Officer jobs in edinburgh

Project Development Manager - Southern England
Reference: SEP20250002
Location: Home based in the South of England with frequent travel required to RSPB reserves and other sites for meetings
Contract: Permanent
Hours: Full Time, 37.5 hours per week
Salary: £43,095.00 - £46,264.00 Per Annum
Benefits: Pension Scheme, Life Assurance Scheme, 26 days' Annual Leave

Do you have the passion, skills, and experience to help develop and deliver complex nature conservation and infrastructure projects in the South of England? We’re looking for someone who is well-organised, solutions-focused, and can adapt their skills to the development and delivery of a diverse range of projects.

We have an exciting opportunity for a dynamic, skilled and passionate Project Development Manager to join our England Project Management team, working primarily in the South of England. 

The England Project Management Team manage all sorts of projects, from species recovery at a landscape scale to infrastructure repairs and commercial developments. Each day as a Project Development Manager is different. You might find yourself chairing a project team meeting one day, visiting a construction site the next, and negotiating with contractors the day after that.

As a Project Development Manager, you will directly manage some of the most ambitious and complex projects within the RSPB. At the same time, you will work closely with the Operations Director and Area Managers in the Southern region to develop a pipeline of projects across the South, and make sure they’re being well-managed.

Our project teams include colleagues from a range of disciplines as well as external consultants and suppliers. You’ll need to be able to build relationships across internal and external stakeholders and motivate others to get things done to keep projects progressing smoothly.

Key activities will include:

• Develop and manage one or more complex projects at any one time. To include budget management, stakeholder management, risk management, contractor procurement and other tasks as required. 
• Lead and motivate project teams to achieve project success by focusing on a common goal. 
• Develop and oversee a pipeline of projects that contribute to delivery against strategic priorities, working with regional/country management teams. 
• Provide support & advice to the regional /country management team to enable them to use the PMF effectively to deliver strategic priorities and successful projects (including ensuring project assurance is in place). 
• Line management of more junior project management team members.
• Provide advice and support to colleagues on project management best practice, helping to build overall project management capability across England.
• Be an advocate for Cora, the RSPB’s on-line project management system.
• Undertake project reviews as commissioned by the management team/other stakeholders including other regions & countries to ensure lessons are learned, best practice shared, and capability increased.

Essential skills, knowledge and experience:

• Proven project management skills relating to planning and managing complex projects, managing risks/costs/time and leading multidisciplinary project teams.
• Ability to influence others, communicate effectively, build collaborative relationships and represent the organisation.
• Knowledge of project management methodologies and approaches, with the ability to support more junior colleagues in this area.
• Ability to work under pressure and adapt to changing circumstances.
• Demonstrable experience of developing and working in partnership to achieve shared outcomes. 
• Ability to solve issues quickly, efficiently and creatively.
• Cost and budget management.
• Impressive time management and organisational skills.
• A tangible passion for the planet.

Desirable skills, knowledge and experience:

• Project or Programme Management Qualification (APMPMQ, Prince 2, MSP).
• Experience of relevant projects such as habitat creation/restoration, building renovations (particularly visitor facilities), multi-partner projects, community engagement. 
• Line management experience. 

Closing date: 23:59, Sun, 5th Oct 2025

We are looking to conduct interviews for this position from October 2025.

Interested?

If you would like to find out more, please click the apply button. You will be directed to our recruitment partner's website to complete your application for this position.

We are committed to developing an inclusive and diverse RSPB, in which everyone feels supported, valued, and able to be their full selves. To achieve our vision of creating a world richer in nature, we need more people, and more diverse people, on nature’s side. People of colour and disabled people are currently underrepresented across the environment, climate, sustainability, and conservation sector. If you identify as a person of colour and/or disabled, we are particularly interested in receiving your application.

The RSPB is an equal opportunities employer. This role is covered by the Rehabilitation of Offenders Act 1974.

This role is not eligible for UK Visa Sponsorship - the successful applicant will need to have a pre-existing Right to Work in the UK in order to be offered an employment contract.

As part of this application process you will be asked to provide a copy of your CV and complete an application form including evidence on how you meet the skills, knowledge, and experience listed above. Contact us to discuss any additional support you may need to complete your application.

No agencies please.

Why work for Kids Matter?

• Generous annual leave – 25 days (plus bank holidays) per year pro rata, with time off between Christmas and New Year's additional to this allowance.
• Remote working contribution – receive £26/month pro rata towards the costs of working from home and/or using a co-working space.
• Access to coaching sessions, training opportunities and our Employee Assistance Programme (a confidential support service for staff).
• Flexible working across weekdays to suit your schedule.

About us

Kids Matter is one of the UK’s fastest growing children’s charities.

Our vision is to see every child in need raised in a strong family. Our mission is to reduce the impact of poverty on children through community-based parenting programmes.

Research shows that group-based early intervention parenting groups are the most effective way to support children in need. We train peer facilitators in local churches - the largest voluntary body in the country - to run our affordable, accessible and highly effective parenting programmes, written by Clinical Psychologists. They come alongside parents and carers, building long-lasting community in addition to encouraging confidence and learning positive parenting skills.

We value difference and diversity, and we want our workplace to be built on shared values of equality and mutual trust, with team members representing the wide range of backgrounds and experiences that exist within the UK. We therefore actively encourage applications from people of diverse backgrounds and varied experiences, particularly those who are African, Afro-Caribbean, Asian or part of other minority ethnic communities, who have lived experience of the impact of low-income/low-support circumstances, and who are living with a disability or identify as being neurodivergent.

About the role

The Research and Programmes Coordinator role involves:

• Overseeing administrative tasks for all research projects
• Supporting the Programme Development Team Lead in management of all research projects
• Liaising with the Support Coach team to connect with facilitators/parents for data collection e.g. supporting with the running of focus groups
• Using Kids Matter’s CRM to confidently record communication with consultants and Research Assistants
• Supporting the data gathering process for all our evaluation data including maintaining data integrity by performing regular data audits and cleaning parent data ready for the Research Assistants to analyse

About you

Are you organised with good attention to detail? Do you enjoy supporting others and having a varied workload? Can you prioritise and manage your time effectively? Are you a Christian with an active faith in Jesus? Do you have a passion for Kids Matter’s vision of seeing every child in need raised in a strong family?

Then we would love to hear from you!

How to apply

You can apply for the Research and Programmes Coordinator position by clicking ‘Apply via Website’ and completing a copy of our online application form.

The deadline for applications is 4pm on Monday 29th September 2025. All successful and unsuccessful applicants will be notified by email.

We also ask for all applicants to submit an Equal Opportunities Monitoring Form, which will be sent to you to complete following the submission of your application. This form will be used for anonymous analysis to ensure our overall recruitment procedures are fair and transparent. It will never be viewed or used as part of the selection process. It is optional to submit this form.

If you would like any application/interview support or you need any reasonable adjustments throughout the application process, or if you would like an informal phone call to ask questions or discuss the role, please contact Katie Washington (HR & Systems Manager).

Please see the job pack for more details on the role and application process.

Community Fundraiser - Home Counties

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Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research? ​

Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within Buckinghamshire, Bedfordshire, Hertfordshire, Northamptonshire and Essex. 

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Key Responsibilities: ​

• ​Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects 
• Steward supporters to help drive the charity’s fundraising activities and growth 
• ​Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders ​
• Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research ​

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Requirements: ​​

• At least one year of fundraising experience, with a proven track record in income generation 
• Strong experience in supporter stewardship  
• Excellent communication skills, with the ability to engage and inspire supporters and partners alike ​
• Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure 

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If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.

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​We will give preference to those candidates living in the Bucks, Beds and Northants areas of this region.​​​

​We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.​

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

Closing Date: 26th September 2025

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We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

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Reports to:  

Director of Philanthropy  and Communications 

Direct reports: 

None 

Location:  

Flexible, with monthly co-working days in London and additional stakeholder meetings as required. 

Salary:  

£30,000 - £33,600 depending on experience

Hours 

Full time; 37 hours a week

We are happy to consider requests for flexible or part time working 

Contract  

Permanent 

About Now Teach 

Now Teach is at a pivotal time in its strategic journey, following a hugely successful media and bridging fundraising campaign that has raised over £3m in new income for 2024-2026 and achieved 32 media mentions (15 national) and 2.5m PR views. We are now seeking to significantly grow our donor base and fundraised income and therefore are looking to recruit to this new role. We are seeking someone who can support the Director of Philanthropy and Communications to deliver our strategy to increase income through the recruitment of new donors and enable and deliver work with our current funders (primarily individuals and trusts). You’ll be the person to ensure they have an amazing experience as supporters of Now Teach.

ABOUT THE ROLE 

Role overview 

This role will be varied and offer lots of opportunities to get stuck into managing relationships with high value donors. Both the CEO, and the Director of Fundraising and Communications will work to steward the relationships with our donors in person, while this role will lead on delivering high-quality preparation, proposals, reporting, and data management that underpin donor relationships. You will also contribute to building connections across teams and aligning fundraising activities with Now Teach’s wider strategy. 

You’ll deliver exciting and engaging communications and events which inspire our donors to continue to support our cause, as well as be responsible for maintaining accurate records and reporting so we can give supporters a great sense of the impact their donations make. This role will work on a combination of externally facing and internal projects and tasks and will be a great way to advance your career in fundraising.

In this role you will…

• Create and maintain a stewardship calendar of content, reports, and events to engage our donors, ensuring alignment with organisational priorities. 

• Write and produce proposals and applications for funding from major donors and trusts, in collaboration with programme and recruitment teams, championing user-centred thinking by representing participant and school impact in fundraising materials. 

• Write and produce reports with in-depth detail of what we have achieved as a result of the funding from our donors 

• Create an engaging termly supporter newsletter, sharing insights across the organisation to drive stronger engagement. 

• Manage and own the fundraising database, ensuring accuracy, compliance, and supporting colleagues to use data effectively. 

• Collaborate with the finance team to ensure accurate reporting of gifts 

• Ensure compliance with fundraising legislation, charity law and data protection legislation like GDPR 

PERSON SPECFICIATION 

Who you are (qualities/values) 

We are looking for someone who is passionate about raising crucial funds to ensure that Now Teachers, schools, partners, and the wider education system can realise the full potential of career changers in education.

You'll have an eye for detail and be able to deliver written communications to the highest standard, including working with our communications teams to develop and deliver engaging case studies and proposals for support. You’ll be happy working to deadlines, and spotting and responding creatively to opportunities that arise. You’ll be able to build strong external and internal relationships and enjoy the challenge of raising money to support our amazing work.

What you’ll need to succeed in this role (experience/qualifications etc) 

• Some experience of working in charities, ideally in education, and/ or  in fundraising 

• Excellent communication and interpersonal skills 

• An ability to manage your own workload, prioritise tasks, multi-task and stay organised. 

• An ability to understand and assist with financial reporting 

• Knowledge of fundraising legislation and best practices 

• An ability to work collaboratively with different teams and stakeholders

Don’t meet every requirement? Studies have shown that women and people of colour are less likely to apply to jobs unless they meet every qualification. At Now Teach we are dedicated to building a diverse, inclusive, and authentic workplace, so if you’re excited about this role but your experience doesn’t align perfectly, we encourage you to apply anyway. 

Working at Now Teach 

Our people join and stay because they value Now Teach’s flexibility, close-knit team culture and social purpose. 43% of employees at all levels of the organisation work part time or with compressed hours and everyone works flexibly, with time off in lieu as part of our standard working practices.   

We are a small, collaborative and supportive team of nearly 20 people. We are non-hierarchical, with 100% of our people believing their line managers listen and value their opinions and people of all levels getting stuck in. We set clear expectations and celebrate the successes of teams and individuals. 100% of our team are proud to work at Now Teach, 94% find Now Teach considerate of their wellbeing and 100% feel like they are treated with respect at work.   

Our culture is central to us encouraging and supporting people into teaching. Without our positive, honest, and flexible approach we wouldn’t be able to adapt to meet the needs of Now Teachers. We have been named as one of Escape the City’s Top 100 Employers in 2021 and 2022 and have been recognised as a Working Mums’ Top Employer and at the Working Dads Employer Awards. We have won awards for our Culture, Flexible Working and Excellence in Public Service.   

In return 

As well as flexible working and a great culture, we offer a wide range of benefits including 25 days annual leave per year (plus bank holidays), an additional 3 days for Winter closure (25th Dec-1st January), a  pension scheme with a generous 11% employer contribution, a rewards platform with employee discounts and access to an Employee Assistance Programme. 

Working arrangements 

Full time/part time role, flexible working patterns possible. Now Teach are supported to work flexibly at co-working spaces or at home as needed with monthly working days in London. You will be required to cover your own travel expenses to London.

Our Values 

At Now Teach, our values shape the way we work every day. We are looking for someone who shares these values and will help us live them in how we work with colleagues, donors and partners: 

• Focus on who matters most – putting participants, schools and partners at the heart of our decisions. 

• Drive impact through expertise – sharing knowledge and learning to strengthen our work. 

• Make change happen – adapting and persevering in the face of challenges. 

• Build connections that amplify – working together and with others to achieve more than we could alone. 

Application Process 

Timeline: 

Applications close on 10th October 

First stage interviews will take place w/c 13th October [online] 

Second stage interviews will take place before the end of October [in person] 

To apply, please complete our online application form where you will be asked to upload a Cover Letter (no more than 1 side of A4) and CV (no more than 2 sides of A4).

Your Cover Letter should include why you are attracted to the role, why you are motivated to work at Now Teach and what you can bring to the team. 

If you have any difficulty with accessing the application form, need any additional support or require reasonable adjustments to the application process, please contact us.

Diversity, Equity & Inclusion 

Now Teach strives to be a workplace that is diverse, equitable and inclusive where we can ALL be ourselves. We encourage applications from people of all backgrounds, ethnicities, ages, gender identities, stages of life and those with hidden or visible disabilities.

We are committed to providing reasonable adjustments throughout our recruitment process and we’ll endeavor to be as accommodating as possible. If you would like to discuss specific requirements, please contact us and ask to speak to the Operations Team.

All applicants must have an existing Right to Work in the UK. 

Safe Recruitment Procedure 

Now Teach are committed to safeguarding and promoting the welfare of children and young people. To meet this responsibility, we follow a rigorous selection process, and all successful candidates will be subject to a basic Disclosure and Barring Service check. 

Role Overview

The Talent Set are delighted to partner with our client on a fantastic Head of Fundraising Strategy role.

We are seeking an experienced and strategic leader to join this social welfare charity, with a focus on developing and implementing a fundraising strategy that drives growth and sustainability. As Head of Fundraising Strategy, you will be responsible for leading a team to deliver high-impact fundraising initiatives, working closely with the Director of Fundraising, Communications and Policy to ensure the ambition and interests of the directorate are represented in the new organisational strategy.

Key Responsibilities:

• Develop and implement a comprehensive fundraising strategy that aligns with the organisation's vision and goals
• Lead a team to deliver high-impact fundraising initiatives, including research, planning, and execution
• Collaborate with internal stakeholders to ensure alignment and effective communication
• Analyse data and market trends to inform fundraising strategies and drive performance
• Build and maintain relationships with key stakeholders, including donors, sponsors, and partners
• Manage complex funding arrangements

Person Specification:

• Extensive experience in fundraising, with a deep understanding of different forms of fundraising and the opportunities that exist for a values-driven organisation
• Strong project management skills, with the ability to lead complex, cross-organisational initiatives
• High financial literacy and experience of complex funding arrangements
• Excellent communication and relationship-building skills
• Ability to work independently and as part of a team
• Strong analytical and problem-solving skills

What’s on Offer:

Salary:£60,000
Working set up: Remote with occasional travel to London, 4 days per week 
Contract Length: 12 months 
 

How to Apply:

To apply, please submit your CV demonstrating your suitability for this role by clicking the 'apply now' button (please do not apply via email). 

Commitment to Diversity:

The Talent Set are committed to diverse and inclusive recruitment practices, ensuring equal opportunities for all applicants regardless of race, sexual orientation, disability, age, or gender. We actively encourage applications from a wide range of backgrounds and are always happy to make reasonable adjustments to ensure a fair recruitment process.

WHO WE ARE

Animal Equality is an international animal protection organisation working with society, governments and companies to end cruelty to farmed animals. Animal Equality has offices in the United Kingdom, the United States, Germany, Italy, Spain, Mexico, Brazil and India.

Animal Equality releases investigative materials captured from inside factory farms and slaughterhouses, exposing the conditions that farmed animals face around the world. We publish our findings on television, in newspapers and online. We routinely secure mainstream media coverage, including on the BBC, ITV, Sky News, The Times, The Guardian, The New York Times and many more.

Animal Equality also advocates for political change. Our current campaigns include a UK ban on foie gras imports, increased enforcement of existing animal protection laws, legal protections for farmed fish, and Government subsidies for transitioning towards a plant-based food system.

We focus on farmed animals because of the scale and severity of the issue. More than a billion animals are confined and killed for human consumption every year in the UK. Farmed animals also often suffer in some of the worst ways: pigs typically endure painful mutilations, many chickens die of heart attacks, fish are confined in underwater cages, and some farmed animals are victims of deliberate abuse and neglect. But the problem is solvable! By utilising effective campaigning strategies, Animal Equality is having an impact for animals around the world and building a future where all animals are respected and protected and are no longer exploited for human consumption.

Animal Equality UK’s current key campaigns include:

• Strengthening enforcement of animal protection laws.
• Halting the expansion of Scotland’s salmon farming industry.
• Achieving a ban on foie gras imports.
• Securing species-specific slaughter legislation for fish.
• Inspiring the public to eat plants, not animals.

ABOUT THE ROLE

We are seeking a talented storyteller and strategic communicator to join our busy, dynamic, and focused team of professional activists as a Copywriting Coordinator. With a natural flair for persuasive writing and a background in direct response marketing, you will craft powerful narratives that expose the reality of animal farming, inspire action, and mobilise financial support for our life-saving mission.

You will be responsible for creating compelling content across print and digital platforms – from fundraising appeals and newsletters to blogs, campaign pages, and supporter journeys. Combining creativity with analytical rigour, you will ensure every piece of copy both engages hearts and delivers measurable results. You will proudly champion Animal Equality’s tone of voice, supporting fellow team members to apply our messaging to their copy.

This is a pivotal role in growing Animal Equality UK’s reach, deepening supporter relationships, and driving the income we need to achieve lasting change for farmed animals.

The Copywriting Coordinator will report to the Executive Director and work closely with team members across our UK and international teams.

JOB DESCRIPTION

• Be a brand champion: Develop engaging, accurate, and impactful copy that embodies Animal Equality’s tone and mission, sharing the experiences of farmed animals with donors and potential supporters.
• Deliver multi-channel content: Produce persuasive copy for appeals, newsletters, websites, campaign pages, blogs, magazines, impact reports, and petitions, ensuring timely and budget-conscious delivery.
• Support fundraising growth: Write powerful long-form and short-form content that motivates supporters to give and meaningfully engage with our work, enabling Animal Equality to expand our impact for animals.
• Content planning: Work with Campaigns, Marketing, and Communications teams to align content with upcoming exposés and campaign actions, ensuring maximum reach and supporter engagement.
• Collaborate with the team: Synthesise complex briefs into digestible, engaging, and emotive content while collaborating with team members to ensure Animal Equality’s content reaches its full potential through amplification, SEO, and multi-channel repurposing.
• Engage supporters: Lead focus groups and supporter calls to understand motivations and feedback, tailoring communications to strengthen loyalty and impact. Ensure communications are tailored to supporters’ needs, motivations, and advocacy journeys.
• Stay topical and creative: Monitor trends and news stories relevant to animal protection, responding quickly with fresh content that connects to our campaigns.
• Data-driven optimisation: Track, test, and analyse the performance of Animal Equality’s copy (open rates, click-throughs, donations, etc.), producing regular reports and using insights to refine future content.
• Represent Animal Equality’s culture: Support Animal Equality’s life-saving work by producing high-quality output, embracing and representing the organisation’s culture principles proudly at all times, and supporting our philanthropic efforts.
• Take on ad-hoc tasks, as requested by your line manager.

ABOUT YOU

You are a forward-thinking communicator with exceptional writing skills and a passion for advocating for animals with impact. You thrive in a fast-paced environment, balancing resilience and creativity with strategic and data-led decision-making. You are self-motivated, organised, and able to multitask, working on several briefs simultaneously.

You actively seek constructive feedback and use it to continuously improve your work. You show ownership and a growth mindset that is focused on improving the world for farmed animals. Knowledge of farmed animal issues and alignment with Animal Equality’s mission is a must, as is professionalism, adaptability, and discretion.

You must have a minimum of three years’ experience in copywriting or a directly related field, with a proven ability to design and deliver content for successful fundraising. Experience of Pardot, Grav and/or WordPress is a plus.

You will be based remotely in the UK. In addition to monthly meet-ups, some travel within the UK may be required for demonstrations, meetings, and events. While not common, occasional evening or weekend work may be necessary to support campaigning activities. Any additional hours worked and agreed with your Manager can be reclaimed as TOIL.

BENEFITS

• Holiday entitlement equal to 33 days per year (including standard public holidays).
• Personalised employee assistance programme (EAP): An Animal Equality-funded benefit that offers employees confidential counselling and advice on a wide range of work and personal issues. The programme offers several services, such as a 24/7 confidential helpline and expert cognitive behavioural therapy.
• Flexible hours, with the option to start between 8am and 10am and finish between 4pm and 6pm.
• Able Futures Support: The service is a nine-month, practical and confidential support service for employees whose circumstances or mental health may impact their wellbeing or work. Employees can work with a mental health professional to deepen their understanding of how their mental health may impact them and build coping skills and resilience to thrive at work.
• Yearly stipend to access learning and development resources to help employees further grow their personal and professional skills.
• A free vegan lunch every month at the Animal Equality monthly meetups.

APPLY NOW

For more information and to apply, please visit our vacancies page.

Closing date: 5.00pm on Friday 19th September 2025.

Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.

Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.

If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.

As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.

About Dravet Syndrome UK

Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.

What you will bring

Essential

· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.

· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.

· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)

· Demonstrable experience of working in charity, patient advocacy or healthcare sectors

· Ability to deal with people at all levels with empathy, tact and credibility

· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences

· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website

· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively

· Strong organisational and project management skills, with the ability to prioritise

· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)

Desirable

· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development

 Why join Dravet Syndrome UK?

Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.

The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.

Our commitment to diversity

As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.

Together, the charities Sands and Tommy’s have formed a Joint Policy Unit (JPU) focussed on achieving policy change that will save more babies’ lives during pregnancy and the neonatal period and on tackling inequalities in loss, so that everyone can benefit from the best possible outcomes.

The JPU’s mission is to secure policy change that will reduce rates of miscarriage, stillbirth, pre-term birth and neonatal death, and to work to eliminate inequalities in these outcomes.

While there is widespread agreement on the need for change to improve the safety of maternity and neonatal services, what that change looks like is not clear.  To save more babies’ lives we believe that a continued focus is required, and that governments should set new commitments to reduce perinatal mortality and preterm births, focused on matching the best-performing countries in Europe.

This role will be crucial to the continued success of the JPU unit; leading, shaping and coordinating all the unit’s work. 

We are looking for an independent and assertive problem-solver, a policy expert who can manage multiple priorities, take the initiative, lead the national conversation and is as excited as we are about taking the helm of this venture for both of our organisations.

The successful candidate will need to have a substantial track record of effectively leading and implementing national policy and influencing programmes, driving change and achieving the desired impact.

You will have considerable experience across research, data analysis, policy development, public affairs and communications.  Additionally, you will be well-versed in research and data management, including analysing complex data and evaluating policy developments.

Experience of being a member of a senior management team with successful, significant and relevant management and leadership experience is also essential.

WDC’s Games For Waves initiative engages the gaming and streaming communities to raise funds and awareness for whale, dolphin and ocean conservation. The Influencer Lead will help drive this mission by developing strategic digital fundraising events, managing relationships with creators and influencers, and creating impactful content.