Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.
Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.
If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.
As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.
About Dravet Syndrome UK
Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.
The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.
What you will bring
Essential
· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.
· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.
· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)
· Demonstrable experience of working in charity, patient advocacy or healthcare sectors
· Ability to deal with people at all levels with empathy, tact and credibility
· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences
· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website
· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively
· Strong organisational and project management skills, with the ability to prioritise
· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)
Desirable
· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development
Why join Dravet Syndrome UK?
Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.
The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.
Our commitment to diversity
As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.
The client requests no contact from agencies or media sales.
Thank you!
Senior Community Fundraiser
Job reference: REQ004471
£44,742 a year
Leeds LS10 1JF / Hybrid working.
Permanent 35 hours a week
1 in 4 of us in the UK are disabled and we are a diverse, proud, and vibrant community. We’re here to create an equal future with all disabled people. We campaign to transform attitudes to disability, tackle injustice and inspire action. We are creating a powerful movement of disabled people, allies, organisations and businesses.
Together we will be unstoppable. For more information go to our website.
The Supporter Care Coordinator role sits within the Supporter Experience team, whose goal is to ensure that all Scope supporters, whether they are giving time, money, or voice, have the best experience each time they interact with us.
The role
As Senior Community Fundraiser, you will play a key role in helping Scope achieve its mission to create a fairer society for disabled people. You will lead community fundraising across the North of the UK, developing inclusive and engaging programmes that empower local volunteers, community groups, and businesses to support our work.
You will:
· Develop and deliver Scope’s Community Fundraising strategy in the North, identifying opportunities that reflect the diversity of local communities.
· Build and nurture relationships with supporters, volunteers and stakeholders, ensuring everyone feels welcomed, valued and supported.
· Monitor and report on fundraising performance, helping to shape future plans and drive income growth.
· Collaborate with colleagues across Scope to ensure our fundraising activities are inclusive, accessible, and aligned with our values.
· Stay informed about sector trends and bring fresh, inclusive ideas to our fundraising approach.
You will report to the Community Fundraising Lead and work closely with teams across Fundraising, Brand and Marketing, Retail, and Services.
About you
We are looking for someone who:
· Has experience in fundraising and is passionate about engaging communities in meaningful ways.
· Is confident managing community fundraising programmes and volunteers, with strong organisational and project management skills.
· Brings creativity and innovation to fundraising, with a commitment to continuous learning and improvement.
· Communicates clearly and respectfully, and builds inclusive relationships with people from all backgrounds.
· Understands the importance of accessibility, safeguarding, and compliance in community fundraising.
It would be great if you also have:
· An understanding of the social model of disability and the barriers disabled people face
· Experience working with external agencies or managing inclusive fundraising campaigns
· Familiarity with CRM systems and fundraising software
· An interest in inclusive event management and supporter stewardship
Please give examples in your application to show how you have these skills.
We also ask you to share how you support Scope’s values and our goal of a fair and equal future for disabled people.
Our values are being pioneering, courageous, connected, open and fair
By living our values and trusting each other, we give our colleagues freedom and space to be creative, push boundaries and change minds.
Disabled candidates
We are a disability equality charity. We encourage applications from disabled people and people with impairments, conditions, and access needs. We want to create a workforce that is a true reflection of the communities we serve.
Scope will interview all disabled candidates who meet the essential criteria for the post. This is part of our commitment as a Disability Confident Leader. Just let us know in your application that you are applying under the Offer an Interview Scheme. This was previously known as the Guaranteed Interview Scheme.
If you require adjustments through your journey with us, please email us via our website.
Equality, Diversity and Inclusion
At the heart of everything we do at Scope is Equality, Diversity, and Inclusion.
We encourage people of colour and other underrepresented communities to apply and join Scope. We believe that this will bring new ideas and help us work better. We know that a variety of perspectives and viewpoints will greatly support the work we do and help us to reach all communities.
We want everyone to feel like they belong. We value each person as an individual. We will treat everyone with dignity and respect and we want to recognise all parts of a person's identity.
We are a disability equality charity. So, we will build a culture that is accessible and inclusive first. We will aim for the same high standards in all our work. We will listen, learn and keep improving.
You can find out more about our approach to Equality, Diversity and Inclusion on the Scope website.
Scope benefits
We believe hard work deserves reward and recognition. We offer a wide range of benefits including:
· 27 days holiday plus bank holidays
· Flexible, hybrid and remote working options
· Pay progression at 6 months and 2 years
· Company pension
· Excellent training and career development
· Strong colleague networks across disability, race and LGBTQ+
· Discounted gym membership, cycle to work scheme and much more.
How to apply
To apply please visit our website via the link and apply online.
Application closing date: 17/09/2025
Thank you!
LUX is seeking an exceptional Deputy Director to help lead its next chapter. This new senior role, created to strengthen internal capacity, operational resilience, and strategic delivery, will work closely with the recently appointed Director, Ali Roche, to shape and implement a vision for the organisation’s future. Overseeing operational and financial management, the Deputy Director will bring a broad skillset across finance, operations, HR, fundraising, legal, and governance to ensure LUX’s long-term success.
About Us
LUX is a publicly funded arts organisation and accredited museum that supports and promotes visual artists working with the moving image. Based in London and Glasgow, it delivers a range of activities including exhibitions, screenings, educational projects, commissioning and research.
It also manages Europe’s largest collection of films and videos made by artists and distributes them to museums, galleries and festivals around the world. We are a small organisation with offices in London and Glasgow. LUX’s collection is based at its London location in Waterlow Park, Highgate, North London, a beautiful location in a public park with its own gardens. LUX Scotland is based in Glasgow and delivers a public programme of activity in Scotland dedicated to supporting, developing and promoting artists’ moving image practices across the country.
This is a rare opportunity to join LUX at a moment of renewal. Together with the Board and our dedicated team, you will help guide strategic growth, seize new opportunities, and uphold our artist-centred mission—building on LUXs rich history and commitment to championing artists’ moving image in the UK. The Deputy Director will lead on income generation, develop forward-thinking strategies, and help maintain and continue to build a vibrant, sustainable organisation for artists, collaborators and audiences.
Key Information:
Job Title: Deputy Director
Hours: 5 days a week (35 hours)
Salary: £45,000 pro-rata
Benefits Include: 25 days per year plus statutory holidays with an increase of 1 day per year worked up to a maximum of 30 days in total.
Location: This role is based at the LUX London office. This position will require at least 3 days per week working at the LUX office. Hybrid working options available.
The Deputy Director main responsibilities will include:
- Develop and maintain operational policies, procedures, and risk management aligned with organisational values and Arts Council Investment Principles.
- Co-lead the business plan and long-term strategy with the Director, translating goals into operational delivery.
- Oversee financial management, including budgeting, audits, payroll, procurement, cash flow, statutory reporting, and fundraising and income generation strategies, ensuring compliance and value for money.
- Prepare and submit quarterly and annual reports to public funders, ensuring data accuracy and compliance.
- Ensure legal and governance compliance across charity, company, employment, safeguarding, health & safety, and data protection; support the Board of Trustees with reports and governance documentation.
- Manage operations, including admin systems, IT, building maintenance, insurance, accessibility, sustainability, and lease compliance.
- Lead HR processes: recruitment, contracts, onboarding, appraisals, staff development, and fostering a positive, inclusive workplace with HR consultant support.
- Contribute to LUX’s success and culture, upholding our values and supporting an inclusive environment.
Registered Charity
11 - 20
LUX is an arts organisation that supports and promotes visual artists working with the moving image.
The client requests no contact from agencies or media sales.