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As Head of Planning and Performance, you will sit at the heart of decision-making, shaping how the Motor Neurone Disease (MND) Association focuses its effort, measures outcomes and delivers at pace. This role offers real influence in how strategy is planned and implemented.
You will transform data and insight into confident direction for our Executive Leadership Team and the Board. As Head of Planning and Performance, you will ensure priorities are clear, delivery is owned and progress is transparent. Your leadership and expertise will help ensure resources, strategy and outcomes are fully aligned.
You will play a vital role in strengthening our response to MND, ensuring urgency is matched by precision, and ambition by delivery. This is an excellent opportunity to shape how impact is planned, measured and effectively delivered at scale.
Key Responsibilities
- Lead annual and multi-year business planning, aligned to strategy goals and budgets
- Drive reprioritisation as insight, risk or opportunity emerges
- Develop performance reporting, management information and key performance indicators
- Lead impact reporting that demonstrates continuous progress and tangible outcomes
- Lead the Project Management Office and oversight of change delivery
- Represent delivery risks and interdependencies to senior leaders and the Board
About You
- Strong experience in strategic and operational planning
- Proven expertise in designing performance frameworks and KPI reporting
- Experience developing impact reporting aligned to strategic goals
- Confidence influencing senior leaders and Boards
- Excellent organisational and stakeholder engagement skills
- Experience leading teams and complex change
- Experience managing change projects and advocating for a continuous improvement culture.
Hybrid working expectations: office attendance one day per week
Further information about MND Association and full job description is available in the attached Candidate Pack.
We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.
As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.
What We Offer
- 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
- Access to UK Healthcare, including dental, eyecare, health screenings, and therapies
- 24/7 GP access via phone and video
- Life assurance and confidential counselling helplines
- Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
- Access to Benefit Hub for discounts on everyday shopping
- Enhanced pension scheme
- Opportunities for training and personal development
- Hybrid working
About Us
Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.
Registered Charity
101 - 500
We support people affected by Motor Neurone Disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.
The client requests no contact from agencies or media sales.
Thank you!
Annual leave: 33 days (plus eight bank holidays)
Benefits:
- enhanced maternity, paternity and adoption leave, and shared parental pay
- family-friendly policies
- 8% employer pension contribution (Aviva)
- life assurance cover at 3 x annual salary
- health cashback plan (Medicash): employee cover plus up to four dependent children
- 24/7 virtual GP access (UK registered), plus access to Best Doctors
- confidential employee assistance programme (Medicash)
- access to a wellbeing app
- flexible working options including hybrid working, flexible working patterns such as part-time, compressed hours, and more*
- learning and development opportunities including bespoke training and access to LinkedIn Learning)
- commitment to employee health and wellbeing. We have a Menopause Friendly accreditation and are a Disability Confident employer
At Dementia UK, we make sure families affected by dementia don’t face it alone. Through our specialist Admiral Nurses, we provide expert advice and support when it’s needed most. As we grow, it’s vital that we deliver our strategy in a collaborative and measurable way so we can continue to make the greatest possible difference.
We’re looking for a Strategy Delivery and Performance Manager to join our Project Management Office. This role sits at the centre of the organisation, helping to keep our strategy on track and ensuring progress is clearly understood.
Working across teams, you will map out and track the delivery of our strategy, using data to provide clear insight on performance, risks and opportunities. A key part of the role is turning data into meaningful, accessible information that supports confident decision-making.
You will build strong relationships across the organisation, working collaboratively while also being confident to challenge where needed. You’ll support senior stakeholders to prioritise effectively and embed consistent ways of working around strategy monitoring and performance management.
Alongside this, you will manage cross-organisational projects, ensuring they are well-planned and delivered successfully.
We’re looking for someone with experience of implementing strategy and monitoring and measuring performance, who is confident working with data and able to use it to tell a clear story. You don’t need charity experience, but you will bring strong stakeholder management, a collaborative approach and the ability to influence at all levels. We’ll also expect you to have strong project management skills.
Above all, you’ll be motivated by purpose and committed to helping Dementia UK deliver its strategy so that more families can access the support they need.
Our culture
In addition to offering a competitive salary and a generous benefits package, we truly value our people. It’s important for us to create a workplace culture that looks after our people to support them in achieving their full potential. You will become part of a diverse and dedicated team who are supported to use and develop their skills. We recognise and value the key role you will play in delivering our strategic plans for the benefit of those living with dementia.
Our staff have a voice. Representatives from different roles and levels across the organisation lead and positively contribute to our working groups around health and wellbeing, menopause, and equity, diversity and inclusion.
Our supportive and nurturing workplace culture has recently earnt us recognition as the Sunday Times Best Place to Work in the non-profit and charities sector 2025 (big organisation).
Dementia UK is proud to welcome everyone. We aim for a truly inclusive culture with talented, diverse teams that represent a variety of backgrounds, perspectives and skills. We celebrate differences and individuality and encourage everyone to feel comfortable being themselves at work.
Dementia UK is a Disability Confident employer.
By applying to join Dementia UK, you acknowledge that in the event you are successful for the role, any offer and your ongoing employment will be conditional on you having or obtaining the right to work in the UK.
*Please note that any decision on flexible working is based on business needs
The client requests no contact from agencies or media sales.
Thank you!
About the role
We are recruiting for a Research Participation Manager to join on a full-time, permanent contract working 35 hours per week. This is a home-based role, with occasional travel required for in-person stakeholder or team meetings.
As Research Participation Manager you will lead the operational delivery and support the strategic development of the Society’s research participation team. You will line manage and develop the Research Participation team and associated staff, overseeing programme performance and reporting, and ensuring all activity aligns with UK clinical research regulations, data governance requirements, and organisational priorities.
In this role, you will work collaboratively across the Society and with external partners. You will strengthen cross sector relationships, drive inclusive and culturally competent engagement, and enhance awareness of, and participation in, vital dementia research, particularly among underserved communities. Your role will also help to ensure the provision of high quality, safe, and compliant support for people accessing dementia clinical research opportunities.
You will provide leadership, expert guidance and robust programme management to maximise the reach, impact, and visibility of the Society’s research participation initiatives, increasing opportunities for people to become aware of, and participate in research; bringing forward the day when a dementia diagnosis no longer devastates lives.
About you
Joining us, you’ll have experience of working in clinical research, science or health sectors, with a good understanding of the processes and challenges facing the NHS. You’ll have experience of shaping and/or leading significant programmes of work with high exposure, with the ability to remain organised, prioritise effectively and meet deadlines.
Crucially, you’ll have good communication and interpersonal skills, with the ability to influence others and build and maintain positive relationships with a range of internal and external stakeholders. You’ll be able to use your experience of leading and managing a team to inspire and motivate others, creating a positive and proactive work culture.
This position will play a vital role in helping us to end the devastation caused by dementia. To be successful you’ll need to be motivated by our cause and values, and you’ll be able to speak to people affected by dementia with emotional intelligence, empathy and compassion.
What you’ll focus on:
- Leading, line managing and developing the Research Participation team, in addition to managing allocated staff, resources and any assigned budget to ensure all agreed internal and external targets are met.
- Assessing and managing of interdependencies between internal and external stakeholders involved in the Research Participation programme.
- Ensuring all participation support plans and / or awareness raising initiatives comply with the Association of the British Pharmaceutical Industry (ABPI) rules and codes of practice.
- Developing and delivering inclusive and culturally informed initiatives that raise awareness of, and improve equitable access to, clinical research opportunities, with a particular focus on underserved and diverse communities.
- Collaborating with Communications colleagues across the Society to support wider communication activities related to research participation and public research awareness.
- Working with the Lead Research Nurse, Research and Innovation Business Manager, and Project Management Office to ensure robust programme and risk management, and to evaluate the impact of research participation activities.
- Building impactful and sustainable relationships with a range of internal and external stakeholders across the dementia clinical trials landscape, seeking opportunities to collaborate on initiatives to drive increased awareness of, and participation in, dementia clinical research.
About Alzheimer's Society - who are we and what’s our mission?
Dementia is the UK’s biggest killer. One in three people born in the UK today will develop dementia in their lifetime.
At Alzheimer’s Society, we’re the UK’s leading dementia charity and the only one to tackle all aspects of dementia by giving help and hope to people living with dementia today and in the future. We give vital support to people facing the most frightening times of their lives, while also funding ground-breaking research and campaigning to make dementia the priority it should be.
Together with our supporters, we’re working towards a world where dementia no longer devastates lives. Our values make sure that our focus is clear for the challenges and opportunities ahead and remind us of what we all stand for.
Our commitment to Equity, Diversity, Inclusion & Belonging
We need to ensure the voices around our table better reflect and understand the communities we exist to serve. We strongly encourage individuals to apply who have a disability, impairment or health condition or individuals who identify as part of a minority ethnic background, as these groups are currently under-represented at Alzheimer's Society.
Our hiring process
We want you to bring your whole self to the process. Applications are anonymised until interview stage, and we’re happy to support any adjustments. Share your feedback via our candidate survey when applying to help us improve. We may close early if we receive high interest (with 48 hours’ notice). Some roles may require a DBS check as part of our safer recruitment commitment. Thinking about using AI during the recruitment process? We know this can be helpful in many ways but remember to include your personal and authentic self too. Your voice and experience are what really set you apart.
Giving back to you
At Alzheimer’s Society, we value our people and take a total reward approach to pay and benefits. You’ll enjoy a generous double-matched pension scheme, 27 days’ annual leave (plus bank holidays and wellbeing days), and access to a free Health Shield Cash Plan, 24/7 EAP, Thrive mental wellbeing support, and virtual GP services. Our Society Plus platform offers exclusive discounts, wellbeing resources, and recognition schemes, while our flexible working, family-friendly policies, and life assurance provide peace of mind and work/life balance. We also offer a free Will-writing service and long service awards to recognise your ongoing commitment.