Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.
Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.
If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.
As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.
About Dravet Syndrome UK
Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.
The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.
What you will bring
Essential
· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.
· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.
· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)
· Demonstrable experience of working in charity, patient advocacy or healthcare sectors
· Ability to deal with people at all levels with empathy, tact and credibility
· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences
· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website
· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively
· Strong organisational and project management skills, with the ability to prioritise
· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)
Desirable
· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development
Why join Dravet Syndrome UK?
Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.
The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.
Our commitment to diversity
As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.
The client requests no contact from agencies or media sales.
Thank you!
Communications and Impact Lead
Full time (part time will be considered)
Hybrid (with a minimum of 2 days in our office on the Cambridge Biomedical Campus)
Permanent contract
£43,000- £46,000 per annum (depending on skills and experience)
Do you want to make a difference to healthcare globally? Do you have skills and experience in Communications, Marketing and Monitoring, Evaluation & Learning? Come and join a brilliant team working from the Cambridge Biomedical Campus and with partners across the world.
For nearly twenty years, Cambridge Global Health Partnerships (CGHP) has been strengthening health systems across the world through education, reciprocal learning, and relationship building. CGHP uses a health partnership model - working with hospitals, governments and health organisations in Cambridgeshire and East of England region and in low- and middle- income countries (LMIC) to provide specialist expertise, support shared learning and encourage sustainable change. This is a two-way process involving NHS staff, trainees and students working with LMIC partners using a hybrid working model combining online working and exchange visits. CGHP is a charitable programme based on the Cambridge Biomedical Campus and is a linked charity to Addenbrooke’s Charitable Trust.
We are recruiting for a Communications and Impact Lead who will lead these functions within CGHP and will be a member of the CGHP Senior Leadership Team. You will work at a tactical and strategic level with responsibility for increasing understanding of our impact and raising our profile to enable CGHP to achieve our strategic ambition. The role will ensure effective impact measurement, communication, promotion, marketing and engagement to support our goals. The role requires excellence measuring impact and communicating with people and groups on all issues and at all levels and. Creativity in communication to effectively tell our story will be key, as will confidence and understanding of monitoring, evaluation and learning.
We are looking for someone imaginative, creative, and dynamic with excellent organisational skills who can ensure that our impact is measured and recognised, and our story is heard. The position is the ideal role for someone who has a combination of skills and experience of communications, impact analysis and project management.
To see a full job description and person specification please visit our website
The closing date for applications is 28th September 2025, however we reserve the right to close this vacancy once a sufficient number of applications have been received or a successful candidate is found.
Application Process: Please send your CV and a covering letter explaining why you are a good fit for the role by email
The client requests no contact from agencies or media sales.
Thank you!
Together, the charities Sands and Tommy’s have formed a Joint Policy Unit (JPU) focussed on achieving policy change that will save more babies’ lives during pregnancy and the neonatal period and on tackling inequalities in loss, so that everyone can benefit from the best possible outcomes.
The JPU’s mission is to secure policy change that will reduce rates of miscarriage, stillbirth, pre-term birth and neonatal death, and to work to eliminate inequalities in these outcomes.
While there is widespread agreement on the need for change to improve the safety of maternity and neonatal services, what that change looks like is not clear. To save more babies’ lives we believe that a continued focus is required, and that governments should set new commitments to reduce perinatal mortality and preterm births, focused on matching the best-performing countries in Europe.
This role will be crucial to the continued success of the JPU unit; leading, shaping and coordinating all the unit’s work.
We are looking for an independent and assertive problem-solver, a policy expert who can manage multiple priorities, take the initiative, lead the national conversation and is as excited as we are about taking the helm of this venture for both of our organisations.
The successful candidate will need to have a substantial track record of effectively leading and implementing national policy and influencing programmes, driving change and achieving the desired impact.
You will have considerable experience across research, data analysis, policy development, public affairs and communications. Additionally, you will be well-versed in research and data management, including analysing complex data and evaluating policy developments.
Experience of being a member of a senior management team with successful, significant and relevant management and leadership experience is also essential.
The client requests no contact from agencies or media sales.
Thank you!
WDC’s Games For Waves initiative engages the gaming and streaming communities to raise funds and awareness for whale, dolphin and ocean conservation. The Influencer Lead will help drive this mission by developing strategic digital fundraising events, managing relationships with creators and influencers, and creating impactful content.
Registered Charity
51 - 100
A world where every whale and dolphin is safe and free
The client requests no contact from agencies or media sales.