represented and enabled to live to their full potential with PNH.”

Our mission is to provide support through peer-to-peer contact, educational resources and advocacy.

The Board has recently undertaken a stakeholder engagement exercise to develop our new 5 year strategy to 2030 and new Trustees joining our Board will assist with executing and implementing this plan. Our Board will play a vital role in shaping the future of PNH Support, guiding our strategic direction, setting the budget, and making key decisions on significant initiatives. This is an exciting time to be joining PNH Support as our Board is expanding to drive the new 5 year strategic vision forward!

Becoming a Trustee at PNH Support is both a privilege and a responsibility. This role provides a unique opportunity to make a meaningful impact to the lives of people affected by PNH as well as for their families. As a Trustee, you will help guide the charity, ensuring we stay true to our mission and achieve significant results. Your leadership and insights will be vital to the charity’s success.

The Trustee Board is a diverse and committed team that provides governance and oversight. They ensure that the charity operates ethically, efficiently, and in line with its strategy.

This is an exciting time to be joining PNH Support as our Board is expanding to drive the new 5 year strategic vision forward! Becoming a Trustee at PNH Support is both a privilege and a responsibility. This role provides a unique opportunity to make a meaningful impact to the lives of people affected by PNH as well as for their families. As a Trustee, you will help guide the charity, ensuring we stay true to our mission and achieve significant results. Your leadership and insights will be vital to the charity’s success.

The Trustee Board is a diverse and committed team that provides governance and oversight. They ensure that the charity operates ethically, efficiently, and in line with its strategy. You are not expected to have in-depth knowledge of the legislation governing our work, as we will provide the necessary support and training as required. However, it’s important to be aware
that such legislation exists, and to ensure that PNH Support has the appropriate policies, procedures, and reporting mechanisms in place to maintain compliance where required.

Key responsibilities include:

• Strategic Leadership: Shaping and guiding PNH Support’s vision and future direction in line with the new 5 year strategy.
• Legal and Regulatory Compliance: Ensuring adherence to UK charity laws and fulfilling all reporting obligations.
• Financial Oversight: Monitoring the charity’s finances, safeguarding its assets, and managing risks effectively.
• Governance and Accountability: Promoting transparency, participating in decisionmaking, and overseeing management practices.
• Advocacy and Representation: Acting as an ambassador for the charity, promotingits mission and values to the wider community.

We are seeking an experienced Events & Community Fundraising Officer (Volunteer) to join our Fundraising team on an unpaid, volunteer basis. This will be remote support, unpaid volunteering on average 8 hours or 1 day per week to drive funding for our International WASH projects.

EQUAL AQUA is an award-winning NGO providing equal access to water, sanitation and hygiene (WASH) in Uganda. Equal Aqua is managed by an international team of 30+ volunteers, based mainly in the UK and Uganda, but spanning over 10 countries.We are looking to expand and diversify our team of volunteers – seeking candidates with knowledge and skills in various fields, and a deep passion for our cause. 

JOB SUMMARY: 

Join our team as a Volunteer Events & Community Fundraising Officer, working alongside the Fundraising Manager to develop and expand our community engagement and events portfolio. Play a pivotal role in creating innovative fundraising products, fostering relationships within our local communities, and supporting key fundraising initiatives to drive income growth and supporter engagement. 

ROLE & RESPONSBILITIES  

• Collaborate with the Fundraising Manager to design and implement community and events strategies, including the development of new fundraising products and campaigns. 

• Identify, cultivate, and maintain relationships with local schools, community groups, corporate partners, and individual fundraisers to generate new income streams. 

• Develop engaging supporter journeys to inspire memorable experiences, encourage repeat contributions, and deepen supporter loyalty. 

• Support the team in planning and delivering special events, including the annual fundraiser concert, Water Wheel, and other high-profile fundraising activities. 

• Secure new corporate partnerships through sponsorships, Charity of the Year and other award programs, and collaborative fundraising initiatives. 

• Lead and coordinate supporter-led fundraising activities, fostering volunteer involvement and building a vibrant, diverse supporter community aligned with our mission. 

• Assist with planning, promotion, and execution of both EA-organized and third-party fundraising events. 

KEY REQUIREMENTS 

ESSENTIAL 

Experience: 

• Demonstrated success in achieving or surpassing fundraising or sales targets within the charity, nonprofit, or commercial sectors. 

• Proven experience working in supporter-focused environments. 

• Solid project management skills, with the ability to coordinate multiple activities simultaneously. 

• Experience working within high-performing teams, including remote working arrangements. 

Skills: 

• Excellent networking and relationship management capabilities. 

• Strong verbal and written communication skills, including presentation abilities. 

• Proficiency in IT tools such as Windows, MS Office, and fundraising databases, particularly Raiser’s Edge (or similar). 

• Exceptional time management and prioritization skills. 

Knowledge: 

• Good understanding of the charity sector, including its challenges and opportunities. 

• Knowledge of regional and corporate fundraising practices. 

• Familiarity with sector legislation and best practices related to fundraising, data protection, health and safety, etc. 

• Deep understanding of EA’s vision, mission, and achievements. 

DESIRABLE: 

• Willingness to work flexible hours, including evenings and weekends, and to travel as needed. 

• Previous experience within the voluntary or charity sector is advantageous. 

COMPETENCIES 

• Proven ability to motivate and influence supporters to meet and exceed fundraising targets. 

• Confident in asking supporters for donations and ongoing support. 

• Skilled in creating compelling, engaging fundraising products. 

• Ability to match supporters' interests with suitable fundraising opportunities to maximize income. 

• Strong organizational skills to effectively allocate time and resources for maximum impact. 

• Recognizes and celebrates supporters' contributions to foster ongoing engagement. 

BENEFITS 

• At EAU all volunteers work remotely & flexibly, enabling you to balance work, holiday & personal commitments anywhere in the world.

• Join a diverse international community & gain a sense of fulfilment by contributing directly to impactful programmes that EAU delivers.

• Increase your opportunities for personal growth through exposure to new skills, experiences & perspectives that working for an NGO can bring.

• We also offer opportunities for networking, internships, mentoring & training to support you in your role.

Our Vision: To become a leading organisation in Uganda in addressing inequalities in WASH, and interrelated issues of gender and sustainability 

Our Mission: We will achieve this by working with partners and local communities to develop the required WASH skills, knowledge and practical interventions

Objectives: 

• To improve access to safe and sustainable WASH for those facing the greatest inequalities in Uganda 

• To strengthen the participation of local communities in WASH, in particular women and girls, and displaced peoples 

• To take action to protect the natural environment, reduce pollution and tackle climate change 

KEY ACHIEVEMENTS: 

• 32,866 people with improved access to safe water 

• 11,044 people with improved sanitation 

• 11,755 people with improved WASH knowledge and skills 

• 3,877 people with improved menstrual hygiene knowledge 

• British High Commission award winner 

VALUES:

At Equal Aqua we champion bottom-up grassroots development. To make this possible, we have created a proactive and friendly environment, which strives to create practical and lasting solutions to WASH-related issues. Each member of Equal Aqua is passionate about WASH inequalities, and our values are a central basis for inspiration and the culture of the organisation. 

Why volunteer for EAU? 

By volunteering for EAU you will directly contribute to making tangible and positive changes to people’s lives in Uganda. Your efforts will help us to grow and empower our team of international volunteers, enabling us to reach more communities and transform more lives. You will also get to meet & collaborate with a great team of volunteers from all over the world.  If you like the sound of this role, we encourage you to apply even if you aren’t confident that you meet all of the requirements – you may be just who we’re looking for. 

*Please note that all members of Equal Aqua work remotely and on a voluntary basis. We ask that volunteers contribute on average 1 day per week and commit to the role for 12 months as a minimum. 

Interviews will take place via MS Teams where you will meet an informal panel of volunteers.  

Data Protection and Privacy: 

As a non-profit organization, we are committed to safeguarding the privacy and security of all applicants' personal information. We process your personal data in line with applicable data protection laws, including the General Data Protection Regulation (GDPR) where relevant. 

Any information you share with us during the recruitment process will be used solely for assessing your suitability for the position and will be handled confidentially. Your data will be stored securely, accessed only by authorized staff, and retained only for as long as necessary for recruitment purposes. 

You have the right to access, correct, or request the deletion of your personal data at any time. By applying, you consent to the processing of your information in accordance with these principles. 

DEI statement: 

EAU is committed to offering equal opportunities and treatment to all its volunteers. We see diversity as a strength and anyone seeking volunteering at Equal Aqua is considered based on merit, qualifications, competence, and talent. We don’t regard colour, religion, ethnicity, race, national origin, sexual orientation, ancestry, citizenship, sex, marital or family status, disability, gender, or any other legally protected status.

We are extremely proud to be an equal opportunity employer and actively encourage applications from all backgrounds. To make your recruitment experience with us accessible to you, we encourage you to let us know if you have any individual requirements.

‘Equal Aqua’ is a registered Charitable Incorporated Organisation (CIO) in the UK; it operates equally and in unison with ‘Equal Aqua Uganda’, a registered Community Based Organisation (CBO) in Uganda (‘EAU’ refers to both). 

Do you have senior clinical service experience and a passion to improve the lives of people with a life-limiting illness and their families?

We are looking for applicants with health care experience at a senior management or board level. As a member of the Board of Trustees this position will support the Executive Board to deliver our organisational strategy and ensure that our Charity has in place appropriate and effective controls to deliver outstanding standards of care and services to all stakeholders.

Key skills and experience for this Trustee role

• Extensive health service experience at leadership level in either primary or secondary care

• Clinical experience in community care with shown ability to enable change management

• Quality standards and requirements of the Care Quality Commission

• Ideally, active in clinical practice

• Safeguarding (adults and children), risk management and data management

• Keen interest in professional education, research and development

• Developments within the field of palliative care

Join Design in Mental Health Network as a Trustee and help shape the future of mental health environments. Provide strategic guidance, support innovation, champion co-production, and ensure our work delivers real-world impact through inclusive, evidence-based design.

About DiMHN:

The Design in Mental Health Network (DiMHN) is a UK-based charity dedicated to transforming mental health environments through inclusive, evidence-based design. Our network brings together professionals from healthcare, design, policy, and lived experience to improve mental health outcomes and create spaces that promote dignity, safety, and healing.

Role Overview:

As a Trustee, you will help guide the strategic direction of DiMHN, ensure effective governance, and champion our values. Trustees are expected to provide strategic oversight and contribute expertise to subgroups or advisory functions.

Why Join Us

Joining the Board of DiMHN presents an opportunity to shape the future of mental health environments across the UK and beyond.

You’ll be part of a passionate, forward-thinking community working at the intersection of design, care, and lived experience. 

As a Trustee, you’ll:

• Shape strategic direction to drive meaningful change in mental health environments across the UK and beyond.

• Collaborate with a diverse network of leaders, experts, and lived experience advocates, influencing the future of mental health design.

• Provide governance and oversight that ensures the charity’s growth, sustainability, and impact.

• Champion inclusivity by elevating voices often excluded from design and decision-making processes

• Influence policy, standards, and innovation at national and international levels to embed evidence-based design in mental health care.

Who We’re Looking For

We’re looking for people who believe in the power of design to change lives. Whether you come from healthcare, design, research, lived experience, or another walk of life, if you’re motivated by the idea of creating more inclusive, compassionate mental health environments, we want to hear from you.

We have two Trustee vacancies and warmly welcome applications from both first-time trustees and those with previous board experience. 

We value fresh perspectives and offer support to help you thrive in the role. We are especially interested in individuals who can bring insight in one or more of the following areas:

• Mental Health Services & Policy: Clinical, community, lived experience, commissioning, or estates, facilities and planning.

• Digital Health & Technology: Expertise in AI, immersive tech, digital platforms, or digital strategy in care settings.

• Finance & Commercial Strategy: Income generation, business development, or financial planning in health, social impact, or design sectors.

• Research & Evaluation: Academic or applied research, impact measurement, or policy analysis.

We’re also looking for Trustees who embody our values:

At DiMHN, our work is grounded in our core values. We’re looking for Trustees who reflect these values through both mindset and action:

Be Courageous – You’re willing to ask challenging questions, confront assumptions, and help push boundaries to make mental health spaces more inclusive and compassionate.

Empathy in Design – You understand that good design starts with empathy. Whether through lived experience or professional perspective, you value collaboration and co-production with those who access mental health care and support.

Evidence-Led, Impact-Driven – You’re curious, reflective, and motivated by real-world change. You use evidence to guide decisions and are focused on outcomes that make a difference.

Improve Together – You believe in learning together. You’re generous with your skills and committed to helping the DiMHN and the wider sector grow stronger through collective action.