Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.
Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.
If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.
As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.
About Dravet Syndrome UK
Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.
The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.
What you will bring
Essential
· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.
· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.
· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)
· Demonstrable experience of working in charity, patient advocacy or healthcare sectors
· Ability to deal with people at all levels with empathy, tact and credibility
· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences
· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website
· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively
· Strong organisational and project management skills, with the ability to prioritise
· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)
Desirable
· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development
Why join Dravet Syndrome UK?
Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.
The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.
Our commitment to diversity
As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.
Registered Charity 
6 - 10
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We have a fantastic opportunity for an enthusiastic, proactive and driven Fundraising Manager to join our team at Brain Tumour Support. You will be joining the team at an exciting time as we seek to grow our supporter base both locally and nationally.
You will assume responsibility for the delivery of the fundraising strategy to achieve ambitious unrestricted income targets through Corporate Partnerships, Community Fundraising and Individual Giving. Motivating and line managing a small, but growing fundraising team, you will ensure activity levels are on track to achieve both income and awareness targets for the charity.
Ideal candidates must come from a charity fundraising background, with the drive to inspire a team, grow income, build relationships and initiate opportunities for development of the fundraising function. This role will suit a dynamic and positive individual, with a proven track record and extensive experience of meeting demanding income targets within various income streams, one of which should be Corporate, community or individual fundraising. Experience of developing and leading a team to success is desirable for this role.
This in an exciting and varied role, that you will be able to really put your stamp on, working with a really engaged charity team and reporting to the Head of Fundraising and Operations.
We value our staff and offer a welcoming working environment with an enthusiastic and committed team. We can offer you:
- 25 days annual leave plus bank holidays
- Enhanced sickness pay scheme
- Flexible working and hybrid working patterns
- Family friendly and carer supportive policies
- Opportunities for training and development
- Robust supportive supervision, and 1:1’s
- Whole team working practices and opportunities to feel close to the support delivery
- Whole team charity away days once a year, with overnight stay and socials
- Staff engagement incentives throughout the year
- Wellbeing and mental health support
Our mission is that no-one feels alone when facing the effects of a brain tumour diagnosis and this is an exciting time to join the team as we look to the future.
The role has a requirement to work some evenings and weekends to meet supporter needs, and will require some travel. A full UK driving licence is essential.
If you would like an informal chat regarding the role, please contact Sarah or Emma
The client requests no contact from agencies or media sales.