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Purpose of the post
HDR UK are committed to meaningful involvement and engagement where patients and the public are actively involved in shaping our work and decision-making. Reporting to the Senior Public Involvement and Engagement Manager and matrix managed within the Big Data for Complex Disease team, this is a pivotal role that will maintain and build upon an established strategy and programme of activities embedding the patient and public voice at all stages of work with the Driver Programme.
Your work will also support best practice delivered as part of the Public Engagement in Data Research Initiative (PEDRI), a vital UK-wide multi-stakeholder initiative that aims to facilitate a sector wide shift focused on establishing and advancing good practices for public involvement and engagement (PIE) with data-driven research and statistics.
You will work closely with public members, research and NHS communities, internal colleagues, charity partners, and funders to develop and implement plans for patient and public involvement and engagement.
This is an exciting opportunity for someone who has a passion for meaningful involvement and engagement of patients and the public in research, to shape and influence our work on the safe, ethical and scientifically robust use of data for research into the causes, prevention and treatment of disease.
The successful candidate will have a track record in working with individuals, groups and communities and can communicate complex information in clear, engaging ways. The post holder will have excellent influencing and negotiation skills, experience of working on complex projects with multiple partners and be comfortable with working at pace. Patient and public involvement and engagement in data-driven research is a growing field. The successful candidate will show a willingness and experience of developing and delivering innovative approaches to involvement where previously opportunities may not have been obvious.
We are particularly interested in candidates who have experience of working with diverse communities and using trauma-informed practices to engage with those having lived experience of a variety of health conditions.
Main responsibilities
Big Data for Complex Disease PPIE strategy and delivery:
- Lead on the delivery of the PPIE strategy for the Big Data for Complex Disease driver programme, with oversight from the Senior PPIE Manager and Senior Programme Manager.
- Develop and deliver training and support best practice for researchers working with patients and the public on involvement and engagment in health data research.
- Support member development and growth of the network of patients and public contributors involved in the Big Data for Complex Disease driver programme, including by providing training and guidance on data science and its use in the programme.
Embedding PPIE in our work:
- Lead and facilitate meetings with public contributors to integrate meaningful PPIE throughout all aspects of our work.
- Undertake and manage specific involvement and engagement activities, including but not limited to focus groups, engagement events, developing and undertaking surveys, supporting the writing of plain English summaries of projects and their outputs. In collaboration with senior colleagues, support involvement of patients and the public in the governance of our work.
- Review and provide advice on PPIE elements of research projects ensuring adequate PPIE is incorporated and provide advice and support where needed to researchers.
- Develop methods to expand reach and ensure diversity of perspectives and work with the HDR UK Involvement and Engagement team to grow involvement of currently underrepresented and underserved groups in health data science.
- Build and manage relationships with colleagues within the Big Data for Complex Disease driver programme and relevant partners like the British Heart Foundation (BHF) Data Science Centre, working collaboratively to support and manage involvement and engagement across all areas of work.
- Work closely with the internal communications colleagues to create and disseminate engaging content (e.g. news stories on outputs and impact, videos, infographics, case studies) on our work and involvement and engagement activities using a variety of communication tools.
- Horizon scan and liaise with colleagues across HDR UK for opportunities to increase visibility of the institute’s engagement and involvement impact, i.e. through conferences, festivals, journals and other publications.
- Lead on the recruitment of new public contributors as required. Adapt, develop and provide training for public where necessary identifying training requirements as needed.
Developing PPIE best practice and collaborative working:
- Work with the Senior PPIE Programme Delivery Manager and the rest of the PPIE Central team to share best practice and examples of successful PPIE practices that could influence our work, including through the Public Engagement in Data Research Initiative (PEDRI).
- Collaborate with the Senior PPIE Programme Delivery Manager, the PPIE Central team, and the HDR UK’s Institute-Wide PPIE Leads Group to lead public outreach initiatives and other events, ensuring that stakeholders are afforded opportunities to contribute their input and provide feedback. Establish effective working relationships and ‘ways of working’ with strategic partners to maximise opportunities for collaboration in patient and public involvement and engagement.
- Act as an internal and external ambassador for public, patient and practitioner engagement and involvement.
- Monitor and report on performance of PPIE across the Programme, make effective use of digital approaches to maximise the ability to collaborate, communicate and continuously learn.
Knowledge, skills and experience
Experience
- Educated to degree level or equivalent
- Experience of working with patients, carers and members of the public with diverse interests.
- Experience of working with community organisations and diverse voices
- Experience of running patient/public involvement activities
- Experience of developing, implementing and evaluating patient and public engagement and involvement strategies and methodologies, preferably in a research environment
- Experience of promoting the need and value of engagement and involvement to a wide range of stakeholders and acting as an advocate
- Experience of writing / developing content for public and research audiences and delivering presentations
- Experience of demonstrating an understanding of health research and the needs of patients and the public
- Planning and organisational expertise with a proven track record of delivering challenging projects with multiple partners to deadlines
- Experience of organising and facilitating a range of events and meetings including: event preparation, chairing of meetings, delivering presentations, use of tools to gather views and feedback, follow-up communications and evaluation
- An understanding of the public sensitivities of using health data for research
Skills
- Excellent planning and organisational skills, with the ability to manage complex and multiple areas of work with competing priorities in a fast-paced environment.
- Evidence of ability to meet tight and challenging deadlines using a flexible and adaptable approach
- Good influencing and coaching skills.
- Excellent people and interpersonal skills to build collaborative partnerships across diverse groups and the ability to handle sensitive issues positively.
- Excellent written and verbal communication skills with the ability to communicate effectively and confidently with different groups of stakeholders and people at all levels.
- Able to grasp the complexity of work across HDR UK and process complex scientific information to communicate it in a way that is clear, engaging and inspires the public to get involved.
- Strong analytic skills with the ability to frame problems and solutions in a logical manner.
- Ability to work autonomously and make decisions without supervision.
- Ability to work collaboratively and as part of a multi-disciplinary team.
The client requests no contact from agencies or media sales.
Sands exists to save babies’ lives and ensure that anyone affected by pregnancy loss or baby death receives the support and care they need.
Bereaved parents and families are at the heart of why Sands exists. Sharing their experiences of pregnancy and baby loss, and what connects and involves them with our work, is both an important part of their bereavement journey and a way to demonstrate the need for our vision and mission to succeed. This role will help us to show in a real and human, authentic way, what Sands is doing to save babies’ lives and support bereaved families.
Sharing these personal stories in external communications will help us reach more people, bringing to life the work we do in a way that engages diverse audiences, and increasing the likelihood of their taking actions in support of Sands.
This new role has been developed to support the Communications & Engagement team to develop our story-telling function, build our real stories library and ensure the associated consent and stewardship processes are compassionate, efficient and effective. The Stories Officer will ensure wherever possible, that external communications assets and content created by teams across Sands includes the voices of people touched by pregnancy and baby loss – including those who have been personally affected, and those who are allies of Sands, such as healthcare professionals, corporate partners, research partners, fundraisers and more.
You will have experience of working in a charity stories or communications team, or in a stories-led environment such as journalism.
A good knowledge of compliance and safeguarding issues, including experience of working with vulnerable people in a communications context is required.
With excellent written communication and creative skills, you will be able to produce work that captures and conveys real life experiences in a sensitive and compassionate tone.
You will be highly organised with the ability to multi-task and work across more than one project simultaneously.
The client requests no contact from agencies or media sales.
Help transform the lives of burns survivors with your fundraising expertise.
The Katie Piper Foundation is the only charity in the UK providing a comprehensive rehabilitation pathway for adult survivors of life-altering burns and scars. We are a small, national charity founded by Katie Piper OBE, offering survivors personalised support for their physical, mental and emotional wellbeing.
We're looking for a Major Donor and Partnerships Fundraising Manager to join our passionate team. This is an exciting opportunity to lead and grow our major donor and corporate income streams, delivering excellent stewardship and building long-term partnerships that help survivors rebuild their lives.
What You’ll Do
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Lead our major donor and corporate fundraising strategy, in collaboration with the CEO
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Nurture and grow high-value supporter relationships
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Drive income generation from individuals and companies through tailored stewardship and strategic campaigns
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Represent the charity at meetings and events, building a strong external profile
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Manage a pipeline of prospects and develop a programme of donor cultivation and engagement
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Oversee budgets and reporting, ensuring income targets are met
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Line manage the Fundraising Support Officer
About You
You’re an experienced relationship fundraiser with:
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A strong track record in securing major gifts and developing corporate partnerships
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Excellent communication and networking skills, with confidence engaging donors at all levels
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A creative and strategic approach to growing income
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Financial management experience and a keen eye for results
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Proficiency in using fundraising CRMs like Donorfy
What We Offer
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Salary: £40,000 FTE (£32,000 actual for 28 hours/week)
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Flexible and remote working (travel to London expected for meetings)
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28 days leave + public holidays (pro rata)
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Enhanced parental leave and sick pay
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Laptop, phone, and home office setup provided
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A meaningful role in a small but mighty charity transforming lives
Be part of something life-changing. Join us in helping survivors thrive.
How to Apply
Please apply with your CV and a cover letter answering the following:
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What has drawn you to The Katie Piper Foundation and this role?
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How will your skills, experience, and networks help us grow?
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How do you meet the person specification?
We encourage you to write your cover letter personally – let your voice and experience shine. Alternative formats (video/audio) are welcome. If you need any adjustments to the application process, let us know.
- Closing Date: Sunday 22nd June
- Shortlisting: 23rd/24th June
- In-Person Interview: Friday 27th June, London
The client requests no contact from agencies or media sales.
Location: Homebased
Contract: Full time, fixed term 1 year contract.
Salary: Salary £34,000 per annum
Closing Date: 26 June 2025
If you have the creativity and skills to develop engaging and accessible elearning content that supports youth development, then joining Sea Cadets as a Senior Virtual Learning Officer could be a good move for you!
The Marine Society & Sea Cadets (MSSC) is a vibrant and growing charity delivering life changing nautical adventure for young people through the Sea Cadets to give them the best possible head start in life. We also provide personal and professional development opportunities for seafarers with the Marine Society. Working with our staff, cadets, and volunteers, we have built a vision and five-year strategy to take us forward and further improve the astounding contribution already made through our work to the lives of thousands of young people and seafarers, while fully supporting our volunteers who are vital to our success.
We are currently looking for a Senior Virtual Learning Officer to join our learning development team.
This role will be involved in the development of training covering subjects such as:
- Safeguarding
- EDI topics such as Autism and Gender Diversity
- Health and Safety
- Onboarding new adult volunteers to Sea Cadets
If you enjoy eLearning development this could be the role for you.
Responsibilities
- Work with course designers to develop new, and maintain existing, elearning and media content.
- Translate storyboards into interactive learning content, creating activities, graphics, animations, audio and videos, using tools such as Articulate (Storyline and Rise), Canva, H5P, Murf and Adobe.
- Ensure learning meets development guidelines, and is accessible, functional and engaging.
- Integrate learning content to create courses on our learning management system (Moodle).
- Test learning content, including using screen readers and other accessibility software.
- Help to maintain the guidelines for course development.
- Support the day-to-day administration of the Sea Cadets learning management environment
- Cultivate strong working relationships across multiple teams (internal and external)
- Stay up to date with latest system upgrades and advise on their potential impact on existing or new courses
Requirements
- eLearning development experience ( e.g. tools such as Articulate Storyline and Rise, or similar)
- Experience in media creation for graphics, sound and video editing.
- Good MS Office skills
Desirable
- Experience using Teams and SharePoint
- Knowledge of Web Content Accessibility Guidelines (WCAG)
- LMS Administration experience (our platform is based on Moodle, Mahara and Alfresco but other LMS skills will be transferable)
- Subject matter knowledge in one of the following areas:
- Supporting Autistic young people
- Specialised educational needs
- Other Equity, Diversity and Inclusion subjects
- Safeguarding
- Onboarding new people
For further information, please download the Recruitment Pack.
Benefits
- Some hybrid working opportunities
- Cycle to work scheme and Season Ticket Loan
- 25 days annual leave plus bank holidays
- Life assurance (4x salary) for those that join the pension
- Private medical insurance
- Pension (employer contribution up to 10%)
- Wellbeing portal and EAP with 121 counselling
- Employee development: We are investing in our employees' development and have an annual calendar of learning and development opportunities, designed to support employees to develop into their roles and stretch them to achieve their full potential.
- National staff conference: All employees come together once a year to reflect on the past year and celebrate success at our staff conference. This is a great opportunity to listen to employees' views, and for employees to network, share information and socialise.
Additional Information
MSSC positively encourages applications from suitably qualified and eligible candidates from all backgrounds. Equity, diversity, and inclusion really matters to us, so we can best serve our beneficiaries from every community. We work to ensure a fair and consistent recruitment process and aim to be a charity where diversity of experience, identity and skills are valued and welcomed. MSSC is an equal opportunities employer.
We recognise our responsibilities to safeguard and protect the young people and vulnerable adults with whom we work. We do all we can to promote their health, safety and wellbeing, and we expect our staff to share this commitment and work in line with safeguarding policy, the MSSC’s values and ethos of inclusivity. We adhere to safer recruitment practices and therefore employment is subject to detailed pre-employment checks for successful candidates, including references and criminal disclosure checks and the completion of a disclosure questionnaire.
All successful applicants are required to attend safeguarding training and undergo a criminal record check, and successfully acquire MoD security clearance.
We help launch young people for life through adventure.




The client requests no contact from agencies or media sales.