Spinal Muscular Atrophy (SMA) is a rare, genetic neuromuscular condition causing progressive muscle wasting (atrophy) and weakness leading to loss of movement.
Our current chair has been in the position for 6 years and after serving their maximum term, we are seeking a new Chair to lead the charity and help us deliver our four year strategic plan ‘Building a future together’.
The chair provides a pivotal role in ensuring the charity has a well governed organisation, strong staff team and board with clearly defined roles and responsibilities, with one shared goal of working towards the organisational mission underpinned by our values and principles.
The chair will support the CEO and ensure that the board functions as a unit and works closely with the senior leadership team to achieve agreed objectives. From time to time the chair will act as an ambassador and the public face of the charity in partnership with the CEO. An effective chairperson is a key player in ensuring effective governance for the charity.
Registered Charity 
11 - 20
The client requests no contact from agencies or media sales.
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The Finance Trustee will engage in all aspects of our governance, with a particular focus on financial strategy and governance.They will use their sound financial skills & experience to support the Board’s understanding & interpretation & to ensure legislative compliance.
- To support the Board to oversee & to ensure appropriate presentation of budgets, accounts, management accounts and financial statements.
- To ensure appropriate presentation of accounts and records, ensuring that financial resources are spent in accordance with the charity’s policies, good governance, legal & regulatory requirements.
- Liaising, where applicable, with the Chair/ other appropriate members of staff and supporting on financial matters
- Supporting the Board to monitor the financial viability of the charity.
- Creating, in conjunction with relevant trustees and staff, sound financial processes and procedures for the control of the charity’s assets.
- Advising on the financial implications of the charity’s strategic plan.
- Reviewing the annual accounts and, where applicable, liaising with the charity’s external auditor to ensure the accounts are compliant with the current charities’ SORP.
- Ensuring that sound financial management is maintained and ensuring expenditure is in line with the charity’s objects.
The client requests no contact from agencies or media sales.