Peer to peer researcher volunteer roles in birmingham

Location: Remote with travel across England/Wales
Contract: Fixed-term project (Length TBC)
Hours: Part-time

Salary: Volunteer
Reporting to: Peer Support Lead

About Long Covid Support

Long Covid Support is a registered charity committed to advocating for and supporting individuals living with Long Covid. Our work includes peer support, awareness campaigns, and partnership building to address the ongoing needs of people with Long Covid across the UK.

Role Overview

We are seeking a proactive and experienced Project Manager to establish two in-person peer support networks for individuals with Long Covid in underserved communities in England and Wales. This is a dynamic and collaborative role, ideal for someone with strong project management skills and a passion for community-based health support.

Key Responsibilities

1. Research and Scoping

• Identify and scope two target areas with high prevalence and need for Long Covid support.
• Collaborate with the Peer Support Lead, local contacts, and established community groups.
• Conduct visits, assess existing support networks, and engage through social media.
• Evaluate suitability of community spaces in partnership with our community space provider.

2. Assessment of Resources and Gaps

• Map existing services, networks, and links to the charity’s current support offerings.
• Identify service gaps and opportunities where peer support groups could add value.

3. Implementation and Support

• Set up two local peer support groups using identified community spaces.
• Recruit and train volunteer facilitators to run group sessions.
• Connect with expert services for supplementary support at group meetings.

4. Evaluation and Reporting

• Use appropriate evaluation tools to measure impact and effectiveness.
• Produce a comprehensive project summary with findings, learnings, and recommendations for future initiatives.

Person Specification

Essential:

• Demonstrated experience managing short to medium-term projects.
• Background in peer support or community health initiatives.
• Excellent stakeholder management and communication skills.
• Proven ability to work independently and collaboratively.
• Familiarity with evaluation tools and reporting processes.

Desirable:

• Knowledge of Long Covid or experience working in long-term health conditions.
• Existing network or experience working in England/Wales health or community sectors.

 Fundraising Associate (Voluntary Position)

 About Emergency Nutrition Network (ENN)

 Emergency Nutrition Network (ENN) is recognised for its work to reduce undernutrition globally. We enhance the effectiveness of nutrition policy and programming by improving knowledge, stimulating learning, connecting key actors and building evidence. We are passionate about being network-driven, independent and evidence-based. 

Our vision is that every individual caught up in a nutritional emergency, or suffering from malnutrition anywhere in the world, gets the most effective help possible.  We undertake knowledge management, research, and advocacy to support national governments, civil society, UN agencies, donors and academic organisations, and communities of practitioners. Through our work and collaborations, we support agencies and individuals to implement evidence-based nutrition programming, predominantly in low- and middle-income countries and in fragile and conflict-affected states.

ENN has its head office in Oxfordshire, UK. ENN is financially supported by foundations and trusts, bilateral donors, international non-governmental organisations and United Nations agencies. For more information about ENN see our website. 

What we do

ENN’s work includes our “Field Exchange” publication that provides up to date information from research, programme learnings, and news from the sector, generated by practitioners, and distributed to our large network of researchers, practitioners and policy makers globally.  We have projects specialising in Infant Feeding in Emergencies, Wasting and Stunting, Maternal and Adolescent Nutrition and support for Small and Nutritionally at-risk Infants under six months & their mothers and also manage a peer-to-peer forum offering timely answers to the questions challenging those on the front line of providing services to treat and prevent malnutrition in the world.  ENN does not directly implement programmes but works to improve the effectiveness of all nutrition practitioners by helping to shape policy and practice at global and national levels.

Our Funding

ENN receives funding from governments, UN agencies, private foundations through grants and agreements, as well as contributions from partners.

This Role

The Emergency Nutrition Network intends to expand its funding base.  To do this we would like to open funding opportunities with the private and corporate sectors, new foundations and other donors that may have an interest in working to improve nutrition for people in emergency and high malnutrition contexts. 

The work will involve identifying potential funding sources, developing relationships and helping to finesse opportunities that can match ENN with potential funders.  This role will work with colleagues and will be closely supported by the CEO and technical team.

The position will report to the CEO. 

About You

We are looking for someone who would enjoy the challenge of working with a charity to raise funds to provide support for projects and practitioners working in difficult and resource poor situations to treat and prevent malnutrition. 

If you have experience in the private or corporate sector, and skills that you believe could enable you to fundraise, we would love to hear from you.

Terms and Conditions

Hours of work: fully flexible/negotiable

Location: Oxford area ideally, but the work does not need to be office based, so other locations should be workable. 

Remuneration: This is a voluntary or pro bono position, however, reasonable expenses can be reimbursed for travel and subsistence in line with ENN’s policies.

To apply

Submit a brief CV as well as a short covering letter setting out how your past experience demonstrates your suitability for the role 

Please note: ENN does not intend any employment relationship to be created from this voluntary position, either now or at any time in the future.

Join us and help lead change for anyone affected by ME.

Can you help us deliver our mission to improve the lives of all people affected by ME by becoming a new Trustee on our Board?

With the recent launch of the UK Government Delivery Plan for ME/CFS, and some critical research partnerships on the horizon, now is an exciting time to join us and play a pivotal role in our work to secure a better future for people with ME.

As a Trustee, you will have a vital role within Action for ME, establishing a clear and shared vision, setting policies and acting in the best interests of Action for ME and people with ME. We are particularly looking for people who bring: Scientific and/or research expertise; healthcare and/or information, support and advocacy experience; Policy experience at local or national level; Communications and/or marketing expertise.

If you have experience in any of these areas and share our ambition for a better future for people with ME, we want to hear from you.

Trustee - Role Description

Duties of a Trustee are as follows:

• To ensure that Action for ME complies with its Memorandum and Articles of Association,charity law, company law and any other relevant legislation or regulations
• To ensure that Action for ME pursues its charitable objects as defined in its Memorandum of Association
• To ensure Action for ME applies its resources exclusively in pursuance of its objectives
• To contribute actively to the Board of Trustees role in establishing a clear and sharedvision for Action for ME, giving firm strategic direction, setting overall policy, defining goals, setting targets and evaluating performance against the agreed targets
• To act in the interests of Action for ME and for people with ME in general
• To safeguard the good name and values of Action for METo ensure the effective and efficient administration of Action for ME
• To ensure the financial stability of Action for ME
• To protect and manage the property of Action for ME and to ensure the proper investment of charity funds
• To appoint the Chief Executive and to monitor his or her performance and determine his or her remuneration.
• In addition to the above statutory duties of all Trustees, each Trustee should use any specific knowledge or experience they have to help the Board of Trustees reach sound decisions
• To represent Action for ME as appropriate.

Time Commitment:
The time commitment expected of a Trustee is approximately six days per annum, including an AGM, preparing for and attending Board meetings, and involvement in at least one of the sub-committees: Audit, Finance & Fundraising; Public Affairs & Communications; Research; Healthcare Services; or Remunerations & Nominations.

We hold an away day once every two years. Additional time may be required dependent on circumstances/needs. You will receive a full induction and support upon appointment.

We do ask that Trustees make a commitment to at least one, three-year term of office.

Trustee - Person Specification

All Trustees must demonstrate:

• A commitment to the organisation, its cause and demonstrate an understanding of MEand its impact
• A willingness to devote the necessary time and effort Strategic vision Good, independent judgment
• An ability to think creatively
• A willingness to speak their mind
• An understanding and acceptance of the legal duties, responsibilities and liabilities of Trusteeship
• An ability to work effectively as a member of a team
• A willingness to participate in at least one sub-committee, as appropriate
• A commitment to working within Action for ME’s values and principles of working,including Nolan’s ‘Seven Principles of Public Life’:

             a. Selflessness
             b. Integrity
             c. Objectivity
             d. Accountability
             e. Openness
             f. Honesty
             g. Leadership.

• Be willing to sign relevant statutory and other forms (eg for opening bank accounts).

Specific requirements:

While we are open to applications from people who meet the person specification, we regularly review the skills and backgrounds of our Board members and are specifically looking for people who bring:

• Scientific and/or research expertise
• Policy experience at local or national level
• Communications and/or marketing expertise.

How to Apply

If you are interested in becoming a Trustee, please submit:

• Your CV, including all employment/voluntary roles since you left full-time education ensuring any gaps or time out is accounted for and
• A completed ‘Equal opportunities monitoring and information form’ (provided separately)
• A covering letter outlining why you would like to become a Trustee and how you meet the person specification outlined above, including how you meet the specific requirements we are currently looking for.

Please also indicate any reasonable adjustments that you may require to enableus to provide a good recruitment process with you.

You will be informed of the outcome of your application and any potential interviewdates with the Chair, the Chief Executive and another Trustee. We will be invitingpeople for interviews as applications come in and will close recruitment when we fillthe current vacancies.

Equity of access

We strive to ensure equity which includes being as accessible as possible to attract Board members with a diverse range of experience and insight. If you don’t meet the person specification fully, please do consider contacting us for a discussion as youmay be our ideal candidate!

We will consider all requests for reasonable adjustments within the parameters ofensuring Trustees are able to enact their legal responsibilities and accountabilities.

Every day, neurodivergent people in the legal profession face misunderstanding, outdated assumptions, and well-meaning but misguided "support." We're building something different - a charity that gets the science right, speaks with authority, and creates change based on evidence rather than good intentions.

We need someone who understands what neurodiversity really is - professionally, academically, maybe personally, to be our compass and our credibility.

What we're looking for

We need a neurodiversity specialist who can be our knowledge foundation - someone whose expertise ensures everything we do is grounded in current understanding and best practice.

Your background might include:

• Professional expertise in neurodivergence through psychology, neuroscience, education, occupational therapy, or related fields

• Deep knowledge of current research and evidence base around neurodivergence

• Understanding of the real challenges neurodivergent people face in professional environments

• The ability to translate complex concepts into language that lawyers (and everyone else) can understand

• Genuine commitment to making the legal profession work better for neurodivergent people

What would be brilliant (but not essential):

• Hands-on experience working with or advocating for neurodivergent individuals

• Academic qualifications or research experience in relevant areas

• Knowledge of workplace adjustments and inclusive employment practices

• Understanding of career progression challenges in professional settings

• Experience in education, training, or public awareness work

• Personal lived experience of neurodivergence (valued but not required)

What you'll be doing

This isn't about lending your name to our letterhead. You'll be actively shaping everything we put out into the world:

Being our quality control:

• Reviewing all our educational materials, resources, and communications to ensure they're factually accurate

• Keeping us current with evolving research and best practices

• Making sure our language is appropriate, respectful, and up-to-date

• Helping us spot and counter misinformation before it takes hold

Guiding our strategy:

• Providing specialist input on how we approach neurodiversity promotion in the legal profession

• Advising on the most effective methods for raising genuine awareness and understanding

• Supporting the development of educational programs that actually work

• Identifying where we can make the biggest impact

Building our credibility:

• Helping establish partnerships with respected neurodiversity organisations, researchers, and experts

• Supporting our reputation as a source that legal professionals can trust

• Advising on collaboration opportunities with academic institutions and healthcare professionals

Supporting our people:

• Providing guidance to our neurodivergent volunteers in their advocacy work

• Ensuring volunteer-led initiatives are built on solid understanding

• Advising on accessible and inclusive team management practices

The need-to-know

Time commitment: Around 4-8 hours per month - one monthly trustee meeting plus the specialist input that makes the difference, and the occasional extra task that crops up. 

Term: We're looking for a minimum 2-year commitment initially, which then becomes a rolling 1-year term subject to the constitutional requirements. 

When we meet: We will be setting our meeting dates at the start of the organisation's year (October 2025) so everyone can plan ahead. 

Next steps:

• Applications close: 5 September 2025 at 17:00

• Interview dates: TBC - dependent on application numbers

• Next board meeting: TBC

Why this role matters

The legal profession is finally starting to talk about neurodiversity. But too often, the conversation is happening without the depth of understanding it deserves. Myths persist, outdated language gets used, and initiatives are built on shaky foundations.

Your expertise doesn't just add value to our work - it protects the people we're trying to help from being let down by another well-meaning but uninformed initiative.

What We Offer in Return

• Real influence: Your knowledge directly shapes our approach and ensures our impact is positive

• Professional recognition: Work with a charity that's building a reputation for getting it right

• Meaningful connections: Network with other professionals who share your commitment to evidence-based change

• Flexibility: We’re a team of working professionals and always work around professional commitments

• Support: Join a board that values expertise and provides genuine collaboration

• Development opportunities: Expand your governance experience and charity sector knowledge

• Recognition: References, recommendations, and opportunities to speak on topics you care about

• Expenses covered: We reimburse reasonable costs related to your trustee work

Whether your expertise comes from clinical practice, academic research, educational settings, or lived experience combined with professional knowledge, if you care about ensuring neurodiversity initiatives are built on solid foundations, we want to hear from you.

Application deadline: 5 September 2025 at 17:00

We're committed to making reasonable adjustments throughout our recruitment process and welcome applications from all backgrounds. If you need any support with your application, please let us know.

GamLEARN are Seeking a New Trustee: Bring Your Expertise to Our Board!

About Us

GamLEARN (Lived Experience and Recovery Network) is a UK charity dedicated to empowering people affected by gambling. We provide a platform for lived experience, support peer-led recovery, and influence systems change.

Our vision is to ensure all voices impacted by gambling harm are heard, valued, and lead change.

The Role of Trustee

Reports to: Chair of the Board

Location: Remote or Hybrid (UK)

Time Commitment: Approx. 4–6 board meetings per year

Remuneration: Voluntary (reasonable expenses reimbursed)

As a Trustee, you will support the strategic leadership of GamLEARN, ensuring accountability, transparency, and mission alignment.

Key Responsibilities

- Shape strategic direction and support delivery of mission
- Ensure good governance and regulatory compliance
- Provide oversight of risk and finance
- Champion lived experience and support inclusive leadership
- Promote and advocate for the organisation 

Who We’re Looking For

We particularly welcome applicants with: Experience within or alongside the gambling sector,regulation or public policy. Legal knowledge or experience, Communication and PR, experience within the 3rd sector, lived experience of gambling harm within the Criminal Justice System, Strong values and team work, willingness to act in the best interests of beneficaries. 

Closing date for applications: 10th of September 2025

Interviews to be held: Last 2 weeks of September 2025

Start Date Anticipated: Within first 2 weeks of October 2025

We appreciate any volunteering help that you can offer YBTC and want to make sure that our

volunteers have a positive experience with us. We pledge to support you as much as we can.

We want to ensure that volunteering with us does not feel too daunting, so the exact tasks might

vary depending on your circumstances. However, some typical tasks may include:

· Asking people you know who might be willing to have a collection box in their business

· Approaching local businesses to display the boxes and collect loose change from their customers

· Building and maintaining relationships with your box holders to inspire loyalty and encourage people to continue giving year after year

· Collecting the boxes in your area as and when required and taking to your YBTC contact

We are looking for people who are:

· Have a warm, friendly and confident outlook

· Willing to learn about the work of YBTC

· Able to communicate with a range of different groups

· Are creative and imaginative – spotting opportunities to boost your distribution

· Are well organised and enjoy meeting new people

· Reliable and able to commit to agreed requirements

We can offer you:

· Induction and ongoing training

· Ongoing support and supervision in your role

· The opportunity to learn new skills

· YBTC commitment to health and safety

Founded in 2003 and originally named Andrea’s Gift and later Brain Tumour Research and Support

Across Yorkshire, Yorkshire’s Brain Tumour Charity (YBTC) is Yorkshire and Humber’s leading

brain tumour charity. Offering practical, financial and emotional support to both adult and child

brain tumour patients, together with their families.

We fund brain tumour research in Yorkshire; we hope this research, dedicated to identifying new

approaches to the discovery and treatment of brain tumours, will improve outcomes for patients.

At YBTC we are a small team who are growing to meet the needs of those affected by a brain

tumour in Yorkshire. Around 15 new cases of primary brain tumour are diagnosed in the region

every week.

Our charity values are Integrity, Compassion, Community, & Ambition.

Our Vision/Mission

To improve the lives of people impacted by a brain tumour in Yorkshire, through local support and

research.

We appreciate any volunteering help that you can offer YBTC and want to make sure that our

volunteers have a positive experience with us. We pledge to support you as much as we can.

We want to ensure that volunteering with us does not feel too daunting, so the exact tasks might

vary depending on your circumstances. However, some typical tasks may include:

· Helping with event preparation

· Manning checkpoints

· Walking support

· First-aid support

· Marshals

· Support drivers

· Helping with community stalls

We are looking for people who are:

· Warm and non-judgemental

· Willing to learn about the work of YBTC

· Able to communicate with a range of different groups

· Good team players, able to work with other staff/volunteers

· Reliable and able to commit to agreed requirements

We can offer you the following:

· Induction and ongoing training

· Ongoing support and supervision in your role

· The opportunity to learn new skills

· YBTC commitment to health and safety

About Yorkshire’s Brain Tumour Charity

Background

Founded in 2003 and originally named Andrea’s Gift and later Brain Tumour Research and Support

Across Yorkshire, Yorkshire’s Brain Tumour Charity (YBTC) is Yorkshire and Humber’s leading

brain tumour charity. Offering practical, financial and emotional support to both adult and child

brain tumour patients, together with their families.

We fund brain tumour research in Yorkshire; we hope this research, dedicated to identifying new

approaches to the discovery and treatment of brain tumours, will improve outcomes for patients.

At YBTC we are a small team who are growing to meet the needs of those affected by a brain

tumour in Yorkshire. Around 15 new cases of primary brain tumour are diagnosed in the region

every week.

Our charity values are:

Integrity, Compassion, Community & Ambition.

Our Vision/Mission

To improve the lives of people impacted by a brain tumour in Yorkshire, through local support and research.

KIPAWA DREAMS INITIATIVES

Kipawa Dreams Initiatives (K-DI) is a women-led Organization. Our mission is to empower youth, especially girls and women, by equipping them with the knowledge and opportunities to foster sustainable communities through extensive education, health, and technology-related initiatives. At K-DI, we prioritize tackling significant challenges in education and health, particularly for marginalized youth. We focus specifically on women and children aged 10 - 25. Our strategy is built on collaborating with local stakeholders, governments, and development partners, which allows us to create community-driven solutions and enhance capacity within our communities.

KIPAWA Dreams addresses the intertwined social and environmental challenges facing youth in rural Tanzania, including poor mental health awareness, cultural stigma, gender inequality, and lack of supportive spaces. Many young people struggle in silence with trauma, anxiety, or abuse, worsened by poverty and harmful norms. Girls are especially vulnerable due to early marriage, menstrual stigma, and limited educational access. Through peer-led clubs, community dialogues, and youth mental health training, KIPAWA Dreams fosters safe and inclusive environments that promote resilience, emotional expression, and support. The organization empowers young people to heal, lead, and drive change within their schools, families, and communities.

KIPAWA Dreams tackles mental health stigma, gender inequality, and youth marginalization through culturally rooted, community-driven solutions. It trains teachers, health workers, and youth leaders in Mental Health issues, builds school-based peer support clubs, and facilitates intergenerational dialogues to break harmful silences. By integrating arts, sports, and storytelling, the startup creates safe spaces for youth expression and healing. Girls are empowered through leadership roles and reproductive health education, while all youth gain tools to navigate trauma and stress. KIPAWA Dreams fosters resilience, inclusion, and early intervention transforming communities from within and ensuring that no young person is left behind.

Join Us in Making Mental Health Matter in Rural Tanzania.

Fundraising & Partnerships Lead (Volunteer)

Volunteer Role Description (remote, unpaid)

KDI is seeking a passionate fundraising strategist to help us secure funding and scale our mental health and empowerment programs for rural youth in Tanzania. You will play a key role in identifying funding opportunities, building donor relationships, and writing compelling proposals.

Key Responsibilities: -Research and apply to grant opportunities (e.g., embassies, foundations, UN agencies). -Build and manage relationships with donors and strategic partners. -Develop fundraising materials (pitch decks, reports, concept notes). -Support crowdfunding or online campaigns.

Ideal Candidate: -Strong writing and communication skills. -Experience in nonprofit fundraising or donor relations. -Passionate about youth mental health and development. -Bonus: Familiar with the African development context or grant platforms.

Weekly Time Commitment

4-6 hours per week

Duration of Volunteer Role (remote)

6+ months

Location: Remote
Job type: Volunteer
Hours: Approx 6 per week

What will you be doing?

Join us as a Volunteer Content Editor & Community Storyteller at Long Covid Support. You’ll shape clear, compassionate messages that empower thousands of people living with Long Covid-right from your home. With your strong editing and writing skills, you’ll make a direct contribution to our cause by refining how we inform, support, and inspire both our community and the wider public. You’ll edit, proofread, and occasionally draft a variety of content, including website pages, blogs, newsletters, reports, policy briefings, and campaign materials.

What are we looking for?

You’re a confident writer and editor with a keen eye for detail, able to adapt tone and style to suit diverse audiences. You thrive on meeting deadlines and managing your own time remotely, and you’re passionate about using clear, inclusive language to support our community. Ideally, you’ll bring experience from health related charities or a lived-experience led setting, though this is desirable rather than essential.

What difference will you make:

By volunteering with Long Covid Support, you will directly influence public understanding of Long Covid. Your work will help thousands find reliable information, connect with peers, and ensure their voices shape research and services.

Key Responsibilities:

* Edit and refine newsletters, website copy, reports, policy briefings, and campaign materials so they’re accurate, engaging and accessible

* Write short blogs, community updates, and summaries that bring our stories to life

* Maintain and share editorial guidelines to keep our tone consistent and inclusive

* Collaborate with our teams to ensure every message supports our mission and values

Application Process:

Please submit a CV, and a brief writing sample demonstrating how you meet the criteria.

We are committed to fostering an inclusive and diverse environment where everyone is treated with dignity and respect. We provide equal opportunities for all, regardless of age, disability, gender reassignment, marriage and civil partnership, pregnancy and maternity, race, religion or belief, sex, or sexual orientation. We actively encourage applications from all individuals of all backgrounds, particularly those with lived experience of Long Covid.

Ready to use your editing expertise for a cause that matters? Make your mark on a vital cause and apply today!

Say Aphasia is seeking an enthusiastic and skilled volunteer grant writer to join our small but dedicated team. As a proactive member of our charity, you will help secure funding to support people living with Aphasia—a communication disability that affects over 360,000 people across the UK.

Job description:

As our Grant Writer you will be responsible for identifying appropriate grant opportunities, and managing the grant development and proposal process from research to submitting grant applications with any supporting documents.

As our grant writer, you will:

• Identify appropriate sources of funding where we fit their criteria. 

• Write appropriately tailored grant/funding bids that meet funders’ interests and requirements and to write any additional documents in support of funding bids.

• Help develop a Trusts and Foundations strategy to help create and maintain strong and diverse income that meets Say Aphasia’s funding needs.

• Create a calendar of grant deadlines and track submitted funding proposals.

• Help us develop a case for support.

• The bid writer will receive a percentage from successful funding received from their submitted applications.

If you are an experienced grant writer or you just enjoy researching and persuasive writing then we would love to hear from you.

We are looking for a someone who has:

• Experience of being a grant writer, project proposal writer, marketing, or nonprofit development.

• Excellent writing, analytical, and research skills are essential.

• Creative and persuasive written and spoken communication skills. 

• Strong written and verbal communication skills; able to inspire and engage diverse audiences.

• Self-motivated and highly-organised.

• Ability to work remotely.

• Ability to search online databases and other sources to identify appropriate funds.

• An understanding of how grant funding works, and the variety of requirements from different Trusts and Foundations.

• Ability to organise your own work, track and report back regularly. 

• Ideally have a good network of people, organisations and charities which can help us to support our projects.

• Determination to get the job done.

You would be working closely with the charity’s Service Manager, with regular updates and remote meetings as needed. We have an induction process that will help successful applicants to understand how our charity operates. We would like to offer the volunteer a commission on successful grant applications. 

Trustee Recruitment - Lead with Purpose: Become a Trustee and Help Achieve a Life Unlimited. 

Your experience. Your voice. Your impact.

• Flexible location: home based/ hybrid 
• Flexible commitment: approx.an average of one day per month comprised of preparation for and attending meetings, away days and other Trust related activities
• Voluntary role (reasonable expenses reimbursed  for travel to attend meetings in person)
• Multiple positions available

About us

At Cystic Fibrosis Trust, we believe in a world where everyone with cystic fibrosis (CF), can live a life unlimited — and we’re inviting passionate individuals to join us on this powerful journey.

Cystic Fibrosis Trust is the UK’s leading charity dedicated to uniting for a life unlimited for everyone with CF – one of the most common life-limiting genetic conditions.

Our team of dedicated staff, volunteers, and Trustees works alongside people affected by CF to fund life-changing research, promote world-class clinical care, and provide essential advice and support.  We champion a community that is united by strength, compassion, and hope.

Our work relies on the generous donations of our supporters.

About the role

This is more than a governance role — it’s an opportunity to help guide strategic decisions that impact lives, influence national initiatives, and accelerate progress for a community that deserves nothing less than a brighter future.

As a Trustee, you’ll play a pivotal role in shaping our vision, values, and strategic direction, developing our aims, objectives, and goals. Your leadership will help us make decisions that matter, and your voice will help steer us toward a stronger, inclusive future.  Trustees typically serve a three-year term, with the option to continue for a second.

Who are we looking for?

We welcome applications from individuals of all backgrounds and experiences.

Due to our normal rotational retirements and trustee terms of office we have several vacancies.  We are keen to increase the representation of people with lived experience of CF and are particularly interested in applications from all people who can offer professional skills and experience in:

• finance and accountancy
• legal practice/law
• fundraising and income generation
• marketing and communications
• data and digital strategies
• basic science research
• non-clinical CF professions (e.g. psychology or social worker)

As part of our long-term succession planning, we would also welcome interest from candidates who may be open to taking on additional Board leadership responsibilities in the future, e.g. Chair, treasurer, or committee roles.

The cystic fibrosis community is diverse, encompassing people of all ages and backgrounds. We are committed to ensuring that this diversity is reflected on our Board. We are especially interested in hearing from those with lived experience of CF, disabled individuals, and candidates from Black, Asian, and minority ethnic communities, as well as LGBTQI individuals. We value fresh perspectives and encourage applications from first-time trustees.  

Why Join Us?

• Make a meaningful impact on the lives of people affected by cystic fibrosis.
• Engage with dynamic peers who are driven, forward-thinking, passionate and purpose-led.
• Help drive an inspirational mission that blends science, support, and community.
• Play a critical role in shaping our strategic direction, ensuring robust governance, and championing equity, diversity and inclusion.
• Gain valuable experience in governance and strategic planning.
• Use your expertise to fuel lasting change.

If you are passionate about making a difference for people with cystic fibrosis, this is your moment.

Important Dates

• Closing date for applications: Wednesday 20 August 2025 
• First interview: Week commencing 8 September 2025
• Second interview: Week commencing 15 September 2025

Ready to Make a Difference?

Please download the Trustee Recruitment Pack (see below) for more information including full role description. 

And then select the ‘Redirect to Recruiter’ button above to take you to the application portal.  You will need to have your up to date CV outlining your career history, including responsibilities and achievements and a covering letter explaining why you want to be a Trustee, what skills you can bring to the Board of Trustees and what you want to take away from this opportunity. 

We look forward to receiving your application.

You know what it's like to practice as a solicitor. You've navigated the pressures, the culture, and the unspoken expectations. Now, imagine using that hard-won understanding to create meaningful change for neurodivergent colleagues who are struggling to find their place in our profession.

We're looking for a qualified solicitor who gets it - someone who can help us build programmes and campaigns that will work because they're grounded in the reality of solicitor practice.

Why does this role need to be solicitor-only?

We need someone who understands the culture, systems, and pressures of solicitor life from the inside. The work involves shaping strategy, influencing decision-makers, and ensuring our programmes reflect the real experiences of neurodivergent solicitors. A qualified solicitor brings both lived experience and professional standing, which helps build trust and makes our work more effective. This isn't about hierarchy, but about grounding the role in practical, credible experience that resonates with the people we're trying to help.

What we're looking for

We need a qualified solicitor who can be our eyes and ears within the profession - someone who understands not just the law, but the culture that surrounds it.

Your background might include:

• Current qualification as a solicitor (England and Wales)

• Real experience working in or with solicitor firms and organisations

• Understanding of how solicitor practice works - the good, the challenging, and everything in between

• Genuine commitment to making the profession more inclusive for neurodivergent colleagues

• The ability to communicate with everyone from trainees to senior partners

What would be brilliant (but not essential):

• Experience across different types of solicitor practice - private practice, in-house, government, legal aid

• Personal understanding of neurodiversity challenges in professional settings

• A network of contacts within the solicitor profession

• Background in training, mentoring, or professional development

• Experience in charity/not-for-profit law, employment law, or disability rights

What you'll be doing

This isn't about sitting in meetings talking theory. You'll be:

Being our solicitor reality-check:

• Sharing insights about profession culture, challenges, and opportunities that only an insider would know

• Helping us identify the real barriers neurodivergent solicitors face and practical solutions that might work

• Ensuring our initiatives make sense in the context of how solicitor firms actually operate

Shaping our strategy:

• Contributing the solicitor's perspective to our programme development

• Advising on the best approaches for engaging with firms, training providers, and professional bodies

• Helping develop resources that work in real solicitor practice environments

Being our face in the profession:

• Representing us at solicitor-focused events and networks

• Building relationships that open doors and create opportunities

• Speaking at events and contributing to professional discussions where your voice carries weight

Developing what matters:

• Advising on training and support programmes that solicitors will actually use

• Helping create career guidance that reflects modern solicitor pathways

• Supporting research and policy work that affects how solicitors practice

The need-to-know

Time commitment: Around 4-8 hours per month - one monthly trustee meeting plus the solicitor-specific work, and the occasional extra task that crops up. 

Term: We're looking for a minimum 2-year commitment initially, which then becomes a rolling 1-year term subject to the constitutional requirements. 

When we meet: We will be setting our meeting dates at the start of the organisation's year (October 2025) so everyone can plan ahead. 

Next steps:

• Applications close: 5 September 2025 at 17:00

• Interview dates: TBC - dependent on application numbers

• Next board meeting: TBC

Why this role matters

The legal profession is slowly waking up to neurodiversity, but too often the conversation happens without the people who actually understand day-to-day practice. We've seen well-meaning initiatives fail because they don't reflect the reality of billable hours, client demands, and firm hierarchies.

Your perspective as a practising solicitor isn't just valuable - it's essential. You know which ideas will work and which ones will gather dust in the diversity folder. You understand the language that resonates with partners and the approaches that will actually make a change. 

What we offer in return

• Real influence: Your insights directly shape our strategy and programmes

• Professional development: Gain charity governance experience and expand your network

• Meaningful impact: See your profession become more inclusive for future generations

• Supportive environment: Work with a committed team that respects both your time and expertise

• Flexibility: We’re a team of working professionals and always work around professional commitments

• Recognition: References, recommendations, and opportunities to speak on topics you care about

• Expenses covered: We reimburse reasonable costs related to your trustee work

We're committed to inclusive recruitment and welcome applications from all backgrounds. If you need any adjustments to our application process, just let us know.

Application deadline: 5 September 2025 at 17:00

Could you spare four hours a week to support young cancer patients and their families?

When a child is diagnosed with cancer it threatens everything, for them and their family. At a time when they should be busy being children, enjoying their rollercoaster teenage years or finding their feet at university, life becomes full of fear. Fear of treatment, but also of families being torn apart, of overwhelming money worries, mental health stretched to breaking point, of having nowhere to turn, no one to talk to.

At Young Lives vs Cancer, we get that. We are the charity that helps children and young people (0-25) and their families find the strength to face whatever cancer throws at them.

There are many small organisations that help families with a child that has a life threatening illness, by providing grants, holidays or wishes. We want our families to take advantage of this but applying for this extra support can often be overwhelming or another thing on the to do list at a stressful time in their lives. That’s where you come in. Could you give 4 hours a week to support our families to apply for grants, holidays and wishes?

What you’ll be doing

You’ll be working directly with our families who are known to the Young Lives vs Cancer Service at Birmingham Children’s Hospital and Queen Elizabeth Hospital Birmingham to help them apply to organisations which can offer grants, treats, wishes or holidays to make the cancer journey more manageable. Your role will be both researching and identifying organisations offering additional practical support (such as additional grants) and practical opportunities for joy (wish granting and special offers), and then supporting families to apply to these organisations.

There is scope and opportunity in this role for development into liaising with other charities.

About you

• You’ll need to be super organised in managing information and communicating with different audiences
• You’ll need to be confident in approaching conversations with new people, that includes speaking directly with children and families about their needs, and approaching potential sources of support on their behalf
• You’ll have strong relationship management skills, the ability to make people you are talking to feel at ease and supported

Experience working with families with a child with a life threatening or limiting illness, or working with a family support organisation is desirable but not essential.

You’ll receive a full induction to the Young Lives vs Cancer BCH and QEHB social work team, learn about the service we provide and the impact of cancer on the children, young people and families we support.

4 hours a week during office hours (9am to 5pm, Tuesday to Thursday)

From your own home but you do need to be based in the Birmingham area to attend occasional team meetings and supervision.

How to apply

Complete the application form on our website