Personal jobs in llandrindod wells, powys
Job title: Marketing Manager
Reports to: Charis Evans, Managing Director, CST Professional Development
Location: Home-based, with occasional travel for meetings and events. We provide equipment to support you working from home and pay reasonable expenses when you need to travel for work.
Salary: £40,000-£45,000 a year.
Pension: We offer a workplace pension and life assurance scheme. CST makes contributions equivalent to 10% of your gross salary.
Annual leave: Initially 25 days annual leave plus bank holidays, with an additional two days leave after three years.
Working hours: Full time, 37.5 hours a week. We are happy to consider part time and flexible working options.
Job overview We are seeking an experienced and dynamic Marketing Manager to lead and execute marketing strategy for our conferences, events, membership and consultancy services within the education sector. The ideal candidate will play a pivotal role in promoting the CST brand, increasing attendance and engagement at our events and driving membership and business growth through strategic marketing activities. They will also line manage, support and develop a Marketing Executive.
Key responsibilities
1. Developing and implementing integrated marketing strategies for CST’s services, aligned with organisational goals and values.
2. Working closely with key stakeholders to define and achieve marketing goals and income targets.
3. Engaging with CST thought leadership and policy output to understand key trends in the school trust sector and undertaking competitor analysis to identify opportunities for CST in the education market.
4. Understanding CST membership engagement data and using it to inform the planning and execution of multi-channel marketing campaigns that build audiences and pipelines for CST events and services.
5. Managing marketing calendars to ensure timely delivery of campaigns, in line with the events, communities and membership calendars.
6. Overseeing the creation of compelling marketing materials including, brochures, landing pages, social media and email campaigns, blog content and promotional video.
7. Collaborating with subject matter experts in-house and across a wide range of partners to produce thought leadership and guidance for the benefit of CST members.
8. Supporting the delivery of conferences and events and working in partnership with the events team and external partners to ensure seamless integration and quality assurance of marketing and operational activities, including onsite branding and promotional activities.
9. Working closely with CST’s Head of Communications to manage the services areas on CST’s website.
10. Build relationships with CST partners and other sector organisations to identify and create cross-promotional opportunities.
11. Using the CST CRM and other analytics platforms to report on the performance of marketing activities.
12. Any other duties that may be delegated by the MD of CST PD.
Person specification
Essential skills and experience
• 5+ years marketing and communications experience, ideally in the education or membership sector, including experience of managing people.
• Output focused, able to execute a range of communications across channels efficiently.
• People-centred, adept at forming and maintaining positive relationships with colleagues and external stakeholders.
• Fluent and precise, an excellent communicator who writes well and oversees good design.
• Data driven, with a relentless focus on monitoring impact and hitting ambitious targets.
• Proficient with CMS, CRM and marketing automation tools and analytics software.
• Familiar with Adobe Creative Cloud suite and Canva
• Highly organised, with the ability to prioritise and work to tight deadlines.
• Committed to ongoing development of themselves and their colleagues.
• Someone that embodies the Nolan Principles and acts with integrity and discretion.
• Aligned with CST’s aims to promote education for public benefit.
• Skilled at working remotely as part of a close-knit team. Desirable skills and experience
• A degree and/or professional qualifications in marketing and/or communications
• Membership of the Chartered Institute of Marketing
The client requests no contact from agencies or media sales.
About you
Do you have excellent communication, organisational and interpersonal skills? Do you enjoy interacting with supporters and building lasting relationships? Want to use your skills to make it possible for people with myeloma, an incurable blood cancer, to live longer and better lives?
Myeloma UK is looking for a driven and pro-active Events Fundraiser to join our growing Community and Events team. You’ll be joining the team as we continue to refine and expand our mass participation events portfolio including London Paris Ride, Great North Run and 100 miles for myeloma. You will have experience in event delivery or project planning, delivering these activities within tight deadlines while successfully building effective relationships.
The role holder will have strong administration skills, attention to detail and work as part of a team. You will be self-motivated and able to work remotely with little supervision, managing a wide range of tasks and having an interest in sporting and mass participation fundraising events.
Previous experience or knowledge of digital marketing, virtual fundraising events and using Raiser’s Edge or similar CRM system would be an advantage but not essential.
About the role
As the Events Fundraiser you will be required to research, promote and deliver fundraising events, campaigns and activities, providing excellent stewardship to supporters, whilst working to help achieve monthly fundraising income targets. You will work to deliver an annual calendar of runs, walks, challenge and sporting events across the UK as well increasing support through Myeloma UK virtual and Facebook events.
The role holder will work with the Senior Event Development Fundraiser to provide the highest quality of event delivery as well as developing relationships, securing support, marketing, delivering and monitoring the event ensuring post event evaluation and future recommendations are made. They will also work closely with Community Fundraisers, supporting them as they identify opportunities to expand and diversify their fundraising portfolio.
You will work with other teams, develop materials required to support all marketing and promotion of events, ensuring organisational brand, style and key messages are adopted and ensure maximum use of database and other technology to increase operational efficiency within event fundraising.
About us
Myeloma UK is the only UK charity focused on myeloma and its related conditions. We provide support and influence access to treatments, while researching a cure. Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well. Together, we support, so no one faces myeloma alone.
We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future.
Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every patient live well with myeloma for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change in care.
Our culture
Wellbeing and staff engagement are at the heart of our culture. We offer our employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working from home with hub-based office working, health plan, employee assistance plan and holiday purchase scheme and we are committed to providing learning and development opportunities for all our employees.
How to apply
If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending the following:
1. A cover letter telling us more about you and what you think makes you a good fit for this role
2. A CV that sets out your career history, with key responsibilities and achievements
Applications close on 15 June 2025 and interviews will be held w/c 23 June 2025.
Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:
· sex
· race
· disability
· age
· sexual orientation
· gender reassignment
· religion or belief
· marital status
· pregnancy and maternity
Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.
The client requests no contact from agencies or media sales.
OUTLINE OF THE ROLE
Work with the Trustees to devise and lead new fundraising initiatives that fulfil the objectives of the Trust's Fundraising Strategy and annual income budget, with particular focus on regular giving across all alumni, gifts from high-net-worth individuals, and legacies. This will involve:
• Developing and delivering improved communications to build a stronger connected donor network.
• Locating, engaging and retaining alumni to support and promote the Trust, focused on ensuring their long-term impact on the Trust and its beneficiaries.
• Work with the Trustees/Trust Fundraising Committee to devise and implement new fundraising initiatives.
• Work with the Trustees/Trust Fundraising Committee to identify and engage new volunteers to support the Trust's activities.
KEY TASKS
Work with the Trustees and Fundraising Committee to devise and implement the following:
• Improve communications
The Trust has a strong, growing, and engaged network of loyal alumni who already support the Trust's beneficiaries through fundraising and volunteering. However, the Trust's communications need to be improved in order to increase the numbers of donors who provide sustained financial support and inspire all donors to raise their level of donations. Continually find opportunities to engage new donors and ensure clear consistent messaging.
• Manage and maintain donor data
The Trust needs to maintain a full and accurate database of all donors and fundraising activities to support long-term tracking and inform future fundraising. This also requires networking among alumni and being vigilant to changes in alumni data.
• Research and approach alumni whose connection with the Trust has lapsed
Continue to grow the active network through researching and motivating dormant and lapsed alumni to reconnect with the Trust.
• Research untapped prospects
Research the database with a view to identifying dormant and untapped opportunities, especially regarding
high-net-worth individuals and legacies. Ensure fundraising approaches are well-targeted and informed in order to maximise the chances of success. This will expand to include non-alumni sources, including institutional sources such as foundations and other trusts.
• Ensure long-term donor connection
Communicate with all donors to demonstrate the impact they can make by showcasing the current and long-term outcome of programs. Deliver a diverse selection of communications to engage different audiences, with a clear plan for all members of the network. Ensure donors are connected to the Trust, value the Trust's activities and actively help fund opportunities.
• Reporting to the Trustees
Create an annual donor impact report to the Trustees, and other stakeholders such as alumni, that delineates donor statistics, reviews communications and events that have taken place during the past year and identifies potential prospects and events for developing in the coming year. Also provide a lower-level oral report of fundraising activities and communications to the Trustees at their quarterly meetings.
• Deliver income growth target
Acquire enough new donations to meet agreed annual income growth targets set by the Trustees.
You will be expected to perform different tasks as necessitated by your changing role within the charity and its overall objectives. For instance, organizing fund-raising specific events in different regions. This position could evolve into a full-time commitment with a support team, but at the present time, support to this role will be provided through the existing network of volunteers.
The client requests no contact from agencies or media sales.
The purpose of this role is to provide leadership, oversight and curation to the FYT Leadership Team, and to lead the smooth running of the FYT Organisation which supports the wider FYT Movement. This will include coordinating the delivery of the strategic plan, leading fundraising, and working closely with the FYT Board to oversee the smooth running of the organisation.
Hours: 22.5 hrs per week
Salary: £24,116 per annum (£40,194 pro rata) + 9% pension
Holidays: 5 weeks plus bank holidays and 3 additional days at Christmas
Location: Working from home, with nationwide travel expected
Key Responsibilities:
- Lead the FYT Movement – Engage with movement members
- Listening
- Inspiring
- Taking inspiration from
- Facilitating collaboration and cross-pollination
- Lead the FYT staff team – supporting, supervising, enabling and encouraging and ensuring appropriate HR functions are carried out.
- Lead the fundraising strategy for the organisation, giving attention to securing grants, as well as donor fundraising . Report as necessary to funders.
- Work with the Finance Officer to manage the budget and finances within the parameters agreed by the Board.
- Facilitate the effective function of the Leadership Team, enabling the smooth and efficient carrying out of the strategic priorities.
- Provide Line Management support and supervision to the other members of the Leadership Team.
- Develop, implement and monitor FYT’s strategic plan in partnership with the FYT team and board
- Engage in practical theological reflection on FYT’s mission and how it is expressed.
- Attend and contribute as required to Board meetings, working closely with the Chair and Board to ensure that appropriate issues are raised, and that any agreed action is put into effect.
- Be an advocate for marginalised young people, the issues they face, and youth workers and projects working with them (pursuing prophetic mischief, provocation, and taking up our unique space in the youth ministry community).
- Make links with appropriate Christian, voluntary and statutory bodies and to represent FYT in appropriate forums and pursue opportunities for collaborative working.
- Support the active promotion of the FYT training and resource offer.
- Lead the monitoring and evaluation (impact assessment) of FYT’s work
Other functions:
- Meet regularly with Line Manager for supervision.
- Undertake administration and keep necessary work records.
- Comply with all FYT policies and procedures.
- Work collaboratively with the FYT leadership team and Board to ensure that organisational policies are regularly reviewed.
- Engage in CPD/lifelong learning.
- Undertake any other tasks that may be requested, commensurate with the nature and level of the post and as may be required by the Board of Trustees.
Additional Information
- The Leadership Team is supported by a contract with Giraffe HR that assists in the day to day running of the organisation, primarily managing the finances of the organisation.
- Engagement in ongoing, regular youth work with marginalised young people is not a requirement of this post, but encouraged. FYT will be flexible where possible in order to facilitate this.
The client requests no contact from agencies or media sales.
Job purpose
The Clinical Lead will play a pivotal role in leading and developing Action for ME’s Healthcare Services with the Operations Director, ensuring the highest standards of clinical care for individuals affected by Myalgic Encephalomyelitis (ME). The postholder will be responsible for clinical oversight, service development, and leadership, working collaboratively with multidisciplinary teams to enhance outcomes for children and adults with ME and will be the CQC Registered Manager for the service.
At present, the Healthcare Services is a small team with two doctors (GPs) and two physios. Our counsellors are overseen by a Counselling Lead Supervisor and our multi-faith Chaplains are supported by our Lead Chaplain.
We are keen to develop and expand our services, building on the small amount of spot purchasing from local commissioning boards and exploring a diagnosing and prescribing offer. We are also keen to explore the potential of increasing the range of disciplines offered within the team. You will play a key role in driving the strategy for our Healthcare Services with the Director of Operations.
Key responsibilities
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Provide clinical support and expertise to Action for ME's Healthcare Services, ensuring evidence-based, person-centred care.
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Act as Registered Manager for CQC (Care Quality Commission) purposes and ensure that the service meets all required standards.
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Lead the development and implementation of clinical policies, protocols, and best practices in line with national guidelines and regulatory requirements.
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Supervise and support healthcare professionals within the service, offering guidance, mentorship, and training.
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Designated safeguarding officer for Healthcare Services.
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Collaborate with external stakeholders, including NHS services, researchers, and others, to enhance healthcare provision for people with ME.
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Ensure the service complies with regulatory and safeguarding standards, including CQC requirements where applicable.
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Monitor and evaluate service delivery, using data-driven insights to improve clinical outcomes and patient experience.
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Provide expert advice on complex cases, supporting staff with clinical decision-making.
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Represent Action for M.E. at external forums, conferences, and policy discussions.
Person specification
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A registered healthcare professional (e.g., doctor, nurse, physiotherapist, or occupational therapist) with active professional registration (GMC, NMC, HCPC or equivalent) OR an experienced commissioner of healthcare services with experience of quality assurance, safeguarding and compliance.
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Extensive clinical experience in chronic illness management OR sound understanding of clinical practice, ideally with expertise in ME or related conditions and a clear understanding of the challenges faced by people with ME.
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An understanding of Care Quality Commission regulatory requirements.
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Proven leadership experience in a healthcare setting, including team management and service development.
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Strong understanding of evidence-based practice and clinical governance.
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A sound understanding and experience of safeguarding children/young people and vulnerable adults.
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Excellent communication and interpersonal skills, with the ability to engage effectively with patients, carers, and healthcare professionals.
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Experience in training and mentoring healthcare professionals.
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Ability to work independently and collaboratively within a multidisciplinary environment.
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Commitment to patient-centred care and advocacy for people with ME.
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Knowledge of NHS structures and commissioning processes.
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An understanding of working within the third sector or charitable organisations.
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Are you a visual storyteller with a passion for design that inspires action? Do you want to help shape the brand of a modern, vibrant, and inclusive organisation that empowers young people across the globe?
We are looking for a talented and visionary Graphic Designer to join our team at a pivotal time. In this newly created in-house role, you will be instrumental in helping to evolve and elevate the visual identity of the Duke of Edinburgh’s International Award Foundation, ensuring our brand resonates with young people and decision-makers, and reflects the power of non-formal education worldwide.
From refreshing our global brand to designing dynamic content and campaign materials, your creativity will help drive awareness, engagement, and participation in the Award. You'll work collaboratively with teams across the Foundation and our international network, producing materials that not only look great, but carry real meaning and purpose.
Key responsibilities
- Brand Development & Identity: Lead creative development to refresh our brand so that it communicates impact, celebrates young people, and demonstrates our vision and values
- Visual Storytelling & Content Design: Translate complex ideas and data into accessible and visually engaging formats by creating assets for campaigns, content series, publications and digital platforms— including social media graphics, short-form videos and animations, marketing materials, reports, infographics, toolkits, and event assets
- Innovation & Accessibility: Stay informed on design trends and youth visual culture to bring fresh ideas, a user-centred mindset, and an inclusive approach that keeps our visual storytelling current and compelling, whilst ensuring accessibility and cultural relevance to young people across the world
- Internal Support: Work with teams across the organisation to develop brand-aligned guidelines, templates, resources, and capacity-building in visual communication principles
Our long term ambition is that every eligible young person aged 14 – 24 will have the opportunity to participate in the Award.

The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Deputy Head of Care
£45,000pa + Company Car and benefits (25 days annual leave and pension)
This is a national role
This Best Companies Top 100 mid-sized company and Top 20 charity is looking to appoint a Deputy Head of Care to hold national responsibility for the operational management of identified Care projects, driving their development and implementation.
Reporting to the Director of Care and working in partnership with health, education and social care professionals, you will take responsibility for the line management of Family Support Managers for the Kentown Programme and the development of new locality projects as identified by the Director of Care Services.
Having worked previously in a senior management role, with experience of working in a stressful and emotional environment, within the community, you have a commitment to working in partnership with children, young people and their families, developing, monitoring and delivering service outcomes and building and maintaining successful professional partnerships to ensure the service is accessible to relevant families.
What we’re looking for:
· An experienced child health, education or social care professional - applications will be particularly welcome from those who understand the impact on family dynamics of having a child/young person with a life threatening or terminal illness and those who have worked in bereavement support.
· A poised and convincing communicator - you will maintain effective relationships with stakeholders including families, referrers, partners and other statutory, private and voluntary agencies.
· Comfortable with a changing environment - you will thrive working at a fast pace and controlling tasks from conception to completion and understand that quickly connecting with people is essential.
· A persuasive, inclusive approach to achieving goals quickly and correctly – you have a strong sense of drive and a warm and friendly working style.
· Strong networking skills and confident use of MS Office - Educated to A-level or equivalent with a recognised childcare and management qualification (NVQ4 or equivalent)
What we offer:
We have a range of fantastic benefits that we offer our employees, including:
· Flexible working hours to balance home and working life
· Employee Assistance Programme with access to remote GP, counselling, physiotherapy, resources to support your mental health and financial wellbeing, as well as a 24/7 helpline via Help@Hand
· 25 days of annual leave plus public holidays – rising to 26 days after 1 year, 27 days after 5 years and 30 days after 11 years, with an additional 5 days to use in your 10th or 20th year of service (pro rata for part time)
· Company car for front line care posts
· Time off in lieu
· Access to the Blue Light Card Scheme, and other rewards and discounts
· Bike to work, season ticket loan and payroll giving schemes
· Family friendly policies, focused on employee wellbeing, and an active cross-organisational wellbeing group running a number of initiatives throughout the year
· Pension scheme where we contribute 5% of your salary and you contribute at least 3%
· The option to buy/sell annual leave, as well as additional leave for your birthday, wedding/civil ceremony and an extra half day off for Christmas shopping
· Robust training and development programmes to support your learning and growth
· A recommend a friend recruitment referral bonus scheme
If you’d like to find out more about these benefits and working with us please visit our website.
As part of our learning and development Anne Harris skills development programme, we aim to provide a high level of training and development opportunities for all staff, so you are able to perform to the best of your ability, achieve individual and team objectives aligned to Rainbow Trusts strategic plan, supporting staff to be the best they can be and feel a valued member of a high performing organisation.
Our Family Support Teams are given the opportunity to complete a number of diverse training courses in their first 12 months, including but not limited to: Mental Health First Aid, Makaton, counselling skills, introduction to play.
The programme aims to provide a building block for you to individually tailor your own learning and development needs.
About us:
Rainbow Trust Children’s Charity enables families who have a child with a life-threatening or terminal illness to make the most of time together, providing expert, practical and emotional support, where they need it for as long as it is needed. For families living with childhood illness, time is everything. Right now, there are too many families coping alone with no support, no time to think, no time to make memories and no time for each other. We believe that no family should go through this alone, so we are here to change that.
How to apply:
Please send an up-to-date CV with a covering expression of interest letter to us via the link.
Closing date for applications is 20th June.
First interviews will take place at Cassini court on 21st June, with second interviews thereafter.
There will be a requirement for flexible working and a full current driver’s licence to accommodate team and family need. An enhanced DBS disclosure will be required for this post.
Rainbow Trust is committed to safeguarding and promoting the welfare of children and young people and expects all employees to share this commitment.
Rainbow Trust is an equal opportunities employer and a Best Companies One-Star rated organisation, and we welcome applications from all backgrounds.
Registered Charity No: 1070532
We’re looking for a well-organised person, with excellent attention to detail and a can-do attitude. You will enjoy undertaking a variety of work from project work to administration. You will have gained two-years work experience in grant making, so will be comfortable working with others and will feel confident using IT applications and databases.This role is remotely based, you’ll be in touch with the rest of the team on a daily basis, but you’ll also feel comfortable undertaking tasks yourself and will competently manage your own time.You will also have a passion for our values and our work. If this sounds like you, we’d love to hear from you!
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Every day, the TSA’s small support and information team make a real difference to people affected by the rare genetic condition Tuberous Sclerosis Complex (TSC) and their loved ones. In this vital role, you will help to maintain our high support standards at the TSA, including through operating on the TSA Support Line, developing content for a wide range of platforms and needs, and occasionally attending virtual and in-person TSA events.
You'll be part of a flexible, passionate, welcoming and wholly home-based team, who know they improve the world every single day. The role includes (pro-rata) 25 days annual leave plus 8 bank holidays and the working days that fall between Christmas Day and New Year.
On the TSA Support Line, you will provide support and information regarding TSC via telephone, email and webchat. You will offer an informed, non-judgemental and empathetic listening ear to individuals and families at every step of their journey. The type of enquiries we receive are wide ranging, covering matters such as health, social care and education. You will also engage with professionals supporting people with the condition.
You will have a key role in researching, developing, and updating information across our various platforms including (but not limited to) content for our website, social media, support line materials, leaflets, e-newsletter and our community magazine. The primary audience of the materials will be the TSC community. Materials used by NHS clinics and clinicians are also developed by us, which you will have a central part in developing.
You will help to ensure that our internal processes are effective, and the information that we provide to the TSC community is timely, up-to-date, and relevant.
You will attend TSA events (virtually and in-person) to market the TSA Support Line services, participate in sessions and assist in support-related issues.
We are a small but very impactful charity, where roles are wide-reaching. Although this role is focused on support and information services, the successful candidate should also expect to get involved with projects from other TSA teams including communications, research and fundraising.
Responsibilities
1. TSA Support Line
1.1 Through the TSA Support Line, you will provide information and support to individuals living with TSC, their families and professionals by telephone, email and webchat, ensuring that:
- All enquiries received through the TSA Support Line receive a response based on high quality, up-to-date and evidence-based information.
- You log, triage and respond to enquiries received by telephone, email, post and webchat in line with agreed timelines, policies and procedures.
- You direct non-support related enquiries to appropriate TSA staff, taking messages where necessary.
- You are sensitive and responsive to the needs of the individuals living with TSC, family members and health, social care and education professionals using the TSA Support Line.
- You provide time-limited, structured support through formal case management processes for a small number of individuals and families who are most vulnerable and who need regular help and support. This includes individuals with learning disabilities, autism and complex needs, and families who face a wide range of challenges accessing health, social care and education services for their loved ones.
- You collect and accurately record data enabling the TSA to monitor and evaluate the performance of the TSA Support Line, including usage data (such as number and length of calls), qualitative information (feedback from service users) and data collected in conversation (such as logging broad categories of issues that service users are facing).
- You support individuals and families who wish to apply for financial support from the TSA Support Fund, helping them to complete the relevant application forms, ensuring that they supply documentary evidence, and logging their application appropriately for audit and compliance.
- Your support demonstrates best practice and complies with the law on safeguarding (making sure we are working appropriately with vulnerable adults and children) and data protection (making sure that we are handling all sensitive data appropriately).
- You proactively engage with regular reflective practice and supervision to safeguard your own health and wellbeing and support individual and team learning. This will include individual supervision through regular 1-2-1s with your line manager and team supervision through weekly calls for all those working on the support line.
- You will contribute your expert insight into the challenges and issues that the TSC community are facing to help colleagues across the organisation develop information materials, online resources and event agendas for communications channels including the TSA’s community magazine ('Scan'), our website, social media and events.
- You will ensure that internal processes for recording TSA Support Line enquiries, and signposting information on the support line, are maintained to a high standard and kept up to date.
1.2 You will play a key role in the TSA’s safeguarding as part of your work on the TSA Support Line and in supporting other members of staff with any questions that they have.
1.3 You will ensure confidentiality in the provision of the TSA Support Line, managing conversations and relationships tactfully and diplomatically with members of our small community who may also interact regularly with the charity at face-to-face and virtual events and through our social media channels.
1.4 You will work closely with colleagues from across the TSA to ensure that our support and information services are joined-up with and informed by other services offered by the TSA more broadly across our website, social media channels, Scan and face-to-face and virtual events.
1.5 You will help to ensure that the TSA Support Line demonstrates best practice in the provision of support and information. You will work with the Joint Chief Executive and Support and Information Manager to develop proposals to develop and market the service that are joined-up with the support provided across our website, social media channels, Scan and face-to-face and virtual events.
2 Support, information and signposting
2.1 Ensure that high quality, up-to-date and evidence-based information is available to individuals and families living with TSC, and the professionals that support them. Regularly review, draft and develop new materials to support people affected by the condition.
2.2 Work with the Joint Chief Executive and Support and Information Manager to develop appropriate and consistent information to signpost TSA Support Line service users to external partner organisations that can provide specialist support for specific aspects of TSC (such as autism or mental health issues) and living with TSC (such as finding a job or facing bereavement).
2.3 Initiate and maintain regular contact with NHS TSC clinics across the UK to encourage greater communication and support between the TSA and TSC clinics. This could include encouraging clinics to join the NHS TSC Rare Disease Collaborative Network (RDCN), liaising with TSA Medical Advisers about medical support line enquiries, or working with clinics to better understand how the TSA can best help them.
2.4 Work closely with the rest of the TSA including communications, research and fundraising, to demonstrate current knowledge of the work of the organisation and developments in TSC.
2.5 Keep up to date with external events and news and draft relevant content for social media, physical media, e-news and the community magazine, Scan, to support and inform the TSC community.
2 TSA events
2.1 Attend TSA face-to-face and virtual events each year to market the TSA Support Line to people living with TSC, their families and professionals (up to approximately seven face-to-face events per year). General events assistance for the event on the day of face-to-face events will also be expected (for example, this could include time on the reception desk or directing attendees between sessions). Face-to-face events could include Outlook (for adults living with TSC), Big Day (our annual meeting for everyone in the TSC community), Family Fun Days (for younger families), TSA Togethers (regional events) and events for NHS TSC clinicians. Time off in lieu will be given for evening and weekend events, or events outside of your usual working days.
2.2 Help to generate ideas for sessions at TSA events by identifying any trends in information and support needs through the TSA Support Line.
4 Supporting health, social care and education professionals
4.1 Develop and maintain training and education materials to help health, social care and education professionals to better understand the impact of TSC.
4.2 Act as a point of contact for professionals who contact the TSA, working with colleagues to build credibility and strong working relationships with them.
Other requirements of the post
The post holder must be prepared to work flexibly to meet the needs of the organisation. This will entail occasional evening and weekend work. Regular travel within the UK will be needed for team meetings, TSA events and training provision. This would normally require access to a car (mileage will be paid) or travel by public transport (tickets will be paid).
The post holder will be expected to have adequate homeworking facilities to allow them to fulfil the role to the best of their abilities.
A DBS disclosure will be required prior to taking up post.
Training on helplines from the Helplines Partnership and on the Virtual Call Centre and database, Beacon, by the in-house team can be provided.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Are you passionate about helping people to do great things? Do you get a kick out of someone else’s joy as they reach their fundraising target? Are you an excellent communicator online and on the phone?
We are looking for a Community Fundraising Manager to develop our fundraising ambitions and work with our community.
This is a varied and interesting role which will give you the opportunity to see your impact first-hand, as you will be interacting daily with people whose lives are affected by PANS or PANDAS. You will also provide logistical and project management support on fundraising events.
Our small community means that our fundraisers tend to be families affected by PANS or PANDAS. We are passionate about creating opportunities for members of our community to support us in ways that create joy in their own lives. We intend that fundraising activities and events should help tackle the isolation and other difficulties that are faced by those living with these complex and misunderstood conditions.
Please submit your CV and a supporting statement of no more than one side of A4 by clicking the apply now button, explaining, with clear examples, how your skills and experience match the job description and person specification.
We utilise the anonymous recruitment provided by Charity Jobs and so will not process any applications which are emailed directly to us.
Applicants who do not submit a relevant supporting statement will not be shortlisted.
Please do not use Chat GPT or similar to write your covering letter. We much prefer to read applications written by humans, and any applications obviously created by AI will not be processed.
PANS PANDAS UK is the only UK charity supporting children and families living with the neuropsychiatric conditions PANS and PANDAS.
The client requests no contact from agencies or media sales.